I must be hiding my head in the sand.

[Guest guest]

Hi everyone, I read all of your posts everday and I have learned so

much from all of you. You are all in my prayers daily. I feel we are

a special group of sisters.

I am triple negative, stage 1, grade 3c, no lymph node involement and

margins clear. I have not had bone scans or any other testing.

The doctor said that I am to have 4 rounds of Chemo and then

radiation. The chemo being a precautionary measure.. He said that

there could be a tiny cancerious cell out there lurking that would not

show up on any testing but hopefully the Chemo would kill all. He has

prescribed Tax/Cytoxin together.

Here I am thinking that if I make it through the Chemo that I would be

home free - duh!. I realize by reading all of the posts that there is

a chance of reocurence. They told me to be thankful it was a small

tumor and it was caught early. So with that in mind I am wondering if

the Chemo treatment is a harsh one and if there is something milder

out there. I will be totally honest and say that I am petrified of

Chemo and afraid that I might die from it - has anyone else felt this

way. This is the first time I have ever admitted this to ANYONE.

Thanks and God Bless Oh my first treatment is 1/5 at ten in the

morning - I hope I don't freak out

[Guest guest]

I had 12 treatments of Cytoxan, methotrexate and 5fu. I didn't have any

problems. Just very slight nausea and the antinausea pills took care of that.

Talk to your onc or his nurse. Explain how you are feeling. Maybe they can give

you something for your anxiety. I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

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www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

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Lots of info and gifts at:

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I must be hiding my head in the sand.

Hi everyone, I read all of your posts everday and I have learned so

much from all of you. You are all in my prayers daily. I feel we are

a special group of sisters.

I am triple negative, stage 1, grade 3c, no lymph node involement and

margins clear. I have not had bone scans or any other testing.

The doctor said that I am to have 4 rounds of Chemo and then

radiation. The chemo being a precautionary measure.. He said that

there could be a tiny cancerious cell out there lurking that would not

show up on any testing but hopefully the Chemo would kill all. He has

prescribed Tax/Cytoxin together.

Here I am thinking that if I make it through the Chemo that I would be

home free - duh!. I realize by reading all of the posts that there is

a chance of reocurence. They told me to be thankful it was a small

tumor and it was caught early. So with that in mind I am wondering if

the Chemo treatment is a harsh one and if there is something milder

out there. I will be totally honest and say that I am petrified of

Chemo and afraid that I might die from it - has anyone else felt this

way. This is the first time I have ever admitted this to ANYONE.

Thanks and God Bless Oh my first treatment is 1/5 at ten in the

morning - I hope I don't freak out

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[Guest guest]

>

> Hi everyone, I read all of your posts everday and I have learned

so

> much from all of you. You are all in my prayers daily. I feel we

are

> a special group of sisters.

> I am triple negative, stage 1, grade 3c, no lymph node involement

and

> margins clear. I have not had bone scans or any other testing.

> The doctor said that I am to have 4 rounds of Chemo and then

> radiation. The chemo being a precautionary measure.. He said that

> there could be a tiny cancerious cell out there lurking that would

not

> show up on any testing but hopefully the Chemo would kill all. He

has

> prescribed Tax/Cytoxin together.

> Here I am thinking that if I make it through the Chemo that I would

be

> home free - duh!. I realize by reading all of the posts that there

is

> a chance of reocurence. They told me to be thankful it was a small

> tumor and it was caught early. So with that in mind I am wondering

if

> the Chemo treatment is a harsh one and if there is something milder

> out there. I will be totally honest and say that I am petrified of

> Chemo and afraid that I might die from it - has anyone else felt

this

> way. This is the first time I have ever admitted this to ANYONE.

> Thanks and God Bless Oh my first treatment is 1/5 at ten in the

> morning - I hope I don't freak out

>

Good Morning " RPDee "

This is Sandy from Los Angeles

They say everyone has a twin...I too am a triple negative:

Dx w/IDC on 10-3-06

Lupectomy w/SNB 10-17-06. 2 node removed(says the radioactive stuff

was sounding off so tough in the first 2, she just took those)No Node

invovlement

Tumor was at 9o'clock, 1cm(a pea size)However, it is Er-Pr-Her2-

Margin was clear except one small area because the tumor was close to

the skin(.5mm there) Grade 3,mitosis 2(which calls for very

aggressive therapy)i.e., Chemo and radiation.

