Eyes

[Guest guest]

had to go get a sedated eye exam and dental cleaning today. We got some

not so good news. 's left retina is detaching. The dr said it was a

pretty bad detachment and is referring him to a retina specialist at the Moran

Eye center and he will probably have surgery in the next week or so. I am a

little upset. Ok I am devastated. I knew it was a possibility but his eye exams

are always good never had a problem. I guess I was just caught off guard. Now it

is hitting me and I am crying I guess I will sign off.

a mom to 9yr CHARGEr and Quintin 6yr seizure prone

---------------------------------

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[Guest guest]

I've heard that CHARGER's are at a higher risk for retina detachment. My mother

in law had a detached retina and had surgery and it was very uneventful - not

that that would give you and comfort - I just wanted to share a success story.

Good luck.

Lori Myers

---- a Villarreal wrote:

=============

had to go get a sedated eye exam and dental cleaning today. We got some

not so good news. 's left retina is detaching. The dr said it was a

pretty bad detachment and is referring him to a retina specialist at the Moran

Eye center and he will probably have surgery in the next week or so. I am a

little upset. Ok I am devastated. I knew it was a possibility but his eye exams

are always good never had a problem. I guess I was just caught off guard. Now it

is hitting me and I am crying I guess I will sign off.

a mom to 9yr CHARGEr and Quintin 6yr seizure prone

---------------------------------

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on Yahoo! Answers.

[Guest guest]

a,

I will be thinking of you and while he is in surgery. I know

it stinks to get bad news when you go to the doctor.

hugs,

Crystal mom to (11), (3), and Eva (22 month old CHARGEr)

wife to Dan in Illinois

>

> had to go get a sedated eye exam and dental cleaning

today. We got some not so good news. 's left retina is

detaching. The dr said it was a pretty bad detachment and is

referring him to a retina specialist at the Moran Eye center and he

will probably have surgery in the next week or so. I am a little

upset. Ok I am devastated. I knew it was a possibility but his eye

exams are always good never had a problem. I guess I was just caught

off guard. Now it is hitting me and I am crying I guess I will sign

off.

> a mom to 9yr CHARGEr and Quintin 6yr seizure prone

>

>

> ---------------------------------

> Need a quick answer? Get one in minutes from people who know. Ask

your question on Yahoo! Answers.

>

>

[Guest guest]

ive heard that to along with glaucoma and cateractcs kim r u out ther

eluking dylan detached retina isnt it hugs ellen

>

> a,

> I will be thinking of you and while he is in surgery. I know

> it stinks to get bad news when you go to the doctor.

> hugs,

> Crystal mom to (11), (3), and Eva (22 month old CHARGEr)

> wife to Dan in Illinois

>

>

> >

> > had to go get a sedated eye exam and dental cleaning

> today. We got some not so good news. 's left retina is

> detaching. The dr said it was a pretty bad detachment and is

> referring him to a retina specialist at the Moran Eye center and he

> will probably have surgery in the next week or so. I am a little

> upset. Ok I am devastated. I knew it was a possibility but his eye

> exams are always good never had a problem. I guess I was just caught

> off guard. Now it is hitting me and I am crying I guess I will sign

> off.

> > a mom to 9yr CHARGEr and Quintin 6yr seizure prone

> >

> >

> > ---------------------------------

> > Need a quick answer? Get one in minutes from people who know. Ask

> your question on Yahoo! Answers.

> >

> >

[Guest guest]

Hi -

Can you expand on what made it a 'safe home'?

(unless you have and I missed it-so send me to the

right message.)

Thanks,

in Ma.

[Guest guest]

a-

I'm so sorry for this latest " brick wall " . Just when you think things are

going well, and you let your guard down, something jumps up to block your

way. So incredibly frustrating. And it brings back all the sorrow that we

manage to stuff away the rest of the time. How is 's vision? Will

this cause any loss of vision to his left eye? Is his right eye good?

I worry so much about Aubrie's losing vision in her right eye because it's

her only good one. I hope 's surgery is able to preserve vision and

keep his eye stable for the long term.

