Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 I have been Hypothyroid (Hashimoto's Thyroiditis) for 3 years and have been on Synthroid 25mcg since. I continue to feel tired all the time. I have my levels checked more than the average bear it seems. I seem to be gaining weight too. My memory is AWFUL and I can't concentrate. I am to be studying for my Insurance Liscense exam but how can I?!! I am rather frustrated. I just ran across a supplement called, Raw Thyroid. Could this help me.. has anyone used this with their meds? Suggestions? Tired of this, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 If you can post your lab results with ranges, we can look at them . I'm not your doctor, but 25mcg Synthroid for 3 years does not sound like a lot. I've heard of people starting at that dose, but I've never heard of anyone staying on it for that length of time. It sounds like you are having hypot symptoms for sure, but the labs will help us help you. I have been Hypothyroid (Hashimoto's Thyroiditis) for 3 years and have been on Synthroid 25mcg since. I continue to feel tired all the time. I have my levels checked more than the average bear it seems. I seem to be gaining weight too. My memory is AWFUL and I can't concentrate. I am to be studying for my Insurance Liscense exam but how can I?!! I am rather frustrated. I just ran across a supplement called, Raw Thyroid. Could this help me.. has anyone used this with their meds? Suggestions? Bored stiff? Loosen up...Download and play hundreds of games for free on Yahoo! Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 25 mcg is an extremely small dose... likely won't do much more than lower whatever production you have... and won't do anything, I would think, to manage the Hashi's.... what have your labs looked like? As for as the raw thyroid... look at the ingredients.... if you see any vitamins listed, any herbs... anything like that... it's only a thyroid stimulator with 'deactivated' glandular concentrate. It won't do anything to help your low thyroid levels other than to stress your gland into trying to increase production which will trigger the Hashi's antibodies to intensify their attack... Topper () On Sun, 21 Jan 2007 21:01:03 -0000 " jessica_glamour " mayfieldfan_19@...> writes: > I have been Hypothyroid (Hashimoto's Thyroiditis) for 3 years and > have > been on Synthroid 25mcg since. I continue to feel tired all the > time. I > have my levels checked more than the average bear it seems. I seem > to > be gaining weight too. My memory is AWFUL and I can't concentrate. I > am > to be studying for my Insurance Liscense exam but how can I?!! I am > > rather frustrated. I just ran across a supplement called, Raw > Thyroid. > Could this help me.. has anyone used this with their meds? > Suggestions? > > Tired of this, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 25 mcgs?! That's a barely-there dose, just enough to slow things down even more (with the thyroid itself). Meanwhile, the thyroid itself continues to function and destroy itself even more so. You need another doctor who understands this. With Hashi's, that's detrimental. Armour Thyroid may be right for you, it may not. It depends on your own individual chemistry and what's good for you. But, one thing I know, 25 mcgs of T4 is not enough for ANYone, across the board, it's just enough to make you more miserable. Raw Thyroid? >I have been Hypothyroid (Hashimoto's Thyroiditis) for 3 years and have > been on Synthroid 25mcg since. I continue to feel tired all the time. I > have my levels checked more than the average bear it seems. I seem to > be gaining weight too. My memory is AWFUL and I can't concentrate. I am > to be studying for my Insurance Liscense exam but how can I?!! I am > rather frustrated. I just ran across a supplement called, Raw Thyroid. > Could this help me.. has anyone used this with their meds? Suggestions? > > Tired of this, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 I have never heard of Raw Thyroid, and I think I'm going to join the band wagon with the 25 mcg. My doctor started me on 88 mcg in November and now has upped it to 138 mcg (Synthroid), and they have told m that they will probably up it again when I have my next bloodtest in March. I feel for you though.. it's not fun with hypo... though I've heard it's not fun with hyper either. Liz We won't tell. Get more on shows you hate to love(and love to hate): Yahoo! TV's Guilty Pleasures list. