Re: JD update from the weekend

[Guest guest]

>

> is still doing okay during his recent hospitalization

and it looks

> like he might be allowed to come home in the near future but we are

not sure

> yet. Below is a list of several things that have been done since

Friday in

> regards to JD.

>

> 1). An EEG or electrical encephalogram was done on JD Friday to

check the

> status of his brain and to relate the sleep study done to this

test. The EEG

> showed normal brain activity and in fact JD went to sleep during

the test and

> that allowed his mother to speak to him while he was sleeping. At

the moment

> she started speaking to him, the brain waves being measured on JD

altered and it

> appears that JD is picking up sound like we have always suspected.

One

> important thing that was picked up Friday was the presence of some

altered spikes

> in JD's brain waves which could indicate the presence of very mild

seizures

> going on with JD. Let me stress these seizures have been diagnosed

as being very

> mild in nature and the doctors have already told us that this is

treatable.

> What may happen is JD will be put on medications to help control

and get rid

> of this problem. Again let me stress, JD is fine and these mild

seizures are

> not noticeable and doctors have said that they appear to be

treatable if

> needed.

>

> 2). JD's feeds are back to being run over an hour. He has had no

vomiting

> or spitting up issues with the new feeds. He seems to be a very

different

> little boy that isnt wretching or coughing. His symptoms he was

having have

> disppeared with new feeds being initiated and in fact his stools

are now normal and

> not watery. Dr. Andersen is pleased with this and wants to

eventually get JD

> to the point where he is receiving his feeds in fifteen minutes.

So it

> appears the feeding issue has been ironed out.

>

> 3). Both Dr. Gelfand and Dr. Copenhaver reviewed JD's MRI of the

chest and

> did a swallow study on JD Friday to look at an area of his

esophagus that is

> narrowed. The swallow study went well and Dr Gelfand and Dr.

Copenhaver feel

> comfortable with proceeding with JD learning to eat by mouth and

dont expect any

> troubles. Also, they believe if they have to treat that narrow

region of his

> esophagus then they will probably just need to dilate it with

medications to

> expand it in size.

>

> 4). The biggest news of the weekend was from Dr. Price his

neurosurgeon.

> Dr. Price reviewed JD's sleep study, his MRI of his head, and his

EEG. Dr.

> Price remains confident that JD does not need a VP shunt to

alleviate pressure on

> his enlarged ventricles in the brain. Dr. Price has confirmed her

diagnoses

> of Ventriculomegaly and has ruled out Hydrocephalus completely.

The chances of

> JD having to be shunted are now at 5% or less and Dr. Price wants

to

> reevaluate him with the possibility of clearing him completely from

her care in 1

> year. The ventriculomegaly remains unchanged. JD's head or skull

is growing at a

> normal rate and JD's brain is holding its own. We do know that JD

has a

> little smaller brain than most toddlers and there are some small

areas of JD's

> brain that are atrophied but it is believed that JD has normal

brain function and

> is developing but due to his medical issues he is developmentally

delayed but

> catching up at his own rate. Dr. Price also feels that JD does not

have

> Central Sleep Apnea or apnea that results from the brain forgetting

to breath at

> periods during sleep. Dr. Price feels that JD has obstructive

sleep apnea

> which is easier to treat. So that was the best news of all. Again

we will see

> Dr. Price in 1 year.

>

> 5). Dr. Copenhaver and Dr. Gelfand (pulmonologists) feel that the

time is

> right to possibly let Dr. Brown do Choanal Atresia repair #1. They

both are in

> agreement that opening the nasal septum and opening the atresia

will help JD.

> They will report their finding and feelings to Dr. Brown and we

will move

> forward with this. Hopefully, JD will get the repair of the

choanal atresia in

> mid March.

>

> I realize that this is alot of information but hopefully alot of

these little

> medical issues have been ironed out. JD is doing well under closed

> observation and hopefully will be home soon.

>

> We will update you when we know more.

>

> May the Grace, Peace, Love, and Mercy of our Lord Jesus Christ be

with each

> of you.

>

> , Mandy, Olivia (16 months and walking) and

(cHArgEd 16

> months and sitting unassisted)

>

>

>

[Guest guest]

love and hugs to you

>

>

> >

> > is still doing okay during his recent hospitalization

> and it looks

> > like he might be allowed to come home in the near future but we are

> not sure

> > yet. Below is a list of several things that have been done since

> Friday in

> > regards to JD.

