Re: What was your experience after surgery?

[Guest guest]

>

> Cindy:

> Okay...that is a lot to ponder.

> Now..can you tell us WHY they are recomending surgery. Hashie's does

not go away because one has no thyroid gland. Do you have a doc telling

you that it does?

> ~E:)

>

>

> TOTAL-Thyroidectomy 26 months post-op.

>

Oh boy, no wonder I wasn't getting e-mail from this group, I was

bouncing. Okay got that fixed now.

Hi E,

They are recommending surgery from the results of my FNA. Hurthle and

Follicular cells. No - no doc told me Hashie's will go away, I was just

wondering what happened to it since I won't have a thyroid for it to

attack.

Also will I be able to eat " regularly " after surgery or will I have to

puree things for awhile?

So would love to hear other people's experiences after surgery.

Thanks for replying. Oh E - I love that word.... ponder!

Cindy

[Guest guest]

>

> They are recommending surgery from the results of my FNA. Hurthle

and

> Follicular cells. No - no doc told me Hashie's will go away, I

was just

> wondering what happened to it since I won't have a thyroid for it

to

> attack.

>

> Also will I be able to eat " regularly " after surgery or will I

have to

> puree things for awhile?

>

> So would love to hear other people's experiences after surgery.

>

> Thanks for replying. Oh E - I love that word.... ponder!

>

> Cindy

>

From Thyroid Manager..

Hypercellular specimens from follicular or Hürthle cell lesions may

have features suggestive of, but not diagnostic for, malignancy

(8,10,12,13,28). Thus, the cytopathologist labels these " suspicious

for malignancy " because cytologic features neither confirm nor rule

out malignancy. Histologic examination is necessary for definitive

diagnosis. Hypercellularity may be seen with non‑neoplastic lesions,

and Hürthle cell changes may be seen in patients with lymphocytic

thyroiditis. The diagnosis of follicular neoplasm is indicative of

an underlying malignancy in 14% of cases and Hürthle cell neoplasm

in 15% (20,26). Kini (29) believes that follicular adenomas and

follicular carcinomas usually can be differentiated on the basis of

nuclear size but Hürthle cell lesions are problematic to diagnose

cytologically. Other pathologists maintain that benign and malignant

follicular/Hürthle cell tumors cannot be distinguished on the basis

of aspirated cells only and the lesion must be removed for

histopathologic examination (8,12,13,28).

Questions I would be asking before surgery..

When will you know the pathology report? What is the follow up plan

if cancerous? Will you have to wait and go hypo or will they give

you T3?

What type of follow up plan is in place? Meaning who will follow up

your treatment regarding replacement therapy, lab work etc.

I have not had surgery, so I can not answer you there..

I have seen others post that it is not bad..no heavy lifting for a

week or so, small incision, one or two have posted irritation with

vocal cords. There is a small risk of damage to the parathyroid

glands and usually they will keep you in hospital overnight to

monitor calcium levels.

Thyroid surgery is common and your surgeon should have a list of

procedures they want you to follow regarding wound cleansing , food

etc.

Do understand that surgery is not exactly something people here jump

up and down for..it is going to make you hypo.

Hopefully when they understand why they can give you some more info.

Kats3boys

[Guest guest]

You should feel free to ask any questions, don't worry we are big girls and boys. Best, bubbe gittel

[Guest guest]

>>> From Thyroid Manager..> > Hypercellular specimens from follicular or Hürthle cell lesions may > have features suggestive of, but not diagnostic for, malignancy > (8,10,12,13,28). Thus, the cytopathologist labels these "suspicious > for malignancy" because cytologic features neither confirm nor rule > out malignancy. Histologic examination is necessary for definitive > diagnosis. Hypercellularity may be seen with non & #8209;neoplastic lesions, > and Hürthle cell changes may be seen in patients with lymphocytic > thyroiditis. The diagnosis of follicular neoplasm is indicative of > an underlying malignancy in 14% of cases and Hürthle cell neoplasm > in 15% (20,26). Kini (29) believes that follicular adenomas and > follicular carcinomas usually can be differentiated on the basis of > nuclear size but Hürthle cell lesions are problematic to diagnose > cytologically. Other pathologists maintain that benign and malignant > follicular/Hürthle cell tumors cannot be distinguished on the basis > of aspirated cells only and the lesion must be removed for > histopathologic examination (8,12,13,28). >

Okay, the doc already explained that.

> Questions I would be asking before surgery..> When will you know the pathology report? What is the follow up plan > if cancerous?

I am already hypo and I take T3 already.

Will you have to wait and go hypo or will they give > you T3?> >

Got this one worked out too.

What type of follow up plan is in place? Meaning who will follow up > your treatment regarding replacement therapy, lab work etc.>

Okay, no heavy lifting. Dr explained about the irritation and the parathyroid glands.

> I have not had surgery, so I can not answer you there..> I have seen others post that it is not bad..no heavy lifting for a > week or so, small incision, one or two have posted irritation with > vocal cords. There is a small risk of damage to the parathyroid > glands and usually they will keep you in hospital overnight to > monitor calcium levels. >

I figured they would give the following info to me when I leave the hospital, so I wasn't worried about that too much.

> Thyroid surgery is common and your surgeon should have a list of > procedures they want you to follow regarding wound cleansing , food > etc.

I am sorry if my question is giving people bad feelings. I am not jumping up and down about surgery myself. I am already hypo. I just wanted to know if I will be able to eat real food or will I have to puree stuff for awhile. Just simple things like that. So I am sorry if I hurt anyone's feelings by asking this.