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 I'm been long term hyper, I've been in thyroid storm. I've been rock bottom hypo and long term hypo.... Hyper is bad, Thyroid storm is the worst. Hypo sucks, rock bottom hypo sucks more... but when the hyper gets up there.. and you're crawling inside your skin and your brain feels like worms crawling inside of it..... When you can never shut off the brain, and never get enough to eat... not good... not good at all. IMHO of course Topper () On Sun, 21 Jan 2007 19:53:22 -0800 (PST) Rockin Army Wife writes: I have never heard of Raw Thyroid, and I think I'm going to join the band wagon with the 25 mcg. My doctor started me on 88 mcg in November and now has upped it to 138 mcg (Synthroid), and they have told m that they will probably up it again when I have my next bloodtest in March. I feel for you though.. it's not fun with hypo... though I've heard it's not fun with hyper either. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 > > I'm been long term hyper, I've been in thyroid storm. I've been rock > bottom hypo and long term hypo.... > > Hyper is bad, Thyroid storm is the worst. > > Hypo sucks, rock bottom hypo sucks more... but when the hyper gets up > there.. and you're crawling inside your skin and your brain feels like > worms crawling inside of it..... When you can never shut off the brain, > and never get enough to eat... not good... not good at all. > > IMHO of course > > Topper () > lol..love your way with words..sounds much better than trying to explain to people you feel like you have a blender going on inside. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 That's very very interesting. I have never looked at it in that way. Can I take you aside with me to my next endoc visit..haha I just had my TSH blood test by my nurse pract and it was 1.096 (limits: .350-5.500) What do you think? Oh and it's my understanding that some docs don't use the armour, do you know why and how I can find out who does in my area? Thanks > > 25 mcgs?! That's a barely-there dose, just enough to slow things down even > more (with the thyroid itself). Meanwhile, the thyroid itself continues to > function and destroy itself even more so. You need another doctor who > understands this. With Hashi's, that's detrimental. Armour Thyroid may be > right for you, it may not. It depends on your own individual chemistry and > what's good for you. But, one thing I know, 25 mcgs of T4 is not enough for > ANYone, across the board, it's just enough to make you more miserable. > > > > Raw Thyroid? > > > >I have been Hypothyroid (Hashimoto's Thyroiditis) for 3 years and have > > been on Synthroid 25mcg since. I continue to feel tired all the time. I > > have my levels checked more than the average bear it seems. I seem to > > be gaining weight too. My memory is AWFUL and I can't concentrate. I am > > to be studying for my Insurance Liscense exam but how can I?!! I am > > rather frustrated. I just ran across a supplement called, Raw Thyroid. > > Could this help me.. has anyone used this with their meds? Suggestions? > > > > Tired of this, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 OMGosh I don't need my prescription to lower my production ... That is a scary thought. Here is what I planned on purchasing out of desperation: Ultra Raw Thyroid is a glandular extract of the endocrine gland responsible for controlling metabolism and growth and may benefit individuals with slow metabolism, low energy, melancholy, cold hands and feet, and restlessness. New. Easy to Digest Capsules. Dietary Supplement. Whole Raw tissue concentrated from bovine sources specially processed (freeze-dried) at or below -5'C to preserve natural occurring vitamins, enzymes, nucleotides, lipoproteins and all other cellular components. Raw tissue concentrates imported from New Zealand are made from toxin-free lyophilized glands from animals grazed on rangeland free of pesticides, growth hormones, antibiotics or chemical additives. Ingredients: Thyroid Tissue, Adrenal Tissue, Pituitary Tissue, Thymus Tissue, Spleen Tissue, Kelp. (http://www.evitamins.com/product.asp?pid=2728) Sorry to post a website but I wanted all of you to see and let me know what you think. Thanks f > > 25 mcg is an extremely small dose... likely won't do much more than lower > whatever production you have... and won't do anything, I would think, to > manage the Hashi's.... what have your labs looked like? > > As for as the raw thyroid... look at the ingredients.... if you see any > vitamins listed, any herbs... anything like that... it's only a thyroid > stimulator with 'deactivated' glandular concentrate. It won't do anything > to help your low thyroid levels other than to stress your gland into > trying to increase production which will trigger the Hashi's antibodies > to intensify their attack... > > Topper () > > On Sun, 21 Jan 2007 21:01:03 -0000 " jessica_glamour " > writes: > > I have been Hypothyroid (Hashimoto's Thyroiditis) for 3 years and > > have > > been on Synthroid 25mcg since. I continue to feel tired all the > > time. I > > have my levels checked more than the average bear it seems. I seem > > to > > be gaining weight too. My memory is AWFUL and I can't concentrate. I > > am > > to be studying for my Insurance Liscense exam but how can I?!! I am > > > > rather frustrated. I just ran across a supplement called, Raw > > Thyroid. > > Could this help me.. has anyone used this with their meds? > > Suggestions? > > > > Tired of this, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 Thanks for your support Liz. Hypo is crazy.. and how are you suppose to tell your co-workers and make them understand how you feel and how you FORGET all the time. I feel so stupid. I am 27 and I'm sure they think I'm a constant sickness or complaint. What to do... what to do... > > I have never heard of Raw Thyroid, and I think I'm going to join the band wagon with the 25 mcg. My doctor started me on 88 mcg in November and now has upped it to 138 mcg (Synthroid), and they have told m that they will probably up it again when I have my next bloodtest in March. > > I feel for you though.. it's not fun with hypo... though I've heard it's not fun with hyper either. > > Liz > > > --------------------------------- > We won't tell. Get more on shows you hate to love > (and love to hate): Yahoo! TV's Guilty Pleasures list. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 do you have labs ...results and ranges you can post? We need TSH, FT3 and FT4 I can tell you 25 mcgs is miniscule....................I was on 300 mcgs before I switched to Armour...............Meleese in Oz xxx -------Original Message------- From: jessica_glamour Thanks for your support Liz. Hypo is crazy.. and how are you suppose to tell your co-workers and make them understand how you feel and how you FORGET all the time. I feel so stupid. I am 27 and I'm sure they think I'm a constant sickness or complaint. What to do... what to do... > > I have never heard of Raw Thyroid, and I think I'm going to join the band wagon with the 25 mcg. My doctor started me on 88 mcg in November and now has upped it to 138 mcg (Synthroid), and they have told m that they will probably up it again when I have my next bloodtest in March. > > I feel for you though.. it's not fun with hypo... though I've heard it's not fun with hyper either. > > Liz > > > --------------------------------- > We won't tell. Get more on shows you hate to love > (and love to hate): Yahoo! TV's Guilty Pleasures list. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 All I have recently is my TSH = 1.096 which was checked by my local Nurse Pract. Does she not know that she should be testing FT3 and FT4 ?? UG! > > > > I have never heard of Raw Thyroid, and I think I'm going to join > the band wagon with the 25 mcg. My doctor started me on 88 mcg in > November and now has upped it to 138 mcg (Synthroid), and they have > told m that they will probably up it again when I have my next > bloodtest in March. > > > > I feel for you though.. it's not fun with hypo... though I've > heard it's not fun with hyper either. > > > > Liz > > > > > > --------------------------------- > > We won't tell. Get more on shows you hate to love > > (and love to hate): Yahoo! TV's Guilty Pleasures list. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 OK well you have Hashimoto's?? Well the thing most of us with Hashi's do is get the TSH as close to zero as possible. It isn't a thyroid hormone but a pituarity (sp) hormone put out to stimulate the thyroid into producing hormone. The higher your TSH is, the more the antibodies will attack your thyroid gland to kill it . ..e.g. My TSH is 0.01 Free T3 (FT3) is the thyroid hormone you body actually uses and needs to be high up in the range. Free T4 (FT4) is the storage hormone and converts into t3 and is best around the 3/4 mark I live in Australia and have no problem getting the Free's tested but some people do............... The Free's tell us what is really going on............Meleese in Oz xxx -------Original Message------- From: jessica_glamour All I have recently is my TSH = 1.096 which was checked by my local Nurse Pract. Does she not know that she should be testing FT3 and FT4 ?? UG! > > > > I have never heard of Raw Thyroid, and I think I'm going to join > the band wagon with the 25 mcg. My doctor started me on 88 mcg in > November and now has upped it to 138 mcg (Synthroid), and they have > told m that they will probably up it again when I have my next > bloodtest in March. > > > > I feel for you though.. it's not fun with hypo... though I've > heard it's not fun with hyper either. > > > > Liz > > > > > > --------------------------------- > > We won't tell. Get more on shows you hate to love > > (and love to hate): Yahoo! TV's Guilty Pleasures list. