RE: Hashimoto's & Fibromyalgia connection, etc. Revisited

[Guest guest]

Sounds to me like you just weren't taking enough Armour. How much were you

taking, and how often did you increase the dose ?

Lily

>

>Reply-To: The_Thyroid_Support_Group

>To: The_Thyroid_Support_Group

>Subject: Hashimoto's & Fibromyalgia connection,

>etc. Revisited

>Date: Mon, 15 Jan 2007 14:33:00 -0800 (PST)

>

>Hi everyone,

>

>You might remember me as the one with Hashimoto's who

>stopped taking her Armour on Dec. 25th and wrote in

>with questions. I pasted one of my older posts in this

>email for reference. Even though my thyroid isn't dead

>yet and I was hoping to go HYPERthyroid and get RAI,

>some of you said you believed I would go HYPOthyroid.

>I'm afraid you could be right... Can I get more

>thoughts and advice?

>

>My basal temps have been really weird, but showing an

>overall decreasing pattern (I chart them on a graph).

>As the past few weeks have gone by, my lower back

>(fibromyalgia) continues to hurt badly, I become

>increasingly tired, kind of depressed, cold hands and

>feet, water retention, and have constipation. At first

>when I stopped the Armour, my moods were better, my

>energy level seemed the same, and I actually felt

>somewhat HYPER at times. As Topper mentioned to me,

>maybe by body was using up its stored T4.

>

>Here is where I'm confused though...my temps last week

>were hanging around 98.1 and then suddenly on Friday

>Jan 12th, it dove to 97.2. That night, I became really

>sick and had a lot of vomitting (mainly water) and

>diarrhea. The next morning, I still felt kind of sick

>- mainly tired though, and I was no longer throwing up

>or going to the bathroom. My temp that morning shot up

>to 98.3 (not high enough that it's a fever, but high

>for me lately). SO, did I have a flu bug or what? Is

>my thyroid trying to work???Topper, did you ever have

>this experience as you started going HYPO?

>

>Yesterday, my basal temp was 98.1 and this morning it

>was 97.9. I took my temp this evening out of

>curiosity, and it's only 97.7. I feel tired, achy, and

>nauseous.

>

>The main reason I stopped taking the Armour was

>because it really felt like it wasn't helping me. I'm

>wondering if it was actually helping me a little bit.

>I don't see my doc until Feb 6th and I don't know what

>to do. I think I want to try a different thyroid med.

>I wish I could look into the future and know what my

>thyroid will do...I hate this Hashis - I wish my

>thyroid would just die. Maybe it is...how do I know

>for sure!!!????

>

>Does anyone have any thoughts or advice? Please

>help!!!

>

>Thank you!

>

>

>

>

> > Re: Hashimoto's

> > & Fibromyalgia

> > connection? etc.

> >

> > >

> > > Thanks for your response. I didn't give enough

> > info to

> > > you...let me tell you more and give you my labs. I

> > was

> > > diagnosed in the summer of 2004 with hashimoto's

> > and

> > > was really hyper. The docs wanted to do RAI, but

> > at

> > > the time, I wanted to know my other options. So I

> > jusr

> > > didn't get any treatment, and then by mid 2005, my

> > > labs showed " normal " - I was no longer hyper but

> > > didn't feel well. I couldn't find a doc to help me

> > in

> > > any way - meds or RAI.

> > >

> > > Finally, I found a doc that looked at my symptoms,

> > not

> > > just my labs. He prescribed me Cortef for adrenal

> > > fatigue, and I've been taking it since January

> > > 2006...that has helped me so much - more than

> > > anything. And then in February, he wanted to see

> > how

> > > I'd feel on Armour (thinking it might give me more

> > > energy on top of what the Cortef did for me). I

> > > started at 30mg and worked my way up to 120mg and

> > felt

> > > nothing from it. As of this month, I had worked my

> > way

> > > down to 60mg and still felt no difference. Here

> > are my

> > > labs from 12/12/06 (on 60mg of Armour):

> > >

> > > TSH: <.004

> > > Free T3: 354 (normal = 230-420)

> > > Free T4: 1.20 (normal = .76-1.79)

> > >

> > > I never felt the same from day to day - would go

> > from

> > > tired and having some energy, kind of in a fog,

> > > somedays I'd have tremors and go between hot and

> > cold.