4 rounds every 21 days of A/C(the " A " taxes your heart Muscle

The " C " taxes your liver,gives you severe headache,sinus burn and

moth sores(don't worry . There's a cocktail of Lidocaine and maaloox

that was prescribed to me and in two days the sore was gone)for about

an hour(or until the tx is over)

The 4 rounds of Taxol I think will be the little booger, that makes

us look like true cancer patients!!!I say this because it takes out

the eyelashes and nail out(i can still put on mascara, eyeliner and

play with my eyebrows(that's a joke from a week ago post.I can't ever

get them even)

The Radiation may strain the heart muscle even further. I has the

doctor what was the toxic level of the A/C since these are the ones

wityh heart mucle damage...of course he reinterated, " Your muga scan

if fine, we will monitor regular for heart damage " ...Noticwe he

didn't answer my question the first time....I asked again...he told

me 550mg can cause a 10% chance of heart disease, he says you're only

getting 480mg(120mg a session)total in 4 rounds of " A. " (So I need to

find out when the next heart scan is, myself!The cumulative effects

of 480mg may take me into that 550 range...Several web-site have a ?

regarding " A " (meaning they how long it takes to metablize(a drugs

half-life)so they don't know when it's out your system. The

cumulative effects of the " A " that can develop congestive heart

failures,etc. Anyway, I'm getting another doctor in January. My

current chemo doc is retiring after 30+ years. now I'll get a 30+

doc, who attend MD in Texas and believes in " Aggressive

Therapy " . Well gotta go for now Dee, I must give myself the Neuopgen

shot(bone,shoulder pain, chest pain mouth sore weakness, irregular

heartbeat and this is supposed to stimulate white blood cell

production)YOU " VE GOT TO BE KIDDING.SO THAT I CAN LAY HEALTHY,WHILE

FLAT ON MY BACK IN THE BED FROM PAIN AND NO ENERGY " (funny)

Dee, this ain't easy, but keep releasing your " Toxic " thoughts, we'll

have enough unwanted toxins in our bodies as it is! make yourself up

as best you can and continue to do everything you'd normally do, as

best that you can.Some times i think what makes Chemo brain so

horiffic(did I spell this right)are our self-defeating thought

patterns...

I'm going to have Glamour shots taken of my baldness soon to help me

accept the new me! If i don't accept me, who else can???

Educate yourself my reading and keep sharing!

Much Love,

Sandy from Los Angeles

[Guest guest]

You are not alone! Chemo terrifies me as well!

Ruth

>

> Hi everyone, I read all of your posts everday and I have learned so

> much from all of you. You are all in my prayers daily. I feel we are

> a special group of sisters.

> I am triple negative, stage 1, grade 3c, no lymph node involement and

> margins clear. I have not had bone scans or any other testing.

> The doctor said that I am to have 4 rounds of Chemo and then

> radiation. The chemo being a precautionary measure.. He said that

> there could be a tiny cancerious cell out there lurking that would not

> show up on any testing but hopefully the Chemo would kill all. He has

> prescribed Tax/Cytoxin together.

> Here I am thinking that if I make it through the Chemo that I would be

> home free - duh!. I realize by reading all of the posts that there is

> a chance of reocurence. They told me to be thankful it was a small

> tumor and it was caught early. So with that in mind I am wondering if

> the Chemo treatment is a harsh one and if there is something milder

> out there. I will be totally honest and say that I am petrified of

> Chemo and afraid that I might die from it - has anyone else felt this

> way. This is the first time I have ever admitted this to ANYONE.

> Thanks and God Bless Oh my first treatment is 1/5 at ten in the

> morning - I hope I don't freak out

>

[Guest guest]

Everyone is scared of chemo, but it is DOABLE.

None of us want to do it ever again, but I think that most of us survived it

pretty darn well.

I don't know the recurrence stats for triple negatives, but I am sure that every

little bit helps.

So, while chemo can be more effective for hormone-receptive cancers, it has real

validity for

other tumors.

It's swell you had no node involvement, but as a grade III, it is prudent to

endure chemo. And,

when doing chemo, don't suffer in silence! Report every symptom, and the docs

will prescribe

medications to alleviate those symptoms.

The harshest side effect I had (aside from the fatigue) was killer constipation.

And I do have

some mild neuropathy in my right foot from the Taxol, but it is more

" interesting " than

debilitating.

I figured that I would let the doctors do what they do, and I would make sure

that my body was the

strongest it could be for the treatment. Nutrition, exercise, joy, etc.

I understand your fear of dying from chemo. From my reading, it seems as if the

highest risk comes

from febrile neutropenia, where you fail to manufacture enough white blood cells

to fight

infection, with the highest risk falling to those with blood cancers, and those

who are 65 years

of age or older. These studies are somewhat out of date, due to recent

medications that help boost

white cell count.

If you have any questions, this board rocks.

Take care,

R.

Ruffing

Grade 3, Stage IIIA, ER/PR+, HER2 neg, 4.9 cm and 5 nodes positive

Chemo and radiation completed 9/28/06

Mastectomy, no reconstruction

__________________________________________________

[Guest guest]

Hey jennifer - I saw another post of yours a week or so ago...but have

been busy with the holidays, blah, blah, blah...

wanted to say HI! from marisa in manhattan -

sorry about your mom - when do you leave for texas?

marisa