potty training............

[Guest guest]

Does anyone out there have this issue with their CHARGERS? My is 10 years

old and is still not potty trained! When I ask her if she needs to go potty,

she always says NO. When I tell her to go potty, and she needs to go, either #1

or #2, she will go with no problem. But, she is still in pull-ups (thank God

she is small) and I have tried everything. At night, if she has to go #2, she

will go and sleep in her dirty pants all night. It's almost as if she does not

get the sensation, or her brain is not telling her body that she needs to go. I

just don't know what else to try.

So, if anyone out there has any " CHARGE " related suggestions, PLEASE e-mail

me.

Thank you...

Signed,

Desperate Mom.....

[Guest guest]

My 8 yr old daughter is day-trained (but needs reminder to have a BM or

she'll put it off forever) but still needs a pull-up at night. She is

really well-trained in the day since the age of 5, so I don't know why the

difference at night, it's like she just can't regulate at night. I wish I

could be of more help...

Mom to Kennedy 8 (CHARGE), 17, 15, and wife to Graeme

New Brunswick, Canada

http://www.chargesyndrome.info

>

> Does anyone out there have this issue with their CHARGERS? My is

> 10 years old and is still not potty trained! When I ask her if she needs to

> go potty, she always says NO. When I tell her to go potty, and she needs to

> go, either #1 or #2, she will go with no problem. But, she is still in

> pull-ups (thank God she is small) and I have tried everything. At night, if

> she has to go #2, she will go and sleep in her dirty pants all night. It's

> almost as if she does not get the sensation, or her brain is not telling her

> body that she needs to go. I just don't know what else to try.

> So, if anyone out there has any " CHARGE " related suggestions, PLEASE

> e-mail me.

>

> Thank you...

>

> Signed,

>

> Desperate Mom.....

>

>

>

>

[Guest guest]

We just got my 10yr old Charger trained durring the day. We use a stricked

schedual with time that he has to go ( about every hour) He is able to be dry

most days. He still uses good nights for night time. He is trained for BM's

but, voiding was much harder to train. His Twin was trained by 6yrs but only

for daytime. He also uses good nights for sleeping. Good luck!!!!

potty training............

To: charge

> Does anyone out there have this issue with their CHARGERS? My

> is 10 years old and is still not potty trained! When I

> ask her if she needs to go potty, she always says NO. When I

> tell her to go potty, and she needs to go, either #1 or #2, she

> will go with no problem. But, she is still in pull-ups (thank

> God she is small) and I have tried everything. At night, if she

> has to go #2, she will go and sleep in her dirty pants all

> night. It's almost as if she does not get the sensation, or her

> brain is not telling her body that she needs to go. I just

> don't know what else to try.

> So, if anyone out there has any " CHARGE " related suggestions,

> PLEASE e-mail me.

>

> Thank you...

>

> Signed,

>

> Desperate Mom.....

>

>

>

>

>

[Guest guest]

-

Same with Aubrie - perfect by day, full pull-up at night. When we have this

sleep study or if anything else comes up as a possible answer, I'll let you

know. You do the same. Aubrie'd really like to be dry at night like her

friends but we just can't figure it out.

Michele W

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

Weir

Sent: Friday, September 01, 2006 10:16 PM

To: CHARGE

Subject: Re: potty training............

My 8 yr old daughter is day-trained (but needs reminder to have a BM or

she'll put it off forever) but still needs a pull-up at night. She is

really well-trained in the day since the age of 5, so I don't know why the

difference at night, it's like she just can't regulate at night. I wish I

could be of more help...

Mom to Kennedy 8 (CHARGE), 17, 15, and wife to Graeme

[Guest guest]

is the same: Fine during the day, Pull-ups at night. She's been

fine during the day since about age 9, when she no longer was getting any

tube feedings. But that night time - WOW! - she will have a soaked Pull-up

nearly every morning. Doesn't matter what time the cut-off for any evening

liquids is, either.

Friends in CHARGE,

Marilyn Ogan

Mom of (14 yrs, CHARGE+ JRA)

Mom of Ken (17 yrs, Asperger's)

Wife of Rick

oganm@...

Re: potty training............

My 8 yr old daughter is day-trained (but needs reminder to have a BM or

she'll put it off forever) but still needs a pull-up at night. She is

really well-trained in the day since the age of 5, so I don't know why the

difference at night, it's like she just can't regulate at night. I wish I

could be of more help...

Mom to Kennedy 8 (CHARGE), 17, 15, and wife to Graeme

[Guest guest]

Oh does your sound like my with the exception of bms

during the day. She will take herself to the bathroom for a bm in

the daytime. will be 9 years old in October. We have seen 4

Urologists, one being a Urological psyciatrist. She was put on a

strict schedule..every hour. She had to wear a watch to school to

signal when to go. She STILL had accidents. She will tel me she's

not wet only to find she's soaked. I will had reminded her to use

the bathroom before leaving for church and she will. Then she'll

have a wet pullup after the 20 min drive! I really don't get it and

drive myself crazy over it. The other day she actually stood in my

kitchen and peed on the floor...through the pullup! UGH!! I know

this is NOT helpful. But here's the latest regarding 's last

Urologist.

