Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Hi Janet, I am new to the group and my husband has type 1. He has had it now for 24 years. -Carolyn from the Dallas, Tx area Type 1s I've been " lurking " for about a week now, and am wondering if there are any type 1s on this list. It seems all I've been reading about is type 2. Janet (35 yrs/type 1) Janet Helton * www.treasures4theheart.net * treasures4heart@... * jhelton1963@... * -- Cell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 I'm also a type 1. --- Carolyn Arceneaux carceneaux@...> wrote: > Hi Janet, > > I am new to the group and my husband has type 1. > He has had it now for 24 years. > > -Carolyn from the Dallas, Tx area > > Type 1s > > > I've been " lurking " for about a week now, and am > wondering if there are any type 1s on this list. It > seems all I've been reading about is type 2. > Janet > (35 yrs/type 1) > > Janet Helton > * www.treasures4theheart.net > * treasures4heart@... > * jhelton1963@... > * -- Cell > > [Non-text portions of this message have been > removed] > > > > > > > [Non-text portions of this message have been > removed] > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Hi Janet, My son is type 1. He's 16 so doesn't have an interest in a list like this so I'm here to get info and support. There are a few type 1s on the list. Barbie _____ From: diabetes [mailto:diabetes ] On Behalf Of Janet Helton Sent: Tuesday, June 20, 2006 10:37 PM To: diabetes Subject: Type 1s I've been " lurking " for about a week now, and am wondering if there are any type 1s on this list. It seems all I've been reading about is type 2. Janet (35 yrs/type 1) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 I am a type I, my husband is a II and my 26 yr old daughter was just diagnosed as a II. I inject novolog and lantus. Vivian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Hi Janet, Last I saw 95% of all diabetics are type 2 which explains why type 1 diabetics are rarely heard from. I am a type 1 diagnosed 37 years and nine months ago. Take three daily humalog injections, one with each meal. Take two lantus injections daily. A1C is 6.1 and have no symptoms of retinopathy. Diminished circulation to my fingers and toes and loss of any insulin shock symptoms are my greatest complications. How are you doing 35 years in? Tim Hopkins --- Janet Helton jhelton1963@...> wrote: > I've been " lurking " for about a week now, and am > wondering if there are any type 1s on this list. It > seems all I've been reading about is type 2. > Janet > (35 yrs/type 1) > > > Janet Helton > * www.treasures4theheart.net > * treasures4heart@... > * jhelton1963@... > * -- Cell > > > > > [Non-text portions of this message have been > removed] > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 I too suffer from lack of symptoms of a low and have actually passed out several times. How do you handle it for yourself? Neuropathy in fingers and feet and lower legs as well. Thank God my eyes are ok as I went deaf at the same time as I was dx'd with dm (part of a syndrome I suffer from) Vivian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Janet, I lurk here all the time and occasionally post. I was diagnosed with type 1 two years ago at age 39 (after dropping 30 pounds in 6 months and was truly emaciated). If you have any questions, let me know. I'm pretty hardcore on my treatment and diet. I'm on 5 shots a day (3 novalog and 2 lantus) and have kept my a1c between 5.1 and 5.7 for the last 9 months. Todd _____ From: diabetes [mailto:diabetes ] On Behalf Of Barbie Gallini Sent: Wednesday, June 21, 2006 7:53 AM To: diabetes Subject: RE: Type 1s Hi Janet, My son is type 1. He's 16 so doesn't have an interest in a list like this so I'm here to get info and support. There are a few type 1s on the list. Barbie _____ From: diabetes@yahoogroup s.com [mailto:diabetes@yahoogroup s.com] On Behalf Of Janet Helton Sent: Tuesday, June 20, 2006 10:37 PM To: diabetes@yahoogroup s.com Subject: Type 1s I've been " lurking " for about a week now, and am wondering if there are any type 1s on this list. It seems all I've been reading about is type 2. Janet (35 yrs/type 1) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Hello, I just joined the group yesterday and I'm a type 1 I'm 41 yo and been a type 1 for 34 years, you beat me by 1 year. > > I've been " lurking " for about a week now, and am wondering if there are any type 1s on this list. It seems all I've been reading about is type 2. > Janet > (35 yrs/type 1) > > > Janet Helton > * www.treasures4theheart.net > * treasures4heart@... > * jhelton1963@... > * -- Cell > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Hi Janet, I am type 1 1/2 ;o) 33yo, gestational w/pregnancies, diagnosed 10/2002 at 30yo, straight to insulin. i'm a pumper now, after 1 year of MDI. -cherri > > I've been " lurking " for about a week now, and am wondering if there are any type 1s on this list. It seems all I've been reading about is type 2. > Janet > (35 yrs/type 1) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Been testing approximately seven times daily, or once an hour when on long drives. Just had a car trip from Minneapolis to Chicago and back with a group of kids from my church. Tested before driving and drank 4 oz.s of