Re: Update on Rob (27 yr old, Autism, PDD-NOS)

September 8, 2011

No one here ever got pain..so Syntol is not right for you! I wonder what causes

that?...that is awful.

....I can't help it, but I think I am going to research that. Let me see what I

can find..

laura

> >

> > > **

> > >

> > > Yes, Rob has a job, and about to get more hours because he does a good

job!

> > > I'm wicked super proud.

> > >

> > > and yes, started art classes last week. Was like " when are you leaving

> > > , because I want to get started. " Is looking to also start at the

YMCA

> > > with some classes that sounded interesting to him. He is awesome in the

> > > house and helping me, helps with the kids, helps with cleaning, cooking

and

> > > doing tasking (laundry, toys picked up, making lists for the grocery

store).

> > > I am not going to lie, I am sucking crap in the social dept, and really

need

> > > to figure that part out. Work is great, so is art classes, but he needs

> > > friends.

> > >

> > > I took him out of his 'program' because (and this is going to sound awful)

> > > - because it was beneath him. Bunny hats, popsicle stick structures for a

27

> > > year old? I had asked about work or volunteer opportunities, and they

> > > shuffled me away, so I said, screw this, I can do better (at least I

hope!)

> > > than this. Group home settings (ugh!) -- not what I want for my brother. I

> > > know how awful I sound. But not to be obnoxious, it's with out a doubt

> > > awful. I cried a lot after seeing what comes next. It's like your sent to

> > > die. Your gratuitous hand shaker in game of life...it's what motivated me

> > > and allowed me to be nazi like when I was recovering Jimmy. I was like

" not

> > > for my kid, not for my brother. "

> > >

> > > He was in MA, NY and CT for a few months because my Dad had another stroke

> > > (Stroke #3 this year, ugh), and wanted to hang with him. Dad was very

proud

> > > of Rob, and cried because they had a 'real' conversation. He tried to tell

> > > me, but couldn't get past the emotional part. You know when you've done

well

> > > enough to impress my Dad who was never easily impressed. Dad bought Rob an

> > > Ipad, a 32 inch LED TV and of course, asked if there was anything he

needed.

> > > I was like 'gee Dad, I'm trying to teach him the value of hard work and

> > > earning money for things he wants.' Dad was like 'whatever, I'm old.'

> > >

> > > I got a lot of great feedback from people who have known Rob since birth,

> > > all very positive, and excited about biomed (which they considered witch

> > > craft and voodoo diets 2 years ago..) SO much so, that many have asked for

> > > information and direction...tough nuts to crack. I still get the defenders

> > > of the status quo, self righteous, and doubtful, but the results do speak

> > > for themselves. We've got a ways to go, but it's really the difference of

> > > night and day.

> > >

> > > I have said, I won't give up...I finally (FINALLY) found a thyroid doc for

> > > Rob, very promising. VERY! So, I plan on working on that next. We get a

> > > metals test, and IGg, Comprehensive stool analysis, and there are a few

more

> > > that I can't remember.

> > >

> > > Rob while in NY saw his best friend since he was 3. They did all sorts of

> > > things, bowling, mini golf and went out to the movies and dinner.

> > > was like " I can't believe this is Rob. " Rob even ordered his own meal,

gf/cf

> > > the best he could. I was excited. He is starting to really get it. He even

> > > is starting to really connect things, which he never has done well.

Although

> > > he is my brother, and not my child, I well up with excitement for the

> > > possibilities. My parents had no clue, and were stuck in 'the system.' I

am

> > > hoping we can piece together a life worth living. Something he has control

> > > over.

> > >

> > > BTW, also shaves daily. Now, some may think that's not a big deal, but Rob

> > > only ever had to shave once a week, if that. This means things are

starting

> > > to work right! YEAH! Even a lower voice. gah!

> > >

> > > His speech is still somewhat marbled, but I am looking into ear

acupuncture

> > > using gold and silver pellets. (energy medicine...) - I am open to trying

> > > some interesting stuff, which btw, has an 85% success rate. (I have been

> > > reading about that recently...) The reason? When Rob was about 5, they

chose

> > > a handed-ness for him. Right handed. My parents had 7 children, all left

> > > handed, except for Rob. (ALthough, Rob uses his left hand for a few

> > > things)...anyway, I was reading that when a child uses the wrong hand, it

> > > interferes with the transition of information. The kids can't retrieve the

> > > information because it's blocked. Essentially, you have valuables in a

safe,

> > > and forgot the combo. This is supposed to set it right. Most see results

in

> > > a few months. I thought that sounded promising.

> > >

> > > The frustrating thing is, if there isn't constant repetitive things, he

> > > just 'forgets' -- which I totally don't get. I was also going to try Brain

> > > Balance and Yoga too. Because I can't just do one thing, I got attack from

> > > every angle possible. LOL!

> > >

> > > My god, I can write a book on Rob.

> > >

> > > Another interesting piece of info I got, my brother found all of Rob's

> > > immunization records, and my Mom's..she put them together and circled the

> > > MMR. She knew. Rob received three separate shots all on the same day. My

Mom

> > > got the shots while he was in utero. This was 1984 - when the dtap and all

> > > the other shots (except the MMR) had mercury in them. He was getting flu

> > > shots, booster shots, I was like - this poor kid was assaulted from birth.

