Re: To those on inhibitors

[Guest guest]

Hi Steph,

I was on the inhibitors and the depression was so bad that I went off.

Good grief what is the point of quantity if the quality is crap. I

was on them for about 2 months.

Ruth

>

> I have been on Aromasin for almost 3 weeks now. For those who have

> been taking them longer than 3 weeks....does it get any better or

> worse, Does the side effects ever peak then stabilize? From what I

> have been reading the Aromasin seems to have less side effects than

> the others. But I can't see going 5 years feeling this way!!! IF it

> is just 20% that it gives me for not having a reacurrance I just don't

> know if it is worth it. Pain, depression, not sleeping well,,hot

> flashes,constipation!!! Boy oh Boy,,Not fun! Sure would like some

> imput from those on inhibitors,,,would like to know if it gets easier!

>

> Steph

>

[Guest guest]

Steph,

I've been on Tamoxifen for (2) years January 2007, started Lupron injections

to stop my periods for at least one year to be able to either switch to

Femara to Aromisin. I've had no problems with Tamoxifen (so far), but have

heard

horrors about these other inhibitors. Maybe I should stay on Tamoxifen!

AGGGHHHH! decisions...decisions!

Happy New Year!

[Guest guest]

>

> Steph,

>

> I've been on Tamoxifen for (2) years January 2007, started Lupron

injections

> to stop my periods for at least one year to be able to either

switch to

> Femara to Aromisin. I've had no problems with Tamoxifen (so far),

but have heard

> horrors about these other inhibitors. Maybe I should stay on

Tamoxifen!

>

> AGGGHHHH! decisions...decisions!

>

> Happy New Year!

>

>

> Well I don't thnik any of them are good for our bones!!! And

your right I am so tired of making decisions!!!!!!!! lol That and

the Aromasin seems to effect my brain also hard for me to

concentrate on one thing,,,Bad enough chemo was doing that....lol of

course I can go another 5 yrs using that as an excuse when I mess

up!!! That is if I do 5 years. Still trying to make up my mind on

that one!

Steph

>

[Guest guest]

Steph - I was on the sister drug to Aromasin, Arimidex for 5

months. Unfortunately, I have to tell you that MY side effects did

not get better, they got worse. Just two weeks ago, I went off the

AI and onto Tamoxifin. I'm told that it will take 4 to 6 weeks for

the AI to get out of my system and I am hoping and praying that I do

well on the Tamoxifin. My oncologist told us that this treatment is

imperitave to my treatment plan, just as important as the chemo and

radiation were and in some ways, more critical to making sure the

cancer does not come back. So, I'm doing my best to keep on keepin

on.

Sorry I couldn't be more positive - but this is just my experience

on the AI. Maybe your body will adjust to it - I hope so for your

sake - or you can ask your Dr. to switch to Tamoxifin, which has NO

BONE PAIN side effects. Best of luck and keep us posted.

Love,

Ellen

>

> I have been on Aromasin for almost 3 weeks now. For those who have

> been taking them longer than 3 weeks....does it get any better or

> worse, Does the side effects ever peak then stabilize? From what

I

> have been reading the Aromasin seems to have less side effects

than

> the others. But I can't see going 5 years feeling this way!!! IF

it

> is just 20% that it gives me for not having a reacurrance I just

don't

> know if it is worth it. Pain, depression, not sleeping well,,hot

> flashes,constipation!!! Boy oh Boy,,Not fun! Sure would like

some

> imput from those on inhibitors,,,would like to know if it gets

easier!