> Do understand that surgery is not exactly something people here jump > up and down for..it is going to make you hypo.> Hopefully when they understand why they can give you some more info.> > Kats3boys>

[Guest guest]

When are you having your surgery? Best wishes. I'm thinking about having mine next month. Actually, it's scheduled but not sure if I'll show...LOL! sccccccccccccccuuuuuuuuurrrrrrrred...Just teasing about the no show but how can one get to be hypo if there's no more thyroid. Some people advise patients to take 1/2 of thyroid out. What do u guys/girls think?kats3boys wrote: > > They are recommending surgery from the results of my FNA. Hurthle and> Follicular cells. No - no doc told me

Hashie's will go away, I was just> wondering what happened to it since I won't have a thyroid for it to> attack.> > Also will I be able to eat "regularly" after surgery or will I have to> puree things for awhile?> > So would love to hear other people's experiences after surgery.> > Thanks for replying. Oh E - I love that word.... ponder! > > Cindy>From Thyroid Manager..Hypercellular specimens from follicular or Hürthle cell lesions may have features suggestive of, but not diagnostic for, malignancy (8,10,12,13,28). Thus, the cytopathologist labels these "suspicious for malignancy" because cytologic features neither confirm nor rule out malignancy. Histologic examination is necessary for definitive diagnosis. Hypercellularity may be seen with non & #8209;neoplastic lesions, and Hürthle cell changes may be seen in patients with

lymphocytic thyroiditis. The diagnosis of follicular neoplasm is indicative of an underlying malignancy in 14% of cases and Hürthle cell neoplasm in 15% (20,26). Kini (29) believes that follicular adenomas and follicular carcinomas usually can be differentiated on the basis of nuclear size but Hürthle cell lesions are problematic to diagnose cytologically. Other pathologists maintain that benign and malignant follicular/Hürthle cell tumors cannot be distinguished on the basis of aspirated cells only and the lesion must be removed for histopathologic examination (8,12,13,28). Questions I would be asking before surgery..When will you know the pathology report? What is the follow up plan if cancerous? Will you have to wait and go hypo or will they give you T3?What type of follow up plan is in place? Meaning who will follow up your treatment regarding replacement therapy, lab work etc.I have

not had surgery, so I can not answer you there..I have seen others post that it is not bad..no heavy lifting for a week or so, small incision, one or two have posted irritation with vocal cords. There is a small risk of damage to the parathyroid glands and usually they will keep you in hospital overnight to monitor calcium levels. Thyroid surgery is common and your surgeon should have a list of procedures they want you to follow regarding wound cleansing , food etc.Do understand that surgery is not exactly something people here jump up and down for..it is going to make you hypo.Hopefully when they understand why they can give you some more info.Kats3boys

Have a burning question? Go to Yahoo! Answers and get answers from real people who know.

[Guest guest]

Well I had my friend did soft food after the surgery. I had RAI all those years ago and don't think my throat was too sore. Best, bubbe gittel

[Guest guest]

How can you get to be hypo with no thyroid? Well, I see your point (already taking thyroid hormone(s), right?), but now you're going to have to have enough of/the right/combination of thyroid hormones, and hopefully you will have that. That's why all these discussions with your primary doctor need to take place now, so that there won't be any guessing around at what you'll be facing. Remember, the thyroid itself used to put out this small amt of direct T3, regardless of the T4 output. Must have been some reason for that, so I would also be looking at a little direct T3, if you're not already taking Armour Thyroid or the combo of T4 and T3. NO, Hashi's will NOT go away if there's still "part of a thyroid" in there, the whole thing has to come out, and particularly if there is cancer in there. You need to wrap your mind around this concept with Hashi's antibodies.

Re: Re: What was your experience after surgery?

When are you having your surgery? Best wishes. I'm thinking about having mine next month. Actually, it's scheduled but not sure if I'll show...LOL! sccccccccccccccuuuuuuuuurrrrrrrred...Just teasing about the no show but how can one get to be hypo if there's no more thyroid. Some people advise patients to take 1/2 of thyroid out. What do u guys/girls think?kats3boys wrote:

> > They are recommending surgery from the results of my FNA. Hurthle and> Follicular cells. No - no doc told me Hashie's will go away, I was just> wondering what happened to it since I won't have a thyroid for it to> attack.> > Also will I be able to eat "regularly" after surgery or will I have to> puree things for awhile?> > So would love to hear other people's experiences after surgery.> > Thanks for replying. Oh E - I love that word.... ponder! > > Cindy>From Thyroid Manager..Hypercellular specimens from follicular or Hürthle cell lesions may have features suggestive of, but not diagnostic for, malignancy (8,10,12,13,28). Thus, the cytopathologist labels these "suspicious for malignancy" because cytologic features neither confirm nor rule out malignancy. Histologic examination is necessary for definitive diagnosis. Hypercellularity may be seen with non & #8209;neoplastic lesions, and Hürthle cell changes may be seen in patients with lymphocytic thyroiditis. The diagnosis of follicular neoplasm is indicative of an underlying malignancy in 14% of cases and Hürthle cell neoplasm in 15% (20,26). Kini (29) believes that follicular adenomas and follicular carcinomas usually can be differentiated on the basis of nuclear size but Hürthle cell lesions are problematic to diagnose cytologically. Other pathologists maintain that benign and malignant follicular/Hürthle cell tumors cannot be distinguished on the basis of aspirated cells only and the lesion must be removed for histopathologic examination (8,12,13,28). Questions I would be asking before surgery..When will you know the pathology report? What is the follow up plan if cancerous? Will you have to wait and go hypo or will they give you T3?What type of follow up plan is in place? Meaning who will follow up your treatment regarding replacement therapy, lab work etc.I have not had surgery, so I can not answer you there..I have seen others post that it is not bad..no heavy lifting for a week or so, small incision, one or two have posted irritation with vocal cords. There is a small risk of damage to the parathyroid glands and usually they will keep you in hospital overnight to monitor calcium levels. Thyroid surgery is common and your surgeon should have a list of procedures they want you to follow regarding wound cleansing , food etc.Do understand that surgery is not exactly something people here jump up and down for..it is going to make you hypo.Hopefully when they understand why they can give you some more info.Kats3boys