> > > My Mom had dental work (amalgams) put in while he was in her belly. He had

a

> > > booster shot of tetanus while in the hospital for his 2nd hernia operation

> > > ...it's amazing he functions as well as he does. I just got all the other

> > > records, and all I can say is " wow. " ...what crap health care he received.

> > > None of his doctors talked to each other.

> > >

> >

>

September 8, 2011

love digit spans, thanks for bringing that one up, I had forgotten...

you rock! Tammy!

laura:)

> >

> > > **

> > >

> > > Yes, Rob has a job, and about to get more hours because he does a good

job!

> > > I'm wicked super proud.

> > >

> > > and yes, started art classes last week. Was like " when are you leaving

> > > , because I want to get started. " Is looking to also start at the

YMCA

> > > with some classes that sounded interesting to him. He is awesome in the

> > > house and helping me, helps with the kids, helps with cleaning, cooking

and

> > > doing tasking (laundry, toys picked up, making lists for the grocery

store).

> > > I am not going to lie, I am sucking crap in the social dept, and really

need

> > > to figure that part out. Work is great, so is art classes, but he needs

> > > friends.

> > >

> > > I took him out of his 'program' because (and this is going to sound awful)

> > > - because it was beneath him. Bunny hats, popsicle stick structures for a

27

> > > year old? I had asked about work or volunteer opportunities, and they

> > > shuffled me away, so I said, screw this, I can do better (at least I

hope!)

> > > than this. Group home settings (ugh!) -- not what I want for my brother. I

> > > know how awful I sound. But not to be obnoxious, it's with out a doubt

> > > awful. I cried a lot after seeing what comes next. It's like your sent to

> > > die. Your gratuitous hand shaker in game of life...it's what motivated me

> > > and allowed me to be nazi like when I was recovering Jimmy. I was like

" not

> > > for my kid, not for my brother. "

> > >

> > > He was in MA, NY and CT for a few months because my Dad had another stroke

> > > (Stroke #3 this year, ugh), and wanted to hang with him. Dad was very

proud

> > > of Rob, and cried because they had a 'real' conversation. He tried to tell

> > > me, but couldn't get past the emotional part. You know when you've done

well

> > > enough to impress my Dad who was never easily impressed. Dad bought Rob an

> > > Ipad, a 32 inch LED TV and of course, asked if there was anything he

needed.

> > > I was like 'gee Dad, I'm trying to teach him the value of hard work and

> > > earning money for things he wants.' Dad was like 'whatever, I'm old.'

> > >

> > > I got a lot of great feedback from people who have known Rob since birth,

> > > all very positive, and excited about biomed (which they considered witch

> > > craft and voodoo diets 2 years ago..) SO much so, that many have asked for

> > > information and direction...tough nuts to crack. I still get the defenders

> > > of the status quo, self righteous, and doubtful, but the results do speak

> > > for themselves. We've got a ways to go, but it's really the difference of

> > > night and day.

> > >

> > > I have said, I won't give up...I finally (FINALLY) found a thyroid doc for

> > > Rob, very promising. VERY! So, I plan on working on that next. We get a

> > > metals test, and IGg, Comprehensive stool analysis, and there are a few

more

> > > that I can't remember.

> > >

> > > Rob while in NY saw his best friend since he was 3. They did all sorts of

> > > things, bowling, mini golf and went out to the movies and dinner.

> > > was like " I can't believe this is Rob. " Rob even ordered his own meal,

gf/cf

> > > the best he could. I was excited. He is starting to really get it. He even

> > > is starting to really connect things, which he never has done well.

Although

> > > he is my brother, and not my child, I well up with excitement for the

> > > possibilities. My parents had no clue, and were stuck in 'the system.' I

am

> > > hoping we can piece together a life worth living. Something he has control

> > > over.

> > >

> > > BTW, also shaves daily. Now, some may think that's not a big deal, but Rob

> > > only ever had to shave once a week, if that. This means things are

starting

> > > to work right! YEAH! Even a lower voice. gah!

> > >

> > > His speech is still somewhat marbled, but I am looking into ear

acupuncture

> > > using gold and silver pellets. (energy medicine...) - I am open to trying

> > > some interesting stuff, which btw, has an 85% success rate. (I have been

> > > reading about that recently...) The reason? When Rob was about 5, they

chose

> > > a handed-ness for him. Right handed. My parents had 7 children, all left

> > > handed, except for Rob. (ALthough, Rob uses his left hand for a few

> > > things)...anyway, I was reading that when a child uses the wrong hand, it

> > > interferes with the transition of information. The kids can't retrieve the

> > > information because it's blocked. Essentially, you have valuables in a

safe,

> > > and forgot the combo. This is supposed to set it right. Most see results

in

> > > a few months. I thought that sounded promising.

> > >

> > > The frustrating thing is, if there isn't constant repetitive things, he

> > > just 'forgets' -- which I totally don't get. I was also going to try Brain

> > > Balance and Yoga too. Because I can't just do one thing, I got attack from

> > > every angle possible. LOL!

> > >

> > > My god, I can write a book on Rob.

> > >

> > > Another interesting piece of info I got, my brother found all of Rob's

> > > immunization records, and my Mom's..she put them together and circled the

> > > MMR. She knew. Rob received three separate shots all on the same day. My

Mom

> > > got the shots while he was in utero. This was 1984 - when the dtap and all

> > > the other shots (except the MMR) had mercury in them. He was getting flu

> > > shots, booster shots, I was like - this poor kid was assaulted from birth.