apple juice every 90 minutes if unable to test. My average sugar is 125 to 130 so I bump it up to 150 to 200 while driving to avoid an accident. Read of a diabetic patient who passed out at the wheel of his car when driving to his appointment with his endo. Drove his car right into the cafeteria where they had him drink a pint of oj to get him back on track. Have read that if you can live with BGs of 70 or more for a period of weeks you will start regaining insulin shock symptoms. Still working on that. Tim (type 1 since 09/19/1968 had phlebitis at diagnosis when I was 14) --- Vcgpg@... wrote: > I too suffer from lack of symptoms of a low and have > actually passed out > several times. How do you handle it for yourself? > Neuropathy in fingers and feet > and lower legs as well. > Thank God my eyes are ok as I went deaf at the same > time as I was dx'd with > dm (part of a syndrome I suffer from) Vivian > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Does anyone know how to prevent this from happening? My son (16 yo) does feel his lows so far but I'm guessing that with time, he will get more use to the lows and not notice them as quickly. But he's was only diagnosed in Oct. Is there anything he can do to prevent getting to the point of not feeling the lows before he passes out? Barbie _____ From: diabetes [mailto:diabetes ] On Behalf Of Vcgpg@... Sent: Wednesday, June 21, 2006 3:18 PM To: diabetes Subject: Re: Type 1s I too suffer from lack of symptoms of a low and have actually passed out several times. How do you handle it for yourself? Neuropathy in fingers and feet and lower legs as well. Thank God my eyes are ok as I went deaf at the same time as I was dx'd with dm (part of a syndrome I suffer from) Vivian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Carolyn, Does your husband take shots or use a pump? I've been using a pump for about 11 years now. Like anything, it does have its advantages and disadvantages. I struggle with staying motivated checking myself, and staying on a good eating plan. Any suggestions? Janet Carolyn Arceneaux carceneaux@...> wrote: Hi Janet, I am new to the group and my husband has type 1. He has had it now for 24 years. -Carolyn from the Dallas, Tx area Type 1s I've been " lurking " for about a week now, and am wondering if there are any type 1s on this list. It seems all I've been reading about is type 2. Janet (35 yrs/type 1) Janet Helton * www.treasures4theheart.net * treasures4heart@... * jhelton1963@... * -- Cell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 brian, Sounds like we went through everything at about the same time and same age. I'm getting ready to turn 43, and was diagnosed in March '71. How did you and your family deal with it at that time? My family basically quit living and allowed the diabetes to control us rather than us controlling it. Maybe that is why I struggle with it so much even today. Maybe you can share some of your successes and more difficult times. Janet prospect1982 grainger@...> wrote: Hello, I just joined the group yesterday and I'm a type 1 I'm 41 yo and been a type 1 for 34 years, you beat me by 1 year. > > I've been " lurking " for about a week now, and am wondering if there are any type 1s on this list. It seems all I've been reading about is type 2. > Janet > (35 yrs/type 1) > > > Janet Helton > * www.treasures4theheart.net > * treasures4heart@... > * jhelton1963@... > * -- Cell > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Todd, Other than the tight controll, what helps keep you motivated do continually check your blood sugar and stay with an meal plan? I didn't grow up learning to control the condition, it was allowed to control us and life basically stopped. I've very frustrated at this time. Thanks for sharing. Janet Todd tan@...> wrote: Janet, I lurk here all the time and occasionally post. I was diagnosed with type 1 two years ago at age 39 (after dropping 30 pounds in 6 months and was truly emaciated). If you have any questions, let me know. I'm pretty hardcore on my treatment and diet. I'm on 5 shots a day (3 novalog and 2 lantus) and have kept my a1c between 5.1 and 5.7 for the last 9 months. Todd _____ From: diabetes [mailto:diabetes ] On Behalf Of Barbie Gallini Sent: Wednesday, June 21, 2006 7:53 AM To: diabetes Subject: RE: Type 1s Hi Janet, My son is type 1. He's 16 so doesn't have an interest in a list like this so I'm here to get info and support. There are a few type 1s on the list. Barbie _____ From: diabetes@yahoogroup s.com [mailto:diabetes@yahoogroup s.com] On Behalf Of Janet Helton Sent: Tuesday, June 20, 2006 10:37 PM To: diabetes@yahoogroup s.com Subject: Type 1s I've been " lurking " for about a week now, and am wondering if there are any type 1s on this list. It seems all I've been reading about is type 2. Janet (35 yrs/type 1) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Hi Barbie, My husband has had type 1 since he was 11 years old and he is now 35. We have been married for 9 years now and he can still feel when he is going low. He has told me that there were times in his life where he would let things go. Not doing the blood test, being relaxed with his shots, taking short cuts, ect and at those times he would not feel when he was going low. or at least not all the