Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 Michele, I visit those places, cynical and pessimistic, once in awhile...<smile> It's to hard not too. Strange though, now I can look back on some of my darkest hours and see the light, hope, and promise that was there in the future. Life is the journey we all most take, but we are never alone. Love, > > - > > I look forward to meeting you both and seeing those photos. It's good to > know that others have found their efforts to be worthwhile. I try very hard > not to become cynical or pessimistic. It's too important to throw up our > hands in frustration and defeat. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 , YOu need to write a manual for this--how, who, etc. this is an amazing story. pam {CHARGE] Re: 's Home I have been telling about 's growing up years but today I want to tell everyone about were is now in his life. After reading about Aubrie and her mission I wanted to show you all that dreams can happen. has lived in his home now for 5 years. Yes, it is a group home but like no other group home you'll find. , like Aubrie, had visions of living on his own. Being his own boss. Getting away from his, a little to pushy, Mom. LOL He spent 11 months at the Helen Keller National Center in Sands Point, Long Island. It was for him to be evaluating on his abilities to live alone. They came back with the recommandation that would need 24 hr. support. When we took that back to our County MHMR agency, they brought up about waiting list for waiver. How there was no hope of getting a group home geared for a peroson who was deaf with MR. They recommended Assisted Living homes. Some of you may know a little on my background. I was fighting for community living for because I was looking at having open heart surgery. Because of complication experienced years ago during spinal surgery, I was going into the heart surgery as a high risk. That motivated me to start thinking seriously about 's future. What if I wasn't around any more to take care of him. THose Assisted Living homes were sooooooo not appropiate. The ones I visited were a horrible idea for a young deaf man. From the first in dealing with the MHMR agency I felt things were not right. I sought out advocacy groups like Parent to Parent, Pa. Protection Advocacy,Disabilities Law Project, and others. When I got no where with my local agency I went above them to the State Office of MHMR. I got involved with the issues surrounding funding for community living. The full story of 5 years of fighing to get 's home is to much to put it all here. But, success is there for those who don't give up or go away. I became a mother with a reputation. I wouldn't take no for an answer. 's home is a four bedroom modular that they helped design. Two of his friends were in wheelchairs so they came up with a blueprint that had no hallways. It's on a piece of land they picked in ville, PA. Each one has their own room that are 14' by 14'. They picked colors and bedroom furniture. They let two of us moms pick the living room furniture. LOL They interviewed all protental staff with our help. They got to decide who was hired. They all work at different places. No one drives so there is a van and staff take them where ever they need to go. They make grocery lists and do their own shopping and cooking. They are all active in a mulitute of different activities. Some together and some seperatly. Just like a family. has a more active social life than his Dad or I ever had. LOL His visits home are always to short for my liking because he gets BORED with us and wants to go home early. The fight wasn't easy but it was well worth it. 5 years in the making and now 5 years existing. When we come to Ca. for conference we will bring lots and lots of pictures. mom to (31) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2007 Report Share Posted February 10, 2007 not only a manual but if u send this to me may i send it to soemone for our aussie newsletter and all of his stories pls im ellen.lhowe@... and also i think itd b great in charge accounts the one over there send to marion or marilyn just post to them on the group to ask their email > > , > YOu need to write a manual for this--how, who, etc. this is an amazing > story. > pam > > {CHARGE] Re: 's Home > > I have been telling about 's growing up years but today I want > to tell everyone about were is now in his life. > > After reading about Aubrie and her mission I wanted to show you all > that dreams can happen. > > has lived in his home now for 5 years. Yes, it is a group home > but like no other group home you'll find. , like Aubrie, had > visions of living on his own. Being his own boss. Getting away from > his, a little to pushy, Mom. LOL He spent 11 months at the Helen > Keller National Center in Sands Point, Long Island. It was for him > to be evaluating on his abilities to live alone. They came back with > the recommandation that would need 24 hr. support. > > When we took that back to our County MHMR agency, they brought up > about waiting list for waiver. How there was no hope of getting a > group home geared for a peroson who was deaf with MR. They > recommended Assisted Living homes. > > Some of you may know a little on my background. I was fighting for > community living for because I was looking at having open heart > surgery. Because of complication experienced years ago during spinal > surgery, I was going into the heart surgery as a high risk. That > motivated me to start thinking seriously about 's future. What > if I wasn't around any more to take care of him. > > THose Assisted Living homes were sooooooo not appropiate. The ones I > visited were a horrible idea for a young deaf man. From the first in > dealing with the MHMR agency I felt things were not right. I sought > out advocacy groups like Parent to Parent, Pa. Protection > Advocacy,Disabilities Law Project, and others. When I got no where > with my local agency I went above them to the State Office of MHMR. I > got involved with the issues surrounding funding for community living. > > The full story of 5 years of fighing to get 's home is to much > to put it all here. But, success is there for those who don't give up > or go away. I became a mother with a reputation. I wouldn't