Hugs to you both-

Michele W

Aubrie's mom - also 9 yrs

[Guest guest]

Just wanted to lend some support. Can understand were you are at the

moment. also has only one eye he can see from. We have always

kept the protection of his good eye up most in our minds. His glasses

are more for protection than to improve his vision. We've goon

through the rebellious stage where he didn't want to wear his

glasses. Not being able to make him understand the importance of

wearing them. Oh he can be stubborn. As parents we will always worry

in varying degrees through good times and the bad times. It makes the

triumphs even sweeter.

mom to (31)

>

> a-

>

> I'm so sorry for this latest " brick wall " . Just when you think

things are

> going well, and you let your guard down, something jumps up to

block your

> way. So incredibly frustrating. And it brings back all the sorrow

that we

> manage to stuff away the rest of the time. How is 's

vision? Will

> this cause any loss of vision to his left eye? Is his right eye

good?

>

>

>

> I worry so much about Aubrie's losing vision in her right eye

because it's

> her only good one. I hope 's surgery is able to preserve

vision and

> keep his eye stable for the long term.

>

>

>

> Hugs to you both-

>

> Michele W

> Aubrie's mom - also 9 yrs

>

>

>

>

[Guest guest]

-

Luckily, Aubrie is Little Miss Compliant so she's great about wearing her

glasses and understands the need to protect her good eye. It was just this

year that she finally understood that the rest of us are able to see with

both our eyes. What worries me about the increased risk of detachment is

that she may not recognize and/or tell me if she's having any symptoms. I'm

sure you have the same worry with .

Michele W

[Guest guest]

mICHELE,

You bet we have that same worry. hates to go to any doctor and

has a very high tolerance for pain. One of the scariest things about

him moving into his own place was these facts. I was always able to

tell when wasn't feeling well. He would never complain on his

own until he was in great distress. Like rushing to the hospital

distress. I learned to identify symptoms just by the look on his face

or his actions.

His being away from me teffified me in the beginning. It just took me

time to learn to trust staff to know him as well as I do. What helped

me was my close communication with all staff hired. I met and got to

know these people long before made the move. These people

acually helped develope 's home. They all have varying degrees

of deafness themselves and worked with me in understanding what

things 's house was going to need to make it a safe home.

mom to (31)

-- In CHARGE , " Michele Westmaas "

wrote:

>

> -

>

> Luckily, Aubrie is Little Miss Compliant so she's great about

wearing her

> glasses and understands the need to protect her good eye. It was

just this

> year that she finally understood that the rest of us are able to

see with

> both our eyes. What worries me about the increased risk of

detachment is

> that she may not recognize and/or tell me if she's having any

symptoms. I'm

> sure you have the same worry with .

>

>

>

> Michele W

>

>

>

>

[Guest guest]

,

's home was designed for people who have low vision and deafness

or hearing loss. It is a waiver funded home so we underwent strick

State licensing imspections before and even now. Because attended

Helen Keller National Center we were able to secure a person to come

from the Center to help us determine what the home would need for

and the others to be able to safely get around in their home. Phones,

doorbells, firealarms are all equiped for deaf. Our monitors in the

house are also sound sensitive so that lights will flash in the house

if if activated by loud noises. This is so staff will be alerted if

Debra or anyone should fall. The beds all have shaking alarms. We have

monthly firedrills. One of the issues with Debra was she had to be able

to vacate house in a certain amount of time by state law. She had

difficulty being that she is in a wheelchair and her hands are

crippled. We designed the house so that there is a door to the outside

deck righ from her bedroom. This makes her able to get out in well

under the time alowed.

We have specail equipment for and Debra to use while prepareing

meals and working in the kitchen. Doorknobs are adapted so Debra can

open doors easily. The staff from Helen Keller helped us on how to

decorate walls and doors in the house to make it easier for to

make out corners and see open doors more easily. Docorating tips helped

us keep the house looking more homey and nice looking. We have cememted

driveway and walkways with ramps leading to all entrences of the house.

Even the end of the driveway has rails because there is a little ditch

for water runoff. The state required us to put a light and rails up

before anyone was allowed to move into the house.

The house has no hallways to navigate. Everything is open and bright.

's bedroom has 3 big windows so that his room is very bright. All

the bedrooms are 14' by 14' which gives plenty of room. Debra and

s bedrooms have big wheel-in closets that made access with their

wheel chairs easier. The only thing feels he is lacking in his

bedroom is a little frig. LOL Debra got one and now he thinks he need

one too.

Funny thing is I keep setting the lights to blinking with my big mouth.

LOL

mom to (31)

-- In CHARGE , mdlinda@... wrote:

>

> Hi -

>

> Can you expand on what made it a 'safe home'?

> (unless you have and I missed it-so send me to the

> right message.)

> Thanks,

> in Ma.

>

>

>