> > > My Mom had dental work (amalgams) put in while he was in her belly. He had

a

> > > booster shot of tetanus while in the hospital for his 2nd hernia operation

> > > ...it's amazing he functions as well as he does. I just got all the other

> > > records, and all I can say is " wow. " ...what crap health care he received.

> > > None of his doctors talked to each other.

> > >

> >

> > --

> > Toni

> >

> > ------

> > Mind like a steel trap...

> > Rusty and illegal in 37 states.

> >

>

September 8, 2011

We tried A LOT of things. I mean, A LOT of things. The first year, we were

unsuccessful treating yeast and those infections, it wasn't until I got Syntol

on board that the next year that it came back negative all around. (Jimmy too.)

My guess (if I had to guess) once you get the yeast in check, the body can fight

all the other stuff.

Both have been on Diflucan and Flagyl repeated times and after dosing, it still

came back positive. We did OLE, Liquid Capryl, and other 'naturals' when the

prescriptions failed. Rob got tested 6 months after initial testing, (after

scripts) still positive, He got tested again annual, still positive - tried

Syntol (heavy dosing) and systemic enzymes (vitalzym) at the same time, and in

October of last year, he was negative. Jimmy's klebsiella was gone too. We

also had upped juicing too. We didn't stop sugars or rice or anything like that

because the diet is so restrictive...I also did fermented foods (Kim Chi). Both

came back good, except Jimmy wasn't showing any L acidopolis in his sample, and

Rob's was real low. this explains the oxalate issues. I know I used

Chlorophyll too because it helps alkalize the body, which also yeast (and other

opportunistic stuff) doesn't like.

Maddie which I couldn't get tested we found same thing, Syntol was effective. I

couldn't get her to do the systemic enzymes, however, her allergies abated,

rashes were completely gone, and happier kid. So, that is how I give Syntol the

credit.

I will try to upload the advertisement for Syntol, (I found it recently) during

clinical trials, the yeast was eradicated by using " therapeutic " doses within 45

days for ALL participants.

The other book I read - Drug Muggers (I borrowed it, and I don't have it now) -

talks about how certain drugs deplete certain nutrients. So when they (both

Jimmy and Rob) were doing scripts, I was careful to create an abundance of the

nutrients they depleted. This could account for some of the anxiety and 'die'

off people experience. I added the Vitalzyme to help the body fight back.

There is another guy, his name is Leo Galland, MD (I think...) and I read one of

his papers on the subject, which is how I came to figure out the prescription

stuff (the second round). I have to find the paper, but it was good, I know it

sent me searching. It still didn't solve our problem, but it enlightened me as

to supporting our immune system to fight back.

I know Magnesium is usually one that is depleted, and when taking a blood test,

you have to ask for magnesium (for electrolytes) because they don't

automatically measure it. (I thought that was odd). When I juiced, I juiced

things that helped with that. At the time when someone suggested Feingold and

Magnesium, it made perfect sense to me to calm Jimmy down, and it worked

wonderfully.

I want to say it has to do with the PST deficiency, and then not enough systemic

enzymes coupled with overload of phenols and salicycates and electrolytes are

depleted as a result. (I think I am saying it right.) -- so when you lighten

the load, add more enzymes, and keep the electrolytes in balance, you've got all

the plates spinning and balanced. I want to say I understood that after I did

what you guys told me to do, and because I didn't necessarily understand, I

researched it.

To make a long story short, (which is impossible for me to do) - if you get

everything else in check, the body has the resources to eradicate the problem.

If there are too many problems, eliminating the nutritional deficiency first (in

my opinion) sets you up for better success when using the prescription drugs.

(you can do that with supplements, juicing, diet, etc.) Which is why people

want to remove sugar, because sugar burns up all sorts of stuff, starting with

phosphorus, which already puts the body at a disadvantage.

omg, I have to shut up.

> >

> > >

> > > > **

> > > >

> > > > Yes, Rob has a job, and about to get more hours because he does a good

> > job!

> > > > I'm wicked super proud.

> > > >

> > > > and yes, started art classes last week. Was like " when are you leaving

> > > > , because I want to get started. " Is looking to also start at the

> > YMCA

> > > > with some classes that sounded interesting to him. He is awesome in the

> > > > house and helping me, helps with the kids, helps with cleaning, cooking

> > and

> > > > doing tasking (laundry, toys picked up, making lists for the grocery

> > store).

> > > > I am not going to lie, I am sucking crap in the social dept, and really

> > need

> > > > to figure that part out. Work is great, so is art classes, but he needs

> > > > friends.

> > > >

> > > > I took him out of his 'program' because (and this is going to sound

> > awful)

> > > > - because it was beneath him. Bunny hats, popsicle stick structures for

> > a 27

> > > > year old? I had asked about work or volunteer opportunities, and they

> > > > shuffled me away, so I said, screw this, I can do better (at least I

> > hope!)

> > > > than this. Group home settings (ugh!) -- not what I want for my

> > brother. I

> > > > know how awful I sound. But not to be obnoxious, it's with out a doubt

> > > > awful. I cried a lot after seeing what comes next. It's like your sent

> > to

> > > > die. Your gratuitous hand shaker in game of life...it's what motivated

> > me

> > > > and allowed me to be nazi like when I was recovering Jimmy. I was like

> > " not

> > > > for my kid, not for my brother. "

> > > >

> > > > He was in MA, NY and CT for a few months because my Dad had another

> > stroke

> > > > (Stroke #3 this year, ugh), and wanted to hang with him. Dad was very

> > proud

> > > > of Rob, and cried because they had a 'real' conversation. He tried to

> > tell

> > > > me, but couldn't get past the emotional part. You know when you've done

> > well

> > > > enough to impress my Dad who was never easily impressed. Dad bought Rob

> > an

> > > > Ipad, a 32 inch LED TV and of course, asked if there was anything he

> > needed.

