Guest guest Posted February 14, 2007 Report Share Posted February 14, 2007 hi every one thanks for all the kind messages and concerns for kellie. I dont know if you can remember, but today we did the childrens walk and buggy walk to raise money for the childrens heart week here in england and for the childrens heart unit at the freeman hospital were caitlyn had her heart surgery done. but we did it today and all together we managed to raise a stagering £1,500.We had a lovely day weather was a bit cold but dry. The local news paper was there and peter beardsly atended x newcastle and liverpool player we were realy pleased with the result. Caitlyn goes into hospital on fri for for tests up her nose and then in 2 weeks time she is getting her ears drained and grommets fitted keep fingers crossed for good results ,they are doing a hearing test while she is under the anisetic how i dont know i will keep you all informed . were are hoping to take kellie caitlyn and all my family to florida all goes well in august this year i was wondering if anyone knows a charity here in england that would help us raise the funds, we have had help from the childrens heart foundation thats why we decided to try and raise money for them. We did get some help from the family fund but we are just 5 hundred pound short of afording the trip with the tickets included.i know caitlyn is a bit to young for florida but kellie realy wants to take her . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2007 Report Share Posted February 14, 2007 Rita- I'm glad your heart walk was successful! Did getting out and doing that help Kellie's spirits? I hope you find the support for your FL trip. You guys certainly deserve a break. Any kind of enjoyable vacation from " real life " will help to rekindle the spark of life in Kellie. Best to you- Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2007 Report Share Posted February 14, 2007 > > Rita- > > I'm glad your heart walk was successful! Did getting out and doing that > help Kellie's spirits? > > > > I hope you find the support for your FL trip. You guys certainly deserve a > break. Any kind of enjoyable vacation from " real life " will help to > rekindle the spark of life in Kellie. > > > > Best to you- > > Michele W > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2007 Report Share Posted February 14, 2007 Rita- That's exactly what we're here for - to make each other feel strong enough, smart enough, knowledgeable enough. enough of anything - to manage each challenge. It gives me great strength and confidence to know that there is a worldwide family on this journey with me. Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2007 Report Share Posted February 15, 2007 Rita, Let's chat about respite on the phone, Kellie wouldn't even have to go out and leave Caitlyn alone with a carer...just be able to go lie down in another room or take a bath is a nice break. I know Kellie is shy but I still think you need to find a coffee morning / group specifically for children with specal needs as well as going to the regular one. At the special needs one it won't matter kellie is shy the other mums there will immediately see she is young and has a lot on her plate for one so young and they will want to help. They will know the truth about the local facilities/council and they will know how to get Kellie more support locally. Shall I ask at Special Kids UK to find out if i can find you any local mum's with children with disabilities.........? I really think Kellie could benefit from having some local contacts. Re holiday funds. You could write a letter to the MACS charity asking for the funds. Their address is on their website...www.macs.org.uk. Tell them Caitlyn has Coloboma's and also Charge Syndrome and detail all her problems. They help children with colobomas, (aswell as Anophthalmia and Microphthalmia with is no or small eyes) and their focus is on the eye condition so you should put that upfront and mention Charge as a second point. They award grants for equipment and breaks. I used to be a trustee (before I was certain had Charge) and I know they have " spare " funds and kind hearts. It might be a good idea to join Macs as a member family first (this is free) by emailing Lynda the secretary and then wait a few weeks before requesting help! is > > hi every one thanks for all the kind messages and concerns for kellie. > I dont know if you can remember, but today we did the childrens walk > and buggy walk to raise money for the childrens heart week here in > england and for the childrens heart unit at the freeman hospital were > caitlyn had her heart surgery done. but we did it today and all > together we managed to raise a stagering £1,500.We had a lovely day > weather was a bit cold but dry. The local news paper was there and > peter beardsly atended x newcastle and liverpool player we were realy > pleased with the result. Caitlyn goes into hospital on fri for for > tests up her nose and then in 2 weeks time she is getting her ears > drained and grommets fitted keep fingers crossed for good results ,they > are doing a hearing test while she is under the anisetic how i dont > know i will keep you all informed . were are hoping to take kellie > caitlyn and all my family to florida all goes well in august this year > i was wondering if anyone knows a charity here in england that would > help us raise the funds, we have had help from the childrens heart > foundation thats why we decided to try and raise money for them. We did > get some help from the family fund but we are just 5 hundred pound > short of afording the trip with the tickets included.i know caitlyn is > a bit to young for florida but kellie realy wants to take her . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2007 Report Share Posted February 17, 2007 alexius i no im in aus and dont no much bout over there but wat bout that place les and the chans r using with amielie that hospice place would that b good for kellie do u think hugs ellen > > Rita, > > Let's chat about respite on the phone, Kellie wouldn't even have to go out > and leave Caitlyn alone with a carer...just be able to go lie down in > another room or take a bath is a nice break. > > I know Kellie is shy but I still think you need to find a coffee morning / > group specifically for children with specal needs as well as going to the > regular one. At the special needs one it won't matter kellie is shy the > other mums there will immediately see she is young and has a lot on her > plate for one so young and they will want to help. They will know the > truth > about the local facilities/council and they will know how to get Kellie > more > support locally. Shall I ask at Special Kids UK to find out if i can find > you any local mum's with children with disabilities.........? I really > think Kellie could benefit from having some local contacts. > > Re holiday funds. You could write a letter to the MACS charity asking for > the funds. Their address is on their website...www.macs.org.uk. > > Tell them Caitlyn has Coloboma's and also Charge Syndrome and detail all > her > problems. They help children with colobomas, (aswell as Anophthalmia and > Microphthalmia with is no or small eyes) and their focus is on the eye > condition so you should put that upfront and mention Charge as a second > point. > > They award grants for equipment and breaks. I used to be a trustee (before > I > was certain had Charge) and I know they have " spare " funds and kind > hearts. > It might be a good idea to join Macs as a member family first (this is > free) > by emailing Lynda the secretary and then wait a few weeks before > requesting > help! > > is > > On 2/14/07, ritaskeoch <ritaskeoch@... <ritaskeoch%40yahoo.com>> > wrote: > > > > hi every one thanks for all the kind messages and concerns for kellie. > > I dont know if you can remember, but today we did the childrens walk > > and buggy walk to raise money for the childrens heart week here in > > england and for the childrens heart unit at the freeman hospital were > > caitlyn had her heart surgery done. but we did it today and all > > together we managed to raise a stagering £1,500.We had a lovely day > > weather was a bit cold but dry. The local news paper was there and > > peter beardsly atended x newcastle and liverpool player we were realy > > pleased with the result. Caitlyn goes into hospital on fri for for > > tests up her nose and then in 2 weeks time she is getting her ears > > drained and grommets fitted keep fingers crossed for good results ,they > > are doing a hearing test while she is under the anisetic how i dont > > know i will keep you all informed . were are hoping to take kellie > > caitlyn and all my family to florida all goes well in august this year > > i was wondering if anyone knows a charity here in england that would > > help us raise the funds, we have had help from the childrens heart > > foundation thats why we decided to try and raise money for them. We did > > get some help from the family fund but we are just 5 hundred pound > > short of afording the trip with the tickets included.i know caitlyn is > > a bit to young for florida but kellie realy wants to take her . > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 Hi Ellen, Thanks for the idea about the place the Chans take Amelie to....you know that would be great for Kellie and Caitlyn but unfortunately the Chans live in Manchester and Kellie is a couple of hours away up further north near newcastle. But it's still a good idea and I'll see if there are any similiar places near newcastle which we can tell Kellie about. Good thinking! is > > alexius i no im in aus and dont no much bout over there but wat bout > that > place les and the chans r using with amielie that hospice place would that > b > good for kellie do u think hugs ellen > > On 15/02/07, is Wolfe <alexiswolfe@... <alexiswolfe%40gmail.com>> > wrote: > > > > Rita, > > > > Let's chat about respite on the phone, Kellie wouldn't even have to go > out > > and leave Caitlyn alone with a carer...just be able to go lie down in > > another room or take a bath is a nice break. > > > > I know Kellie is shy but I still think you need to find a coffee morning > / > > group specifically for children with specal needs as well as going to > the > > regular one. At the special needs one it won't matter kellie is shy the > > other mums there will immediately see she is young and has a lot on her > > plate for one so young and they will want to help. They will know the > > truth > > about the local facilities/council and they will know how to get Kellie > > more > > support locally. Shall I ask at Special Kids UK to find out if i can > find > > you any local mum's with children with disabilities.........? I really > > think Kellie could benefit from having some local contacts. > > > > Re holiday funds. You could write a letter to the MACS charity asking > for > > the funds. Their address is on their website...www.macs.org.uk. > > > > Tell them Caitlyn has Coloboma's and also Charge Syndrome and detail all > > her > > problems. They help children with colobomas, (aswell as Anophthalmia and > > Microphthalmia with is no or small eyes) and their focus is on the eye > > condition so you should put that upfront and mention Charge as a second > > point. > > > > They award grants for equipment and breaks. I used to be a trustee > (before > > I > > was certain had Charge) and I know they have " spare " funds and > kind > > hearts. > > It might be a good idea to join Macs as a member family first (this is > > free) > > by emailing Lynda the secretary and then wait a few weeks before > > requesting > > help! > > > > is > > > > On 2/14/07, ritaskeoch <ritaskeoch@... <ritaskeoch%40yahoo.com><ritaskeoch% > 40yahoo.com>> > > wrote: > > > > > > hi every one thanks for all the kind messages and concerns for kellie. > > > I dont know if you can remember, but today we did the childrens walk > > > and buggy walk to raise money for the childrens heart week here in > > > england and for the childrens heart unit at the freeman hospital were > > > caitlyn had her heart surgery done. but we did it today and all > > > together we managed to raise a stagering £1,500.We had a lovely day > > > weather was a bit cold but dry. The local news paper was there and > > > peter beardsly atended x newcastle and liverpool player we were realy > > > pleased with the result. Caitlyn goes into hospital on fri for for > > > tests up her nose and then in 2 weeks time she is getting her ears > > > drained and grommets fitted keep fingers crossed for good results > ,they > > > are doing a hearing test while she is under the anisetic how i dont > > > know i will keep you all informed . were are hoping to take kellie > > > caitlyn and all my family to florida all goes well in august this year > > > i was wondering if anyone knows a charity here in england that would > > > help us raise the funds, we have had help from the childrens heart > > > foundation thats why we decided to try and raise money for them. We > did > > > get some help from the family fund but we are just 5 hundred pound > > > short of afording the trip with the tickets included.i know caitlyn is > > > a bit to young for florida but kellie realy wants to take her . > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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