Re: and adults who have CHARGE

[Guest guest]

bonne happy bday to patty from me pls xxxxxxx

>

> ,

>

> Welcome to this group. But oh there's so much more.

>

> I am the parent of a daughter who will be 22 tomorrow who has CHARGE. She

> is

> considered to be on the mild end of the spectrum. She wasn't diagnosed

> with

> CHARGE till she turned 14. From then on life made sense. But it made even

> better sense when we went to our first CHARGE Foundation conference and we

>

> haven't missed one from then on. As a matter of fact it helped so much I

> joined

> the Board of Directors for the Foundation and am the Chair for the

> committe of

> Adults who have CHARGE. There are about 12 other parents and 8

> professionals

> on the committee. You are so not alone anymore!

>

> Please join our group and join the foundation. It appears you need a hand

> to

> hold and guidance through this maze. Life for the adult is just so very

> hard. The protections are not in place like birth to 22. Oh how important

> that

> is for all to listen.

>

> With being the chair of the committee I am also incredibly lucky to live

> close to the Perkins School for the Blind. They have a phenomenal

> deaf/blind

> program and also have an outreach program. They have a wealth of

> information

> right at their hands. Would it be all right with you if I talked to a few

> professionals about you and your daughter?

>

> I'm glad you joined and I am so looking forward to getting to know you.

>

> Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to

>

>

[Guest guest]

Tell patty i said happy b day to herto.

-- In CHARGE , " ellen howe " wrote:

>

> bonne happy bday to patty from me pls xxxxxxx

>

>

> >

> > ,

> >

> > Welcome to this group. But oh there's so much more.

> >

> > I am the parent of a daughter who will be 22 tomorrow who has

CHARGE. She

> > is

> > considered to be on the mild end of the spectrum. She wasn't

diagnosed

> > with

> > CHARGE till she turned 14. From then on life made sense. But it

made even

> > better sense when we went to our first CHARGE Foundation

conference and we

> >

> > haven't missed one from then on. As a matter of fact it helped

so much I

> > joined

> > the Board of Directors for the Foundation and am the Chair for

the

> > committe of

> > Adults who have CHARGE. There are about 12 other parents and 8

> > professionals

> > on the committee. You are so not alone anymore!

> >

> > Please join our group and join the foundation. It appears you

need a hand

> > to

> > hold and guidance through this maze. Life for the adult is just

so very

> > hard. The protections are not in place like birth to 22. Oh how

important

> > that

> > is for all to listen.

> >

> > With being the chair of the committee I am also incredibly lucky

to live

> > close to the Perkins School for the Blind. They have a phenomenal

> > deaf/blind

> > program and also have an outreach program. They have a wealth of

> > information

> > right at their hands. Would it be all right with you if I talked

to a few

> > professionals about you and your daughter?

> >

> > I'm glad you joined and I am so looking forward to getting to

know you.

> >

> > Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to

> >

> >