The latest on Meagan

[Guest guest]

Hi guys! I've missed you all! I read everyday, but have no time to

Post! I feel as if life is in fast forward! Anyhow, lots has

Happened with Meg; so here's a quick rundown...

Her cochlear implant has basically been a failure. Devastating, but

True. Meg's ENT wanted to place another on the other side (she would

Be a part of a case study as two implants are not approved yet by

The FDA), but she would have to undergo another shunt surgery. Her

Shunt is in the location the implant would need to go. As much as we

Would like to say we tried everything, we decided not to have her

Undergo that type of surgery again. But, to our surprise (and some

Gifting by God), our ENT said he would place the implant high on her

Skull and snake the wire to the cochlea. He has done this with

Epileptic patients in the past, and offered it to us. We accepted.

Our " failure letter " has been written by audiology, and is going

Through the chain of command with insurances. Once it's made it's

Way to the end, the surgery will be booked. The doctor said there is

No guarantee she will hear, but this ear is more promising with the

Physical makeup it shows....fingers crossed!

We are currently weaning Meg off two meds; both of which are for her

Reflux. They are basically non therapeutic at the time, so the

Process should be easy. Although the first week we started, she

Vomited constantly. Come to find out she had double ear infections,

A viral AND a bacterial infection residing in her system! After ten

Days on an antibiotic, the cough persisted. We took her to the doc

Again, where he diagnosed her with a " nasty " sinus infection. We are

On the last day, of round two, of antibiotics. We will continue the

Weaning process next Monday.

Meagan has been showing signs of obstructive apnea for a couple of

Months now. She is not on O2 at night, but I was suspicious she was

Desating during her sleep. During her hospital stays we watched her

O2 sats, but they were normal. But, her snoring has gotten

Ridiculously loud and the obstructive apnea is VERY apparent. At

Times, she cannot even get air to move through her airway, and has

To wake herself up for that big breath of oxygen. I brought it up to

Her pulmonologist, who ordered a sleep study. Well, Meg and I had an

Overnighter at a very luxurious sleep center lastnight, and it

Revealed some horrifying results. Meagan wakes herself literally

Just about every minute of the night. Her sats range from 50-70%

While sleeping (the sats progressively get worse as her level of

Sleep gets deeper). The tech said she was one of the worst cases

He'd ever seen. At times he came in to make sure her " stickies " were

On correctly because he couldn't believe her numbers. So, surgery

Will be within the next couple of weeks (we think, we're still

Waiting for scheduling). Her tonsils are HUGE, and it looks like the

Adenoids are going to come out as well. Still another surgery might

Be done on her larynx (for her laryngomalacia; aka floppy upper

Airway), but we'll have to wait for the doctor to read the sleep

Study before that is decided.

On top of all that, I will begin the process of touring and

Interviewing prospective preschools for her for the fall. She starts

Transitioning into the school system in April. She won't attend

Until August, but we start the ball rolling in April. I can't

Believe it! I am absolutely sick about it! Someone else taking care

Of her?!? Even my respite help are my mom and my mother-in-law! So

Far it's been all in the family! I just need to calm

Down.....breathe , breathe.

Anyhow, that's it in a nutshell....okay, so in a novel, but I did

Tell you Meagan's been busy!

I miss you all, and I hope things settle down here soon so I can get

Back into the group!

, mommy to Meagan (CHaRgE) and 2 year old twins, and big

Brother 4 years, married to the best daddy in the world for 9

Years!

The mention of my child's name might make me cry. Not mentioning my

Child's' name will break my heart. Unknown

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