RE: Hashis & Fibro connection, etc. Revisited

[Guest guest]

Hi Lily,

Last year, my doc had me start at 30mg of Armour and

increased it by 30mg every 2 weeks. I was up to 180mg

at one point. I don't recall ever really feeling any

better on Armour than I did without it, except at one

point...last summer when I reached 120mg, after a

week, I had 2 glorious days in which I had energy - I

never felt so good in my life.

And then after those 2 days, I crashed and have never

felt that way again. At that time, my doc and I

thought maybe I needed more - as such, I went up to

160mg and then 180mg. When I felt no difference, I

slowly worked my way back down...all the way to 60mg,

and stopped on 12/25/06. Until the past week or so, I

continued to feel the same (low energy).

A few people on this group had mentioned to me that my

doc had me taking too much Armour too fast...that

maybe I missed my " sweet spot " . I welcome any advice.

I'm so miserable.

Thanks so much for your response,

--- liliane wise wrote:

> Sounds to me like you just weren't taking enough

> Armour. How much were you

> taking, and how often did you increase the dose ?

>

> Lily

>

>

> >From: " J. McCormick "

> >Reply-To: The_Thyroid_Support_Group

> >To: The_Thyroid_Support_Group

> >Subject: Hashimoto's &

> Fibromyalgia connection,

> >etc. Revisited

> >Date: Mon, 15 Jan 2007 14:33:00 -0800 (PST)

> >

> >Hi everyone,

> >

> >You might remember me as the one with Hashimoto's

> who

> >stopped taking her Armour on Dec. 25th and wrote in

> >with questions. I pasted one of my older posts in

> this

> >email for reference. Even though my thyroid isn't

> dead

> >yet and I was hoping to go HYPERthyroid and get

> RAI,

> >some of you said you believed I would go

> HYPOthyroid.

> >I'm afraid you could be right... Can I get more

> >thoughts and advice?

> >

> >My basal temps have been really weird, but showing

> an

> >overall decreasing pattern (I chart them on a

> graph).

> >As the past few weeks have gone by, my lower back

> >(fibromyalgia) continues to hurt badly, I become

> >increasingly tired, kind of depressed, cold hands

> and

> >feet, water retention, and have constipation. At

> first

> >when I stopped the Armour, my moods were better, my

> >energy level seemed the same, and I actually felt

> >somewhat HYPER at times. As Topper mentioned to me,

> >maybe by body was using up its stored T4.

> >

> >Here is where I'm confused though...my temps last

> week

> >were hanging around 98.1 and then suddenly on

> Friday

> >Jan 12th, it dove to 97.2. That night, I became

> really

> >sick and had a lot of vomitting (mainly water) and

> >diarrhea. The next morning, I still felt kind of

> sick

> >- mainly tired though, and I was no longer throwing

> up

> >or going to the bathroom. My temp that morning shot

> up

> >to 98.3 (not high enough that it's a fever, but

> high

> >for me lately). SO, did I have a flu bug or what?

> Is

> >my thyroid trying to work???Topper, did you ever

> have

> >this experience as you started going HYPO?

> >

> >Yesterday, my basal temp was 98.1 and this morning

> it

> >was 97.9. I took my temp this evening out of

> >curiosity, and it's only 97.7. I feel tired, achy,

> and

> >nauseous.

> >

> >The main reason I stopped taking the Armour was

> >because it really felt like it wasn't helping me.

> I'm

> >wondering if it was actually helping me a little

> bit.

> >I don't see my doc until Feb 6th and I don't know

> what

> >to do. I think I want to try a different thyroid

> med.

> >I wish I could look into the future and know what

> my

> >thyroid will do...I hate this Hashis - I wish my

> >thyroid would just die. Maybe it is...how do I know

> >for sure!!!????

> >

> >Does anyone have any thoughts or advice? Please

> >help!!!

> >

> >Thank you!

> >

> >

> >

> >

> > > Re:

> Hashimoto's

> > > & Fibromyalgia

> > > connection? etc.