> > > So I've decided I want rid of my thyroid...if my

> > > thyroid goes hyper on its own, then I can have the

> > > " appropriate " bloodwork and get RAI...go hypo and

> > get

> > > treatment for that - no longer having to deal with

> > the

> > > fluctuations.

> > >

> > > Since I stopped the Armour on 12/25, I have lower

> > back

> > > pain, but that's really my only complaint. I'm

> > just

> > > not sure if it's related or not?

> > >

> > > Currently, my heart rate is about 87 beats per

> > minute.

> > > My basal temp is about 98.0. Sometimes I feel like

> > I

> > > actually might have a little more energy since I

> > > stopped the Armour. I'm tracking my temps, pulse,

> > and

> > > weight every day to get a feel for what my thyroid

> > is

> > > doing.

> > >

> > > Any more thoughts?

> > >

> > > Thanks so much!!

> > >

> > >

> >

> >

> >

>

>

>

>

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[Guest guest]

Hi Lily,

Last year, my doc had me start at 30mg of Armour and

increased it by 30mg every 2 weeks. I was up to 180mg

at one point. I don't recall ever really feeling any

better on Armour than I did without it, except at one

point...last summer when I reached 120mg, after a

week, I had 2 glorious days in which I had energy - I

never felt so good in my life.

And then after those 2 days, I crashed and have never

felt that way again. At that time, my doc and I

thought maybe I needed more - as such, I went up to

160mg and then 180mg. When I felt no difference, I

slowly worked my way back down...all the way to 60mg,

and stopped on 12/25/06. Until the past week or so, I

continued to feel the same (low energy).

A few people on this group had mentioned to me that my

doc had me taking too much Armour too fast...that

maybe I missed my " sweet spot " . I welcome any advice.

I'm so miserable.

Thanks so much for your response,

--- liliane wise lililiz@...> wrote:

> Sounds to me like you just weren't taking enough

> Armour. How much were you

> taking, and how often did you increase the dose ?

>

> Lily

>

>

> >

> >Reply-To: The_Thyroid_Support_Group

> >To: The_Thyroid_Support_Group

> >Subject: Hashimoto's &

> Fibromyalgia connection,

> >etc. Revisited

> >Date: Mon, 15 Jan 2007 14:33:00 -0800 (PST)

> >

> >Hi everyone,

> >

> >You might remember me as the one with Hashimoto's

> who

> >stopped taking her Armour on Dec. 25th and wrote in

> >with questions. I pasted one of my older posts in

> this

> >email for reference. Even though my thyroid isn't

> dead

> >yet and I was hoping to go HYPERthyroid and get

> RAI,

> >some of you said you believed I would go

> HYPOthyroid.

> >I'm afraid you could be right... Can I get more

> >thoughts and advice?

> >

> >My basal temps have been really weird, but showing

> an

> >overall decreasing pattern (I chart them on a

> graph).

> >As the past few weeks have gone by, my lower back

> >(fibromyalgia) continues to hurt badly, I become

> >increasingly tired, kind of depressed, cold hands

> and

> >feet, water retention, and have constipation. At

> first

> >when I stopped the Armour, my moods were better, my

> >energy level seemed the same, and I actually felt

> >somewhat HYPER at times. As Topper mentioned to me,

> >maybe by body was using up its stored T4.

> >

> >Here is where I'm confused though...my temps last

> week

> >were hanging around 98.1 and then suddenly on

> Friday

> >Jan 12th, it dove to 97.2. That night, I became

> really

> >sick and had a lot of vomitting (mainly water) and

> >diarrhea. The next morning, I still felt kind of

> sick

> >- mainly tired though, and I was no longer throwing

> up

> >or going to the bathroom. My temp that morning shot

> up

> >to 98.3 (not high enough that it's a fever, but

> high

> >for me lately). SO, did I have a flu bug or what?