[Guest guest]

>

> When are you having your surgery? Best wishes. I'm thinking about

having mine next month. Actually, it's scheduled but not sure if I'll

show...LOL! sccccccccccccccuuuuuuuuurrrrrrrred...Just teasing about

the no show but how can one get to be hypo if there's no more thyroid.

Some people advise patients to take 1/2 of thyroid out. What do u

guys/girls think?

>

My surgery is on the 19th of this month. Thanks for the wishes. I am

having my whole thyroid out for 2 reasons.

First being I have Hashimoto's. Second I am pretty much on a

replacement dose of thyroid so that tells me my thryoid isn't doing

much for me.

Best wishes to you with your surgery!

[Guest guest]

Hi ,

I'm not sure if that was for me or the other poster. I am taking

synthroid and cytomel. I have a call into my endo to see what

changes are to be made. Do you know of anything else I should be

asking? The day of surgery they are taking blood work for Free T3

and Free T4 and calcium.

I have heard that even though they take the whole thyroid out, a

piece of it is still left in. Do you know anything about that?

Thanks,

Cindy

> >

> > They are recommending surgery from the results of my FNA.

Hurthle

> and

> > Follicular cells. No - no doc told me Hashie's will go away,

I

> was just

> > wondering what happened to it since I won't have a thyroid

for it

> to

> > attack.

> >

> > Also will I be able to eat " regularly " after surgery or will

I

> have to

> > puree things for awhile?

> >

> > So would love to hear other people's experiences after

surgery.

> >

> > Thanks for replying. Oh E - I love that word.... ponder!

> >

> > Cindy

> >

> From Thyroid Manager..

>

> Hypercellular specimens from follicular or Hürthle cell

lesions may

> have features suggestive of, but not diagnostic for,

malignancy

> (8,10,12,13,28). Thus, the cytopathologist labels

these " suspicious

> for malignancy " because cytologic features neither confirm nor

rule

> out malignancy. Histologic examination is necessary for

definitive

> diagnosis. Hypercellularity may be seen with

non‑neoplastic lesions,

> and Hürthle cell changes may be seen in patients with

lymphocytic

> thyroiditis. The diagnosis of follicular neoplasm is

indicative of

> an underlying malignancy in 14% of cases and Hürthle cell

neoplasm

> in 15% (20,26). Kini (29) believes that follicular adenomas

and

> follicular carcinomas usually can be differentiated on the

basis of

> nuclear size but Hürthle cell lesions are problematic to

diagnose

> cytologically. Other pathologists maintain that benign and

malignant

> follicular/Hürthle cell tumors cannot be distinguished on the

basis

> of aspirated cells only and the lesion must be removed for

> histopathologic examination (8,12,13,28).

>

> Questions I would be asking before surgery..

> When will you know the pathology report? What is the follow up

plan

> if cancerous? Will you have to wait and go hypo or will they

give

> you T3?

>

> What type of follow up plan is in place? Meaning who will

follow up

> your treatment regarding replacement therapy, lab work etc.

>

> I have not had surgery, so I can not answer you there..

> I have seen others post that it is not bad..no heavy lifting

for a

> week or so, small incision, one or two have posted irritation

with

> vocal cords. There is a small risk of damage to the

parathyroid

> glands and usually they will keep you in hospital overnight to

> monitor calcium levels.

>

> Thyroid surgery is common and your surgeon should have a list

of

> procedures they want you to follow regarding wound cleansing ,

food

> etc.

>

> Do understand that surgery is not exactly something people

here jump

> up and down for..it is going to make you hypo.

> Hopefully when they understand why they can give you some more

info.

>

> Kats3boys

>

[Guest guest]

>

> You should feel free to ask any questions, don't worry we are big

girls and

> boys. Best, bubbe gittel

>

Thanks, then is it easy to eat after surgery or should I have some

soup made up beforehand? Or I could just go for the ice cream. LOL

Cindy

[Guest guest]

