Guest guest Posted February 16, 2007 Report Share Posted February 16, 2007 hi every one. just a update about caitlyns investigation opp she needs her tonsils and adinoids out as well as gromits fitted and ears drained i dont much more than that at the moment nothing said about what they found up her nose. they are keepinh caitlyn in over night cos her sats are low ,i will keep you all informed caitlyns asts allways go low when she is asleep. What a day i have e mailed and phoned avery one you all advised me to contact and still no help for kellie.I just been past from pillow to post and no results. Still i dont give up easly i advise you all dont move to the north east. Crossrads dont help in my area.sure start cant help cos kellie does not live in there area. disabled todler groups well alexis there is one not to far away from us but it is on from one thirty till 3 once a month on the last wed of every month shocking or what not to happy i can tell you i have this silly idea to try and start my own toddler group off for disabled kids 0to 3 i have looked into it a bit i well have to atend traing courses and raise alot of money for equipment and a good insureance but we will see yes alexis i would like to know where familys with a disabled child goes to There are mother and todler groups around here quite a few on all day every day apart from school holls but disabled todler groups on for one and a half hours once a month is taking the mick i had quite a discution with a socail worker today they say kellies case has gone to pannel today thats a bit strange when they said last year these things go to panel every 6 weeks but kell has waited 14 month strange its going to panel the day i hound them eh well i have told them they have till mon to get back to me and it better bit good news i also asked why we have not been told about direct payment before they stuttered a bit and said or different people have been dealing with kellie there must have been a bit confusion yes confusion or what sorry flow i know your a social worker but in my experiance the ones here are crap they will turn her down over my dead body well i have moand enough again im on my way out to see my little princess so i will keep you all informed thanks guys for all your help and support xxx rita kellie and caitlyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2007 Report Share Posted February 17, 2007 that is not a silly idea its a great idea > > hi every one. just a update about caitlyns investigation opp she > needs her tonsils and adinoids out as well as gromits fitted and ears > drained i dont much more than that at the moment nothing said about > what they found up her nose. they are keepinh caitlyn in over night > cos her sats are low ,i will keep you all informed caitlyns asts > allways go low when she is asleep. What a day i have e mailed and > phoned avery one you all advised me to contact and still no help for > kellie.I just been past from pillow to post and no results. Still i > dont give up easly i advise you all dont move to the north east. > Crossrads dont help in my area.sure start cant help cos kellie does > not live in there area. disabled todler groups well alexis there is > one not to far away from us but it is on from one thirty till 3 once > a month on the last wed of every month shocking or what not to happy > i can tell you i have this silly idea to try and start my own toddler > group off for disabled kids 0to 3 i have looked into it a bit i well > have to atend traing courses and raise alot of money for equipment > and a good insureance but we will see yes alexis i would like to know > where familys with a disabled child goes to There are mother and > todler groups around here quite a few on all day every day apart from > school holls but disabled todler groups on for one and a half hours > once a month is taking the mick i had quite a discution with a socail > worker today they say kellies case has gone to pannel today thats a > bit strange when they said last year these things go to panel every 6 > weeks but kell has waited 14 month strange its going to panel the day > i hound them eh well i have told them they have till mon to get back > to me and it better bit good news i also asked why we have not been > told about direct payment before they stuttered a bit and said or > different people have been dealing with kellie there must have been a > bit confusion yes confusion or what sorry flow i know your a social > worker but in my experiance the ones here are crap they will turn her > down over my dead body well i have moand enough again im on my way > out to see my little princess so i will keep you all informed thanks > guys for all your help and support xxx rita kellie and caitlyn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 Hi Rita, I have a funny feeling that all your hounding of Social services will start to pay off. How strange Kellie's case was suddenly at panel that day.....They seem to operate a " pay attention to whoever is shouting the loudest " regime! It's unfortunate that you have to be so persistant to get anywhere....but I am glad they have heard of Direct Payments and who knows, perhaps they will grant Kellie some hours that way. Then the fun of