> Is

> >my thyroid trying to work???Topper, did you ever

> have

> >this experience as you started going HYPO?

> >

> >Yesterday, my basal temp was 98.1 and this morning

> it

> >was 97.9. I took my temp this evening out of

> >curiosity, and it's only 97.7. I feel tired, achy,

> and

> >nauseous.

> >

> >The main reason I stopped taking the Armour was

> >because it really felt like it wasn't helping me.

> I'm

> >wondering if it was actually helping me a little

> bit.

> >I don't see my doc until Feb 6th and I don't know

> what

> >to do. I think I want to try a different thyroid

> med.

> >I wish I could look into the future and know what

> my

> >thyroid will do...I hate this Hashis - I wish my

> >thyroid would just die. Maybe it is...how do I know

> >for sure!!!????

> >

> >Does anyone have any thoughts or advice? Please

> >help!!!

> >

> >Thank you!

> >

> >

> >

> >

> > > Re:

> Hashimoto's

> > > & Fibromyalgia

> > > connection? etc.

> > >

> > > >

> > > > Thanks for your response. I didn't give enough

> > > info to

> > > > you...let me tell you more and give you my

> labs. I

> > > was

> > > > diagnosed in the summer of 2004 with

> hashimoto's

> > > and

> > > > was really hyper. The docs wanted to do RAI,

> but

> > > at

> > > > the time, I wanted to know my other options.

> So I

> > > jusr

> > > > didn't get any treatment, and then by mid

> 2005, my

> > > > labs showed " normal " - I was no longer hyper

> but

> > > > didn't feel well. I couldn't find a doc to

> help me

> > > in

> > > > any way - meds or RAI.

> > > >

> > > > Finally, I found a doc that looked at my

> symptoms,

> > > not

> > > > just my labs. He prescribed me Cortef for

> adrenal

> > > > fatigue, and I've been taking it since January

> > > > 2006...that has helped me so much - more than

> > > > anything. And then in February, he wanted to

> see

> > > how

> > > > I'd feel on Armour (thinking it might give me

> more

> > > > energy on top of what the Cortef did for me).

> I

> > > > started at 30mg and worked my way up to 120mg

> and

> > > felt

> > > > nothing from it. As of this month, I had

> worked my

> > > way

> > > > down to 60mg and still felt no difference.

> Here

> > > are my

> > > > labs from 12/12/06 (on 60mg of Armour):

> > > >

> > > > TSH: <.004

> > > > Free T3: 354 (normal = 230-420)

> > > > Free T4: 1.20 (normal = .76-1.79)

> > > >

> > > > I never felt the same from day to day - would

> go

> > > from

> > > > tired and having some energy, kind of in a

> fog,

> > > > somedays I'd have tremors and go between hot

> and

> > > cold.

> > > > So I've decided I want rid of my thyroid...if

> my

> > > > thyroid goes hyper on its own, then I can have

> the

> > > > " appropriate " bloodwork and get RAI...go hypo

> and

> > > get

> > > > treatment for that - no longer having to deal

> with

> > > the

> > > > fluctuations.

> > > >

> > > > Since I stopped the Armour on 12/25, I have

> lower

> > > back

> > > > pain, but that's really my only complaint. I'm

> > > just

> > > > not sure if it's related or not?

> > > >

> > > > Currently, my heart rate is about 87 beats per

> > > minute.

> > > > My basal temp is about 98.0. Sometimes I feel

> like

> > > I

> > > > actually might have a little more energy since

> I

> > > > stopped the Armour. I'm tracking my temps,

> pulse,

> > > and

> > > > weight every day to get a feel for what my

> thyroid

> > > is

> > > > doing.

>

=== message truncated ===

________________________________________________________________________________\

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[Guest guest]

Hi ,

Well, I'm no expert, but an increase of 30mg every two weeks does sound like

a lot to me. I only increased by 15mg at a time - and not every two weeks -

it depended on how I felt. But one thing is certain, without any replacement

hormone at all there's no way you're going to feel better. Hashimoto's isn't

just going to go away by itself. The condition is just going to get worse.