time. But when he is really taking care of himself he can feel it instantly. He is in great shape. He exercises, works out with weights, has really good numbers, goes to the Dr. at least every 6 months, ect. He has perfect eye sight and has all feeling in his legs, feet and fingers. He knows what foods affect him and that one diet for one person doesn't work for all. He is real in tune with food and what he eats. Anyway hope this helps. Take Care, Carolyn Re: Type 1s I too suffer from lack of symptoms of a low and have actually passed out several times. How do you handle it for yourself? Neuropathy in fingers and feet and lower legs as well. Thank God my eyes are ok as I went deaf at the same time as I was dx'd with dm (part of a syndrome I suffer from) Vivian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Hi Janet, He takes shots. He didn't want to change to a pump because he has his blood surgar pretty undercontrol. When the pump came out he said if it isn't broken he isn't going to fix it. So he has just stuck with shots. He says they don't brother him. He goes through his ups and downs as far as be motivated as well. Before our first son was born about 8 years ago he was really cutting corners. The more I brought it up the more he continued kind of like a rebellion thing or something so I just let him do it. Well something scared him and to this day I don't know what but it must of been something big because he jumped back into it and really got motivated. He has never been that bad since but still goes through slacking periods. He is pretty intune with his body and when he does blood test before the number comes up he will guess what it will be and he is always within 2 to 5 points of what it is. It just amazes me. He said the more he guess the better he gets. He said when he really started exercising and doing weights was when he could really feel what was going on in his body. As far as eating he pretty much eats anything but trys not to go overboard. We both try to eat healthy so we can look 19 for the rest of our lives! haha. He went to a nutrition counselor when whatever happened that scared him and learned all about how to break all the carbs, proteins, ect down and how much insulin he would need. He knows what foods affect him and how. An example is pasta. For him pasta affects him in a weird way. If he does a normal shot before he eats pasta he goes low right after he eats (like within 20 minutes) so he will drink oj but then about 3 hours later he will go way high. So he has to eat some kind of protein with pasta and do a normal shot before he eats and then a little shot about 1 to 2 hours after. He took notes along time ago about how foods affected him and how he had done his shots and the outcome of his blood numbers and if they weren't right he would eat the same thing again and again until he got a formula that would work. Of course other things come into play like other foods that he might eat during the day and stress and stuff like that. If he is stressed out he almost always goes low no matter what he does and that is where the exercise comes in. Helps release the stress. He always says that he doesn't let diabetes control his life, he lives his life and controls his diabetes.(sounds like a commercial. haha) He treats it like brushing his teeth or taking a shower. He is really pretty inspring to me and you wouldn't even know he had it because he just flows through it. I know it is differnt living with it and can be tricky. He also says that doing things in life that make him happy also make his numbers better. I think that is true with anyone, you gotta have something in your life that you have passion for. My sister went through a divorce and was having a hard time. I told her she should get back into ballet (she use to do it up until she was a teenager and loved it) but she said she was too old and out of it too long and didn't want to take it with a bunch of kids. Well I found a place with adults her age and drug her there and she has been doing it once a week for a year now. She looks totally differnt then she did a year ago, she has a sparkle back in her eyes that hadn't been there for years. Just doing little small things that you love can help alot. Anyway thats all I can think of for now. I hope this helps and please email if you have anymore questions and I will try and help! Take Care, Carolyn Type 1s I've been " lurking " for about a week now, and am wondering if there are any type 1s on this list. It seems all I've been reading about is type 2. Janet (35 yrs/type 1) Janet Helton * www.treasures4theheart.net * treasures4heart@... * jhelton1963@... * -- Cell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Janet, Part of what makes me successful (thus far) is that I'm very goal oriented and competitive, this may sound strange but I almost consider it a daily game to keep my numbers in line. I struggled the first two months after diagnosis (2 years ago) and tried to figure out snacking schedules because I had always eaten whatever I wanted, whenever I wanted. About the third month in things were improving but still not where I wanted them to be, so I cut out snacking completely (only Diet Pepsi, Decaf Coffee w/Splenda, and the occasional ultra-lite beer around the 