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 I did not know that about the TSH. Thanks > > > > > > I have never heard of Raw Thyroid, and I think I'm going to join > > the band wagon with the 25 mcg. My doctor started me on 88 mcg in > > November and now has upped it to 138 mcg (Synthroid), and they have > > told m that they will probably up it again when I have my next > > bloodtest in March. > > > > > > I feel for you though.. it's not fun with hypo... though I've > > heard it's not fun with hyper either. > > > > > > Liz > > > > > > > > > --------------------------------- > > > We won't tell. Get more on shows you hate to love > > > (and love to hate): Yahoo! TV's Guilty Pleasures list. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 Hey ... I'm 26, so I know how you feel. Take info of your disease to work with you and let people read it if they are interested. Once you find your dose, you'll be okay and things will right themselves... just don't give up, we're here for you . Re: Raw Thyroid? Thanks for your support Liz.Hypo is crazy.. and how are you suppose to tell your co-workers and make them understand how you feel and how you FORGET all the time. :(I feel so stupid. I am 27 and I'm sure they think I'm a constant sickness or complaint. What to do... what to do...>> I have never heard of Raw Thyroid, and I think I'm going to join the band wagon with the 25 mcg. My doctor started me on 88 mcg in November and now has upped it to 138 mcg (Synthroid), and they have told m that they will probably up it again when I have my next bloodtest in March.> > I feel for you though.. it's not fun with hypo... though I've heard it's not fun with hyper either.> > Liz> > > ---------------------------------> We won't tell. Get more on shows you hate to love> (and love to hate): Yahoo! TV's Guilty Pleasures list.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 Just my take on Raw Thyroid.. it is not the same as Armour etc.. if you go by the ingredients listed it does not seem like a good combination as it contains high amounts of Iodine that cause thyroid stimulation.. thyroid stimulation in the case of autoimmune thyroid disorder is not a good thing.. I know a few have posted a few other products that they have been able to pick up that contain dessicated thyroid of some for or other, but minus the fillers did not contain other herbs and products..just the basics.. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 Sharing links for each other to review is a good thing... sharing links that sell stuff for profit for ones self is not a good thing (but I do have an area in the links section where we can post links to our own websites, one for personal sites, and one for area sites.. if you want to do some self promotion! hehehe)... you are sharing a link so that others can check out this source and voice an opinion.. that is a good thing.... I dont' see any vitamins or minerals in the ingredient list for this product, I've learned that if vitamins and/or minerals are added that the processing temps involved destroy the hormone and make it unusable by the body.. but... I do see kelp.... that is going to be adding iodine to the mix and iodine is not a good thing if you are dealing with Hashi's or Grave's.... It comes in a capsule, which reduces your options for dosing adjustments.... you would have to increase doses by an entire capsule, not part of a capsule. They don't specify source of gland tissue, cow or pig?? Pig is closest to us. They also say to take the capsule after a meal, that is just about the worst time to take thyroid... Thyroid hormone binds with several things, Calcium and iron are the two most 'sticky'. Taking thyroid with meals means that some of the hormone will bind with the calcium and iron of the meal and become useless. My suspicion is that the 'good' results from the testimonials MAY have more to do with iodine stimulating their own gland than anything else (or placebo effect). Other thoughts?? I have been using an OTC thyroid product that I have had good results with, it's part of what I'm using now.... It's ONLY thyroid and tableting agents, nothing else. It's not as potent as prescription grade but considering I have no gland production at all and it was this product that got me off crutches, it has active hormone in it. Here is the ingredient list for it: Whole Desiccated Thyroid Glandular Concentrate - PorcineRaw Porcine Thyroid Tissue 130 mg. (from the same source as the thyroid powder used in the other products)Dicalcium PhosphateMagnesium SterateNatural vegetable color and the link: www.nutri-meds.com Just for reference, here is the list of ingredients for Armour (the 'brand name' prescription grade natural thyroid): ARMOUR Thyroid, Forest Pharmaceuticals. Porcine Thyroid Powder, U.S. PharmacopeiaDextrose (sugar, to make it more palatable)Microcrystalline CelluloseSodiumCalcium Stearate (stabilizer and lubricant)Opadry White Topper () On Mon, 29 Jan 2007 23:37:48 -0000 "jessica_glamour" writes:> OMGosh I don't need my prescription to lower my production ...