Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 This nickel free diet is not working for me. My IBS is so bad I can barely function. Even with all the meds the doc got me on I feel like I have the flu, but no flu symptoms other than the stomach feeling like it has been kicked 100 times.Vomitting, Diahrea and all that fun stuff. I decided I need to add the fibre, whole wheat foods back into my diet. Call it the lesser of two evils. I am shakey and I am also thinking it is throwing the thyroid off more or because I am hypoglycemic that I am not getting enough complex carbs and my sugar is constantly too low. Things like Cobalt( B12) , Thiuram mix( fungicides and rubber gloves) and the soap at work seem to be my major triggers as far as immediate severe allergic reactions go so obviously I can not go around pretending I do not have any allergies. The nickel in food causing anything other than a rash is controversial. I do realize being in a state of even low allergic build up is hard on the system long term. What I need though is to some how find a list of nickel content in foods? More or less which ones are the higher ones and which ones are lower that I could add back into the diet? I am concerned with mainly the fibre grains and type as the others are easier to avoid. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Just a suggestion (please don't throw anything or shout ! lol) but it sounds to me like a reaction to a goitrogen (especially soy) and/or adrenals. How do you shape up on those ? Lili > >Reply-To: The_Thyroid_Support_Group >To: The_Thyroid_Support_Group >Subject: ideas? >Date: Wed, 24 Jan 2007 21:43:01 -0000 > >This nickel free diet is not working for me. My IBS is so bad I can >barely function. Even with all the meds the doc got me on I feel >like I have the flu, but no flu symptoms other than the stomach >feeling like it has been kicked 100 times.Vomitting, Diahrea and all >that fun stuff. >I decided I need to add the fibre, whole wheat foods back into my >diet. Call it the lesser of two evils. >I am shakey and I am also thinking it is throwing the thyroid off >more or because I am hypoglycemic that I am not getting enough >complex carbs and my sugar is constantly too low. >Things like Cobalt( B12) , Thiuram mix( fungicides and rubber >gloves) and the soap at work seem to be my major triggers as far as >immediate severe allergic reactions go so obviously I can not go >around pretending I do not have any allergies. >The nickel in food causing anything other than a rash is >controversial. I do realize being in a state of even low allergic >build up is hard on the system long term. >What I need though is to some how find a list of nickel content in >foods? More or less which ones are the higher ones and which ones >are lower that I could add back into the diet? I am concerned with >mainly the fibre grains and type as the others are easier to avoid. > >Kats3boys > _________________________________________________________________ Découvrez le Blog heroic Fantaisy d'Eragon! http://eragon-heroic-fantasy.spaces.live.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 I may have said this before, but have you eliminated high fructose corn syrup from your diet. I've read that consumption of this ingredient, is a major contributing factor for IBS. That's one of the reasons that many IBS sufferers are soda (pop) drinkers. I was shaky and had diarrhea when I was on full Armour too. I realize that you've probably visited all this stuff before, but it's what came to mind when I read it. Sorry if it's old news... Judy JudyP – God doesn't make junk. Finding fabulous fares is fun.Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 You should be able to talk to a good allergy doctor or internal medicine specialist about this. You are definitely describing anaphylactic shock symtoms!! Talk to a nutritionist to. They will know what you can do. Don't give up!!! . When I'm having a reaction like that, all I can do is drink water and lay down. I usually sleep for a few hours to. Do you take adrenal support? I'm completely convinced that everyone who has allergies like we do should get adrenal meds. I get ones from nutrimeds and use those whenever I feel 'anaphylacticy'. And you know what? They help sooooooooooooo much. It's the only time I take them, so I know they won't hurt my kidneys or anything. It's something worth looking into. I use a 1/4 tab each 'dose'. If I still have the problem in 1/2 an hour-1 hour, I take another 1/4 tab. They work like epi pens but are slow acting. It makes sense to me that if your adrenal glands are constantly being taxed then they will need back up. Having allergies means our adrenal glands are constantly being drained because they have to keep our body from crapping out, whenever we have a reaction. Over time if there isn't enough hormones to diffuse a reaction, we develop adrenal fatigue. Once again.. personal theory there but I honestly don't see why docs don't string that one together. Oh wait... allergy docs do! They rx us those little epi pens LOL. Good luck Kat! _____________________________Any information given or dispensed by myself is from my own experience and I am not a medical professional - yet . It is not intended to treat, cure, diagnose, etc. but only to help other patients gain information and understanding of their own conditions or possibly an underlying illness. Please consult with your doctor or a trained medical professional regarding your own personal case history and your