LABS & Venting (LONG)

[Guest guest]

My rotten day! Went to see the PA to get my lab

results this morning. Left wanting to scream.....

Had labs Drawn on December 27, 2006

TSH 3.74 (0.40-5.5)

CBC (Inc. Diff & Plt)

WBC 11.0 H (3.9-10.8

RBC 5.18 H (3.80-5.10)

Hemoglobin 14.8 (11.9-15.9)

Hematocrit 44.5 (35.0-49.0)

MCV 86.1 (80.0-100.0)

MCH 28.5 (27.0-36.0)

MCHC 33.1 (32.0-36.0)

RDW 15.2 H (11.0-15.0)

Platelet count 285 (140-400

MPV 8.6 (7.5-11.5)

Absolute Neutrophils 9196H (1500-7800)

Absolute Lymphocytes 1221 (850-3900)

Absolute Monocytes 374 (200-950)

Absolute Eosinophils 198 (0-500)

Absolute Basophils 11 )0-200)

Neutrophils 83.6 (%)

Lymphocytes 11.1 (%)

Monocytes 3.4 (%)

Eosinophils 1.8 (%)

Basophils 0.1 (%)

Comp Metabolic Panel W/EGFR

Glucose 89 ( Fasting 65-99)

UREA Nitrogen, Serum 17 (7-25)

Creatinine, Serum 0.9 (0.5-1.2)

EGFR >60 (>59 ML/MIN/1.73M2)

BUN/ Creatinine ratio 18.9 (6-25 ratio)

Sodium, Serum 141 (135-146)

Potassium, Serum 4.4 (3.5-5.3)

Chloride, Serum 105 (98-110)

Carbon Dioxide 21 (18-31)

Calcium, Serum 9.7 (8.5-10.4)

Protein, Total Serum 7.9 (6.0-8.3)

Albumin, Serum 4.6 (3.2-5.1)

Globulin 3.3 (2.2-4.2)

A/G Ratio 1.4 (0.8-2.0)

Bilirubin, Total 0.5 (0.2-1.3)

Alkaline Phosaphate 97 (20-125)

AST (SGOT) 17 (3-35)

ALT (SGPT) 12 (3-40)

My symptoms:

Dragging, emotional, weight gain, dry skin

I really thought I was hypo and told her so.

Currently taking 200 mcg. levothyroxin

Today----

She sees the TSH is in range and wants to do

absolutely nothing. All my symptoms are

peri-menopausal and that I should start taking soy I

told her no and why. We finally agreed on pregestrone

cream. (Not that she tested any of my female

hormones!!!!) I went back to the TSH I told her the

labs ranges were changed in 2003. She proceeds to

tell me that is the new ranges. GGGRRRRR!!!!! My

last TSH was 1.65 I felt fine then and she doesn't

think 3.74 now is Hypo. I begged to get 225 mcg.

Levothyroxin. She finally agreed to that. I asked

her Did you do a T3 & T4... are they in the upper part

of the range? Yes she assures me. SHE LIED! I have

never been able to get this clinic to do a FT3 or a

FT4. The icing on the cake... come back in three

months. Labs first. (which is only a TSH). Why do I

have to beg for an increase?

My conclusion:

6 weeks then Healthcheck for my own labs. Then decide

whether to go back to that PA with some info and try

to teach her or request someone else at that clinic.

Sami 45 (Banging head against wall screaming I'm not

CRAZY!!!!)

Graves in May 2000

RAI July 2000

RAI May 2001

Thyroid Surgery Mar 2002

On complete Thyroid REPLACEMENT!

Discovered Yahoo groups July 2003 and wish I could do

everything different.

________________________________________________________________________________\

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[Guest guest]

Sami, you have every reason to need to vent and then find someone else to treat you. You know you are hypo and the TSH tells it big time. But a health care provider who lies to you is unacceptable in any realm of the imagination. It's just plain ridiculous. You are NOT crazy, soy is not the new wonder food and the PA shouldn't be treating patients if she can't tell the truth.sam kelly wrote: My rotten day! Went to see the PA to get my labresults this morning. Left wanting to scream.....Had labs Drawn on December 27, 2006TSH 3.74 (0.40-5.5)CBC (Inc. Diff & Plt)WBC 11.0 H (3.9-10.8RBC 5.18 H (3.80-5.10)Hemoglobin 14.8 (11.9-15.9)Hematocrit 44.5 (35.0-49.0)MCV 86.1 (80.0-100.0)MCH 28.5 (27.0-36.0)MCHC 33.1 (32.0-36.0)RDW 15.2 H