3 mealtimes) and haven't had any for about 18 months. It's just easier for me never to cheat than to do it once in a while (kind of like an alcoholic mentality). I cook myself two meals a day and only go out occasionally (I figure that the money I now spend for doctors/prescriptions I offset a little by not going out for dinner as often), test 6-7 times a day. I think that my scary weight loss, my feeling tired all the time, and constant thirst prior to diagnosis made me realize the possible effects of " letting things go " and what it can do to your body. I guess I feel fortunate that I had no long-term complications at diagnosis and want to keep it that way as long as possible. Todd _____ From: diabetes [mailto:diabetes ] On Behalf Of Janet Helton Sent: Wednesday, June 21, 2006 11:50 PM To: diabetes Subject: RE: Type 1s Todd, Other than the tight controll, what helps keep you motivated do continually check your blood sugar and stay with an meal plan? I didn't grow up learning to control the condition, it was allowed to control us and life basically stopped. I've very frustrated at this time. Thanks for sharing. Janet Todd com> wrote: Janet, I lurk here all the time and occasionally post. I was diagnosed with type 1 two years ago at age 39 (after dropping 30 pounds in 6 months and was truly emaciated). If you have any questions, let me know. I'm pretty hardcore on my treatment and diet. I'm on 5 shots a day (3 novalog and 2 lantus) and have kept my a1c between 5.1 and 5.7 for the last 9 months. Todd _____ From: diabetes@yahoogroup s.com [mailto:diabetes@yahoogroup s.com] On Behalf Of Barbie Gallini Sent: Wednesday, June 21, 2006 7:53 AM To: diabetes@yahoogroup s.com Subject: RE: Type 1s Hi Janet, My son is type 1. He's 16 so doesn't have an interest in a list like this so I'm here to get info and support. There are a few type 1s on the list. Barbie _____ From: diabetes@yahoogroup s.com [mailto:diabetes@yahoogroup s.com] On Behalf Of Janet Helton Sent: Tuesday, June 20, 2006 10:37 PM To: diabetes@yahoogroup s.com Subject: Type 1s I've been " lurking " for about a week now, and am wondering if there are any type 1s on this list. It seems all I've been reading about is type 2. Janet (35 yrs/type 1) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Hello Janet, When I was diagnosed my parents had a hard time with it, but I have always had the attitude that you just deal with the problems your handed having diabetes has never bothered me, I'm on a paradigm pump and have been a pumper for over 12 years and now I'm trying to get a cgm, My biggest problem now is my kidneys, and I've kind of been ignoring my diabetes, My daughter has Cystic Fibrosis so my diabetes takes back seat to her. Take care, > > > > I've been " lurking " for about a week now, and am wondering if > there are any type 1s on this list. It seems all I've been reading > about is type 2. > > Janet > > (35 yrs/type 1) > > > > > > Janet Helton > > * www.treasures4theheart.net > > * treasures4heart@ > > * jhelton1963@ > > * -- Cell > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 > > I've been " lurking " for about a week now, and am wondering if there are any type 1s on this list. It seems all I've been reading about is type 2. > Janet > (35 yrs/type 1) Hi Janet. I'm a type 1, had it for about 13 years. I've just recently started to take it seriously and began paying attention to my blood sugars, testing and taking shots 5 times a day at least. It's paid off, my A1C went from 15.9% to 6.7%! Let me know if you have any questions or need any support. I am just starting to figure out how much of an impact diabetes has on your life when you're paying attention to it properly. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Yes, that does help. At this point, my son seems very motivated to stick with his routines of checking, etc. He jokes about being an one-legged, blind man when he is old but clearly wants to avoid any complications if he can. I'm just hoping that if he can be this motivated and responsible at 16, he will continue to do so as he gets older. Barbie _____ From: diabetes [mailto:diabetes ] On Behalf Of Carolyn Arceneaux Sent: Thursday, June 22, 2006 12:25 AM To: diabetes Subject: Re: Type 1s Hi Barbie, My husband has had type 1 since he was 11 years old and he is now 35. We have been married for 9 years now and he can still feel when he is going low. He has told me that there were times in his life where he would let things go. Not doing the blood test, being relaxed with his shots, taking short cuts, ect and at those times he would not feel when he was going low. or at least not all the time. But when he is really taking care of himself he can feel it instantly. He is in great shape. He exercises, works out with weights, has really good numbers, goes to the Dr. at least every 6 months, ect. He has perfect eye sight and has all feeling in his legs, feet and fingers. He knows what foods affect him and that one diet for one person doesn't work for all. He is real in tune with food and what he eats. Anyway hope this helps. Take Care, Carolyn RE: Type 1s Does anyone know how to prevent this from happening? Quote Link to comment Share on other sites More sharing options...
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