Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 Tim, this is great! You described me to a tee. I printed it and going to show it to 's teacher or who ever when necessary! Cathie, mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 OK, I think I will share this with you too. This is my CHARGE Mother Behavioral Phenotype: CHARGE Mother Behavioral Phenotype 1. Above average cognitive functioning, and near genius when it comes to baffling medical terminology. 2. Persistently focused on advocacy for her child. 3. Experiences little need to be socially appropriate when facing difficult professionals. 4. Repeats things over and over because the professionals need extra reminders. 5. May experience sensory meltdowns after school meetings and medical appointments. 6. When confronted with difficult professionals may lose behavioral control. 7. Professionals may have a hard time getting them off track and shifting their attention to irrelevant perspectives. Tim Hartshorne, husband to a CHARGE Mother S. Hartshorne, Ph.D. Professor of Psychology Central Michigan University Mount Pleasant, MI 48859 phone fax tim.hartshorne@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 I love this Tim! But I think it applies to some Dad's too. I had an advantage when our son was born, in that my professional background provided me with familiarity to medical terminology and some of the problems Evan faces. My husband, , is a carpenter--he had no such advantage. But he continues to amaze me with the depth of knowledge he has accumulated over the past year, the speed at which he is learning ASL (mostly on his own, at home with our son during the day), and the voice he has found to advocate for our son's needs (my husband is pretty shy by nature). So cheers all around to all of the wonderful Moms and Dads out there, who work so hard every single day to make sure that their son or daughter has the best life possible! (mom to Evan, 14 months and wife to , truly a Super Dad!) " Hartshorne, S " wrote: OK, I think I will share this with you too. This is my CHARGE Mother Behavioral Phenotype: CHARGE Mother Behavioral Phenotype 1. Above average cognitive functioning, and near genius when it comes to baffling medical terminology. 2. Persistently focused on advocacy for her child. 3. Experiences little need to be socially appropriate when facing difficult professionals. 4. Repeats things over and over because the professionals need extra reminders. 5. May experience sensory meltdowns after school meetings and medical appointments. 6. When confronted with difficult professionals may lose behavioral control. 7. Professionals may have a hard time getting them off track and shifting their attention to irrelevant perspectives. Tim Hartshorne, husband to a CHARGE Mother S. Hartshorne, Ph.D. Professor of Psychology Central Michigan University Mount Pleasant, MI 48859 phone fax tim.hartshorne@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 This is a keeper! Thanks for sharing, Tim Now for a behavioural phenotype of some of the professionals I've dealt with...okay maybe not! -- " It is far better to grasp the universe as it really is than to persist in delusion, however satisfying and reassuring. " --Carl Sagan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 Tim, this is really excellent about CHARGE mother behavior phenotypes. :-) Thanks for such a cool e-mail. Best of luck with your Australian adventure. CHARGE mother's > OK, I think I will share this with you too. This is my CHARGE Mother > Behavioral Phenotype: > > > > CHARGE Mother Behavioral Phenotype > > > > 1. Above average cognitive functioning, and near genius when it > comes to baffling medical terminology. > > > > 2. Persistently focused on advocacy for her child. > > > > 3. Experiences little need to be socially appropriate when > facing difficult professionals. > > > > 4. Repeats things over and over because the professionals need > extra reminders. > > > > 5. May experience sensory meltdowns after school meetings and > medical appointments. > > > > 6. When confronted with difficult professionals may lose > behavioral control. > > > > 7. Professionals may have a hard time getting them off track and > shifting their attention to irrelevant perspectives. > > > > Tim Hartshorne, husband to a CHARGE Mother > > > > S. Hartshorne, Ph.D. > > Professor of Psychology > > Central Michigan University > > Mount Pleasant, MI 48859 > > phone > > fax > > tim.hartshorne@... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 I love that and its so true!! I think we should all post that one our kids sites (if you have one). Good Work!! Crystal mom to (10), (3), and Eva (17 month old CHARGEr) wife to Dan > > OK, I think I will share this with you too. This is my CHARGE Mother > Behavioral Phenotype: > > > > CHARGE Mother Behavioral Phenotype > > > > 1. Above average cognitive functioning, and near genius when it > comes to baffling medical terminology. > > > > 2. Persistently focused on advocacy for her child. > > > > 3. Experiences little need to be socially appropriate when > facing difficult professionals. > > > > 4. Repeats things over and over because the professionals need > extra reminders. > > > > 5. May experience sensory meltdowns after school meetings and > medical appointments. > > > > 6. When confronted with difficult professionals may lose > behavioral control. > > > > 7. Professionals may have a hard time getting them off track and > shifting their attention to irrelevant perspectives. > > > > Tim Hartshorne, husband to a CHARGE Mother > > > > S. Hartshorne, Ph.D. > > Professor of Psychology > > Central Michigan University > > Mount Pleasant, MI 48859 > > phone > > fax > > tim.hartshorne@... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 Ok - now you're freaking me out. You know Aubrie and me inside and out!!! Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 wow tim i think youve jsut dexcribed mum to and you have known her more than ten years LOL and alot of mums in the aus assotication think u no which ones i mean:) love u hope to see u soon but if i dotn give rob a hugs hug for me > > Ok - now you're freaking me out. You know Aubrie and me inside and > out!!! > > Michele W > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 Tim What about dad's like you and me! Simon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 Hi Ellen. Your mum was certainly one of the role models for my behavioral phenotype. I hope you make it, but if not, I will certainly give Rob a hug for you. Tim S. Hartshorne, Ph.D. Professor of Psychology Central Michigan University Mount Pleasant, MI 48859 phone fax tim.hartshorne@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 Love it, love it, love it. I'm printing that one out! Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 Tim, My daughter is a sophomore at CMU and she had the pleasure of listening to you speak about CHARGE iin her psych class this past week. She did introduce herself to you at the end of your lecture. She got a lot out of what you said and she really appreciated listening to you. Of course, her brother (our son, 15) has CHARGE and his name is Bradley. Thanks so much! Cindy Krencicki > >Reply-To: CHARGE >To: <CHARGE > >Subject: Re: CHARGE mother's >Date: Thu, 14 Sep 2006 09:14:02 -0400 > >Hi Ellen. Your mum was certainly one of the role models for my >behavioral phenotype. I hope you make it, but if not, I will certainly >give Rob a hug for you. > > > >Tim > > > > S. Hartshorne, Ph.D. > >Professor of Psychology > >Central Michigan University > >Mount Pleasant, MI 48859 > > phone > > fax > >tim.hartshorne@... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 Hi Cindy, It was really nice to meet . Also, thanks for having participated in some of my research! I did email to see if she might be interested in helping with a research project we are interested in doing on CHARGE siblings. I have not heard back from her. Maybe she does not use her CMU email. If you have contact with her, ask her for me. Thanks, Tim Quote Link to comment Share on other sites More sharing options...
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