(11.0-15.0)Platelet count 285 (140-400MPV 8.6 (7.5-11.5)Absolute Neutrophils 9196H (1500-7800)Absolute Lymphocytes 1221 (850-3900)Absolute Monocytes 374 (200-950)Absolute Eosinophils 198 (0-500)Absolute Basophils 11 )0-200)Neutrophils 83.6 (%)Lymphocytes 11.1 (%)Monocytes 3.4 (%)Eosinophils 1.8 (%)Basophils 0.1 (%)Comp Metabolic Panel W/EGFRGlucose 89 ( Fasting 65-99)UREA Nitrogen, Serum 17 (7-25)Creatinine, Serum 0.9 (0.5-1.2)EGFR >60 (>59 ML/MIN/1.73M2)BUN/ Creatinine ratio 18.9 (6-25 ratio)Sodium, Serum 141 (135-146)Potassium, Serum 4.4 (3.5-5.3)Chloride, Serum 105 (98-110)Carbon Dioxide 21 (18-31)Calcium, Serum 9.7 (8.5-10.4)Protein, Total Serum 7.9 (6.0-8.3)Albumin, Serum 4.6 (3.2-5.1)Globulin 3.3 (2.2-4.2)A/G Ratio 1.4 (0.8-2.0)Bilirubin, Total 0.5 (0.2-1.3)Alkaline Phosaphate 97 (20-125)AST (SGOT) 17 (3-35)ALT (SGPT) 12 (3-40)My

symptoms:Dragging, emotional, weight gain, dry skin I really thought I was hypo and told her so.Currently taking 200 mcg. levothyroxinToday----She sees the TSH is in range and wants to doabsolutely nothing. All my symptoms areperi-menopausal and that I should start taking soy Itold her no and why. We finally agreed on pregestronecream. (Not that she tested any of my femalehormones!!!!) I went back to the TSH I told her thelabs ranges were changed in 2003. She proceeds totell me that is the new ranges. GGGRRRRR!!!!! Mylast TSH was 1.65 I felt fine then and she doesn'tthink 3.74 now is Hypo. I begged to get 225 mcg.Levothyroxin. She finally agreed to that. I askedher Did you do a T3 & T4... are they in the upper partof the range? Yes she assures me. SHE LIED! I havenever been able to get this clinic to do a FT3 or aFT4. The icing on the cake... come back in threemonths. Labs first. (which

is only a TSH). Why do Ihave to beg for an increase?My conclusion: 6 weeks then Healthcheck for my own labs. Then decidewhether to go back to that PA with some info and tryto teach her or request someone else at that clinic.Sami 45 (Banging head against wall screaming I'm notCRAZY!!!!)Graves in May 2000RAI July 2000RAI May 2001Thyroid Surgery Mar 2002On complete Thyroid REPLACEMENT!Discovered Yahoo groups July 2003 and wish I could doeverything different.Kathy >^,,^<KitzCat146@...http://www.chaytongroup.com/modernbill/order/index.php?aid=ka081104http://www.heartwarmers4u.com/members/?kitzcatkitzcat2001 on Yahoo Messengerkitzcat on MSN MessengerIn a cat's eyes, all things belong to cats. - English Proverb

Have a burning question? Go to Yahoo! Answers and get answers from real people who know.

[Guest guest]

Sami

She said absolutely NOTHING about that high RDW on your red blood cell shape

and size or your high Neutrophil count? Duh, what a dimwit? Did you have

an infection or inflammation at the time of the blood draw (Neutrophils) or

do you ingest a large amt of iron, b12, or folic acid (RDW, though I can't

immagine that these nutrients would change the size and shape of the RBCs on

their own???!!) ? Did she say ANYthing about this at ALL?? Also, I say

she's unteachable because she out and out lies, hands down, to cover her own

ignorance and is being a smart @$$, when she says those ARE the new ranges.

IMO, when she said that, she's making fun of you and treating you as though

you are totally stupid. You would be seeing my dust with this doctor or

whatever you call her. Duh, what a crock!

LABS & Venting (LONG)

> My rotten day! Went to see the PA to get my lab

> results this morning. Left wanting to scream.....