Hello... I just want to share my experience with those who are going for total thyroidectomy which I had mine 5 months ago. My surgery was estimated to be 2.5 hours to 3 hours but it took longer than 4 hours which scared the daylight out of my family members. My surgeon told me that my goitre was deeply embedded therefore he had to be extremely careful not to damage any of the nerves so that explains the longer time taken. After I woke up from the surgery in a groggy state, I was shivering and trembling from head to toe and the nurses had to keep me warm with layers of blankets as well as turn on the heater for approximately 20 minutes before I stopped shivering. I had tubes and inserts (for drainage) around the surgery site and these were only taken out on day 4. Although I did not lose my voice, I could hardly speak and my voice was

hoarse. This went on for about 4 to 6 weeks until 3 months later, I regained my original voice back. I was on a liquid diet for about a month as anything that needs to be chewed and swallowed was quite a challenge for me. The scariest part after the surgery was when I had a sudden drop in calcium and I had a seizure. At that moment, my whole body went numb and I felt tingling sensation all over my body. My fingers cramped, my mouth clamped up I could hardly speak, I felt trapped inside my own body. I was given an immediate injection of calcium and after about half an hour, everything went back to normal. It was very scary as I have never experienced a seizure in my life before and thank God it happened in the hospital. I am now on thyroxine for life and I make sure I take it between 6am to 7:30am as I find that if I take it after 8am, the

numbness and tingling sensation will worsen. I am also on calcium but am slowly weaning myself off it. I will have to do blood test every 6 months to keep myself in check. One more thing, my surgeon is so skillful that my scar (measuring about 7cm long) is healing so well that if I don't tell people that I have a surgery scar, they don't even notice it! I do hope that you find my sharing useful. All the best to those who will be going for their surgery soon. Warm regards. Angel wrote: How can you get to be hypo with no thyroid? Well, I see your point (already taking thyroid hormone(s), right?), but now you're going to have to have enough of/the right/combination of thyroid hormones, and hopefully you will have that. That's why all these discussions with your primary doctor need to take place now, so that there won't be any guessing around at what you'll be facing. Remember, the thyroid itself used to put out this small amt of direct T3, regardless of the T4 output. Must have been some reason for that, so I would also be looking at a little direct T3, if you're not already taking Armour Thyroid or the combo of T4 and T3. NO, Hashi's will NOT go away if there's still "part of a thyroid" in there, the whole thing has to come out, and particularly if there is cancer in

there. You need to wrap your mind around this concept with Hashi's antibodies. Re: Re: What was your experience after surgery? When are you having

your surgery? Best wishes. I'm thinking about having mine next month. Actually, it's scheduled but not sure if I'll show...LOL! sccccccccccccccuuuuuuuuurrrrrrrred...Just teasing about the no show but how can one get to be hypo if there's no more thyroid. Some people advise patients to take 1/2 of thyroid out. What do u guys/girls think?kats3boys <kats3boys (AT) yahoo (DOT) ca> wrote: > > They are recommending surgery from the results of my FNA. Hurthle and> Follicular cells. No - no doc told me Hashie's will go away, I was just> wondering what happened to it since I won't have a thyroid for it to> attack.> > Also will I be able to eat "regularly" after surgery or will I have to> puree things for awhile?> >

So would love to hear other people's experiences after surgery.> > Thanks for replying. Oh E - I love that word.... ponder! > > Cindy>From Thyroid Manager..Hypercellular specimens from follicular or Hürthle cell lesions may have features suggestive of, but not diagnostic for, malignancy (8,10,12,13,28). Thus, the cytopathologist labels these "suspicious for malignancy" because cytologic features neither confirm nor rule out malignancy. Histologic examination is necessary for definitive diagnosis. Hypercellularity may be seen with non & #8209;neoplastic lesions, and Hürthle cell changes may be seen in patients with lymphocytic thyroiditis. The diagnosis of follicular neoplasm is indicative of an underlying malignancy in 14% of cases and Hürthle cell neoplasm in 15% (20,26). Kini (29) believes that follicular adenomas and follicular carcinomas usually can be differentiated on

the basis of nuclear size but Hürthle cell lesions are problematic to diagnose cytologically. Other pathologists maintain that benign and malignant follicular/Hürthle cell tumors cannot be distinguished on the basis of aspirated cells only and the lesion must be removed for histopathologic examination (8,12,13,28). Questions I would be asking before surgery..When will you know the pathology report? What is the follow up plan if cancerous? Will you have to wait and go hypo or will they give you T3?What type of follow up plan is in place? Meaning who will follow up your treatment regarding replacement therapy, lab work etc.I have not had surgery, so I can not answer you there..I have seen others post that it is not bad..no heavy lifting for a week or so, small incision, one or two have posted irritation with vocal cords. There is a small risk of damage to the parathyroid glands and usually

they will keep you in hospital overnight to monitor calcium levels. Thyroid surgery is common and your surgeon should have a list of procedures they want you to follow regarding wound cleansing , food etc.Do understand that surgery is not exactly something people here jump up and down for..it is going to make you hypo.Hopefully when they understand why they can give you some more info.Kats3boys

Any questions? Get answers on any topic at Yahoo! Answers. Try it now.

[Guest guest]

That very small amt left behind is probably what they will do the

radioactive part on, but my understanding is that it is a much smaller amt

than they would normally give to kill an entire thyroid.

Re: What was your experience after

surgery?

Hi ,

I'm not sure if that was for me or the other poster. I am taking

synthroid and cytomel. I have a call into my endo to see what

changes are to be made. Do you know of anything else I should be

asking? The day of surgery they are taking blood work for Free T3

and Free T4 and calcium.

I have heard that even though they take the whole thyroid out, a

piece of it is still left in. Do you know anything about that?

Thanks,

Cindy

[Guest guest]

This is very informative for me, Angel. Something inside of me is saying that, when I do finally see a doctor, I desperately need that scan, ultrasound, and whatever. I have not had this "feeling" until this yr, sometime back in the summer, it never was a thought before then, but I have been thinking about it a LOT lately. I just have a feeling that something inside my thyroid is "newer" than some other things that have gone on there, plus, I feel things on the outside of it that weren't there awhile back. If I do end up facing surgery, I have to look at the good, the bad, AND the ugly.