The last Urologist we saw told us that although her right kidny is

in the wrong place, there is nothing wrong that would affect her

ability to train. He told me that it has more to due with her

emotional and social developement. At this age, there are still a

number of kids who need work with training(I don't remember the

numbers but I was surprised!) The kids with hearing and/or vision

impairments have a tendency to mature a little slower so it takes

longer for them to train. There has to be a motivation. does

eat much orally so food is not a motivator (althought they would not

go that route right away). She is more interested in reading and

telling stories so not a motivator there. And she does not like

stickers and is not overly interested in toys. OK where to

motivate? Her doctor said kids. They can be mena and not wanting

to be different may be the motivator....he doesn't know Miss E

yet....she doesn't really care about that either!! She just

adjusts!! SO we were told to wait it out and look for signs of

being motivated. When we see she is taking more of an interest and

is having more successes, we are to contact him again. There is a

clinic and program through Children's Hospital of Phila. and they

can work with a child on the function of toileting. Showing what

their baldder looks like ful and then empty(real time through

ultrasound) And various techniques to make sure they empty

comletely.

Not sure this helps you. Having the doctor reaffrim that it is

going to require more time but it seems the skills are there

helped. Its not for lack of trying and it is not because she is

being obstinant...her body just wants to act like a 2 year old in

this area. Its tough and I have to remind myself of this often.

Colleen Feather

Ardsley, PA, mom to , 8 and a 1/2 and Sam my soon to be

kindergartener!!!!

>

> Does anyone out there have this issue with their CHARGERS? My

is 10 years old and is still not potty trained! When I ask

her if she needs to go potty, she always says NO. When I tell her

to go potty, and she needs to go, either #1 or #2, she will go with

no problem. But, she is still in pull-ups (thank God she is small)

and I have tried everything. At night, if she has to go #2, she

will go and sleep in her dirty pants all night. It's almost as if

she does not get the sensation, or her brain is not telling her body

that she needs to go. I just don't know what else to try.

> So, if anyone out there has any " CHARGE " related suggestions,

PLEASE e-mail me.

>

> Thank you...

>

> Signed,

>

> Desperate Mom.....

>

>

>

>

>

[Guest guest]

Interesting, same with . He was fully trained in the daytime at 4

years old. He is on the tube at night but even when he doesn't get it he is

still wet in him pullup.

Debbie Matasker

Re: potty training............

My 8 yr old daughter is day-trained (but needs reminder to have a BM or

she'll put it off forever) but still needs a pull-up at night. She is

really well-trained in the day since the age of 5, so I don't know why the

difference at night, it's like she just can't regulate at night. I wish I

could be of more help...

Mom to Kennedy 8 (CHARGE), 17, 15, and wife to Graeme

[Guest guest]

,

Ha, that was the same with Patty. I used to work in a hospital and used

those plastic sheet thing for the longest time. You have to pick what is

important.

Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to

[Guest guest]

Debbie,

It's hit or miss with Kennedy; she can go four or five nights in a row

completely dry with the pull-up and then it's a river on the sixth night.

Here's the other thing; I'm NOT willing to wake her to pee late at night.

She takes at least 1-2 hours minimum to fall asleep and she would be up for

the night if I woke her. Not worth it...I need sleep.

Mom to Kennedy 8 (CHARGE), 17, 15, and wife to Graeme

New Brunswick, Canada

http://www.chargesyndrome.info

>

> Interesting, same with . He was fully trained in the daytime at

> 4

> years old. He is on the tube at night but even when he doesn't get it he

> is

> still wet in him pullup.

>

> Debbie Matasker

>

> Re: potty training............

>

> My 8 yr old daughter is day-trained (but needs reminder to have a BM or

> she'll put it off forever) but still needs a pull-up at night. She is

> really well-trained in the day since the age of 5, so I don't know why the

> difference at night, it's like she just can't regulate at night. I wish I

> could be of more help...

>

>

>

> Mom to Kennedy 8 (CHARGE), 17, 15, and wife to Graeme

>

>

>

[Guest guest]

have any of you tried a kyle that wat i use its great it can get soaked but

the sheats r dry cool

>

> Debbie,

> It's hit or miss with Kennedy; she can go four or five nights in a row

> completely dry with the pull-up and then it's a river on the sixth night.

> Here's the other thing; I'm NOT willing to wake her to pee late at night.

> She takes at least 1-2 hours minimum to fall asleep and she would be up

> for

> the night if I woke her. Not worth it...I need sleep.

>

>

> Mom to Kennedy 8 (CHARGE), 17, 15, and wife to Graeme

> New Brunswick, Canada

> http://www.chargesyndrome.info

>

> On 9/2/06, Debbie Matasker <matasker@...<matasker%40optonline.net>>

> wrote:

> >

> > Interesting, same with . He was fully trained in the daytime at

> > 4

> > years old. He is on the tube at night but even when he doesn't get it he

> > is

> > still wet in him pullup.

> >

> > Debbie Matasker

> >

> > Re: potty training............

> >

> > My 8 yr old daughter is day-trained (but needs reminder to have a BM or

> > she'll put it off forever) but still needs a pull-up at night. She is

> > really well-trained in the day since the age of 5, so I don't know why

> the

> > difference at night, it's like she just can't regulate at night. I wish

> I

> > could be of more help...

> >

> >

> >

> > Mom to Kennedy 8 (CHARGE), 17, 15, and wife to Graeme

> >

> >

> >