Hotels with medical centres

[Guest guest]

Hi,

I have been thinking it would much easier if when we went on holiday we

could go to a hotel in a holiday resort that has specialist medical

facilities to look after Cai, i.e. trained nurses who could maybe

babysit Cai an evening or two and maybe a doctor on standy for

emergencies rather than us arranging it all. Does anyone know if such

places exist.

[Guest guest]

Off hand no, but i know of one hospital that is VERY close to a hospital in

an area thats very worth visiting Actualy now that i think a bit more,

probably most major cities in canada have some hotel near a hospital.

However to get back to your question, I dont know of any hotel that has that

kind of resorces, unless your looking at some of the ultra top class

hotels. Actualy I think some cruise ships have to have a doctor but I dont

think they would be availible soley to care for cai, sorry bout that.

What I would recommend is if your going on holiday... take a respite worker

with you, a lot of student nurses would love that oppertunity, or see if

there is a charge family in the area you plan on going and see if they can

help you find a nursing or other medical student (you can request someone in

their final year who is well trained) who wouldnt mind babysitting Cai while

you go out.

Chantelle

>

> Hi,

>

> I have been thinking it would much easier if when we went on holiday we

> could go to a hotel in a holiday resort that has specialist medical

> facilities to look after Cai, i.e. trained nurses who could maybe

> babysit Cai an evening or two and maybe a doctor on standy for

> emergencies rather than us arranging it all. Does anyone know if such

> places exist.

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

This week we had the first official meeting for the charge across

Europe, the mission statement yet to be confirmed (so please don't quote

it just yet is

" Charge Across Europe is the expedition attempt of Ruan, Tina and their

dog Akela to walk over 7 thousand kilometres from the northernmost point

in Norway to the southernmost point of Greece in order to raise

awareness of the Charge Syndrome "

while we were discussing the goals of the project (which was initially

just awareness) It came up that people may want to donate money (this

was never out intention but Ruan and Tina have been testing the idea out

on people and they want to donate money). so the question is what should

we do with any donations

Kerstin and I said that it would be nice to be able to go on holiday, I

think facilities exist here in switzerland for us to leave Cai with the

hospital for a week or so and then we could have a holiday without him

but this is not easy to organise. We had thought of expanding on this by

starting a centre that parents could drop healthy children while they

went away for a few days respite (a sort of kennelling system)

Then thinking laterally I thought wouldn't it be great if we could go

on holiday with Cai (we would prefer this to kennelling Cai) without

the fuss, i.e you book into a hotel and they have all the facilities and

trained staff. You could then holiday as any normal family, but drop

your child off at the medical centre crèche/playgroup where he is looked

after for you for a few hours and overnight so you can let your hair

down and get your socks smoking on the dance floor.

I want to check though first if this is a good idea and is it already in

place.

Ian - trying to do his best as Cai's dad

Chantelle McLaren wrote:

>

>

> Off hand no, but i know of one hospital that is VERY close to a hospital in

> an area thats very worth visiting Actualy now that i think a bit more,

> probably most major cities in canada have some hotel near a hospital.

> However to get back to your question, I dont know of any hotel that has that

> kind of resorces, unless your looking at some of the ultra top class

> hotels. Actualy I think some cruise ships have to have a doctor but I dont

> think they would be availible soley to care for cai, sorry bout that.

>

> What I would recommend is if your going on holiday... take a respite worker

> with you, a lot of student nurses would love that oppertunity, or see if

> there is a charge family in the area you plan on going and see if they can

> help you find a nursing or other medical student (you can request someone in

> their final year who is well trained) who wouldnt mind babysitting Cai while

> you go out.

>

> Chantelle

>

[Guest guest]

Chantelle My Dear-your brain is on SUPERCHARGED!

Of course that's a fabulous answer-taking a respite

worker along is truly the best possible answer,

I think.

In fact-where are the application forms? heehee.

Better yet-what about for you? With your early

childhood ed. job and training, and you've had CPR etc

training? OOOOH! That could get you traveling!!!!

;o)

in Ma.

> >

> > Hi,

> >

> > I have been thinking it would much easier if when we went on

holiday we

> > could go to a hotel in a holiday resort that has specialist

medical

> > facilities to look after Cai, i.e. trained nurses who could maybe

> > babysit Cai an evening or two and maybe a doctor on standy for

> > emergencies rather than us arranging it all. Does anyone know if

such

> > places exist.