> > > > I was like 'gee Dad, I'm trying to teach him the value of hard work and

> > > > earning money for things he wants.' Dad was like 'whatever, I'm old.'

> > > >

> > > > I got a lot of great feedback from people who have known Rob since

> > birth,

> > > > all very positive, and excited about biomed (which they considered

> > witch

> > > > craft and voodoo diets 2 years ago..) SO much so, that many have asked

> > for

> > > > information and direction...tough nuts to crack. I still get the

> > defenders

> > > > of the status quo, self righteous, and doubtful, but the results do

> > speak

> > > > for themselves. We've got a ways to go, but it's really the difference

> > of

> > > > night and day.

> > > >

> > > > I have said, I won't give up...I finally (FINALLY) found a thyroid doc

> > for

> > > > Rob, very promising. VERY! So, I plan on working on that next. We get a

> > > > metals test, and IGg, Comprehensive stool analysis, and there are a few

> > more

> > > > that I can't remember.

> > > >

> > > > Rob while in NY saw his best friend since he was 3. They did all sorts

> > of

> > > > things, bowling, mini golf and went out to the movies and dinner.

> >

> > > > was like " I can't believe this is Rob. " Rob even ordered his own meal,

> > gf/cf

> > > > the best he could. I was excited. He is starting to really get it. He

> > even

> > > > is starting to really connect things, which he never has done well.

> > Although

> > > > he is my brother, and not my child, I well up with excitement for the

> > > > possibilities. My parents had no clue, and were stuck in 'the system.'

> > I am

> > > > hoping we can piece together a life worth living. Something he has

> > control

> > > > over.

> > > >

> > > > BTW, also shaves daily. Now, some may think that's not a big deal, but

> > Rob

> > > > only ever had to shave once a week, if that. This means things are

> > starting

> > > > to work right! YEAH! Even a lower voice. gah!

> > > >

> > > > His speech is still somewhat marbled, but I am looking into ear

> > acupuncture

> > > > using gold and silver pellets. (energy medicine...) - I am open to

> > trying

> > > > some interesting stuff, which btw, has an 85% success rate. (I have

> > been

> > > > reading about that recently...) The reason? When Rob was about 5, they

> > chose

> > > > a handed-ness for him. Right handed. My parents had 7 children, all

> > left

> > > > handed, except for Rob. (ALthough, Rob uses his left hand for a few

> > > > things)...anyway, I was reading that when a child uses the wrong hand,

> > it

> > > > interferes with the transition of information. The kids can't retrieve

> > the

> > > > information because it's blocked. Essentially, you have valuables in a

> > safe,

> > > > and forgot the combo. This is supposed to set it right. Most see

> > results in

> > > > a few months. I thought that sounded promising.

> > > >

> > > > The frustrating thing is, if there isn't constant repetitive things, he

> > > > just 'forgets' -- which I totally don't get. I was also going to try

> > Brain

> > > > Balance and Yoga too. Because I can't just do one thing, I got attack

> > from

> > > > every angle possible. LOL!

> > > >

> > > > My god, I can write a book on Rob.

> > > >

> > > > Another interesting piece of info I got, my brother found all of Rob's

> > > > immunization records, and my Mom's..she put them together and circled

> > the

> > > > MMR. She knew. Rob received three separate shots all on the same day.

> > My Mom

> > > > got the shots while he was in utero. This was 1984 - when the dtap and

> > all

> > > > the other shots (except the MMR) had mercury in them. He was getting

> > flu

> > > > shots, booster shots, I was like - this poor kid was assaulted from

> > birth.

> > > > My Mom had dental work (amalgams) put in while he was in her belly. He

> > had a

> > > > booster shot of tetanus while in the hospital for his 2nd hernia

> > operation

> > > > ...it's amazing he functions as well as he does. I just got all the

> > other

> > > > records, and all I can say is " wow. " ...what crap health care he

> > received.

> > > > None of his doctors talked to each other.

> > > >

> > >

> >

>

September 8, 2011

Correction, I just looked at the date on his tests, he was clear as of February

2011. I got the test back in March. If I could only figure out where the time

goes...ugh.

Around the same time, he was getting his amalgams out ...wonder if this played a

role as well.

hmmm...

> > >

> > > >

> > > > > **

> > > > >

> > > > > Yes, Rob has a job, and about to get more hours because he does a good

> > > job!

> > > > > I'm wicked super proud.

> > > > >

> > > > > and yes, started art classes last week. Was like " when are you leaving

> > > > > , because I want to get started. " Is looking to also start at the

> > > YMCA

> > > > > with some classes that sounded interesting to him. He is awesome in

the

> > > > > house and helping me, helps with the kids, helps with cleaning,

cooking

> > > and

> > > > > doing tasking (laundry, toys picked up, making lists for the grocery

> > > store).

> > > > > I am not going to lie, I am sucking crap in the social dept, and

really

> > > need

> > > > > to figure that part out. Work is great, so is art classes, but he

needs

> > > > > friends.