best treatment options. ideas? This nickel free diet is not working for me. My IBS is so bad I can barely function. Even with all the meds the doc got me on I feel like I have the flu, but no flu symptoms other than the stomach feeling like it has been kicked 100 times.Vomitting, Diahrea and all that fun stuff.I decided I need to add the fibre, whole wheat foods back into my diet. Call it the lesser of two evils.I am shakey and I am also thinking it is throwing the thyroid off more or because I am hypoglycemic that I am not getting enough complex carbs and my sugar is constantly too low.Things like Cobalt( B12) , Thiuram mix( fungicides and rubber gloves) and the soap at work seem to be my major triggers as far as immediate severe allergic reactions go so obviously I can not go around pretending I do not have any allergies.The nickel in food causing anything other than a rash is controversial. I do realize being in a state of even low allergic build up is hard on the system long term.What I need though is to some how find a list of nickel content in foods? More or less which ones are the higher ones and which ones are lower that I could add back into the diet? I am concerned with mainly the fibre grains and type as the others are easier to avoid.Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 > > Just a suggestion (please don't throw anything or shout ! lol) but it sounds > to me like a reaction to a goitrogen (especially soy) and/or adrenals. How > do you shape up on those ? > > Lili > Soy is one of the foods I can not touch so I know it is not that. Adrenals?? Have no idea on..everything I have read regarding testing, adrenals vs hypo etc do not fit the bill so to say. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 > > I may have said this before, but have you eliminated high fructose corn syrup from your diet. I've read that consumption of this ingredient, is a major contributing factor for IBS. That's one of the reasons that many IBS sufferers are soda (pop) drinkers. I was shaky and had diarrhea when I was on full Armour too. I realize that you've probably visited all this stuff before, but it's what came to mind when I read it. Sorry if it's old news... Judy > > JudyP – God doesn't make junk. > My processed allowed ingredients is 3 items.lol sorry, I never worried about the high fructose because I never consume it..Not a pop drinker. I guess I should of said I have had IBS since 1991. Usually diet does the trick, avoid triggers, eat grains daily..only time I know I have it is either a trigger or when I am sick with a cold/flu..I have to force myself to eat..not eating is a big trigger for me. The problem lays with the nickel free diet.. I have taken out all the grains, fibres and replaced with white bread etc which is a main trigger for me..even avoid white bread all together it is still getting worse. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 > > You should be able to talk to a good allergy doctor or internal medicine specialist about this. You are definitely describing anaphylactic shock symtoms!! Talk to a nutritionist to. They will know what you can do. Don't give up!!! . > The nutrionist and allergist said it was basically a catch 22..remove everything I am allergic too and suffer IBS and be nutrient defficent or take care of nutrients and the IBS and suffer allergies. I was hoping as the dietican reccomended I could go on meds for the IBS and remove the foods and see if the stomach calms down..but the longer I am with out the worse shape my digestive track seems to be. I woke the boys up this morning and had to get my oldest to help with breakfast and lunch and walk his brothers to school..I could not stand to do it..got the two younger ones and my niece after school as the oldest has basketball game and it was hard, really hard to walk in pain..ended up sick as soon as I got home. I really think for me , it is a combination of the IBS being triggered and not enough calories, food intake , complex carb type of thing. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Kats, I happen to be reading a book called,"Patient Heal Thyself" by Jordon S. Rubin he was the worst case of Chron's desease ever documented. ( He was 19 at the time ) Chron's from what I have read has alot of the same problems as IBS, some docs even say it is the same thing. I can not even begin to go into all the stuff he wrote, so I would HIGHLY advise you go to the library & pick up his book. I will not give you advise as I believe you need to read the book yourself, as I could say something wrong & mess you up in this case as I have not done tons of research on it. This guy was literly skin hanging on a skeleton. So check it out if you feel inspired to do so. Cindy Sue> This nickel free diet is not working for me. My IBS is so bad I can > barely function. Even with all the meds the doc got me on I feel > like I have the flu, but no flu symptoms other than the stomach > feeling like it has been kicked 100 times.Vomitting, Diahrea and all > that fun stuff.> Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Crohn's is different than IBS, although the beginning symptoms are so similar that it's often misdiagnosed. And don't forget the ulcerative colitis that shows up in between. My brother has Chroh's. He was diagnosed first with IBS and lived with that for a few years. Then he got to the point that Cindy Sue is talking about where I was sure he was going to die. He lost so much weight and could barely lift his head off the couch and it took all of his energy to speak. He was then diagnosed with Ulcerative Colitis and had his colon removed. He had a bag for 6 months and then they put him back together again. He did well with that for some time, until he got a big open sore on his butt. They treated it as an abscess for a while, but it would not heal. They then discovered that it was a fistula, a sci-fi like 'tunnel' inside your body. The presence of fistulas indicated the presence of Crohn's. That's how they differentiate. Right now, his fistula goes from his intestines to the outside of his body - a tunnel from the intestines to his butt. The worry is that other fistulas will grow to other major organs and it can then be quite a problem as you can imagine. There is a lot of information online about IBS, Ulcerative Colitis and Crohn's Disease that will help you know if you've progressed from one to the other. They're all a little different, but they're all serious in their own right... Judy "Once Crohn's disease begins, it can cause intermittent, lifelong symptoms by inflaming the inside lining and deeper layers of the intestine wall. The irritated intestine lining can thicken or wear away in spots (creating ulcers) or in cracks (creating fissures). Inflammation can also allow an abscess (a pocket of pus) to develop. In between attacks of inflammation, the intestine attempts to heal by recoating itself with a new inside lining. When the inflammation has been severe, the intestine can lose its ability to distinguish the inside of one piece of intestine from the outside of another piece. As a result, it can mistakenly build a lining along the edges of an ulcer that has worn through the whole wall of the gut, creating a fistula -- a permanent tunnel between one piece of gut and another. A fistula can sometimes even form between the gut and the skin surface, creating drainage of mucous to the skin." Get your own web address. Have a HUGE year through Yahoo! Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 If your IBS is being triggered... I wonder if you're having malabsorption problems with vitamins/minerals. Have they mentioned anything about that? Re: ideas? >> You should be able to talk to a good allergy doctor or internal medicine specialist about this. You are definitely describing anaphylactic shock symtoms!! Talk to a nutritionist to. They will know what you can do. Don't give up!!! . > The nutrionist and allergist said it was basically a catch 22..remove everything I am allergic too and suffer IBS and be nutrient defficent or take care of nutrients and the IBS and suffer allergies.I was hoping as the dietican reccomended I could go on meds for the IBS and remove the foods and see if the stomach calms down..but the longer I am with out the worse shape my digestive track seems to be.I woke the boys up this morning and had to get my oldest to help with breakfast and lunch and walk his brothers to school..I could not stand to do it..got the two younger ones and my niece after school as the oldest has basketball game and it was hard, really hard to walk in pain..ended up sick as soon as I got home.I really think for me , it is a combination of the IBS being triggered and not enough calories, food intake , complex carb type of thing.Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 Soy isn't the only danger on this front, you know. A lot of people won't believe it, but other goitrogens can have pretty nasty effects too. For me it's walnuts, strawberries and pears. And the reason I thought of goitrogens is because you talked about flu-like symptoms, and that's just how I feel if I eat any of them. As for adrenals, I'm afraid I'm not an expert - even though mine have now packed up and I'm on complete replacement therapy. But I do know that when I'm short on cortisol, I have diarrhoea and terrible pains EVERYWHERE ! And bad fatigue. But there are some symptoms common to adrenals and hypo, so it's difficult to be sure. Might be worth investigating. Hope this helps, Lili > > >Soy is one of the foods I can not touch so I know it is not that. >Adrenals?? Have no idea on..everything I have read regarding testing, >adrenals vs hypo etc do not fit the bill so to say. > >Kats3boys > _________________________________________________________________ Personnalisez votre Messenger avec Live.com http://www.windowslive.fr/livecom/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 > > Soy isn't the only danger on this front, you know. A lot of people won't > believe it, but other goitrogens can have pretty nasty effects too. For me > it's walnuts, strawberries and pears. And the reason I thought of goitrogens > is because you talked about flu-like symptoms, and that's just how I feel if > I eat any of them. As for adrenals, I'm afraid I'm not an expert - even > though mine have now packed up and I'm on complete replacement therapy. But > I do know that when I'm short on cortisol, I have diarrhoea and terrible > pains EVERYWHERE ! And bad fatigue. But there are some symptoms common to > adrenals and hypo, so it's difficult to be sure. Might be worth > investigating. > > Hope this helps, > > Lili > > All I know is yesterday afternoon I gave up..added wheat cereals and whole wheat bread back into the diet..I feel so much better..not back to normal yet, but on my way back to normal. Hopefully come Monday/Tuesday I should be back to normal. Kats3boys Quote Link to comment Share on other sites More sharing options...
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