>

> Had labs Drawn on December 27, 2006

> TSH 3.74 (0.40-5.5)

> CBC (Inc. Diff & Plt)

> WBC 11.0 H (3.9-10.8

> RBC 5.18 H (3.80-5.10)

> Hemoglobin 14.8 (11.9-15.9)

> Hematocrit 44.5 (35.0-49.0)

> MCV 86.1 (80.0-100.0)

> MCH 28.5 (27.0-36.0)

> MCHC 33.1 (32.0-36.0)

> RDW 15.2 H (11.0-15.0)

> Platelet count 285 (140-400

> MPV 8.6 (7.5-11.5)

> Absolute Neutrophils 9196H (1500-7800)

> Absolute Lymphocytes 1221 (850-3900)

> Absolute Monocytes 374 (200-950)

> Absolute Eosinophils 198 (0-500)

> Absolute Basophils 11 )0-200)

> Neutrophils 83.6 (%)

> Lymphocytes 11.1 (%)

> Monocytes 3.4 (%)

> Eosinophils 1.8 (%)

> Basophils 0.1 (%)

> Comp Metabolic Panel W/EGFR

> Glucose 89 ( Fasting 65-99)

> UREA Nitrogen, Serum 17 (7-25)

> Creatinine, Serum 0.9 (0.5-1.2)

> EGFR >60 (>59 ML/MIN/1.73M2)

> BUN/ Creatinine ratio 18.9 (6-25 ratio)

> Sodium, Serum 141 (135-146)

> Potassium, Serum 4.4 (3.5-5.3)

> Chloride, Serum 105 (98-110)

> Carbon Dioxide 21 (18-31)

> Calcium, Serum 9.7 (8.5-10.4)

> Protein, Total Serum 7.9 (6.0-8.3)

> Albumin, Serum 4.6 (3.2-5.1)

> Globulin 3.3 (2.2-4.2)

> A/G Ratio 1.4 (0.8-2.0)

> Bilirubin, Total 0.5 (0.2-1.3)

> Alkaline Phosaphate 97 (20-125)

> AST (SGOT) 17 (3-35)

> ALT (SGPT) 12 (3-40)

>

> My symptoms:

> Dragging, emotional, weight gain, dry skin

> I really thought I was hypo and told her so.

> Currently taking 200 mcg. levothyroxin

>

> Today----

> She sees the TSH is in range and wants to do

> absolutely nothing. All my symptoms are

> peri-menopausal and that I should start taking soy I

> told her no and why. We finally agreed on pregestrone

> cream. (Not that she tested any of my female

> hormones!!!!) I went back to the TSH I told her the

> labs ranges were changed in 2003. She proceeds to

> tell me that is the new ranges. GGGRRRRR!!!!! My

> last TSH was 1.65 I felt fine then and she doesn't

> think 3.74 now is Hypo. I begged to get 225 mcg.

> Levothyroxin. She finally agreed to that. I asked

> her Did you do a T3 & T4... are they in the upper part

> of the range? Yes she assures me. SHE LIED! I have

> never been able to get this clinic to do a FT3 or a

> FT4. The icing on the cake... come back in three

> months. Labs first. (which is only a TSH). Why do I

> have to beg for an increase?

>

> My conclusion:

> 6 weeks then Healthcheck for my own labs. Then decide

> whether to go back to that PA with some info and try

> to teach her or request someone else at that clinic.

>

> Sami 45 (Banging head against wall screaming I'm not

> CRAZY!!!!)

> Graves in May 2000

> RAI July 2000

> RAI May 2001

> Thyroid Surgery Mar 2002

> On complete Thyroid REPLACEMENT!

> Discovered Yahoo groups July 2003 and wish I could do

> everything different.

[Guest guest]

Thanks Kathy,

She just blew my mind and the fact that I had to beg

for an increase when labs show that I need one is just

wrong.

Sami

--- Kathy Kitzcat kitzcat2001@...> wrote:

> Sami, you have every reason to need to vent and then

> find someone else to treat you. You know you are

> hypo and the TSH tells it big time. But a health

> care provider who lies to you is unacceptable in any

> realm of the imagination. It's just plain

> ridiculous. You are NOT crazy, soy is not the new

> wonder food and the PA shouldn't be treating

> patients if she can't tell the truth.

>

________________________________________________________________________________\

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[Guest guest]

,

Thanks for responding. Nope she didn't say one word

about that. But the nurse before she got there asked

me if I had an infection. I was nursing a badly

sprained ankle when the labs were drawn. My Back was

bothering me a little I wonder if I had a small kidney

infection and didn't know it. Just thought it was

from falling on the ice and killing my ankle.

