Guest guest Posted February 26, 2007 Report Share Posted February 26, 2007 Hello CHARGE family, Through a friend in my hometown (Wheeling, WV), I have learned of a new little boy (Caleb) with CHARGE. You can read about him and his journey on his blog: http://caleb-paul-hlebiczki.blogspot.com/ I have told about our wonderful CHARGE internet family and asked her if it was ok to inform everyone of her sweet child. She would love all the prayers and support! Caleb's biggest obstacle at the moment is described in the following (from his blog): " Along with the CHARGE Caleb has also been diagnosed with Aytpical De Syndrome. He is the sixth case in the world. This Syndrome prevented Caleb from developing a Thymus. The Thymus is the part of the body responsible for creating and educating the cells that are responsible for immune system development. Caleb is now on the list for a Thymus Tissue Transplant which he will receive at Duke Medical Center in Raleigh Durham, NC. This transplant will hopefully allow Caleb's body to have a functioning Immune System. We should be at Duke University for approximately 5-6 months to see how his body reacts to the transplant. " *** Please keep Caleb and his family in your prayers during this difficult time. Thanks everyone! Love, Amy and Mighty Maxwell Amy McKinley Mom to MIGHTY MAX -- cHARGE, 19 months old (17 months corrected) maxupdate.blogspot.com --------------------------------- Need a quick answer? Get one in minutes from people who know. Ask your question on Yahoo! Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2007 Report Share Posted February 26, 2007 amy that family r in my thoghts im looking at his blog now and his old oen wich i found there he is such a big fighter and u can also tell him mum that a few chargers out here in aus i know have the two syndromes it is a common factor i think well eveas mum has it as a common thing on her explanation of charge on evas msn group hugs ellen > > Hello CHARGE family, > > Through a friend in my hometown (Wheeling, WV), I have learned of a new > little boy (Caleb) with CHARGE. You can read about him and his journey on > his blog: > http://caleb-paul-hlebiczki.blogspot.com/ > > I have told about our wonderful CHARGE internet family and asked her > if it was ok to inform everyone of her sweet child. She would love all the > prayers and support! > > Caleb's biggest obstacle at the moment is described in the following (from > his blog): > > " Along with the CHARGE Caleb has also been diagnosed with Aytpical > De Syndrome. He is the sixth case in the world. This Syndrome > prevented Caleb from developing a Thymus. The Thymus is the part of the body > responsible for creating and educating the cells that are responsible for > immune system development. Caleb is now on the list for a Thymus Tissue > Transplant which he will receive at Duke Medical Center in Raleigh Durham, > NC. This transplant will hopefully allow Caleb's body to have a functioning > Immune System. We should be at Duke University for approximately 5-6 months > to see how his body reacts to the transplant. " > > > *** Please keep Caleb and his family in your prayers during this difficult > time. Thanks everyone! > > > Love, Amy and Mighty Maxwell > > Amy McKinley > Mom to MIGHTY MAX -- cHARGE, 19 months old (17 months corrected) > maxupdate.blogspot.com > > --------------------------------- > Need a quick answer? Get one in minutes from people who know. Ask your > question on Yahoo! Answers. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2007 Report Share Posted February 26, 2007 He of course will be in our thoughts and prayers. Crystal mom to (11), (3), and Eva (22 month old CHARGEr) wife to Dan in Illinois > > Hello CHARGE family, > > Through a friend in my hometown (Wheeling, WV), I have learned of a new little boy (Caleb) with CHARGE. You can read about him and his journey on his blog: > http://caleb-paul-hlebiczki.blogspot.com/ > > I have told about our wonderful CHARGE internet family and asked her if it was ok to inform everyone of her sweet child. She would love all the prayers and support! > > Caleb's biggest obstacle at the moment is described in the following (from his blog): > > " Along with the CHARGE Caleb has also been diagnosed with Aytpical De Syndrome. He is the sixth case in the world. This Syndrome prevented Caleb from developing a Thymus. The Thymus is the part of the body responsible for creating and educating the cells that are responsible for immune system development. Caleb is now on the list for a Thymus Tissue Transplant which he will receive at Duke Medical Center in Raleigh Durham, NC. This transplant will hopefully allow Caleb's body to have a functioning Immune System. We should be at Duke University for approximately 5-6 months to see how his body reacts to the transplant. " > > > *** Please keep Caleb and his family in your prayers during this difficult time. Thanks everyone! > > > Love, Amy and Mighty Maxwell > > > Amy McKinley > Mom to MIGHTY MAX -- cHARGE, 19 months old (17 months corrected) > maxupdate.blogspot.com > > --------------------------------- > Need a quick answer? Get one in minutes from people who know. Ask your question on Yahoo! Answers. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2007 Report Share Posted February 26, 2007 Amy, Thanks for this! Caleb sure is a cutie!!! pam > > -- Pamela J. , M.A., CAGS Licensed Educational Psychologist Deafblind Program Perkins School for the Blind 175 N. Beacon St. Watertown, MA 02472 Quote Link to comment Share on other sites More sharing options...
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