>

> Steph

>

[Guest guest]

I don't know if the side effects get any easier or fade any. I quit taking the

Aridimex because I could not take the effects and tried the Aromisin and quit

taking it as well. I am taking tamoxifen now. The doc thinks I need to be taking

something for the next few years. but, I agree about the quality of life verses

the quantity of life. And what about the long term side effects of the meds on

other vital organs? hmmmmmm. A lot depends on the cancer and how soon it is

caught and if or if it hasn't spread. I think every case and person is so

different and yet so much alike. It is a very personnal choice for each person

to make. As for myself I will take it as long as I can tolerate it. But if it

starts to interferre with my quality of life too much I will stop taking it. tt

HAPPY NEW YEAR TO EVERYONE!!!!!!!

sjandtj_ve sjandtj@...> wrote:

I have been on Aromasin for almost 3 weeks now. For those who have

been taking them longer than 3 weeks....does it get any better or

worse, Does the side effects ever peak then stabilize? From what I

have been reading the Aromasin seems to have less side effects than

the others. But I can't see going 5 years feeling this way!!! IF it

is just 20% that it gives me for not having a reacurrance I just don't

know if it is worth it. Pain, depression, not sleeping well,,hot

flashes,constipation!!! Boy oh Boy,,Not fun! Sure would like some

imput from those on inhibitors,,,would like to know if it gets easier!

Steph

[Guest guest]

i agree the side effects had a major impact on my life so i stopped the pills,

sometimes i do not feel it was the right thing to do, i suffered badly for

6mths, most of the time i was laying down and dizzy, sweating, memory problems ,

heart racing the list goes on, in the end i knew i could not live like that, but

sometimes i feel i have done the wrong thing by stopping them catch22. i did

hope that after 6mths things would get better , alas things did not, sandy in oz

Theresa Towner ttfntatbcx2@...> wrote: I don't know if the side effects

get any easier or fade any. I quit taking the Aridimex because I could not take

the effects and tried the Aromisin and quit taking it as well. I am taking

tamoxifen now. The doc thinks I need to be taking something for the next few

years. but, I agree about the quality of life verses the quantity of life. And

what about the long term side effects of the meds on other vital organs?

hmmmmmm. A lot depends on the cancer and how soon it is caught and if or if it

hasn't spread. I think every case and person is so different and yet so much

alike. It is a very personnal choice for each person to make. As for myself I

will take it as long as I can tolerate it. But if it starts to interferre with

my quality of life too much I will stop taking it. tt

HAPPY NEW YEAR TO EVERYONE!!!!!!!

sjandtj_ve wrote:

I have been on Aromasin for almost 3 weeks now. For those who have

been taking them longer than 3 weeks....does it get any better or

worse, Does the side effects ever peak then stabilize? From what I

have been reading the Aromasin seems to have less side effects than

the others. But I can't see going 5 years feeling this way!!! IF it

is just 20% that it gives me for not having a reacurrance I just don't

know if it is worth it. Pain, depression, not sleeping well,,hot

flashes,constipation!!! Boy oh Boy,,Not fun! Sure would like some

imput from those on inhibitors,,,would like to know if it gets easier!

Steph

[Guest guest]

Another thing, the aromatase inhibitors have not been around long

enough for the medical community to be able to acertain long term side

effects! Who knows what we might be getting ourselves into. This is

basically unchartered territory! They are " thought? " to have fewer

side effects than tomoxifin, but just listen to the experience of

those on this board.

Ruth

> I have been on Aromasin for almost 3 weeks now. For those who have

> been taking them longer than 3 weeks....does it get any better or

> worse, Does the side effects ever peak then stabilize? From what I

> have been reading the Aromasin seems to have less side effects than

> the others. But I can't see going 5 years feeling this way!!! IF it

> is just 20% that it gives me for not having a reacurrance I just don't

> know if it is worth it. Pain, depression, not sleeping well,,hot

> flashes,constipation!!! Boy oh Boy,,Not fun! Sure would like some

> imput from those on inhibitors,,,would like to know if it gets easier!

>

> Steph

>

>

>

>

>

[Guest guest]

> > I have been on Aromasin for almost 3 weeks now. For those who

have

> > been taking them longer than 3 weeks....does it get any better

or

> > worse, Does the side effects ever peak then stabilize? From what

I

> > have been reading the Aromasin seems to have less side effects

than

> > the others. But I can't see going 5 years feeling this way!!! IF

it

> > is just 20% that it gives me for not having a reacurrance I just

don't

> > know if it is worth it. Pain, depression, not sleeping well,,hot

> > flashes,constipation!!! Boy oh Boy,,Not fun! Sure would like

some

> > imput from those on inhibitors,,,would like to know if it gets

easier!

