young children with low tone

February 21, 2007

My son is now 18 months. He is able to sit up assisted and

unassisted for short periods of time. Aside from our daily therapies

or dr.s visits, I need to take him with me to the grocery store etc.

about once a week. I am having lots of difficulty with this and have

been for a while, but it is only getting worse the bigger he gets.

Only a few of the stores in my area have the carts with the baby seat

in them and those are the only ones I try to visit so he has a place

to sit. However, I was looking at him in the seat today and he is

starting to get too big for it and I am not sure what I will do when

that day comes. I have tried several different soft seats that you

put in the front part of the grocery cart to help hold him up, but

they don't work like they do with regular tone children he still

rocks back and fourth when I stop or go. His Coloboma is pretty

severe so he is extremely visually impaired and prefers to stare at

the lights wherever we are. This also poses a problem because when

he stares at the lights in the store he leans back and it makes him

hit his head on the back of the cart. I have taken his stroller into

several of these stores which eliminated his seating problems, but I

was extremely limited on what I could purchase and felt like I was

shoplifting everytime I out something in the basket of the stroller.

Okay, now that you have the picture, I can't be the only one who

struggles with this problem. So I am asking the " experts " for

advice... what do you all do when you take your children to the

store. What works for you? Have you found one of those soft seats

that help these kiddos in the grocery carts? Is there something out

there that I can buy and take with me?

Thanks,

, proud mother of 18 month CHARGE, and his three brothers.

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