> >

> >

> >

> > CHARGE SYNDROME LISTSERV PHOTO PAGE:

> > http://www.imagestation.com/album/?id=2117043995

> >

> > Membership of this email support group does not constitute

membership in

> > the CHARGE Syndrome Foundation; for information about the CHARGE

Syndrome

> > Foundation or to become a member (and get the newsletter),

> > please contact marion@... or visit

> > the web site at http://www.chargesyndrome.org

> >

> > 8th International

> > CHARGE Syndrome Conference, July, 2007. Information will be

available at

> > www.chargesyndrome.org or by calling 1-.

> >

[Guest guest]

LOL yes i say my brain is super charged atm! I like it. Im making up for the

years of feeling like i had no energy! lol

Come and have a family holiday in around my area. If you stayed in Hamilton,

hotels are cheaper then toronto *actualy there is only 1 good hotel in

Hamilton. I need to get my cpr/first aid updated anyways but hey the rest of

your family can take little day trips. or go out for the eving. I could just

ask my step mom if she could be " on call " or if worse case, id bring him to

my step mom's work (she is an ICU nurse). Dunno though if your insurance

would pay for canadian hospitals or how his health is but I gather its

stable enough that you would want to go on a vacation.

Seriously the invitation is open to any family that wants to come to the

Hamilton/Toronto area, im happy to meet you guys and even baby sit your

charge and non charge kids alike. There are tons of cool things to do around

here, I know dozens of places from here to Toronto worth seeing and you

couldnt do them all in one trip! Lots are kid things, and stuff for just the

parents.

When I get a one bedroom im happy to invite any charge adults too cause

i will have a futon in my living room. ( Bel, Chip, Patty, any others

ive missed that you guys too)

>

> Chantelle My Dear-your brain is on SUPERCHARGED!

> Of course that's a fabulous answer-taking a respite

> worker along is truly the best possible answer,

> I think.

> In fact-where are the application forms? heehee.

> Better yet-what about for you? With your early

> childhood ed. job and training, and you've had CPR etc

> training? OOOOH! That could get you traveling!!!!

> ;o)

> in Ma.

>

>

> --

> http://spacecatsgarden.blogspot.com/ => My blog space

[Guest guest]

I want to post this again, because I think it is important and it only

had one reply so I am afraid it may have got lost amongst the sad news

about baby hope.

of course I may be wrong and nobody else would like to go on holiday ;-)

basically we thought it would be nice to go to a hotel which had all the

facilities we needed, nursing staff, pharmacy(chemist) etc so we could

enjoy a normal holiday, does anyone know of such a place and if not

would you like such a hotel.

Ian - Cai's dad

:

>

>

> This week we had the first official meeting for the charge across

> Europe, the mission statement yet to be confirmed (so please don't quote

> it just yet is

>

> " Charge Across Europe is the expedition attempt of Ruan, Tina and their

> dog Akela to walk over 7 thousand kilometres from the northernmost point

> in Norway to the southernmost point of Greece in order to raise

> awareness of the Charge Syndrome "

>

> while we were discussing the goals of the project (which was initially

> just awareness) It came up that people may want to donate money (this

> was never out intention but Ruan and Tina have been testing the idea out

> on people and they want to donate money). so the question is what should

> we do with any donations

>

> Kerstin and I said that it would be nice to be able to go on holiday, I

> think facilities exist here in switzerland for us to leave Cai with the

> hospital for a week or so and then we could have a holiday without him

> but this is not easy to organise. We had thought of expanding on this by

> starting a centre that parents could drop healthy children while they

> went away for a few days respite (a sort of kennelling system)

>

> Then thinking laterally I thought wouldn't it be great if we could go

> on holiday with Cai (we would prefer this to kennelling Cai) without

> the fuss, i.e you book into a hotel and they have all the facilities and

> trained staff. You could then holiday as any normal family, but drop

> your child off at the medical centre crèche/playgroup where he is looked

> after for you for a few hours and overnight so you can let your hair

> down and get your socks smoking on the dance floor.

>

> I want to check though first if this is a good idea and is it already in

> place.

>

> Ian - trying to do his best as Cai's dad

>

[Guest guest]

Dear Ian,

I have to admit, 's arrival ended my " socks smoking' days, but I was

older ....

it was time. She had a trach as well, and g-tube.

I did manage to get out of the house for some trips, both alone and with

hubby,

due to our awesome nursing staff. Definitely angels disguised as r.n.'s.

