Help with conference costs

[Guest guest]

In addition to checking with your state's deaf-blind project, I suggest asking

any other agencies that serve your child if they can assist you to attend the

Charge Syndrome Conference in Costa Mesa, California. That includes the

school district. The answer may be " no, " but it doesn't hurt to ask.

When we attended the 1998 Conference in Houston, we got a check from the

Calif. Dept. of Developmental Disabilities for the conference fees. There is a

resource center associated with our regional center for developmental

disabilities that processed the application for us. They generally did not

cover out-of-state parent education, but I wrote a letter explaining that CHARGE

is a rare syndrome that had no local events planned, that I would share the

information with others (which I did), and that we would cover the

transportation. I asked again for the 2007 conference, but I was told that they

don't have any funds now.

However, I was able this year to get Danny's school district to pay for his

teacher, aid and OT to attend! You may not be as lucky, but it doesn't hurt to

ask!

For info on the conference, go to www.chargesyndrome.org

-Mike Schwartz in Ventura, CA

[Guest guest]

Hi Martha,

it would be so wonderful if you and Andy could come!! It would be wonderful to

see Miss K, as well, but you two may want to take advantage of 's house and

come just the two of you. Anyway, I am off for an appt, but will be back in

touch tomorrow.

It sounds horrific out by you and more on it's way!!!

love

pam

RE: Help with conference costs

Pam,

Thanks for the much needed nudge. I'll try my best to email Meg and

Larry tomorrow. So much has happened here - our @13 days without

power because of an unbelievable ice storm, emergency trip to a dog

" internest " in Kansas City, over $2000 in tree work, phones which

apparently had power surges, a cousin contemplating suicide, and a

general malaise that lingers even now.

I want very much for Andy to be able to join me at this conference --- he's

provided childcare at the national db conferences but has never really

gotten to take part. We won't know if his summer classes will " make " for

awhile, so I just haven't done a thing.

Now, you've given me another nudge; please keep it up. I'm moving in

slow, slow motion right now.

Martha