Guest guest Posted February 19, 2007 Report Share Posted February 19, 2007 Is Robinol a common drug for CHARGE babies to be on? Kylah --------------------------------- Don't get soaked. Take a quick peak at the forecast with theYahoo! Search weather shortcut. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2007 Report Share Posted February 19, 2007 i think so welcome y dont u tell us more botu ur baby and what parts of charge you have to helps us all to no each other > > Is Robinol a common drug for CHARGE babies to be on? > > Kylah > > --------------------------------- > Don't get soaked. Take a quick peak at the forecast > with theYahoo! Search weather shortcut. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2007 Report Share Posted February 19, 2007 I don't know how common it is, but my son was on it up until around 15-16 months to help with secretions. It is also called glycopyrrulate. The theraputic dose range is pretty big, so it can take some experimenting to get it right for your child. Too much, and the secretions get too thick and are really hard to suction. Not enough, and you can't tell it's doing anything. (mom to Evan, 19 months) kylah thaxton wrote: Is Robinol a common drug for CHARGE babies to be on? Kylah --------------------------------- Don't get soaked. Take a quick peak at the forecast with theYahoo! Search weather shortcut. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2007 Report Share Posted February 19, 2007 sarah i think one in five on here that i read of r on it but that could just b me caluclating wrong > > I don't know how common it is, but my son was on it up until around > 15-16 months to help with secretions. It is also called glycopyrrulate. The > theraputic dose range is pretty big, so it can take some experimenting to > get it right for your child. Too much, and the secretions get too thick and > are really hard to suction. Not enough, and you can't tell it's doing > anything. > > (mom to Evan, 19 months) > > kylah thaxton <kylahthaxton@... <kylahthaxton%40yahoo.com>> wrote: > Is Robinol a common drug for CHARGE babies to be on? > > Kylah > > --------------------------------- > Don't get soaked. Take a quick peak at the forecast > with theYahoo! Search weather shortcut. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2007 Report Share Posted February 19, 2007 My daughter takes Robinul. We have gone up and down on the dosage depending on how she handles her secretions. - M. mother to Anabelle (14 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2007 Report Share Posted February 19, 2007 Kylah, has been on Robinol for several years and we have not had much trouble. What we have found is that when she is " naturally " dry the secretions are very thick but she does get them up and out herself. When she is " overly " wet, it just helps keep the drool to a minimum. has had her salivary glands removed but she still tends to have lots of secretions so the robinol makes them managable. Sheryl Mom to 20 > > Is Robinol a common drug for CHARGE babies to be on? > > Kylah > > > --------------------------------- > Don't get soaked. Take a quick peak at the forecast > with theYahoo! Search weather shortcut. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 My daughter is 9 mo. with CHARGE and has been taking robinul since her first mo. of birth. Her dosage is now 1ml 3 times a day. The doctor says to skip a dosage if I think she sounds dried. In her throat. If skipped a dosage a few times but notice if I skip, I have to suction her quite a bit. > > My daughter takes Robinul. We have gone up and down on the dosage > depending on how she handles her secretions. > - M. > mother to Anabelle (14 months) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2007 Report Share Posted February 22, 2007 My son has been on Robinul for about 3 years now. For some, it makes their secretions too thick, but finding the right dose is the key. We started off on a liquid form which the pharmacist has to mix so we could play with the dosing, but as he got older, we have switched to tablets and just dissolve them. Jody Jody - mom to Ethan (ChARGE) and --------------------------------- Check out the all-new Yahoo! Mail beta - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
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