Re: Re: What was your experience after surgery?

Hello...

I just want to share my experience with those who are going for total thyroidectomy which I had mine 5 months ago. My surgery was estimated to be 2.5 hours to 3 hours but it took longer than 4 hours which scared the daylight out of my family members. My surgeon told me that my goitre was deeply embedded therefore he had to be extremely careful not to damage any of the nerves so that explains the longer time taken.

After I woke up from the surgery in a groggy state, I was shivering and trembling from head to toe and the nurses had to keep me warm with layers of blankets as well as turn on the heater for approximately 20 minutes before I stopped shivering.

I had tubes and inserts (for drainage) around the surgery site and these were only taken out on day 4. Although I did not lose my voice, I could hardly speak and my voice was hoarse. This went on for about 4 to 6 weeks until 3 months later, I regained my original voice back. I was on a liquid diet for about a month as anything that needs to be chewed and swallowed was quite a challenge for me.

The scariest part after the surgery was when I had a sudden drop in calcium and I had a seizure. At that moment, my whole body went numb and I felt tingling sensation all over my body. My fingers cramped, my mouth clamped up I could hardly speak, I felt trapped inside my own body. I was given an immediate injection of calcium and after about half an hour, everything went back to normal. It was very scary as I have never experienced a seizure in my life before and thank God it happened in the hospital.

I am now on thyroxine for life and I make sure I take it between 6am to 7:30am as I find that if I take it after 8am, the numbness and tingling sensation will worsen. I am also on calcium but am slowly weaning myself off it. I will have to do blood test every 6 months to keep myself in check. One more thing, my surgeon is so skillful that my scar (measuring about 7cm long) is healing so well that if I don't tell people that I have a surgery scar, they don't even notice it!

I do hope that you find my sharing useful. All the best to those who will be going for their surgery soon.

Warm regards.

Angel

[Guest guest]

>

> This is very informative for me, Angel. Something inside of me is

saying that, when I do finally see a doctor, I desperately need that

scan, ultrasound, and whatever. I have not had this " feeling " until

this yr, sometime back in the summer, it never was a thought before

then, but I have been thinking about it a LOT lately. I just have a

feeling that something inside my thyroid is " newer " than some other

things that have gone on there, plus, I feel things on the outside

of it that weren't there awhile back. If I do end up facing

surgery, I have to look at the good, the bad, AND the ugly.

>

>

>

> Re: Re: What was your

experience after surgery?

>

>

> Hello...

> I just want to share my experience with those who are going for

total thyroidectomy which I had mine 5 months ago. My surgery was

estimated to be 2.5 hours to 3 hours but it took longer than 4 hours

which scared the daylight out of my family members. My surgeon told

me that my goitre was deeply embedded therefore he had to be

extremely careful not to damage any of the nerves so that explains

the longer time taken.

>

> After I woke up from the surgery in a groggy state, I was

shivering and trembling from head to toe and the nurses had to keep

me warm with layers of blankets as well as turn on the heater for

approximately 20 minutes before I stopped shivering.

>

> I had tubes and inserts (for drainage) around the surgery site

and these were only taken out on day 4. Although I did not lose my

voice, I could hardly speak and my voice was hoarse. This went on

for about 4 to 6 weeks until 3 months later, I regained my original

voice back. I was on a liquid diet for about a month as anything

that needs to be chewed and swallowed was quite a challenge for me.

>

> The scariest part after the surgery was when I had a sudden drop

in calcium and I had a seizure. At that moment, my whole body went

numb and I felt tingling sensation all over my body. My fingers

cramped, my mouth clamped up I could hardly speak, I felt trapped

inside my own body. I was given an immediate injection of calcium

and after about half an hour, everything went back to normal. It

was very scary as I have never experienced a seizure in my life

before and thank God it happened in the hospital.

>

> I am now on thyroxine for life and I make sure I take it between

6am to 7:30am as I find that if I take it after 8am, the numbness

and tingling sensation will worsen. I am also on calcium but am

slowly weaning myself off it. I will have to do blood test every 6

months to keep myself in check. One more thing, my surgeon is so

skillful that my scar (measuring about 7cm long) is healing so well

that if I don't tell people that I have a surgery scar, they don't

even notice it!

>

> I do hope that you find my sharing useful. All the best to

those who will be going for their surgery soon.

>

> Warm regards.

> Angel

>Hi, I had the same surgery plus my surgeon had to remove one of my

Tyroid gland @ the same time. My surgery took 2:30 hours, and I

didn't have any of bad, and scary experiences u have had! I talked

right after surgery, and had food the next day! I do and eat pretty

much anything and everything, even screaming.My surgery was done 10

days ago! The only thing bodering me is my swollen lips! I'm on

thyroid hormone, and calcium as well.

soheila

[Guest guest]

Angel, Thank you for taking the time to share your experience. On

another site I found an article that had useful tips for surgery.

It did talk about the shivering after surgery. (I remember doing

that after my kids were born too, thank goodness for those warm

blankets!) It also mentioned wearing a shirt with breast pockets to

put your drain in. That has me weak in the knees, I am such a

baby.

The seizure would be very scary, I am glad you were in the

hospital. Sounds like you had a good surgeon.

Again, thanks for taking the time to write down your experience. It

does help.