finding a carer and operating a payrole for them will commence....but Flo and I will be able to help you with advice about that.... I know the frequency of the toddler group isn't ideal but it is a start....and once you go there and meet some other Mum's they will no doubt be able to tell you about other groups/places they go etc. So make sure you persuade Kellie to go!! I found a weekly group in my area just by accident (the health visitor etc...never mentioned it) because it is run by a church I nearly overlooked it completely but it turned out to be a great place to meet other Mum's of children with special needs. Let's talk again once the panel has spoken! is xx > > hi every one. just a update about caitlyns investigation opp she > needs her tonsils and adinoids out as well as gromits fitted and ears > drained i dont much more than that at the moment nothing said about > what they found up her nose. they are keepinh caitlyn in over night > cos her sats are low ,i will keep you all informed caitlyns asts > allways go low when she is asleep. What a day i have e mailed and > phoned avery one you all advised me to contact and still no help for > kellie.I just been past from pillow to post and no results. Still i > dont give up easly i advise you all dont move to the north east. > Crossrads dont help in my area.sure start cant help cos kellie does > not live in there area. disabled todler groups well alexis there is > one not to far away from us but it is on from one thirty till 3 once > a month on the last wed of every month shocking or what not to happy > i can tell you i have this silly idea to try and start my own toddler > group off for disabled kids 0to 3 i have looked into it a bit i well > have to atend traing courses and raise alot of money for equipment > and a good insureance but we will see yes alexis i would like to know > where familys with a disabled child goes to There are mother and > todler groups around here quite a few on all day every day apart from > school holls but disabled todler groups on for one and a half hours > once a month is taking the mick i had quite a discution with a socail > worker today they say kellies case has gone to pannel today thats a > bit strange when they said last year these things go to panel every 6 > weeks but kell has waited 14 month strange its going to panel the day > i hound them eh well i have told them they have till mon to get back > to me and it better bit good news i also asked why we have not been > told about direct payment before they stuttered a bit and said or > different people have been dealing with kellie there must have been a > bit confusion yes confusion or what sorry flow i know your a social > worker but in my experiance the ones here are crap they will turn her > down over my dead body well i have moand enough again im on my way > out to see my little princess so i will keep you all informed thanks > guys for all your help and support xxx rita kellie and caitlyn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 Quickie here, is there a local Contact A family branch? I know my local one has regular (even if monthely meetings which would be a good start to meeting other parents of children with additional needs). Can't check it out right now but will try to do so when have a little time. Nothing helped by my kids being on half term in different weeks plus all the other things I am trying to juggle so give me a little time and I will check out. Also, will try to use the phone number you gave me when I can. Go with is. I have been reading and she really is covering all the angles. Keep hounding! Hate to admit but as a social worker with unrealistic caseload, sometimes those who keep reminding me of their presence get the best service from me. Not the most equitable scenario but it does unfortunately sometimes have to be that way when you can't give equal attention to everyone! Off in a flash to get school things ready for number 2............. Flo > > Hi Rita, > > I have a funny feeling that all your hounding of Social services will > start > to pay off. How strange Kellie's case was suddenly at panel that > day.....They seem to operate a " pay attention to whoever is shouting the > loudest " regime! It's unfortunate that you have to be so persistant to get > anywhere....but I am glad they have heard of Direct Payments and who > knows, > perhaps they will grant Kellie some hours that way. Then the fun of > finding > a carer and operating a payrole for them will commence....but Flo and I > will > be able to help you with advice about that.... > > I know the frequency of the toddler group isn't ideal but it is a > start....and once you go there and meet some other Mum's they will no > doubt > be able to tell you about other groups/places they go etc. So make sure > you > persuade Kellie to go!! > > I found a weekly group in my area just by accident (the health visitor > etc...never mentioned it) because it is run by a church I nearly > overlooked > it completely but it turned out to be a great place to meet other Mum's of > children with special needs. > > Let's talk again once the panel has spoken! > is xx > > > > to - CHARGE - (6) and Elly (4) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.