The only supplements I'm taking is Flax oil, Selenium,

Calcium and a Multi w/iron.

Sami

--- marin@...> wrote:

> Sami

>

> She said absolutely NOTHING about that high RDW on

> your red blood cell shape

> and size or your high Neutrophil count? Duh, what a

> dimwit? Did you have

> an infection or inflammation at the time of the

> blood draw (Neutrophils) or

> do you ingest a large amt of iron, b12, or folic

> acid (RDW, though I can't

> immagine that these nutrients would change the size

> and shape of the RBCs on

> their own???!!) ? Did she say ANYthing about this

> at ALL?? Also, I say

> she's unteachable because she out and out lies,

> hands down, to cover her own

> ignorance and is being a smart @$$, when she says

> those ARE the new ranges.

> IMO, when she said that, she's making fun of you and

> treating you as though

> you are totally stupid. You would be seeing my dust

> with this doctor or

> whatever you call her. Duh, what a crock!

>

>

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[Guest guest]

>

> My rotten day! Went to see the PA to get my lab

> results this morning. Left wanting to scream.....

>

> Had labs Drawn on December 27, 2006

> TSH 3.74 (0.40-5.5)

> My symptoms:

> Dragging, emotional, weight gain, dry skin

> I really thought I was hypo and told her so.

> Currently taking 200 mcg. levothyroxin

>

> Today----

> She sees the TSH is in range and wants to do

> absolutely nothing. My conclusion:

> 6 weeks then Healthcheck for my own labs. Then decide

> whether to go back to that PA with some info and try

> to teach her or request someone else at that clinic.

Unless your meds were changed today..there is no need to wait 6

weeks for labs..or you are just going to feel worse in 6 weeks of

being more hypo..

I deleted your other bloodwork as none of it was really thyroid

related other than you had a high RBC and WBC meaning and infection

and inflammation..with all the colds/viruses/flu going around right

now how were you feeling lab draw time?

TSH ..with your TSH and not on any meds with out any thyroid

disorder even my gp would order more thyroid screening tests to rule

out or include a thyroid disorder..now the question for you is

obviously useless as you already know you have a thyroid

disorder..you have had RAI and have little or no thyroid function

left..Most docs know that when on replacement the TSH should be kept

under 1..even the TSH worshipers that only run TSH..

My advice..make sure you are getting the most out of your

replacement..on an empty stomach an hour before any food or other

meds..and 4 hours apart from and calcium/iron ( calcium containing

antacids ) etc.

A a general rule full T4 replacement should be 1 mcg per lb.. so if

you are 200lbs you should be on 200mcg..but this is only a general

guideline..

What you need is FT4 and FT3 labs.. see I would of asked the doc why

if you are taking a T4 replacement they won't test T4 levels in the

body?? Imagine a doc giving you blood pressure meds and never

checking your blood pressure?? even something as simple as iron

replacement they check iron levels and then follow up iron levels to

see how well the meds are working..

General guideline is FT4 and FT3 labs.. based on symptoms and labs

increase the T4..wait 6 weeks.repeat..this continues until the T4 is

at the higher end of the range and you feel good.. if the T4 goes

above the range and you feel like crap then look at that T3? Is it

following along?

How your doc knows all this with out a T4 or T3 ever being tested is

amazing..almost physic like..although I perfer labs over guessing

and relying on supernatural forces to tell me.

My advice is run, run, run as far and as fast as you can and find a

doc willing to work with you..not one who is gonig to tell you how

you should feel or should not feel or guess at how the meds are

wroking with out testing them..

Kats3boys

[Guest guest]

Sam:

The single hardest thing aobut having insurance is

that you want to use it. This keeps you with

docs...going doc to doc trying to get someone to help

you.

Since I have no insurance I do the healthcheck

route...and am happier for it. ITS cheaper and I get

run what I need.

Now...having said that...you have some other things

out of whack too that you may want a medical person's

help with.

I do think you tsh is too high as well...and maybe the

increase that she gave will help.

~E:)

--- sam kelly samkelly729@...> wrote:

> My rotten day! Went to see the PA to get my lab

> results this morning. Left wanting to scream.....