Cindy

>

> Hello...

> I just want to share my experience with those who are going for

total thyroidectomy which I had mine 5 months ago. My surgery was

estimated to be 2.5 hours to 3 hours but it took longer than 4 hours

which scared the daylight out of my family members. My surgeon told

me that my goitre was deeply embedded therefore he had to be

extremely careful not to damage any of the nerves so that explains

the longer time taken.

>

> After I woke up from the surgery in a groggy state, I was

shivering and trembling from head to toe and the nurses had to keep

me warm with layers of blankets as well as turn on the heater for

approximately 20 minutes before I stopped shivering.

>

> I had tubes and inserts (for drainage) around the surgery site

and these were only taken out on day 4. Although I did not lose my

voice, I could hardly speak and my voice was hoarse. This went on

for about 4 to 6 weeks until 3 months later, I regained my original

voice back. I was on a liquid diet for about a month as anything

that needs to be chewed and swallowed was quite a challenge for me.

>

> The scariest part after the surgery was when I had a sudden drop

in calcium and I had a seizure. At that moment, my whole body went

numb and I felt tingling sensation all over my body. My fingers

cramped, my mouth clamped up I could hardly speak, I felt trapped

inside my own body. I was given an immediate injection of calcium

and after about half an hour, everything went back to normal. It

was very scary as I have never experienced a seizure in my life

before and thank God it happened in the hospital.

>

> I am now on thyroxine for life and I make sure I take it between

6am to 7:30am as I find that if I take it after 8am, the numbness

and tingling sensation will worsen. I am also on calcium but am

slowly weaning myself off it. I will have to do blood test every 6

months to keep myself in check. One more thing, my surgeon is so

skillful that my scar (measuring about 7cm long) is healing so well

that if I don't tell people that I have a surgery scar, they don't

even notice it!

>

> I do hope that you find my sharing useful. All the best to

those who will be going for their surgery soon.

>

> Warm regards.

> Angel

>

>

>

>

[Guest guest]

Soheila,

It is amazing the difference between people and surgery experiences.

But I guess that is life LOL. However, I hope my surgery goes as easy

as yours seems to have. Thanks for sharing.

Cindy

> >Hi, I had the same surgery plus my surgeon had to remove one of my

> Tyroid gland @ the same time. My surgery took 2:30 hours, and I

> didn't have any of bad, and scary experiences u have had! I talked

> right after surgery, and had food the next day! I do and eat pretty

> much anything and everything, even screaming.My surgery was done 10

> days ago! The only thing bodering me is my swollen lips! I'm on

> thyroid hormone, and calcium as well.

> soheila

>

[Guest guest]

We finally have it figured out that it needs to be soft food. Even

though the dr said I could eat regular. My husband has said he is

going to do all the cooking for a week and he plans on doing soups and

jellos, I said and ice cream and he said yogurt!!! LOL I know I will

get some ice cream too.

Thanks for your reply.

Cindy

>

> Well I had my friend did soft food after the surgery. I had RAI all

those

> years ago and don't think my throat was too sore. Best, bubbe gittel

>

[Guest guest]

I had terrible sweats followed by shivering after a surgery that I had and it wasn't even my thyroid that was removed. My bed had to be changed throughout the night and I had to wear several blankets although that really didn't do the trick. I never did find out what it was, but thankfully, I got past it!

On another site I found an article that had useful tips for surgery. It did talk about the shivering after surgery. (I remember doing that after my kids were born too, thank goodness for those warm blankets!)

__________________________________________________

[Guest guest]

Cindy It's my pleasure to share. When I went for my surgery, I didn't know what to expect. Glad it's all over now. As for soft diet, it's good for weight loss! hehehe... When is your surgery? Angelmrstezee wrote: Angel, Thank you for taking the time to share your experience. On another site I found an article that had useful tips for surgery. It did talk about the shivering after surgery. (I remember doing that after my kids were

born too, thank goodness for those warm blankets!) It also mentioned wearing a shirt with breast pockets to put your drain in. That has me weak in the knees, I am such a baby. The seizure would be very scary, I am glad you were in the hospital. Sounds like you had a good surgeon. Again, thanks for taking the time to write down your experience. It does help.Cindy>> Hello...> I just want to share my experience with those who are going for total thyroidectomy which I had mine 5 months ago. My surgery was estimated to be 2.5 hours to 3 hours but it took longer than 4 hours which scared the daylight out of my family members. My surgeon told me that my goitre was deeply embedded therefore he had to be extremely

careful not to damage any of the nerves so that explains the longer time taken. > > After I woke up from the surgery in a groggy state, I was shivering and trembling from head to toe and the nurses had to keep me warm with layers of blankets as well as turn on the heater for approximately 20 minutes before I stopped shivering. > > I had tubes and inserts (for drainage) around the surgery site and these were only taken out on day 4. Although I did not lose my voice, I could hardly speak and my voice was hoarse. This went on for about 4 to 6 weeks until 3 months later, I regained my original voice back. I was on a liquid diet for about a month as anything that needs to be chewed and swallowed was quite a challenge for me. > > The scariest part after the surgery was when I had a sudden drop in calcium and I had a seizure. At that moment, my whole body went numb and I felt tingling sensation

all over my body. My fingers cramped, my mouth clamped up I could hardly speak, I felt trapped inside my own body. I was given an immediate injection of calcium and after about half an hour, everything went back to normal. It was very scary as I have never experienced a seizure in my life before and thank God it happened in the hospital.> > I am now on thyroxine for life and I make sure I take it between 6am to 7:30am as I find that if I take it after 8am, the numbness and tingling sensation will worsen. I am also on calcium but am slowly weaning myself off it. I will have to do blood test every 6 months to keep myself in check. One more thing, my surgeon is so skillful that my scar (measuring about 7cm long) is healing so well that if I don't tell people that I have a surgery scar, they don't even notice it!> > I do hope that you find my sharing useful. All the best to those who will be going

for their surgery soon. > > Warm regards.> Angel> > > > __________________________________________________