----

There are two things stopping my " possibility thinking " in regard to a

resort providing

nursing care.

From the home turf, the U.S. is suffering a nursing shortage, and many

families are having trouble just getting regular in-home nurses, and the expense

of skilled nursing is high. 'Agency provided nursing' comes

with such a high hourly rate due to necessary liability insurance costs, and

the agency staffing,

but they are pre-screened and all the paperwork is done for you, so best

choice I think.

2ndly, I wouldn't have felt comfortable leaving with an r.n. who did

not already know

her well. So, I see myself staying right with her in the hotel area for

most of the

time. The rest of the family could have enjoyed the vacation, and I could

have had

new walls to look at, but not so much of a vacation.

---

That said, it should be possible for you to contract any nursing agency

ahead of time,

for any chosen destination, as you are considering for your UK visit.

And I don't see why you couldn't introduce any given hotel to a local

agency, and

point out the marketing benefits to both, and perhaps establish something.

----

I did three things 20 years ago:

I took our day nurse with us.

I left home with the nurses.

We purchased (they can be rented) a 32 foot totally self-contained coachman

rv,

and hit the road. Her equipment could run on its generator or on any

electrical hookup.

So, yes, she was always with me, but who says you can't have pinot noir with

toasted

marshmallows and call it all gormet.

--

Good luck with your travels, and your dreams!

;-)

in Ma. (, 21 yrs)

<BR><BR><BR>**************************************<BR> Check out free AOL at

http://free.aol.com/thenewaol/index.adp. Most comprehensive set of free

safety and security tools, millions of free high-quality videos from across the

web, free AOL Mail and much more.

[Guest guest]

I'm back. I could have said all that in a more condensed manner:

here goes:

Liability

Availability

Reliability

;-)

in Ma. (a step behind myself this a.m.)

<BR><BR><BR>**************************************<BR> Check out free AOL at

http://free.aol.com/thenewaol/index.adp. Most comprehensive set of free

safety and security tools, millions of free high-quality videos from across the

web, free AOL Mail and much more.

[Guest guest]

actualy there were two responces (both me and linda) and no there are no

hotels like that. you should bring your own respite workers.

The only thing that would remotely have what your looking for are places

that has a hostel specificaly designed for children and their families whose

children are seeking treatment IN the hospital. Thats not going to be

available if your just going on vacation.

I will repost my recomendations.

1. bring respite with you

2. plan on staying at a hotel that has a good hospital near by

3. find out it there are charge families in your area that could maby watch

your child for a little bit.

4. bring a nursing/medical student with you who can watch cai. See if you

can get local charities or something to fund them.

5. find a nursing/medical student in the area you are going.

Chantelle

>

> I want to post this again, because I think it is important and it only

> had one reply so I am afraid it may have got lost amongst the sad news

> about baby hope.

>

> of course I may be wrong and nobody else would like to go on holiday ;-)

>

> basically we thought it would be nice to go to a hotel which had all the

> facilities we needed, nursing staff, pharmacy(chemist) etc so we could

> enjoy a normal holiday, does anyone know of such a place and if not

> would you like such a hotel.

>

> Ian - Cai's dad

>

> :

> >

> >

> > This week we had the first official meeting for the charge across

> > Europe, the mission statement yet to be confirmed (so please don't quote

> > it just yet is

> >

> > " Charge Across Europe is the expedition attempt of Ruan, Tina and their

> > dog Akela to walk over 7 thousand kilometres from the northernmost point

> > in Norway to the southernmost point of Greece in order to raise

> > awareness of the Charge Syndrome "

> >

> > while we were discussing the goals of the project (which was initially

> > just awareness) It came up that people may want to donate money (this

> > was never out intention but Ruan and Tina have been testing the idea out

> > on people and they want to donate money). so the question is what should

> > we do with any donations

> >

> > Kerstin and I said that it would be nice to be able to go on holiday, I

> > think facilities exist here in switzerland for us to leave Cai with the

> > hospital for a week or so and then we could have a holiday without him

> > but this is not easy to organise. We had thought of expanding on this by

> > starting a centre that parents could drop healthy children while they

> > went away for a few days respite (a sort of kennelling system)

> >

> > Then thinking laterally I thought wouldn't it be great if we could go

> > on holiday with Cai (we would prefer this to kennelling Cai) without

> > the fuss, i.e you book into a hotel and they have all the facilities and

> > trained staff. You could then holiday as any normal family, but drop

> > your child off at the medical centre crèche/playgroup where he is looked

> > after for you for a few hours and overnight so you can let your hair

> > down and get your socks smoking on the dance floor.