>

> Had labs Drawn on December 27, 2006

> TSH 3.74 (0.40-5.5)

> CBC (Inc. Diff & Plt)

> WBC 11.0 H (3.9-10.8

> RBC 5.18 H (3.80-5.10)

> Hemoglobin 14.8 (11.9-15.9)

> Hematocrit 44.5 (35.0-49.0)

> MCV 86.1 (80.0-100.0)

> MCH 28.5 (27.0-36.0)

> MCHC 33.1 (32.0-36.0)

> RDW 15.2 H (11.0-15.0)

> Platelet count 285 (140-400

> MPV 8.6 (7.5-11.5)

> Absolute Neutrophils 9196H (1500-7800)

> Absolute Lymphocytes 1221 (850-3900)

> Absolute Monocytes 374 (200-950)

> Absolute Eosinophils 198 (0-500)

> Absolute Basophils 11 )0-200)

> Neutrophils 83.6 (%)

> Lymphocytes 11.1 (%)

> Monocytes 3.4 (%)

> Eosinophils 1.8 (%)

> Basophils 0.1 (%)

> Comp Metabolic Panel W/EGFR

> Glucose 89 ( Fasting 65-99)

> UREA Nitrogen, Serum 17 (7-25)

> Creatinine, Serum 0.9 (0.5-1.2)

> EGFR >60 (>59 ML/MIN/1.73M2)

> BUN/ Creatinine ratio 18.9 (6-25 ratio)

> Sodium, Serum 141 (135-146)

> Potassium, Serum 4.4 (3.5-5.3)

> Chloride, Serum 105 (98-110)

> Carbon Dioxide 21 (18-31)

> Calcium, Serum 9.7 (8.5-10.4)

> Protein, Total Serum 7.9 (6.0-8.3)

> Albumin, Serum 4.6 (3.2-5.1)

> Globulin 3.3 (2.2-4.2)

> A/G Ratio 1.4 (0.8-2.0)

> Bilirubin, Total 0.5 (0.2-1.3)

> Alkaline Phosaphate 97 (20-125)

> AST (SGOT) 17 (3-35)

> ALT (SGPT) 12 (3-40)

>

> My symptoms:

> Dragging, emotional, weight gain, dry skin

> I really thought I was hypo and told her so.

> Currently taking 200 mcg. levothyroxin

>

> Today----

> She sees the TSH is in range and wants to do

> absolutely nothing. All my symptoms are

> peri-menopausal and that I should start taking soy I

> told her no and why. We finally agreed on

> pregestrone

> cream. (Not that she tested any of my female

> hormones!!!!) I went back to the TSH I told her the

> labs ranges were changed in 2003. She proceeds to

> tell me that is the new ranges. GGGRRRRR!!!!! My

> last TSH was 1.65 I felt fine then and she doesn't

> think 3.74 now is Hypo. I begged to get 225 mcg.

> Levothyroxin. She finally agreed to that. I asked

> her Did you do a T3 & T4... are they in the upper

> part

> of the range? Yes she assures me. SHE LIED! I

> have

> never been able to get this clinic to do a FT3 or a

> FT4. The icing on the cake... come back in three

> months. Labs first. (which is only a TSH). Why do I

> have to beg for an increase?

>

> My conclusion:

> 6 weeks then Healthcheck for my own labs. Then

> decide

> whether to go back to that PA with some info and try

> to teach her or request someone else at that clinic.

>

> Sami 45 (Banging head against wall screaming I'm not

> CRAZY!!!!)

> Graves in May 2000

> RAI July 2000

> RAI May 2001

> Thyroid Surgery Mar 2002

> On complete Thyroid REPLACEMENT!

> Discovered Yahoo groups July 2003 and wish I could

> do

> everything different.

>

>

>

>

>

>

>

________________________________________________________________________________\

____

> Now that's room service! Choose from over 150,000

> hotels

> in 45,000 destinations on Yahoo! Travel to find your

> fit.

> http://farechase.yahoo.com/promo-generic-14795097

>

TOTAL-Thyroidectomy 26 months post-op.

________________________________________________________________________________\

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[Guest guest]

> A a general rule full T4 replacement should be 1 mcg per lb.. so if

> you are 200lbs you should be on 200mcg..but this is only a general

> guideline..

> Kats3boys

One thing I've never understood about the 1 mcg per lb concept is What do

you do when you lose weight, say another 20 to 30 lbs? Do you decrease the

thyroid med according to that or do you keep it where it's at? Or would you

just go according to the original amt of weight you already gained while

hypo? This is something that doesn't make sense to me AFTER doing this type

of dosing. What if you lost as much as 100 lbs, after treating according to

this method???