> > > > >

> > > > > I took him out of his 'program' because (and this is going to sound

> > > awful)

> > > > > - because it was beneath him. Bunny hats, popsicle stick structures

for

> > > a 27

> > > > > year old? I had asked about work or volunteer opportunities, and they

> > > > > shuffled me away, so I said, screw this, I can do better (at least I

> > > hope!)

> > > > > than this. Group home settings (ugh!) -- not what I want for my

> > > brother. I

> > > > > know how awful I sound. But not to be obnoxious, it's with out a doubt

> > > > > awful. I cried a lot after seeing what comes next. It's like your sent

> > > to

> > > > > die. Your gratuitous hand shaker in game of life...it's what motivated

> > > me

> > > > > and allowed me to be nazi like when I was recovering Jimmy. I was like

> > > " not

> > > > > for my kid, not for my brother. "

> > > > >

> > > > > He was in MA, NY and CT for a few months because my Dad had another

> > > stroke

> > > > > (Stroke #3 this year, ugh), and wanted to hang with him. Dad was very

> > > proud

> > > > > of Rob, and cried because they had a 'real' conversation. He tried to

> > > tell

> > > > > me, but couldn't get past the emotional part. You know when you've

done

> > > well

> > > > > enough to impress my Dad who was never easily impressed. Dad bought

Rob

> > > an

> > > > > Ipad, a 32 inch LED TV and of course, asked if there was anything he

> > > needed.

> > > > > I was like 'gee Dad, I'm trying to teach him the value of hard work

and

> > > > > earning money for things he wants.' Dad was like 'whatever, I'm old.'

> > > > >

> > > > > I got a lot of great feedback from people who have known Rob since

> > > birth,

> > > > > all very positive, and excited about biomed (which they considered

> > > witch

> > > > > craft and voodoo diets 2 years ago..) SO much so, that many have asked

> > > for

> > > > > information and direction...tough nuts to crack. I still get the

> > > defenders

> > > > > of the status quo, self righteous, and doubtful, but the results do

> > > speak

> > > > > for themselves. We've got a ways to go, but it's really the difference

> > > of

> > > > > night and day.

> > > > >

> > > > > I have said, I won't give up...I finally (FINALLY) found a thyroid doc

> > > for

> > > > > Rob, very promising. VERY! So, I plan on working on that next. We get

a

> > > > > metals test, and IGg, Comprehensive stool analysis, and there are a

few

> > > more

> > > > > that I can't remember.

> > > > >

> > > > > Rob while in NY saw his best friend since he was 3. They did all sorts

> > > of

> > > > > things, bowling, mini golf and went out to the movies and dinner.

> > >

> > > > > was like " I can't believe this is Rob. " Rob even ordered his own meal,

> > > gf/cf

> > > > > the best he could. I was excited. He is starting to really get it. He

> > > even

> > > > > is starting to really connect things, which he never has done well.

> > > Although

> > > > > he is my brother, and not my child, I well up with excitement for the

> > > > > possibilities. My parents had no clue, and were stuck in 'the system.'

> > > I am

> > > > > hoping we can piece together a life worth living. Something he has

> > > control

> > > > > over.

> > > > >

> > > > > BTW, also shaves daily. Now, some may think that's not a big deal, but

> > > Rob

> > > > > only ever had to shave once a week, if that. This means things are

> > > starting

> > > > > to work right! YEAH! Even a lower voice. gah!

> > > > >

> > > > > His speech is still somewhat marbled, but I am looking into ear

> > > acupuncture

> > > > > using gold and silver pellets. (energy medicine...) - I am open to

> > > trying

> > > > > some interesting stuff, which btw, has an 85% success rate. (I have

> > > been

> > > > > reading about that recently...) The reason? When Rob was about 5, they

> > > chose

> > > > > a handed-ness for him. Right handed. My parents had 7 children, all

> > > left

> > > > > handed, except for Rob. (ALthough, Rob uses his left hand for a few

> > > > > things)...anyway, I was reading that when a child uses the wrong hand,

> > > it

> > > > > interferes with the transition of information. The kids can't retrieve

> > > the

> > > > > information because it's blocked. Essentially, you have valuables in a

> > > safe,

> > > > > and forgot the combo. This is supposed to set it right. Most see

> > > results in

> > > > > a few months. I thought that sounded promising.

> > > > >

> > > > > The frustrating thing is, if there isn't constant repetitive things,

he

> > > > > just 'forgets' -- which I totally don't get. I was also going to try

> > > Brain

> > > > > Balance and Yoga too. Because I can't just do one thing, I got attack

> > > from

> > > > > every angle possible. LOL!

> > > > >

> > > > > My god, I can write a book on Rob.

> > > > >

> > > > > Another interesting piece of info I got, my brother found all of Rob's

> > > > > immunization records, and my Mom's..she put them together and circled

> > > the

> > > > > MMR. She knew. Rob received three separate shots all on the same day.

> > > My Mom

> > > > > got the shots while he was in utero. This was 1984 - when the dtap and

> > > all

> > > > > the other shots (except the MMR) had mercury in them. He was getting

> > > flu

> > > > > shots, booster shots, I was like - this poor kid was assaulted from

> > > birth.

> > > > > My Mom had dental work (amalgams) put in while he was in her belly. He

> > > had a

> > > > > booster shot of tetanus while in the hospital for his 2nd hernia

> > > operation

> > > > > ...it's amazing he functions as well as he does. I just got all the

> > > other

> > > > > records, and all I can say is " wow. " ...what crap health care he

> > > received.