You could try starting again and increasing more slowly - but you are going

to need to increase because the thyroid gland is slowly being destroyed.

However, one thing you should think about is your adrenals because if they

aren't working correctly the body is unable to use the hormone you're giving

it. I don't know how you go about testing this because I've never done it.

Didn't need to. My doctor took one look at me and knew I had an adrenal

problem, and started me on a low dose of hydrocortisone. My adrenals have

now packed up completely and I have to take 40mg of hydrocortisone every day

- and now, at last, I'm beginning to feel more like a normal humane being !

lol There has been a lot of discusion about adrenals here, so perhaps you

could go back to some of the old posts and read up on it.

Good luck, Lily

>

>Reply-To: The_Thyroid_Support_Group

>To: The_Thyroid_Support_Group

>Subject: RE: Hashimoto's & Fibromyalgia

>connection, etc. Revisited

>Date: Mon, 15 Jan 2007 17:04:16 -0800 (PST)

>

>Hi Lily,

>

>Last year, my doc had me start at 30mg of Armour and

>increased it by 30mg every 2 weeks. I was up to 180mg

>at one point. I don't recall ever really feeling any

>better on Armour than I did without it, except at one

>point...last summer when I reached 120mg, after a

>week, I had 2 glorious days in which I had energy - I

>never felt so good in my life.

>

>And then after those 2 days, I crashed and have never

>felt that way again. At that time, my doc and I

>thought maybe I needed more - as such, I went up to

>160mg and then 180mg. When I felt no difference, I

>slowly worked my way back down...all the way to 60mg,

>and stopped on 12/25/06. Until the past week or so, I

>continued to feel the same (low energy).

>

>A few people on this group had mentioned to me that my

>doc had me taking too much Armour too fast...that

>maybe I missed my " sweet spot " . I welcome any advice.

>I'm so miserable.

>

>Thanks so much for your response,

>

>

>

>--- liliane wise lililiz@...> wrote:

>

> > Sounds to me like you just weren't taking enough

> > Armour. How much were you

> > taking, and how often did you increase the dose ?

> >

> > Lily

> >

> >

> > >

> > >Reply-To: The_Thyroid_Support_Group

> > >To: The_Thyroid_Support_Group

> > >Subject: Hashimoto's &

> > Fibromyalgia connection,

> > >etc. Revisited

> > >Date: Mon, 15 Jan 2007 14:33:00 -0800 (PST)

> > >

> > >Hi everyone,

> > >

> > >You might remember me as the one with Hashimoto's

> > who

> > >stopped taking her Armour on Dec. 25th and wrote in

> > >with questions. I pasted one of my older posts in

> > this

> > >email for reference. Even though my thyroid isn't

> > dead

> > >yet and I was hoping to go HYPERthyroid and get

> > RAI,

> > >some of you said you believed I would go

> > HYPOthyroid.

> > >I'm afraid you could be right... Can I get more

> > >thoughts and advice?

> > >

> > >My basal temps have been really weird, but showing

> > an

> > >overall decreasing pattern (I chart them on a

> > graph).

> > >As the past few weeks have gone by, my lower back

> > >(fibromyalgia) continues to hurt badly, I become

> > >increasingly tired, kind of depressed, cold hands

> > and

> > >feet, water retention, and have constipation. At

> > first

> > >when I stopped the Armour, my moods were better, my

> > >energy level seemed the same, and I actually felt

> > >somewhat HYPER at times. As Topper mentioned to me,

> > >maybe by body was using up its stored T4.

> > >

> > >Here is where I'm confused though...my temps last

> > week

> > >were hanging around 98.1 and then suddenly on

> > Friday

> > >Jan 12th, it dove to 97.2. That night, I became

> > really

> > >sick and had a lot of vomitting (mainly water) and

> > >diarrhea. The next morning, I still felt kind of

> > sick

> > >- mainly tired though, and I was no longer throwing

> > up

> > >or going to the bathroom. My temp that morning shot

> > up

> > >to 98.3 (not high enough that it's a fever, but

> > high

> > >for me lately). SO, did I have a flu bug or what?