[Guest guest]

Thanks Katz3boys

I am not new to all this. I have actually been

lurking here for a couple of years. I realized I knew

more than the PA did. I have been doing what I can to

make my meds as efficient as I can. It just burns me

that with a TSH that high I still had to beg to get an

increase. Then to blame all my symptoms on menopause.

I'm going to request one of the other Docs in that

clinic the next time I go in. But I'm still going to

healthcheck in six weeks. I'm not going to wait three

months that is ridiculous.

Thanks,

Sami

Graves in May 2000

RAI July 2000

RAI May 2001

Thyroid Surgery Mar 2002

On complete Thyroid REPLACEMENT!

Discovered Yahoo groups July 2003

~~~~~~~~~~~~~~~~~~~~~`

Unless your meds were changed today..there is no need

to wait 6

weeks for labs..or you are just going to feel worse in

6 weeks of

being more hypo..

I deleted your other bloodwork as none of it was

really thyroid

related other than you had a high RBC and WBC meaning

and infection

and inflammation. .with all the colds/viruses/ flu

going around right

now how were you feeling lab draw time?

TSH ..with your TSH and not on any meds with out any

thyroid

disorder even my gp would order more thyroid screening

tests to rule

out or include a thyroid disorder..now the question

for you is

obviously useless as you already know you have a

thyroid

disorder..you have had RAI and have little or no

thyroid function

left..Most docs know that when on replacement the TSH

should be kept

under 1..even the TSH worshipers that only run TSH..

My advice..make sure you are getting the most out of

your

replacement. .on an empty stomach an hour before any

food or other

meds..and 4 hours apart from and calcium/iron (

calcium containing

antacids ) etc.

A a general rule full T4 replacement should be 1 mcg

per lb.. so if

you are 200lbs you should be on 200mcg..but this is

only a general

guideline..

What you need is FT4 and FT3 labs.. see I would of

asked the doc why

if you are taking a T4 replacement they won't test T4

levels in the

body?? Imagine a doc giving you blood pressure meds

and never

checking your blood pressure?? even something as

simple as iron

replacement they check iron levels and then follow up

iron levels to

see how well the meds are working..

General guideline is FT4 and FT3 labs.. based on

symptoms and labs

increase the T4..wait 6 weeks.repeat. .this continues

until the T4 is

at the higher end of the range and you feel good.. if

the T4 goes

above the range and you feel like crap then look at

that T3? Is it

following along?

How your doc knows all this with out a T4 or T3 ever

being tested is

amazing..almost physic like..although I perfer labs

over guessing

and relying on supernatural forces to tell me.

My advice is run, run, run as far and as fast as you

can and find a

doc willing to work with you..not one who is gonig to

tell you how

you should feel or should not feel or guess at how the

meds are

wroking with out testing them..

Kats3boys

________________________________________________________________________________\

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[Guest guest]

Thanks E,

I hope the increase will help. I just wonder if it's

a big enough increase. In six weeks I will know when

I have my own labs run. I can really understand why

some of you have to self dose. I am so close to doing

the same thing.

Sami

--- E Gillespie lyongillespie@...> wrote:

Sam:

The single hardest thing aobut having insurance is

that you want to use it. This keeps you with

docs...going doc to doc trying to get someone to help

you.

Since I have no insurance I do the healthcheck

route...and am happier for it. ITS cheaper and I get

run what I need.

Now...having said that...you have some other things

out of whack too that you may want a medical person's

help with.

I do think you tsh is too high as well...and maybe the

increase that she gave will help.

~E:)

________________________________________________________________________________\

____

Have a burning question?

Go to www.Answers.yahoo.com and get answers from real people who know.

[Guest guest]

Sam:

As you very well know by now...learning to read your

body is something that takes time and patience and a

lot of thoughtfulness.

Mostly the doctors I've encuntered think their

responsibilty is to just keep you from doing stuff

like bleeding all over the place or dying....and since

a thyroid imbalance leaves you with few real outward

signs, it can be hard to garner support from the

medical people as nice as they are. I'm sure you look

fine...

I know I'm a great looking sick person!

I should think you will start to feel better in a few

weeks, but I too would be ready for the testing and

the next tweak you may want to do.

Its so worth it to have that " hard " intelligence in

your arsenal.

I am no EXPERT by any stretch...as I am all to aware

how highly individual we all are, but I find that it

helps to do such things as too keep a journal, with

your daily temps..bp if you have a machine and a log

of your dose changes and bloods.

The thing for me...was bending the doses this way and

that so I could see how I felt... I learned that if I

wanted a good mood and clear thoughts my t4 needed to

be elevated..and if I wanted some bounce to my step I

needed the t3 up...but not too high, because that

would cause lethargy. ITS a lot of fine tuning.

I also found that once you are pretty much where you

want to be...getting the doctors to go along with you

is easier, because they don't want to mess with a good

thing.

AT the same time..I found I had to be careful what I

revealed to them about my sytmpoms, for fear they

would consider those thing unrelated and indicating a

batch of other types of tests and meds...which I don't

want to waste my time/money with. THEY can't seem to

hold themselves back...for some unknown reason...with

this kind of red herring stuff.

It sounds to me...like you are VERY bright and going

to conquer this thing soon.

~E:)

--- sam kelly samkelly729@...> wrote:

> Thanks E,

> I hope the increase will help. I just wonder if

> it's

> a big enough increase. In six weeks I will know

> when

> I have my own labs run. I can really understand why

> some of you have to self dose. I am so close to

> doing

> the same thing.

>

> Sami

>

> --- E Gillespie lyongillespie@...> wrote:

> Sam:

>

> The single hardest thing aobut having insurance is

> that you want to use it. This keeps you with

> docs...going doc to doc trying to get someone to

> help

> you.

>

> Since I have no insurance I do the healthcheck

> route...and am happier for it. ITS cheaper and I get

> run what I need.

>

> Now...having said that...you have some other things

> out of whack too that you may want a medical

> person's

> help with.

>

> I do think you tsh is too high as well...and maybe

> the

> increase that she gave will help.

>

> ~E:)

>

>

>

>

>

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> real people who know.

>

TOTAL-Thyroidectomy 26 months post-op.

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[Guest guest]

I was kept at a 5.5 TSH, progressing to a 6 and above, for more than 7 yrs

after diagnoses, by 3 different doctors, all of which were after diagnoses.

Then I slowly began to study up, realizing that with that much time gone by,

I could possibly have brain damage, a lot of tissue damage (which I know I

do, especially with the muscles, including tendons and such). I am strong

in some ways physically, but weak in others. I am self treating because of

this and not having had insurance to go those doctors that I KNOW will treat

it right.

Re: Re: LABS & Venting (LONG)

> Thanks E,

> I hope the increase will help. I just wonder if it's

> a big enough increase. In six weeks I will know when

> I have my own labs run. I can really understand why

> some of you have to self dose. I am so close to doing

> the same thing.

>

> Sami

[Guest guest]

Thanks E,

I just needed to vent and know that I'm not crazy. I

know what needs to change. I understand the anxiety

really well. I'm dealing with that also and I'm so

emotional. That was one of the main reasons I knew

something was up with my levels. It's just nice that

we have a place we can go to and that others

understand what we are going thru. I know my family

doesn't have a clue half the stuff I'm dealing with! I

am so thankful that this group is here.

Sami