> >

> > I want to check though first if this is a good idea and is it already in

> > place.

> >

> > Ian - trying to do his best as Cai's dad

> >

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

My reason i say no is cause i think of cai is medicaly still somewhat

fragile. Is he or is he not medicaly stable now?

There are services if the child has no major health complications. Many

hotels do offer for the healthy kids but if Cai needs a medical like person

then no the services are not available.

Chantelle

--

http://spacecatsgarden.blogspot.com/ => My blog space

[Guest guest]

Thanks for your reply,

I am Sorry but I didn't see 's reply, even now I have searched my

inbox and don't see it, the wonders of the internet I guess.

Thanks for your recommendations but I think you are missing the point I

am trying to make,

IF you could book into a hotel with your (charge) child who needs

special nursing care (e.g cannula) and they had the facilities in place

so you just had to turn up like any other family and you could spend

time during the day with your child but you could also leave him/her in

daycare for a few hours should you wish and then he or she would be

babysat so you could go out in the evenings or sleep - like hotels offer

sometimes for totally healthy children would you book.

this would mean you wouldn't have to worry about your recommandations 1,

2, 4, 5 - 3 wouldn't be so important.

and secondly does such a hotel exist already - the answer to this seems

question however seems to be no.

Ian - Cai's dad

Chantelle McLaren wrote:

>

>

> actualy there were two responces (both me and linda) and no there are no

> hotels like that. you should bring your own respite workers.

>

> The only thing that would remotely have what your looking for are places

> that has a hostel specificaly designed for children and their families whose

> children are seeking treatment IN the hospital. Thats not going to be

> available if your just going on vacation.

>

> I will repost my recomendations.

> 1. bring respite with you

> 2. plan on staying at a hotel that has a good hospital near by

> 3. find out it there are charge families in your area that could maby watch

> your child for a little bit.

> 4. bring a nursing/medical student with you who can watch cai. See if you

> can get local charities or something to fund them.

> 5. find a nursing/medical student in the area you are going.

>

> Chantelle

[Guest guest]

Ian-

I think it’s a great idea – but I wonder how difficult it would be to put it

together. Would that one location be a choice for enough families? Would

it be affordable for families?

As I write this, I wonder if it would be something that could be coordinated

with Children’s Hospitals so that you can make use of their resources. Sort

of like adding a few rooms onto a Mc House for holiday rather

than just for hospital stays.

We have had something called “respitality” in a neighboring town.

Unfortunately, it’s no longer active. Hotels would donate unused rooms to

families of children with disabilities so that parents could have a night

away for free. Reservations could not be made more than a few days in

advance because they were giving unused rooms that were expected to be

vacant anyway. My husband and I made use of it once and it was wonderful.

We either had nursing or Grandma stay with the kids that night.

I think you’ll have to be incredibly creative in making it happen

affordably. It would be nice if it could be in a very desirable location so

that most any family would like to go there – like Disney or something.

Don’t let anyone else’s hesitations get in the way of your dreams though.

If you can envision it, and you feel strongly about its value, then go for

it.

Michele W

Aubrie’s mom 9 yrs Hos

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

swisspace

Sent: Wednesday, February 21, 2007 5:38 AM

To: CHARGE

Subject: Re: Hotels with medical centres

I want to post this again, because I think it is important and it only

had one reply so I am afraid it may have got lost amongst the sad news

about baby hope.

of course I may be wrong and nobody else would like to go on holiday ;-)

basically we thought it would be nice to go to a hotel which had all the

facilities we needed, nursing staff, pharmacy(chemist) etc so we could

enjoy a normal holiday, does anyone know of such a place and if not

would you like such a hotel.