> > > > > None of his doctors talked to each other.

> > > > >

> > > >

> > >

> >

>

September 8, 2011

My God, , you SHOULD write a book on Rob. One the covers the treatment and outcome differences that span just one (1!) generation. I'm coming to your first signing event. ~GayleTo: mb12valtrex Sent: Thursday, September 8, 2011 8:29 AMSubject: Re: Update on Rob (27 yr old, Autism, PDD-NOS)

Funny you say that, I've never felt alone in this journey, it would always seem when I got 'stuck' the right thing seemed to come across for my viewing and understanding...I know she is there, helping and guiding. And when I get frustrated I yell at her telling her this was her problem to solve, not mine, but then I am reminded that my child was saved too. Because of my experiences as child with Rob, it was not hard to get out of denial, and deal with Jimmy. Easy child rearing was not my lot in life, I guess. lol!

Rob gets them 2 times per day. I do the B-Right Jarrow Formulas which is pretty bio-available. I found this helps a lot, but I can't help but feel this isn't everything. He's also on CLO, Selenium (for Thyroid), Zinc, Syntol, at night, if he feels like it, I give him the B12 sublinguals ...and of course, we are juicing, and he's on the diets..(lo ox, Feingold, IGg Free, gfcfcfsf) - Don't get me wrong he is SO much better, but sometimes I want to boink him in the head and say "dude, we've just talked about that" -- like it hasn't reached his long term memory yet? But he will ask me again about it like a few days later...He is good about putting things on his calendar, and making notes about how things need to happen.

For instance, he has been doing his laundry for about a year now, he still (once in a while, not everytime) will come to me and make sure that he isn't using too much soap. I've made charts, used a black magic marker and put ROB's Laundry Soap Mark on the cup, put directions right above the washing machine (one with words, one with pictures)...at first I thought it was his way of trying to get me involved and wanted conversation, but then I realized it's he can't remember.

But! Judy (his boss) asked him to bring in his Ipad to work, and he remembers that, he remembers what kinds of things they talked about they want to look up, etc. Last night he was sitting at dinner and all of the sudden (because he was thinking about work) said "I forgot to get the kids cookies last week. It had their name on it, and I forgot." ...so it's intermittent? Or it's just selective? I know when he can't remember, he gets upset. I use humor with him to offset his obvious acknowledgement of this deficit.

I am open to suggestions, as this one is kicking my keister...

So far I was going to try - the ear acupuncture, higher doses of B1 or the patch for TTFD (it's great for brain activity - used for epilepsy), brain balance/yoga, and having him do 'memory' with Jimmy (as a game they can play together)...I can't help but feel like it's a deficit that I am missing.

ugh...laura

>

> > **

> >

> > Yes, Rob has a job, and about to get more hours because he does a good job!

> > I'm wicked super proud.

> >

> > and yes, started art classes last week. Was like "when are you leaving

> > , because I want to get started." Is looking to also start at the YMCA

> > with some classes that sounded interesting to him. He is awesome in the

> > house and helping me, helps with the kids, helps with cleaning, cooking and

> > doing tasking (laundry, toys picked up, making lists for the grocery store).

> > I am not going to lie, I am sucking crap in the social dept, and really need

> > to figure that part out. Work is great, so is art classes, but he needs

> > friends.

> >

> > I took him out of his 'program' because (and this is going to sound awful)

> > - because it was beneath him. Bunny hats, popsicle stick structures for a 27

> > year old? I had asked about work or volunteer opportunities, and they

> > shuffled me away, so I said, screw this, I can do better (at least I hope!)

> > than this. Group home settings (ugh!) -- not what I want for my brother. I

> > know how awful I sound. But not to be obnoxious, it's with out a doubt

> > awful. I cried a lot after seeing what comes next. It's like your sent to

> > die. Your gratuitous hand shaker in game of life...it's what motivated me

> > and allowed me to be nazi like when I was recovering Jimmy. I was like "not

> > for my kid, not for my brother."

> >

> > He was in MA, NY and CT for a few months because my Dad had another stroke

> > (Stroke #3 this year, ugh), and wanted to hang with him. Dad was very proud

> > of Rob, and cried because they had a 'real' conversation. He tried to tell

> > me, but couldn't get past the emotional part. You know when you've done well

> > enough to impress my Dad who was never easily impressed. Dad bought Rob an

> > Ipad, a 32 inch LED TV and of course, asked if there was anything he needed.

> > I was like 'gee Dad, I'm trying to teach him the value of hard work and

> > earning money for things he wants.' Dad was like 'whatever, I'm old.'

> >

> > I got a lot of great feedback from people who have known Rob since birth,

> > all very positive, and excited about biomed (which they considered witch

> > craft and voodoo diets 2 years ago..) SO much so, that many have asked for

> > information and direction...tough nuts to crack. I still get the defenders

> > of the status quo, self righteous, and doubtful, but the results do speak

> > for themselves. We've got a ways to go, but it's really the difference of

> > night and day.

> >

> > I have said, I won't give up...I finally (FINALLY) found a thyroid doc for

> > Rob, very promising. VERY! So, I plan on working on that next. We get a

> > metals test, and IGg, Comprehensive stool analysis, and there are a few more

> > that I can't remember.

> >

> > Rob while in NY saw his best friend since he was 3. They did all sorts of

> > things, bowling, mini golf and went out to the movies and dinner.