> That is a scary thought.> > Here is what I planned on purchasing out of desperation:> Ultra Raw Thyroid is a glandular extract of the endocrine gland > responsible for controlling metabolism and growth and may benefit > individuals with slow metabolism, low energy, melancholy, cold hands > and feet, and restlessness. New. Easy to Digest Capsules. Dietary > Supplement. Whole Raw tissue concentrated from bovine sources > specially processed (freeze-dried) at or below -5'C to preserve > natural occurring vitamins, enzymes, nucleotides, lipoproteins and > all other cellular components. Raw tissue concentrates imported from > New Zealand are made from toxin-free lyophilized glands from animals > grazed on rangeland free of pesticides, growth hormones, antibiotics > or chemical additives. > Ingredients: > Thyroid Tissue, Adrenal Tissue, Pituitary Tissue, Thymus Tissue, > Spleen Tissue, Kelp. > (http://www.evitamins.com/product.asp?pid=2728)> Sorry to post a website but I wanted all of you to see and let me > know what you think.> > Thanks > f Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 Print out this letter to share with them, though not technically accurate as far as medical details, I think it says it in a way for other folks to understand a bit better... it was written by the hubby of a hypo woman.... www.thyrophoenix.com/misunderstood.htm Topper () On Mon, 29 Jan 2007 23:39:42 -0000 " jessica_glamour " mayfieldfan_19@...> writes: > Thanks for your support Liz. > Hypo is crazy.. and how are you suppose to tell your co-workers and > make them understand how you feel and how you FORGET all the time. > > I feel so stupid. I am 27 and I'm sure they think I'm a constant > sickness or complaint. > What to do... what to do... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 A lot of docs 'don't get it', a lot of insurance companies 'don't get it'... sometimes its up to us to help them to learn, understand, what proper thyroid care is.... ... there are also the docs, and insurance companies, that don't care. It's up to us to be able to see the difference and fire the dorks and find real docs if that is what is needed for us to get healthier... That's part of why this group is here... so that we can learn as much as we can and know the difference between proper care and when we have to move on... Just my 2 cents... Topper () On Mon, 29 Jan 2007 23:49:26 -0000 " jessica_glamour " mayfieldfan_19@...> writes: > All I have recently is my TSH = 1.096 which was checked by my local > Nurse Pract. Does she not know that she should be testing FT3 and > FT4 > ?? UG! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 Ya need another doctor, one who has it themselves, and that's just about the only ones who understand all of this, or who just take a very special interest in it and the people who have it. Few and far between, hate to say. I just now have workable insurance, so I'm going scouting in a while. I want to be VERY sure before I make an appointment, as I don't have money to burn. It HAS to be FREE T3 and FREE T4, not the old thyroid panel (Total T4, T3 Uptake, Total T3), unless you're just curious to see how much of your thyroid hormone is bound up by different things like estrogen, goitrogens (soy, for one), and the like. The FREES are what are actually available, already converted to useable or ready to be used, flowing in your blood, just waiting to be taken up by your cells in your body. Now whether your cells are actually able to take up the thyroid hormone(s) is another whole thing. This is why, with some people, it's puzzling that their labs can look sooooo good, yet they are still hypo. Chemical poisoning and the like can do this, as well as insulin resistance, etc....or just an inborn disability for this, maybe even from birth, depending on who you are. Now, I'm careful, I don't believe in just diving into any old dose of thyroid hormone because these are volatile things that have a fine margin of error (for some people), but I also believe, after you've looked at those beautiful labs, and you know that you know that you know that this is definitely thyroid troubles doing this (gut feeling IMO), then it's time to start adding on more, in small increments, for around 6 to 8 wks at a time, between changes, until you FEEL better or good. It's both. I STILL need my adrenal testing, it has been backburnered for everything else under the sun. Re: Raw Thyroid? > All I have recently is my TSH = 1.096 which was checked by my local > Nurse Pract. Does she not know that she should be testing FT3 and > FT4 > ?? UG! Quote Link to comment Share on other sites More sharing options...
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