Ian - Cai's dad

:

>

>

> This week we had the first official meeting for the charge across

> Europe, the mission statement yet to be confirmed (so please don't quote

> it just yet is

>

> " Charge Across Europe is the expedition attempt of Ruan, Tina and their

> dog Akela to walk over 7 thousand kilometres from the northernmost point

> in Norway to the southernmost point of Greece in order to raise

> awareness of the Charge Syndrome "

>

> while we were discussing the goals of the project (which was initially

> just awareness) It came up that people may want to donate money (this

> was never out intention but Ruan and Tina have been testing the idea out

> on people and they want to donate money). so the question is what should

> we do with any donations

>

> Kerstin and I said that it would be nice to be able to go on holiday, I

> think facilities exist here in switzerland for us to leave Cai with the

> hospital for a week or so and then we could have a holiday without him

> but this is not easy to organise. We had thought of expanding on this by

> starting a centre that parents could drop healthy children while they

> went away for a few days respite (a sort of kennelling system)

>

> Then thinking laterally I thought wouldn't it be great if we could go

> on holiday with Cai (we would prefer this to kennelling Cai) without

> the fuss, i.e you book into a hotel and they have all the facilities and

> trained staff. You could then holiday as any normal family, but drop

> your child off at the medical centre crèche/playgroup where he is looked

> after for you for a few hours and overnight so you can let your hair

> down and get your socks smoking on the dance floor.

>

> I want to check though first if this is a good idea and is it already in

> place.

>

> Ian - trying to do his best as Cai's dad

>

[Guest guest]

My mistake, I have found LInda's reply now.

Cai has a cannula so I guess that makes him medically fragile, however

we want to treat him as normally as possible. we are planning to go to

the UK this summer following as it happens following your advice, except

that we hope to get our insurance to pay for a local agency nurse for

some nights.

I still think it would be great though if we could just book a hotel

giving details of the special care required for Cai and then just be

able to turn up.

thanks

Ian - Cai's dad

Chantelle McLaren wrote:

>

>

> My reason i say no is cause i think of cai is medicaly still somewhat

> fragile. Is he or is he not medicaly stable now?

>

> There are services if the child has no major health complications. Many

> hotels do offer for the healthy kids but if Cai needs a medical like person

> then no the services are not available.

>

> Chantelle

> --

[Guest guest]

Ian, I am not aware of any such hotel that exists but I am sure that many

families would benefit from such a facility. Are you getting

entrepreneurial on us?

>

> I want to post this again, because I think it is important and it only

> had one reply so I am afraid it may have got lost amongst the sad news

> about baby hope.

>

> of course I may be wrong and nobody else would like to go on holiday ;-)

>

> basically we thought it would be nice to go to a hotel which had all the

> facilities we needed, nursing staff, pharmacy(chemist) etc so we could

> enjoy a normal holiday, does anyone know of such a place and if not

> would you like such a hotel.

>

> Ian - Cai's dad

>

> :

> >

> >

> > This week we had the first official meeting for the charge across

> > Europe, the mission statement yet to be confirmed (so please don't quote

> > it just yet is

> >

> > " Charge Across Europe is the expedition attempt of Ruan, Tina and their

> > dog Akela to walk over 7 thousand kilometres from the northernmost point

> > in Norway to the southernmost point of Greece in order to raise

> > awareness of the Charge Syndrome "

> >

> > while we were discussing the goals of the project (which was initially

> > just awareness) It came up that people may want to donate money (this

> > was never out intention but Ruan and Tina have been testing the idea out

> > on people and they want to donate money). so the question is what should

> > we do with any donations

> >

> > Kerstin and I said that it would be nice to be able to go on holiday, I

> > think facilities exist here in switzerland for us to leave Cai with the

> > hospital for a week or so and then we could have a holiday without him

> > but this is not easy to organise. We had thought of expanding on this by

> > starting a centre that parents could drop healthy children while they

> > went away for a few days respite (a sort of kennelling system)

> >

> > Then thinking laterally I thought wouldn't it be great if we could go

> > on holiday with Cai (we would prefer this to kennelling Cai) without

> > the fuss, i.e you book into a hotel and they have all the facilities and

> > trained staff. You could then holiday as any normal family, but drop

> > your child off at the medical centre crèche/playgroup where he is looked

> > after for you for a few hours and overnight so you can let your hair

> > down and get your socks smoking on the dance floor.

> >

> > I want to check though first if this is a good idea and is it already in

> > place.

> >

> > Ian - trying to do his best as Cai's dad

> >

>

>

--

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

[Guest guest]

my thoughts at the moment are along the lines of trying to get a trial

going for a month or so, hopefully funding the medical care by

donations. I know someone with a hotel in the swiss alps (sorry but is

in Europe) and maybe we could get the children's hospital to help and

provide volunteer staff in the beginning, and then if it takes off

permanent staff and then maybe a chain of similar hotels so that you

could vary your destination. sure its a dream at the moment but I feel

have a destiny which has yet to be fulfilled, just wish I had more

energy ;-)

Ian - Cai's dad

Michele Westmaas wrote:

t most any family would like to go there – like Disney or something.