> >

> > 1). An EEG or electrical encephalogram was done on JD Friday to

> check the

> > status of his brain and to relate the sleep study done to this

> test. The EEG

> > showed normal brain activity and in fact JD went to sleep during

> the test and

> > that allowed his mother to speak to him while he was sleeping. At

> the moment

> > she started speaking to him, the brain waves being measured on JD

> altered and it

> > appears that JD is picking up sound like we have always suspected.

> One

> > important thing that was picked up Friday was the presence of some

> altered spikes

> > in JD's brain waves which could indicate the presence of very mild

> seizures

> > going on with JD. Let me stress these seizures have been diagnosed

> as being very

> > mild in nature and the doctors have already told us that this is

> treatable.

> > What may happen is JD will be put on medications to help control

> and get rid

> > of this problem. Again let me stress, JD is fine and these mild

> seizures are

> > not noticeable and doctors have said that they appear to be

> treatable if

> > needed.

> >

> > 2). JD's feeds are back to being run over an hour. He has had no

> vomiting

> > or spitting up issues with the new feeds. He seems to be a very

> different

> > little boy that isnt wretching or coughing. His symptoms he was

> having have

> > disppeared with new feeds being initiated and in fact his stools

> are now normal and

> > not watery. Dr. Andersen is pleased with this and wants to

> eventually get JD

> > to the point where he is receiving his feeds in fifteen minutes.

> So it

> > appears the feeding issue has been ironed out.

> >

> > 3). Both Dr. Gelfand and Dr. Copenhaver reviewed JD's MRI of the

> chest and

> > did a swallow study on JD Friday to look at an area of his

> esophagus that is

> > narrowed. The swallow study went well and Dr Gelfand and Dr.

> Copenhaver feel

> > comfortable with proceeding with JD learning to eat by mouth and

> dont expect any

> > troubles. Also, they believe if they have to treat that narrow

> region of his

> > esophagus then they will probably just need to dilate it with

> medications to

> > expand it in size.

> >

> > 4). The biggest news of the weekend was from Dr. Price his

> neurosurgeon.

> > Dr. Price reviewed JD's sleep study, his MRI of his head, and his

> EEG. Dr.

> > Price remains confident that JD does not need a VP shunt to

> alleviate pressure on

> > his enlarged ventricles in the brain. Dr. Price has confirmed her

> diagnoses

> > of Ventriculomegaly and has ruled out Hydrocephalus completely.

> The chances of

> > JD having to be shunted are now at 5% or less and Dr. Price wants

> to

> > reevaluate him with the possibility of clearing him completely from

> her care in 1

> > year. The ventriculomegaly remains unchanged. JD's head or skull

> is growing at a

> > normal rate and JD's brain is holding its own. We do know that JD

> has a

> > little smaller brain than most toddlers and there are some small

> areas of JD's

> > brain that are atrophied but it is believed that JD has normal

> brain function and

> > is developing but due to his medical issues he is developmentally

> delayed but

> > catching up at his own rate. Dr. Price also feels that JD does not

> have

> > Central Sleep Apnea or apnea that results from the brain forgetting

> to breath at

> > periods during sleep. Dr. Price feels that JD has obstructive

> sleep apnea

> > which is easier to treat. So that was the best news of all. Again

> we will see

> > Dr. Price in 1 year.

> >

> > 5). Dr. Copenhaver and Dr. Gelfand (pulmonologists) feel that the

> time is

> > right to possibly let Dr. Brown do Choanal Atresia repair #1. They

> both are in

> > agreement that opening the nasal septum and opening the atresia

> will help JD.

> > They will report their finding and feelings to Dr. Brown and we

> will move

> > forward with this. Hopefully, JD will get the repair of the

> choanal atresia in

> > mid March.

> >

> > I realize that this is alot of information but hopefully alot of

> these little

> > medical issues have been ironed out. JD is doing well under closed

> > observation and hopefully will be home soon.

> >

> > We will update you when we know more.

> >

> > May the Grace, Peace, Love, and Mercy of our Lord Jesus Christ be

> with each

> > of you.

> >

> > , Mandy, Olivia (16 months and walking) and

> (cHArgEd 16

> > months and sitting unassisted)

> >

> >

> >