[Guest guest]

That sounds like a reaction to anesthesia. JackieI had terrible sweats followed by shivering after a surgery that I had and it wasn't even my thyroid that was removed.  My bed had to be changed throughout the night and I had to wear several blankets although that really didn't do the trick.  I never did find out what it was, but thankfully, I got past it!On another site I found an article that had useful tips for surgery.  It did talk about the shivering after surgery. (I remember doing that after my kids were born too, thank goodness for those warm blankets!)__________________________________________________

[Guest guest]

Sometimes what can happen from surgery is that with a lot of diabetic patients their insulin drops and it can result in shivering. Other times (for the majority) during surgery, the internal organs can get a bit cooler because they are exposed and so they keep on shivering even if the body is 'warm'. Another reason is that during surgery the body is put into a sleep state and because of that the body temperature drops, except that during post op your body can sometimes get it's signals crossed and you'll still shiver after you wake up. Usually operating rooms are kept around 60 degrees or colder so that there is less of a bacteria fun fest in there.

Sometimes it just happens that way. Some hospitals/docs will even provide heated saline for this as it can help. Of course, most only do that with patients who have extreme frost bite.

Glad to see your shivering eventually stopped .

Re: Re: What was your experience after surgery?

I had terrible sweats followed by shivering after a surgery that I had and it wasn't even my thyroid that was removed. My bed had to be changed throughout the night and I had to wear several blankets although that really didn't do the trick. I never did find out what it was, but thankfully, I got past it!

On another site I found an article that had useful tips for surgery. It did talk about the shivering after surgery. (I remember doing that after my kids were born too, thank goodness for those warm blankets!)

__________________________________________________

[Guest guest]

thank you. We'll be praying 4 ya..mrstezee wrote: >> When are you having your surgery? Best wishes. I'm thinking about having mine next month. Actually, it's scheduled but not sure if I'll show...LOL! sccccccccccccccuuuuuuuuurrrrrrrred...Just teasing about the no show but how can one get to be

hypo if there's no more thyroid. Some people advise patients to take 1/2 of thyroid out. What do u guys/girls think?> My surgery is on the 19th of this month. Thanks for the wishes. I am having my whole thyroid out for 2 reasons. First being I have Hashimoto's. Second I am pretty much on a replacement dose of thyroid so that tells me my thryoid isn't doing much for me. Best wishes to you with your surgery! __________________________________________________

[Guest guest]

hmmmmmmmmmm, thanks ... wrote: How can you get to be hypo with no thyroid? Well, I see your point (already taking thyroid hormone(s), right?), but now you're going to have to have enough of/the right/combination of thyroid hormones, and hopefully you will have that. That's why all these discussions with your primary doctor need to take place now, so that there won't be any guessing around at what you'll be facing. Remember, the thyroid itself used

to put out this small amt of direct T3, regardless of the T4 output. Must have been some reason for that, so I would also be looking at a little direct T3, if you're not already taking Armour Thyroid or the combo of T4 and T3. NO, Hashi's will NOT go away if there's still "part of a thyroid" in there, the whole thing has to come out, and particularly if there is cancer in there. You need to wrap your mind around this concept with Hashi's antibodies. Re: Re: What was your experience after surgery? When are you having your surgery? Best wishes. I'm thinking about having mine next month. Actually, it's scheduled but not sure if I'll show...LOL! sccccccccccccccuuuuuuuuurrrrrrrred...Just teasing about the no show but how can one get to be hypo if there's no more thyroid. Some people advise patients to take 1/2 of thyroid out. What do u guys/girls think?kats3boys <kats3boys (AT) yahoo (DOT) ca> wrote: > > They are recommending surgery from the results of my FNA. Hurthle and> Follicular cells. No - no doc told me Hashie's will go away, I was just> wondering what happened to it since I won't have a thyroid for it to> attack.> > Also will I be able to eat "regularly" after surgery or will I have to> puree things for awhile?> > So would love to hear other people's experiences after surgery.> > Thanks for replying. Oh E - I love that word.... ponder! > > Cindy>From Thyroid Manager..Hypercellular specimens from follicular or Hürthle cell lesions may have features suggestive of, but not diagnostic for, malignancy (8,10,12,13,28). Thus, the cytopathologist labels these "suspicious for malignancy" because cytologic features neither confirm nor rule out malignancy. Histologic examination is necessary for

definitive diagnosis. Hypercellularity may be seen with non & #8209;neoplastic lesions, and Hürthle cell changes may be seen in patients with lymphocytic thyroiditis. The diagnosis of follicular neoplasm is indicative of an underlying malignancy in 14% of cases and Hürthle cell neoplasm in 15% (20,26). Kini (29) believes that follicular adenomas and follicular carcinomas usually can be differentiated on the basis of nuclear size but Hürthle cell lesions are problematic to diagnose cytologically. Other pathologists maintain that benign and malignant follicular/Hürthle cell tumors cannot be distinguished on the basis of aspirated cells only and the lesion must be removed for histopathologic examination (8,12,13,28). Questions I would be asking before surgery..When will you know the pathology report? What is the follow up plan if cancerous? Will you have to wait and go hypo or will they give you