> > was like "I can't believe this is Rob." Rob even ordered his own meal, gf/cf

> > the best he could. I was excited. He is starting to really get it. He even

> > is starting to really connect things, which he never has done well. Although

> > he is my brother, and not my child, I well up with excitement for the

> > possibilities. My parents had no clue, and were stuck in 'the system.' I am

> > hoping we can piece together a life worth living. Something he has control

> > over.

> >

> > BTW, also shaves daily. Now, some may think that's not a big deal, but Rob

> > only ever had to shave once a week, if that. This means things are starting

> > to work right! YEAH! Even a lower voice. gah!

> >

> > His speech is still somewhat marbled, but I am looking into ear acupuncture

> > using gold and silver pellets. (energy medicine...) - I am open to trying

> > some interesting stuff, which btw, has an 85% success rate. (I have been

> > reading about that recently...) The reason? When Rob was about 5, they chose

> > a handed-ness for him. Right handed. My parents had 7 children, all left

> > handed, except for Rob. (ALthough, Rob uses his left hand for a few

> > things)...anyway, I was reading that when a child uses the wrong hand, it

> > interferes with the transition of information. The kids can't retrieve the

> > information because it's blocked. Essentially, you have valuables in a safe,

> > and forgot the combo. This is supposed to set it right. Most see results in

> > a few months. I thought that sounded promising.

> >

> > The frustrating thing is, if there isn't constant repetitive things, he

> > just 'forgets' -- which I totally don't get. I was also going to try Brain

> > Balance and Yoga too. Because I can't just do one thing, I got attack from

> > every angle possible. LOL!

> >

> > My god, I can write a book on Rob.

> >

> > Another interesting piece of info I got, my brother found all of Rob's

> > immunization records, and my Mom's..she put them together and circled the

> > MMR. She knew. Rob received three separate shots all on the same day. My Mom

> > got the shots while he was in utero. This was 1984 - when the dtap and all

> > the other shots (except the MMR) had mercury in them. He was getting flu

> > shots, booster shots, I was like - this poor kid was assaulted from birth.

> > My Mom had dental work (amalgams) put in while he was in her belly. He had a

> > booster shot of tetanus while in the hospital for his 2nd hernia operation

> > ...it's amazing he functions as well as he does. I just got all the other

> > records, and all I can say is "wow."...what crap health care he received.

> > None of his doctors talked to each other.

> >

>

> --

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

September 8, 2011

My sister thinks I should too, simply because the differences are so

significant, it can't be accidental or environmental (which is what a lot of

people were saying - this is ALL due to changes to his environment) -- which we

all know that make zero sense.. and he can suddenly do laundry, see correctly,

watch TV normally, get a job, use the computer, wear glasses, have his eye

suddenly and spontaneously work together, his irrational fears gone, his bad

skin, his rashes...my GOD the list goes on and on..

I've thought maybe I would write out all I have done, why we (his doc and I)

chose certain things first, and why we proceeded the way we did. TO help others

figure out steps for their child. Rob is an enigma, but if you follow his birth

thru now, it's not hard to see it once you are armed with certain information.

Making the case for Rob to be somewhat of a beacon for others, is really why I

would do it. He's a great kid and a pretty cool brother when he isn't being a

PITA. I'm glad he's a PITA, as it tells me there is progress. But he's work.

He's a lot of emotional work too. It's hard to be his sister, and be somewhat

of a Mom to him when he's mean or manipulative...I've sent him to his room on

several occasions because he knows what irritates me, and pokes at me. THen

again, when Sam (my one year old) is hanging on my legs while I'm trying to make

dinner, Rob is there, scoops him up, holds him, and plays with him. He's such a

help and a love. My kids love him very much.

I have seriously thought " what did I get myself into " on several occasions, and

have wanted to send him back lots of time, I think that makes me more human and

more of a sister...so I don't mind saying to him, " hey, dude, pick up after

yourself, I'm not the maid, I'm the mother, and in your case, sister. So I

don't have to tolerate that. "

He hugs now. I remember when he was very young, he was very social, and as time

went on, you couldn't get him to be affectionate. I was ticked at him the other

nite, and he said " you need a hug! " - I was like, no hugging, you are ticking me

off..and he's like, (laughing even)...nah, I've got a hug coming your way. It's

those times that make me see that he's still in there, and how much I really

love him. I'm glad I decided not to do the group home..I know sometimes my

husband wants our old life back. It was much easier.

thanks though...I'm considering it. laura

> >

> > > **

> > >

> > > Yes, Rob has a job, and about to get more hours because he does a good

job!

> > > I'm wicked super proud.

> > >

> > > and yes, started art classes last week. Was like " when are you leaving

> > > , because I want to get started. " Is looking to also start at the

YMCA

> > > with some classes that sounded interesting to him. He is awesome in the

> > > house and helping me, helps with the kids, helps with cleaning, cooking

and

> > > doing tasking (laundry, toys picked up, making lists for the grocery

store).

> > > I am not going to lie, I am sucking crap in the social dept, and really

need

> > > to figure that part out. Work is great, so is art classes, but he needs

> > > friends.

> > >

> > > I took him out of his 'program' because (and this is going to sound awful)

> > > - because it was beneath him. Bunny hats, popsicle stick structures for a

27

> > > year old? I had asked about work or volunteer opportunities, and they

> > > shuffled me away, so I said, screw this, I can do better (at least I

hope!)