> > >

> > > >

> > > > Thanks for your response. I didn't give enough

> > > info to

> > > > you...let me tell you more and give you my

> labs. I

> > > was

> > > > diagnosed in the summer of 2004 with

> hashimoto's

> > > and

> > > > was really hyper. The docs wanted to do RAI,

> but

> > > at

> > > > the time, I wanted to know my other options.

> So I

> > > jusr

> > > > didn't get any treatment, and then by mid

> 2005, my

> > > > labs showed " normal " - I was no longer hyper

> but

> > > > didn't feel well. I couldn't find a doc to

> help me

> > > in

> > > > any way - meds or RAI.

> > > >

> > > > Finally, I found a doc that looked at my

> symptoms,

> > > not

> > > > just my labs. He prescribed me Cortef for

> adrenal

> > > > fatigue, and I've been taking it since January

> > > > 2006...that has helped me so much - more than

> > > > anything. And then in February, he wanted to

> see

> > > how

> > > > I'd feel on Armour (thinking it might give me

> more

> > > > energy on top of what the Cortef did for me).

> I

> > > > started at 30mg and worked my way up to 120mg

> and

> > > felt

> > > > nothing from it. As of this month, I had

> worked my

> > > way

> > > > down to 60mg and still felt no difference.

> Here

> > > are my

> > > > labs from 12/12/06 (on 60mg of Armour):

> > > >

> > > > TSH: <.004

> > > > Free T3: 354 (normal = 230-420)

> > > > Free T4: 1.20 (normal = .76-1.79)

> > > >

> > > > I never felt the same from day to day - would

> go

> > > from

> > > > tired and having some energy, kind of in a

> fog,

> > > > somedays I'd have tremors and go between hot

> and

> > > cold.

> > > > So I've decided I want rid of my thyroid...if

> my

> > > > thyroid goes hyper on its own, then I can have

> the

> > > > " appropriate " bloodwork and get RAI...go hypo

> and

> > > get

> > > > treatment for that - no longer having to deal

> with

> > > the

> > > > fluctuations.

> > > >

> > > > Since I stopped the Armour on 12/25, I have

> lower

> > > back

> > > > pain, but that's really my only complaint. I'm

> > > just

> > > > not sure if it's related or not?

> > > >

> > > > Currently, my heart rate is about 87 beats per

> > > minute.

> > > > My basal temp is about 98.0. Sometimes I feel

> like

> > > I

> > > > actually might have a little more energy since

> I

> > > > stopped the Armour. I'm tracking my temps,

> pulse,

> > > and

> > > > weight every day to get a feel for what my

> thyroid

> > > is

> > > > doing.

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[Guest guest]

I do believe that you can miss your 'sweet spot' if you increase too quickly and 2 weeks for each 30mg would fall into that category for me. The same thing happened to me and I've been dancing ever since. I'm now taking a combo of levo and Armour, but can't honestly say that I've found that sweet spot yet, but I have a new doc and I'm ever hopeful... Judy

A few people on this group had mentioned to me that my doc had me taking too much Armour too fast...that maybe I missed my "sweet spot". I welcome any advice. I'm so miserable.

TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV.

[Guest guest]

Well I liken it to playing golf. If you hit the ball

just after it has taken flight....you can ricochet it

all over the place....if you don't let it at least

land first.

I don't even think Tiger woods could get it in the

hole without letting it land at least once...unless

he's getting that rare hole in one.

Good luck!

~E:)

--- Judy P ygroupsjp@...> wrote:

> I do believe that you can miss your 'sweet spot' if

> you increase too quickly and 2 weeks for each 30mg

> would fall into that category for me. The same

> thing happened to me and I've been dancing ever

> since. I'm now taking a combo of levo and Armour,

> but can't honestly say that I've found that sweet

> spot yet, but I have a new doc and I'm ever

> hopeful... Judy

>

> ---------------------------------

>

> A few people on this group had mentioned to me that

> my doc had me taking too much Armour too fast...that

> maybe I missed my " sweet spot " . I welcome any

> advice. I'm so miserable.

>

>

>

> ---------------------------------

> TV dinner still cooling?

> Check out " Tonight's Picks " on Yahoo! TV.

TOTAL-Thyroidectomy 26 months post-op.

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