T3?What type of follow up plan is in place? Meaning who will follow up your treatment regarding replacement therapy, lab work etc.I have not had surgery, so I can not answer you there..I have seen others post that it is not bad..no heavy lifting for a week or so, small incision, one or two have posted irritation with vocal cords. There is a small risk of damage to the parathyroid glands and usually they will keep you in hospital overnight to monitor calcium levels. Thyroid surgery is common and your surgeon should have a list of procedures they want you to follow regarding wound cleansing , food etc.Do understand that surgery is not exactly something people here jump up and down for..it is going to make you hypo.Hopefully when they understand why they can give you some more info.Kats3boys __________________________________________________

[Guest guest]

Angel,

I will be real glad when mine is over too!! Probably the worst

thing about surgery is you don't know what to expect. My surgery is

this coming Tuesday.

Cindy

> >

> > Hello...

> > I just want to share my experience with those who are going for

> total thyroidectomy which I had mine 5 months ago. My surgery was

> estimated to be 2.5 hours to 3 hours but it took longer than 4

hours

> which scared the daylight out of my family members. My surgeon

told

> me that my goitre was deeply embedded therefore he had to be

> extremely careful not to damage any of the nerves so that explains

> the longer time taken.

> >

> > After I woke up from the surgery in a groggy state, I was

> shivering and trembling from head to toe and the nurses had to

keep

> me warm with layers of blankets as well as turn on the heater for

> approximately 20 minutes before I stopped shivering.

> >

> > I had tubes and inserts (for drainage) around the surgery site

> and these were only taken out on day 4. Although I did not lose my

> voice, I could hardly speak and my voice was hoarse. This went on

> for about 4 to 6 weeks until 3 months later, I regained my

original

> voice back. I was on a liquid diet for about a month as anything

> that needs to be chewed and swallowed was quite a challenge for

me.

> >

> > The scariest part after the surgery was when I had a sudden drop

> in calcium and I had a seizure. At that moment, my whole body went

> numb and I felt tingling sensation all over my body. My fingers

> cramped, my mouth clamped up I could hardly speak, I felt trapped

> inside my own body. I was given an immediate injection of calcium

> and after about half an hour, everything went back to normal. It

> was very scary as I have never experienced a seizure in my life

> before and thank God it happened in the hospital.

> >

> > I am now on thyroxine for life and I make sure I take it between

> 6am to 7:30am as I find that if I take it after 8am, the numbness

> and tingling sensation will worsen. I am also on calcium but am

> slowly weaning myself off it. I will have to do blood test every 6

> months to keep myself in check. One more thing, my surgeon is so

> skillful that my scar (measuring about 7cm long) is healing so

well

> that if I don't tell people that I have a surgery scar, they don't

> even notice it!

> >

> > I do hope that you find my sharing useful. All the best to

> those who will be going for their surgery soon.

> >

> > Warm regards.

> > Angel

> >

> >

> >

> >

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Cindy I know how you feel, don't you worry as I know your surgery will be a breeze and you'll be on the road to recovery soon. I'll say a prayer for you. Angel mrstezee wrote: Angel, I will be real glad when mine is over too!! Probably the worst thing about surgery is you don't know what to expect. My surgery is this coming Tuesday. Cindy> >> > Hello...> > I just want to share my experience with those who are going for > total thyroidectomy which I had mine 5 months ago. My surgery was > estimated to be 2.5 hours to 3 hours but it took longer than 4 hours > which scared the daylight out of my family members. My surgeon told > me that my goitre was deeply embedded therefore he had to be > extremely careful not to damage any of the nerves so that explains > the longer time taken. > > > > After I woke up from the surgery

in a groggy state, I was > shivering and trembling from head to toe and the nurses had to keep > me warm with layers of blankets as well as turn on the heater for > approximately 20 minutes before I stopped shivering. > > > > I had tubes and inserts (for drainage) around the surgery site > and these were only taken out on day 4. Although I did not lose my > voice, I could hardly speak and my voice was hoarse. This went on > for about 4 to 6 weeks until 3 months later, I regained my original > voice back. I was on a liquid diet for about a month as anything > that needs to be chewed and swallowed was quite a challenge for me. > > > > The scariest part after the surgery was when I had a sudden drop > in calcium and I had a seizure. At that moment, my whole body went > numb and I felt tingling sensation all over my body. My fingers > cramped, my

mouth clamped up I could hardly speak, I felt trapped > inside my own body. I was given an immediate injection of calcium > and after about half an hour, everything went back to normal. It > was very scary as I have never experienced a seizure in my life > before and thank God it happened in the hospital.> > > > I am now on thyroxine for life and I make sure I take it between > 6am to 7:30am as I find that if I take it after 8am, the numbness > and tingling sensation will worsen. I am also on calcium but am > slowly weaning myself off it. I will have to do blood test every 6 > months to keep myself in check. One more thing, my surgeon is so > skillful that my scar (measuring about 7cm long) is healing so well > that if I don't tell people that I have a surgery scar, they don't > even notice it!> > > > I do hope that you find my sharing useful. All the

best to > those who will be going for their surgery soon. > > > > Warm regards.> > Angel> > > > > > > >> > > > > > __________________________________________________>