take no > for an answer. > > 's home is a four bedroom modular that they helped design. Two > of his friends were in wheelchairs so they came up with a blueprint > that had no hallways. It's on a piece of land they picked in > ville, PA. Each one has their own room that are 14' by 14'. > They picked colors and bedroom furniture. They let two of us moms > pick the living room furniture. LOL > > They interviewed all protental staff with our help. They got to > decide who was hired. They all work at different places. No one > drives so there is a van and staff take them where ever they need to > go. They make grocery lists and do their own shopping and cooking. > They are all active in a mulitute of different activities. Some > together and some seperatly. Just like a family. has a more > active social life than his Dad or I ever had. LOL His visits home > are always to short for my liking because he gets BORED with us and > wants to go home early. > > The fight wasn't easy but it was well worth it. 5 years in the making > and now 5 years existing. When we come to Ca. for conference we will > bring lots and lots of pictures. > > mom to (31) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 Ok would someone please pack me in their suitcase and i will sleep on the floor in someone's room! I have no money and used my us charge conference money on last conference. If anyone is driving to the conference from my area PLEASE pack me in your trunk! I dont care! I will even pay back (even if its like 50 dollars a month or something) i will pay back for hotel or travle fee. Can i apeal to CDBRA to pay for my flight? even if its just a few days of the conference? All my fundrazing ideas I wouldnt have the money till after the conference anyways. I better go get my passport done this week though. Just incase some mirical happens. I want to go, just to the conference for like thursday till monday or whatever the days of the conference are plus a day at each end. I got my cat cause i needed her but she used all my money i had been saving. I needed the cat cause i felt like there was nothing really to live for besides here. I had to make that chose and it ment maby missing out at the conference. but I really still want to go even though i have no money to go. I would list everyone's name I want to see, wich is everyone and i still would forget some names. Please send me to the conference! I could talk about my goals of wanting to go to schools and teaching people to be tollerent of those with dissabilities (like charge) and to help parents coap with rude comments and bullying. please please please?????? Chantelle -- http://spacecatsgarden.blogspot.com/ => My blog space Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 Oh, Chantelle!! This is a sad plea!! I will be hoping with you for the miracle!! pam > > > > > Ok would someone please pack me in their suitcase and i will sleep on the > floor in someone's room! I have no money and used my us charge conference > money on last conference. If anyone is driving to the conference from my > area PLEASE pack me in your trunk! I dont care! I will even pay back (even > if its like 50 dollars a month or something) i will pay back for hotel or > travle fee. > > Can i apeal to CDBRA to pay for my flight? even if its just a few days of > the conference? All my fundrazing ideas I wouldnt have the money till after > the conference anyways. > > I better go get my passport done this week though. Just incase some mirical > happens. I want to go, just to the conference for like thursday till monday > or whatever the days of the conference are plus a day at each end. > > I got my cat cause i needed her but she used all my money i had been saving. > I needed the cat cause i felt like there was nothing really to live for > besides here. I had to make that chose and it ment maby missing out at the > conference. but I really still want to go even though i have no money to go. > > I would list everyone's name I want to see, wich is everyone and i still > would forget some names. > > Please send me to the conference! I could talk about my goals of wanting to > go to schools and teaching people to be tollerent of those with > dissabilities (like charge) and to help parents coap with rude comments and > bullying. please please please?????? > > Chantelle -- Pamela J. , M.A., CAGS Licensed Educational Psychologist Deafblind Program Perkins School for the Blind 175 N. Beacon St. Watertown, MA 02472 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 Oh, Chantelle- I wish I had the extra money to send you a plane ticket. As it is, I'm not sure how we're gonna find the money to fund the trip ourselves. Of course, I've made the hotel reservations and plan to go - but I haven't figured it out yet! It must be very hard to hear all the plans and know you won't be able to participate. And I'm sure you feel like you're the only one who's not going. Maybe we need all those not planning to go to speak up so you know you're not alone. If no miracle happens, and you can't go, set your sights on next time. Then make that one happen. You know we'll miss you. I'll be sending wishes for a miracle your way. Michele W Aubrie's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 Chantelle, hopefully it will HEAD NORTH next time, we've been in the south a lot with Houston, Miami, and California, and up near the middle with Indy & Ohio - COME ON MAINE!!! Lis > > Oh, Chantelle- > > I wish I had the extra money to send you a plane ticket. As it is, I'm not > sure how we're gonna find the money to fund the trip ourselves. Of course, > I've made the hotel reservations and plan to go - but I haven't figured it > out yet! > > It must be very hard to hear all the plans and know you won't be able to > participate. And I'm sure you feel like you're the only one who's not > going. Maybe we need all those not planning to go to speak up so you know > you're not alone. > > If no miracle happens, and you can't go, set your sights on next time. > Then > make that one happen. > > You know we'll miss you. I'll be sending wishes for a miracle your way. > > Michele W > Aubrie's mom > > Quote Link to comment Share on other sites More sharing options...
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