> >

> > Steph

> >

> >

> >

> >

> >

[Guest guest]

Hi All,

I'm new here as far as posting goes but I have taken a

wealth of information from you all and your words and

experiences give me strenght.

I had a lumpectomy on Feb 16, 2006 and started my

rounds of Chemo in March (it was given every 21 days

and I have 4 sesssions with one drug and 4 sessions of

Taxol with Herceptin as a chaser). The first 4 rounds

were difficult, but Taxol was a piece of cake, only

experiencing some numbness in my toes and bottoms of

my feet. Once Chemo was completed, I started 6 weeks

of Radiation with the last week being a boost. I

spent more time getting undressed, situation on the

table and then redressed, then it took to do the

radiation to my left breast and underarm. I didn't

suffer any of the side-effects of radiation. My

diagnosis was 99% estrogen, 45% progestrone and Her

positive. My tumor was 2 cm and of the 8 nodes taken,

1 had a microscopic trace of cancer. My doctor

originally was going to prescribe tamoxifen but after

going over the side effects, I opted for Femera and

had not had any side effects. I am still taking

Herceptin every 21 days and my last month will be

June.

Thanks again for your words,

Anita

--- rrleary66 rrleary66@...> wrote:

>

> > > I have been on Aromasin for almost 3 weeks now.

> For those who

> have

> > > been taking them longer than 3 weeks....does it

> get any better

> or

> > > worse, Does the side effects ever peak then

> stabilize? From what

> I

> > > have been reading the Aromasin seems to have

> less side effects

> than

> > > the others. But I can't see going 5 years

> feeling this way!!! IF

> it

> > > is just 20% that it gives me for not having a

> reacurrance I just

> don't

> > > know if it is worth it. Pain, depression, not

> sleeping well,,hot

> > > flashes,constipation!!! Boy oh Boy,,Not fun!

> Sure would like

> some

> > > imput from those on inhibitors,,,would like to

> know if it gets

> easier!

> > >

> > > Steph

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Anita,

Glad to hear the group has helped. I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

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www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

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www.cancerclub.com

Re: Re: To those on inhibitors

Hi All,

I'm new here as far as posting goes but I have taken a

wealth of information from you all and your words and

experiences give me strenght.

I had a lumpectomy on Feb 16, 2006 and started my

rounds of Chemo in March (it was given every 21 days

and I have 4 sesssions with one drug and 4 sessions of

Taxol with Herceptin as a chaser). The first 4 rounds

were difficult, but Taxol was a piece of cake, only

experiencing some numbness in my toes and bottoms of

my feet. Once Chemo was completed, I started 6 weeks

of Radiation with the last week being a boost. I

spent more time getting undressed, situation on the

table and then redressed, then it took to do the

radiation to my left breast and underarm. I didn't

suffer any of the side-effects of radiation. My

diagnosis was 99% estrogen, 45% progestrone and Her

positive. My tumor was 2 cm and of the 8 nodes taken,

1 had a microscopic trace of cancer. My doctor

originally was going to prescribe tamoxifen but after

going over the side effects, I opted for Femera and

had not had any side effects. I am still taking

Herceptin every 21 days and my last month will be

June.

Thanks again for your words,

Anita

--- rrleary66 rrleary66@...> wrote:

>

> > > I have been on Aromasin for almost 3 weeks now.

> For those who

> have

> > > been taking them longer than 3 weeks....does it

> get any better

> or

> > > worse, Does the side effects ever peak then

> stabilize? From what

> I

> > > have been reading the Aromasin seems to have

> less side effects

> than

> > > the others. But I can't see going 5 years

> feeling this way!!! IF

> it

> > > is just 20% that it gives me for not having a

> reacurrance I just

> don't

> > > know if it is worth it. Pain, depression, not

> sleeping well,,hot

> > > flashes,constipation!!! Boy oh Boy,,Not fun!

> Sure would like

> some

> > > imput from those on inhibitors,,,would like to

> know if it gets

> easier!

> > >

> > > Steph

> > >

> > >

> > >

> > >

> > >