>

> Don’t let anyone else’s hesitations get in the way of your dreams though.

> If you can envision it, and you feel strongly about its value, then go for

> it.

>

> Michele W

> Aubrie’s mom 9 yrs Hos

>

[Guest guest]

Ian-

That sounds lovely. If you want to make it happen, go for it! When you hit

on the " thing " that is your destiny, you will find the energy to make it

happen. If this is the thing, the energy will come.

Michele

[Guest guest]

The only thing I can think of for a family vacation might be some sort of camp

or retreat for kids with health issues or disabilities. Like a camp for kids

with cancer, or locally we have a weekend for children who are deaf and their

families. I think you do have to stay though, and can't just drop your child

off. Unfortunately, respite is not a high priority here in the states (and it

sounds like it isn't where you are either). About the best " respite " care my

husband and I have had for Evan, was when he was in the PICU recovering from his

most recent surgery. The social worker came by with a gift certificate to a

nice resteraunt, and they shooed us out saying the PICU was the best respite

care we would ever find.

I don't know if a resort or hotel like you are describing even exists. I can

only imagine the cost to run something like that would be pretty high. Maybe

some philanthropist with a bunch of extra money to burn will build one someday!

(mom to Evan, 19 months)

swisspace wrote:

Thanks for your reply,

I am Sorry but I didn't see 's reply, even now I have searched my

inbox and don't see it, the wonders of the internet I guess.

Thanks for your recommendations but I think you are missing the point I

am trying to make,

IF you could book into a hotel with your (charge) child who needs

special nursing care (e.g cannula) and they had the facilities in place

so you just had to turn up like any other family and you could spend

time during the day with your child but you could also leave him/her in

daycare for a few hours should you wish and then he or she would be

babysat so you could go out in the evenings or sleep - like hotels offer

sometimes for totally healthy children would you book.

this would mean you wouldn't have to worry about your recommandations 1,

2, 4, 5 - 3 wouldn't be so important.

and secondly does such a hotel exist already - the answer to this seems

question however seems to be no.

Ian - Cai's dad

Chantelle McLaren wrote:

>

>

> actualy there were two responces (both me and linda) and no there are no

> hotels like that. you should bring your own respite workers.

>

> The only thing that would remotely have what your looking for are places

> that has a hostel specificaly designed for children and their families whose

> children are seeking treatment IN the hospital. Thats not going to be

> available if your just going on vacation.

>

> I will repost my recomendations.

> 1. bring respite with you

> 2. plan on staying at a hotel that has a good hospital near by

> 3. find out it there are charge families in your area that could maby watch

> your child for a little bit.

> 4. bring a nursing/medical student with you who can watch cai. See if you

> can get local charities or something to fund them.

> 5. find a nursing/medical student in the area you are going.

>

> Chantelle

---------------------------------

Food fight? Enjoy some healthy debate

in the Yahoo! Answers Food & Drink Q & A.

[Guest guest]

I once visited a friend who was helping look after terminally ill

children in the UK who were at a holiday camp. it was quite a sad

experience but happy in a way.

I think with the system here we could drop Cai off and go away for a

week of respite, but we would feel terribly guilty leaving him behind

and thought it would be better if he could join us for the holiday.

as for expense, the ideal solution maybe but its also possible other

holidaying parents share the baby sitting, maybe one night in a week,

the rest is just convincing some nurses they would like to spend a

holiday looking part time after children and then we need a friendly

knowledgeable local doctor and an emergency helicopter and we are all set.

Ian - Cai's dad

Key Storrs wrote:

>

>

> The only thing I can think of for a family vacation might be some sort

> of camp or retreat for kids with health issues or disabilities. Like a

> camp for kids with cancer, or locally we have a weekend for children who

> are deaf and their families. I think you do have to stay though, and

> can't just drop your child off. Unfortunately, respite is not a high

> priority here in the states (and it sounds like it isn't where you are

> either). About the best " respite " care my husband and I have had for

> Evan, was when he was in the PICU recovering from his most recent

> surgery. The social worker came by with a gift certificate to a nice

> resteraunt, and they shooed us out saying the PICU was the best respite

> care we would ever find.

>

> I don't know if a resort or hotel like you are describing even exists. I

> can only imagine the cost to run something like that would be pretty

> high. Maybe some philanthropist with a bunch of extra money to burn will

> build one someday!

>

> (mom to Evan, 19 months)

>