> > > than this. Group home settings (ugh!) -- not what I want for my brother. I

> > > know how awful I sound. But not to be obnoxious, it's with out a doubt

> > > awful. I cried a lot after seeing what comes next. It's like your sent to

> > > die. Your gratuitous hand shaker in game of life...it's what motivated me

> > > and allowed me to be nazi like when I was recovering Jimmy. I was like

" not

> > > for my kid, not for my brother. "

> > >

> > > He was in MA, NY and CT for a few months because my Dad had another stroke

> > > (Stroke #3 this year, ugh), and wanted to hang with him. Dad was very

proud

> > > of Rob, and cried because they had a 'real' conversation. He tried to tell

> > > me, but couldn't get past the emotional part. You know when you've done

well

> > > enough to impress my Dad who was never easily impressed. Dad bought Rob an

> > > Ipad, a 32 inch LED TV and of course, asked if there was anything he

needed.

> > > I was like 'gee Dad, I'm trying to teach him the value of hard work and

> > > earning money for things he wants.' Dad was like 'whatever, I'm old.'

> > >

> > > I got a lot of great feedback from people who have known Rob since birth,

> > > all very positive, and excited about biomed (which they considered witch

> > > craft and voodoo diets 2 years ago..) SO much so, that many have asked for

> > > information and direction...tough nuts to crack. I still get the defenders

> > > of the status quo, self righteous, and doubtful, but the results do speak

> > > for themselves. We've got a ways to go, but it's really the difference of

> > > night and day.

> > >

> > > I have said, I won't give up...I finally (FINALLY) found a thyroid doc for

> > > Rob, very promising. VERY! So, I plan on working on that next. We get a

> > > metals test, and IGg, Comprehensive stool analysis, and there are a few

more

> > > that I can't remember.

> > >

> > > Rob while in NY saw his best friend since he was 3. They did all sorts of

> > > things, bowling, mini golf and went out to the movies and dinner.

> > > was like " I can't believe this is Rob. " Rob even ordered his own meal,

gf/cf

> > > the best he could. I was excited. He is starting to really get it. He even

> > > is starting to really connect things, which he never has done well.

Although

> > > he is my brother, and not my child, I well up with excitement for the

> > > possibilities. My parents had no clue, and were stuck in 'the system.' I

am

> > > hoping we can piece together a life worth living. Something he has control

> > > over.

> > >

> > > BTW, also shaves daily. Now, some may think that's not a big deal, but Rob

> > > only ever had to shave once a week, if that. This means things are

starting

> > > to work right! YEAH! Even a lower voice. gah!

> > >

> > > His speech is still somewhat marbled, but I am looking into ear

acupuncture

> > > using gold and silver pellets. (energy medicine...) - I am open to trying

> > > some interesting stuff, which btw, has an 85% success rate. (I have been

> > > reading about that recently...) The reason? When Rob was about 5, they

chose

> > > a handed-ness for him. Right handed. My parents had 7 children, all left

> > > handed, except for Rob. (ALthough, Rob uses his left hand for a few

> > > things)...anyway, I was reading that when a child uses the wrong hand, it

> > > interferes with the transition of information. The kids can't retrieve the

> > > information because it's blocked. Essentially, you have valuables in a

safe,

> > > and forgot the combo. This is supposed to set it right. Most see results

in

> > > a few months. I thought that sounded promising.

> > >

> > > The frustrating thing is, if there isn't constant repetitive things, he

> > > just 'forgets' -- which I totally don't get. I was also going to try Brain

> > > Balance and Yoga too. Because I can't just do one thing, I got attack from

> > > every angle possible. LOL!

> > >

> > > My god, I can write a book on Rob.

> > >

> > > Another interesting piece of info I got, my brother found all of Rob's

> > > immunization records, and my Mom's..she put them together and circled the

> > > MMR. She knew. Rob received three separate shots all on the same day. My

Mom

> > > got the shots while he was in utero. This was 1984 - when the dtap and all

> > > the other shots (except the MMR) had mercury in them. He was getting flu

> > > shots, booster shots, I was like - this poor kid was assaulted from birth.

> > > My Mom had dental work (amalgams) put in while he was in her belly. He had

a

> > > booster shot of tetanus while in the hospital for his 2nd hernia operation

> > > ...it's amazing he functions as well as he does. I just got all the other

> > > records, and all I can say is " wow. " ...what crap health care he received.

> > > None of his doctors talked to each other.

> > >

> >

> > --

> > Toni

> >

> > ------

> > Mind like a steel trap...

> > Rusty and illegal in 37 states.

> >

>

September 8, 2011

.... My god, I can write a book on Rob. ...

Please do!

Though I know this is tough on you, what a wonderful and incredible journey!! It

would be inspirational to others and, perhaps, open some eyes that currently

refuse to see...

Take care,

in NV

September 8, 2011

Dad was like 'whatever, I'm old.' Rock on, Dad! I like him.Awesome for you and awesome for your brother! Cheryl

September 8, 2011

For the memory thing, try piracetam/phosphatidyl choline. You can also add SAMe, vinpocetine and if you're really ambitious, Rx hydergine. A "smart drug" cocktail. Does wonders. Google "nootropics." My husband lives for piracetam and I'm sure I've seen him eyeing the hydergine...

~Antiviral Therapy 101~ gryffinstail.wordpress.com/ ~~ @Gryffins_Tail ~