~~~~~~~~~~~~~~~~

Sam:

As you very well know by now...learning to read your

body is something that takes time and patience and a

lot of thoughtfulness.

Mostly the doctors I've encuntered think their

responsibilty is to just keep you from doing stuff

like bleeding all over the place or dying....and since

a thyroid imbalance leaves you with few real outward

signs, it can be hard to garner support from the

medical people as nice as they are. I'm sure you look

fine...

I know I'm a great looking sick person!

I should think you will start to feel better in a few

weeks, but I too would be ready for the testing and

the next tweak you may want to do.

Its so worth it to have that " hard " intelligence in

your arsenal.

I am no EXPERT by any stretch...as I am all to aware

how highly individual we all are, but I find that it

helps to do such things as too keep a journal, with

your daily temps..bp if you have a machine and a log

of your dose changes and bloods.

The thing for me...was bending the doses this way and

that so I could see how I felt... I learned that if I

wanted a good mood and clear thoughts my t4 needed to

be elevated..and if I wanted some bounce to my step I

needed the t3 up...but not too high, because that

would cause lethargy. ITS a lot of fine tuning.

I also found that once you are pretty much where you

want to be...getting the doctors to go along with you

is easier, because they don't want to mess with a good

thing.

AT the same time..I found I had to be careful what I

revealed to them about my sytmpoms, for fear they

would consider those thing unrelated and indicating a

batch of other types of tests and meds...which I don't

want to waste my time/money with. THEY can't seem to

hold themselves back...for some unknown reason...with

this kind of red herring stuff.

It sounds to me...like you are VERY bright and going

to conquer this thing soon.

