Which antiarrhythmic to choose

[Guest guest]

You've convinced me. If/when it is time for antiarrhythmics I'd rather try

Rhythmol first, or dofetilide, which you and Ellen really rave about.

Lil

In a message dated 5/18/2006 2:51:24 P.M. Pacific Standard Time,

quarteracreorchids@... writes:

My best drug was dofetilide, which worked like a charm with ZERO side

effects.. no lethargy, no nausea, no depression... just nice NSR. I am now on

Rhythmol (propafenone) which is ok as well... it gave me a bit of a hangover

feeling the first several weeks I took it, but now that's gone, thankfully. I

do

have some lethargy, whether from the atenelol or rhythmol, I don't know.

but YUKO on Sotolol.. I hated that.

[Guest guest]

I certainly no authority but it seems to me that we all react a little

differently to the various antiarrhythmic drugs. Rhythmal didn't seem

to do a darn thing for me and left a bad taste in my mouth that

wouldn't go away. Then again Sotalol didn't do much for me either but

I didn't find it's side effects as… distasteful.

Amiodarone, now this one I don't much like. I haven't felt as grounded

as I did on Sotalol since I started Amiodarone but, then again, I'm

only a week into the loading phase so hopefully I'll start to see some

improvement soon.

Garrett

>

>

>

> You've convinced me. If/when it is time for antiarrhythmics I'd

rather try

> Rhythmol first, or dofetilide, which you and Ellen really rave about.

> Lil

>

> In a message dated 5/18/2006 2:51:24 P.M. Pacific Standard Time,

> quarteracreorchids@... writes:

>

> My best drug was dofetilide, which worked like a charm with ZERO side

> effects.. no lethargy, no nausea, no depression... just nice NSR.

I am now on

> Rhythmol (propafenone) which is ok as well... it gave me a bit of a

hangover

> feeling the first several weeks I took it, but now that's gone,

thankfully. I do

> have some lethargy, whether from the atenelol or rhythmol, I don't

know.

>

> but YUKO on Sotolol.. I hated that.

>

>

>

>

>

>

>

>

[Guest guest]

>

> I certainly no authority but it seems to me that we all react a little

> differently to the various antiarrhythmic drugs.

Garrett, your words ring true with me. As a matter of fact, I have

become very uncomfortable with people on this board criticizing certain

drugs and recommending their favorite medications to others. Just

because a drug works well for one of us doesn't mean it will for

someone else. Furthermore, I like to think that the various meds are

prescribed for each patient's unique needs. Please discuss the

medication issues with your doctor.

Sharon

[Guest guest]

Lil, please also consider my favorite, flecainide, which held me solid for about

16 years. Tikosyn and Sotolol were fair, but for me flecainide took the cake.

cnetwork@... wrote:

You've convinced me. If/when it is time for antiarrhythmics I'd rather try

Rhythmol first, or dofetilide, which you and Ellen really rave about.

Lil

In a message dated 5/18/2006 2:51:24 P.M. Pacific Standard Time,

quarteracreorchids@... writes:

My best drug was dofetilide, which worked like a charm with ZERO side

effects.. no lethargy, no nausea, no depression... just nice NSR. I am now on

Rhythmol (propafenone) which is ok as well... it gave me a bit of a hangover

feeling the first several weeks I took it, but now that's gone, thankfully. I

do

have some lethargy, whether from the atenelol or rhythmol, I don't know.

but YUKO on Sotolol.. I hated that.

[Guest guest]

Sharon, I totally agree.

sharon93_19008 sfgordon93@...> wrote:

>

> I certainly no authority but it seems to me that we all react a little

> differently to the various antiarrhythmic drugs.

Garrett, your words ring true with me. As a matter of fact, I have

become very uncomfortable with people on this board criticizing certain

drugs and recommending their favorite medications to others. Just

because a drug works well for one of us doesn't mean it will for

someone else. Furthermore, I like to think that the various meds are

prescribed for each patient's unique needs. Please discuss the

medication issues with your doctor.

Sharon

Web Page - http://www.afibsupport.com

List owner: AFIBsupport-owner

For help on how to use the group, including how to drive it via email,

send a blank email to AFIBsupport-help

Nothing in this message should be considered as medical advice, or should be

acted upon without consultation with one's physician.

[Guest guest]

Anything that works for 16 years is a miracle! As Sharon wrote, we are all

different so it is a matter of trying them out and seeing what is best but I

am glad to hear so many success stories.

Lil

In a message dated 5/19/2006 1:31:55 A.M. Pacific Standard Time,

ceasargracie@... writes:

Lil, please also consider my favorite, flecainide, which held me solid for

about 16 years.

[Guest guest]

Garrett, I'll pile on too in agreement. And from my experience, I

react differently (effectiveness and side effects) to the same meds

over time. Brent

> > I certainly no authority but it seems to me that we all react a little

> > differently to the various antiarrhythmic drugs.

[Guest guest]

Re: Which antiarrhythmic to choose

Hi Sharon

I have had a nightmare with all the drugs that I have been prescribed,

however this is a support group and reading about problems and successes

that members have had can be both beneficial and rewarding. Personally

I have been inspired by Stef's and Ellen's story and success rate on

dofetilide that I would consider approaching the doctors even though the

drug is not licensed in the UK and Europe. Hearing about other members

problems with the side effects can help too in the fact that you may

have the same side effects too, and that you are not alone in

experiencing them.

ine

Garrett, your words ring true with me. As a matter of fact, I have

become very uncomfortable with people on this board criticizing certain

drugs and recommending their favorite medications to others. Just

because a drug works well for one of us doesn't mean it will for

someone else. Furthermore, I like to think that the various meds are

prescribed for each patient's unique needs. Please discuss the

medication issues with your doctor.

Sharon

Web Page - http://www.afibsupport.com

List owner: AFIBsupport-owner

For help on how to use the group, including how to drive it via email,

send a blank email to AFIBsupport-help

Nothing in this message should be considered as medical advice, or

should be acted upon without consultation with one's physician.

[Guest guest]

> Hi Sharon

>

> I have had a nightmare with all the drugs that I have been

prescribed,

> however this is a support group and reading about problems and

successes

> that members have had can be both beneficial and rewarding.

Personally

> I have been inspired by Stef's and Ellen's story and success rate on

> dofetilide that I would consider approaching the doctors even

though the

> drug is not licensed in the UK and Europe. Hearing about other

members

> problems with the side effects can help too in the fact that you may

> have the same side effects too, and that you are not alone in

> experiencing them.

>

> ine

The thing is, ine, that the Dofetilide (Tikosyn) you speak of was

a nightmare for me. From day #1 on Tikosyn, I had daily a-fib,

totally uncontrolled by the medication. Personally I had done well

on Sotalol which kept me a-fib free for 6 years. (Eventually they

all stop working.) I never had any side effects from the Sotalol,

but I know that others have suffered from this medication.

So my point is that something that works for someone else will not

necessarily work for you. I am now a-fib free again after having a

PVI on March 6 at the University of Pennsylvania by Dr. Marchlinski.

Sharon