> > Is

> > >my thyroid trying to work???Topper, did you ever

> > have

> > >this experience as you started going HYPO?

> > >

> > >Yesterday, my basal temp was 98.1 and this morning

> > it

> > >was 97.9. I took my temp this evening out of

> > >curiosity, and it's only 97.7. I feel tired, achy,

> > and

> > >nauseous.

> > >

> > >The main reason I stopped taking the Armour was

> > >because it really felt like it wasn't helping me.

> > I'm

> > >wondering if it was actually helping me a little

> > bit.

> > >I don't see my doc until Feb 6th and I don't know

> > what

> > >to do. I think I want to try a different thyroid

> > med.

> > >I wish I could look into the future and know what

> > my

> > >thyroid will do...I hate this Hashis - I wish my

> > >thyroid would just die. Maybe it is...how do I know

> > >for sure!!!????

> > >

> > >Does anyone have any thoughts or advice? Please

> > >help!!!

> > >

> > >Thank you!

> > >

> > >

> > >

> > >

> > > > Re:

> > Hashimoto's

> > > > & Fibromyalgia

> > > > connection? etc.

> > > >

> > > > >

> > > > > Thanks for your response. I didn't give enough

> > > > info to

> > > > > you...let me tell you more and give you my

> > labs. I

> > > > was

> > > > > diagnosed in the summer of 2004 with

> > hashimoto's

> > > > and

> > > > > was really hyper. The docs wanted to do RAI,

> > but

> > > > at

> > > > > the time, I wanted to know my other options.

> > So I

> > > > jusr

> > > > > didn't get any treatment, and then by mid

> > 2005, my

> > > > > labs showed " normal " - I was no longer hyper

> > but

> > > > > didn't feel well. I couldn't find a doc to

> > help me

> > > > in

> > > > > any way - meds or RAI.

> > > > >

> > > > > Finally, I found a doc that looked at my

> > symptoms,

> > > > not

> > > > > just my labs. He prescribed me Cortef for

> > adrenal

> > > > > fatigue, and I've been taking it since January

> > > > > 2006...that has helped me so much - more than

> > > > > anything. And then in February, he wanted to

> > see

> > > > how

> > > > > I'd feel on Armour (thinking it might give me

> > more

> > > > > energy on top of what the Cortef did for me).

> > I

> > > > > started at 30mg and worked my way up to 120mg

> > and

> > > > felt

> > > > > nothing from it. As of this month, I had

> > worked my

> > > > way

> > > > > down to 60mg and still felt no difference.

> > Here

> > > > are my

> > > > > labs from 12/12/06 (on 60mg of Armour):

> > > > >

> > > > > TSH: <.004

> > > > > Free T3: 354 (normal = 230-420)

> > > > > Free T4: 1.20 (normal = .76-1.79)

> > > > >

> > > > > I never felt the same from day to day - would

> > go

> > > > from

> > > > > tired and having some energy, kind of in a

> > fog,

> > > > > somedays I'd have tremors and go between hot

> > and

> > > > cold.

> > > > > So I've decided I want rid of my thyroid...if

> > my

> > > > > thyroid goes hyper on its own, then I can have

> > the

> > > > > " appropriate " bloodwork and get RAI...go hypo

> > and

> > > > get

> > > > > treatment for that - no longer having to deal

> > with

> > > > the

> > > > > fluctuations.

> > > > >

> > > > > Since I stopped the Armour on 12/25, I have

> > lower

> > > > back

> > > > > pain, but that's really my only complaint. I'm

> > > > just

> > > > > not sure if it's related or not?

> > > > >

> > > > > Currently, my heart rate is about 87 beats per

> > > > minute.

> > > > > My basal temp is about 98.0. Sometimes I feel

> > like

> > > > I

> > > > > actually might have a little more energy since

> > I

> > > > > stopped the Armour. I'm tracking my temps,

> > pulse,

> > > > and

> > > > > weight every day to get a feel for what my

> > thyroid

> > > > is

> > > > > doing.

> >

>=== message truncated ===

>

>

>

>

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