~E:)

________________________________________________________________________________\

____

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[Guest guest]

You don't actually treat/dose according to weight.. the 1 mcg per pound

of body weight is a general guideline... but

when you do lose, or gain, significant amounts of weight your blood

volume does change. It's that blood volume that changes the

concentration/density whatever you call it.. saturation? of the thyroid

hormone that is in the blood stream.

The higher the concentration in the blood the easier, in theory, for the

receptors to be able to pick up the hormone. Depending on the efficiency

of your receptors some of us need a higher level of hormone in the blood

then others do.. that's why not everyone has the same lab results when

they feel well.... it's just another variable that we are dealing with.

Coming in for annual labs and new prescriptions annually, once your

levels have been determined as good, is to be able to monitor how your

body has changed over the last year and if you should continue on the

same dose or if it needs to be adjusted... that covers changes over the

year like weight, diet, environment, stress and normal aging.

Now.. they know all this stuff makes a difference, well, at least someone

knew that at one time or another... but for all the years that I was with

docs my annuals were a joke... 'just stay on the same dose' ... It's

those same docs that said 200 mcg was the largest dosage size made of

Sythroid so that was the largest dose they could give me...

My bitter (not a miss spell there... my BITTER) half says that I was

being groomed to be a proper cash cow.... Yeah.. that word even fits..

considering how much weight I put on due to their mistreatment....

oh oh... ranting.. time to stop...

Topper ()

www.thyrophoenix.com

On Sat, 13 Jan 2007 14:17:24 -0600 " " marin@...> writes:

> One thing I've never understood about the 1 mcg per lb concept is

> What do

> you do when you lose weight, say another 20 to 30 lbs? Do you

> decrease the

> thyroid med according to that or do you keep it where it's at? Or

> would you

> just go according to the original amt of weight you already gained

> while

> hypo? This is something that doesn't make sense to me AFTER doing

> this type

> of dosing. What if you lost as much as 100 lbs, after treating

> according to

> this method???

>

>

[Guest guest]

It's those same docs that said 200 mcg was the largest dosage size made of

>Sythroid so that was the largest dose they could give me...

Hey, Topper, I had the same thing said to me over here in France ! It would

seem that stupidity is international ! lol

Lili

_________________________________________________________________

Découvrez le Blog heroic Fantaisy d'Eragon!

http://eragon-heroic-fantasy.spaces.live.com/

[Guest guest]

NO worries about ranting.  My kids have been telling em I am crazy lately, I have little tolerance for even the smallest things. JackieYou don't actually treat/dose according to weight.. the 1 mcg per poundof body weight is a general guideline... butwhen you do lose, or gain, significant amounts of weight your bloodvolume does change. It's that blood volume that changes theconcentration/density whatever you call it.. saturation? of the thyroidhormone that is in the blood stream. The higher the concentration in the blood the easier, in theory, for thereceptors to be able to pick up the hormone. Depending on the efficiencyof your receptors some of us need a higher level of hormone in the bloodthen others do.. that's why not everyone has the same lab results whenthey feel well.... it's just another variable that we are dealing with.Coming in for annual labs and new prescriptions annually, once yourlevels have been determined as good, is to be able to monitor how yourbody has changed over the last year and if you should continue on thesame dose or if it needs to be adjusted... that covers changes over theyear like weight, diet, environment, stress and normal aging.Now.. they know all this stuff makes a difference, well, at least someoneknew that at one time or another... but for all the years that I was withdocs my annuals were a joke... 'just stay on the same dose' ... It'sthose same docs that said 200 mcg was the largest dosage size made ofSythroid so that was the largest dose they could give me...My bitter (not a miss spell there... my BITTER) half says that I wasbeing groomed to be a proper cash cow.... Yeah.. that word even fits..considering how much weight I put on due to their mistreatment.... oh oh... ranting.. time to stop... Topper ()www.thyrophoenix.comOn Sat, 13 Jan 2007 14:17:24 -0600 " " writes:> One thing I've never understood about the 1 mcg per lb concept is > What do > you do when you lose weight, say another 20 to 30 lbs? Do you > decrease the > thyroid med according to that or do you keep it where it's at? Or > would you > just go according to the original amt of weight you already gained > while > hypo? This is something that doesn't make sense to me AFTER doing > this type > of dosing. What if you lost as much as 100 lbs, after treating > according to > this method???> > www.jordanreimer.comSupport My Music....Jordan Reimer Music