Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 How are you and family doing???? Kendra is 20 were have the years gone??? You have a good memory. Yes, I had open heart 7 years ago and may be looking at another surgery hear in the not so far future. Surgery was to repair defect caused by Scarlet Fever. They did a Ross Procedure, (removed my aortic valve, replaced that with my pulmonary valve than gave me a donor valve to replace the pulmonary). All that to keep me off the blood thinners but I developed a clot 3 weeks after surgery soooo I'm on the warfrin for long term now. My last appointment they said the donor valve was starting to shrink and leak. Don't have any symtoms yet so it's a wait and see thing now. Going to have another sonagram in about 8 months. But, I feel good and still running my dog in agility so not to worried. I'm a tough old bird.....LOL mom to (31) > > Yes, you certainly are! :-) > > I had wondered how you and were for several years. It seemed there were some heart issues that surfaced for you. I'm glad all is well!!! > > Best wishes and welcome back. > > > Mom to Kendra, 20 with CHARGE, , 26 and Camille, 28 > ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 Thanks for asking about our family. :-) Both our older kids have now graduated from college. Our older daughter then taught in France for a year. Last Spring she got married. Our son is now in medical school. I think that we moved to California since you last posted to the list. We came back to our home state so Kendra could have an appropriate education which seemed to be elusive elsewhere. :-) My husband is still a chemistry professor. Amazing about your surgery. Had the Scarlet Fever been when you were a child? It sounds like great things were done in the surgery and that if there is a need for a re-repair all should go smoothly. Thank you for the update!!! I think I will put my thoughts and positive energy and prayers to the idea that no further surgery is necessary. Also thanks for all the posts about . His story and your family's commitment is just priceless. While I remember many details, I am really enjoying reading the entire experience again. Best to you!!!! Re Heyyyy Wenndy How are you and family doing???? Kendra is 20 were have the years gone??? You have a good memory. Yes, I had open heart 7 years ago and may be looking at another surgery hear in the not so far future. Surgery was to repair defect caused by Scarlet Fever. They did a Ross Procedure, (removed my aortic valve, replaced that with my pulmonary valve than gave me a donor valve to replace the pulmonary). All that to keep me off the blood thinners but I developed a clot 3 weeks after surgery soooo I'm on the warfrin for long term now. My last appointment they said the donor valve was starting to shrink and leak. Don't have any symtoms yet so it's a wait and see thing now. Going to have another sonagram in about 8 months. But, I feel good and still running my dog in agility so not to worried. I'm a tough old bird.....LOL mom to (31) > > Yes, you certainly are! :-) > > I had wondered how you and were for several years. It seemed there were some heart issues that surfaced for you. I'm glad all is well!!! > > Best wishes and welcome back. > > > Mom to Kendra, 20 with CHARGE, , 26 and Camille, 28 > ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 So much can happen in so few years. What is happening with Kendra these days? Do you have any Grandkids yet? I know what you mean by appropiate education. I work with many people who are deaf in 's home and the staff. So many that went to work for us had never worked before and these were married adults with children. A sad part about it too, was so many of them could not read or understand written englsh with comprehension. 's home is waiver funded so all staff had to go through med testing. First time all of the staff failed it. We had a deaf college professor(working with our home) take the test and covert it to ASL and give classes to our staff. Second time around they all passed it in ASL form. It was hard making the State Licensing understand why they failed and not shut our house down when it had just opened. We really layed down a new road within PA State MR system for dealling with deaf individuals. Another really great thing is and his friends have interpreters for all of their needs but we not only use Hearing English intertreters who then they interpret to a deaf interpreter who then converts everything to ASL in most of appointments and meetings. This works much better for and friends because the deaf interpreter can break down to different levels of ASL so that even someone with severe MR is understanding much of what is going on. We not only got the MHMR agencies to accept the need for it but all the funding for it comes through the waiver. Pretty good since we had a hard time just getting them to agree to one interpreter in the beginning. ohh, I got up on my soap box now haven't I. You can't imagine how busy I'm kept in an advocacy roll. I am just now working with 4 different families. It's so unforunate that it has to be a fight for just basic rights to be honored and funded. Well enough. I gotta stop.....LOL Actually thinging of bringing and coming to conference in July. Take care mom to (31) > > Thanks for asking about our family. :-) Both our older kids have now graduated from college. Our older daughter then taught in France for a year. Last Spring she got married. Our son is now in medical school. I think that we moved to California since you last posted to the list. We came back to our home state so Kendra could have an appropriate education which seemed to be elusive elsewhere. :-) My husband is still a chemistry professor. > > Amazing about your surgery. Had the Scarlet Fever been when you were a child? It sounds like great things were done in the surgery and that if there is a need for a re-repair all should go smoothly. Thank you for the update!!! I think I will put my thoughts and positive energy and prayers to the idea that no further surgery is necessary. > > Also thanks for all the posts about . His story and your family's commitment is just priceless. While I remember many details, I am really enjoying reading the entire experience again. > > Best to you!!!! > > > ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 , You have done and continue to do, so much work for everyone in your state!! It is amazing what you have accomplished. pam > > > > > So much can happen in so few years. What is happening with Kendra > these days? Do you have any Grandkids > yet? > > I know what you mean by appropiate education. I work with many > people who are deaf in 's home and the staff. So many that went > to work for us had never worked before and these were married adults > with children. A sad part about it too, was so many of them could not > read or > understand written englsh with comprehension. 's home is waiver > funded so all staff had to go through med testing. First time all of > the staff failed it. We had a deaf college professor(working with our > home) take the test and covert it to ASL and give classes to our > staff. Second time around they all passed it in ASL form. It was hard > making the State Licensing understand why they failed and not shut > our > house down when it had just opened. We really layed down a new road > within PA State MR system for dealling with deaf individuals. > > Another really great thing is and his friends have interpreters > for all of their needs but we not only use Hearing English > intertreters > who then they interpret to a deaf interpreter who then converts > everything to ASL in most of appointments and meetings. This works > much better for and friends because the deaf interpreter can > break down to different levels of ASL so that even someone with > severe MR is understanding much of what is going on. We not only got > the MHMR agencies to accept the need for it but all the funding for > it comes through the waiver. Pretty good since we had a hard time > just getting them to agree to one interpreter in the beginning. > > ohh, I got up on my soap box now haven't I. You can't imagine how > busy I'm kept in an advocacy roll. I am just now working with 4 > different families. It's so unforunate that it has to be a fight for > just basic rights to be honored and funded. > > Well enough. I gotta stop.....LOL > > Actually thinging of bringing and coming to conference in July. > > Take care > mom to (31) > > >> > >> > Thanks for asking about our family. :-) Both our older kids have > now graduated from college. Our older daughter then taught in France > for a year. Last Spring she got married. Our son is now in medical > school. I think that we moved to California since you last posted to > the list. We came back to our home state so Kendra could have an > appropriate education which seemed to be elusive elsewhere. :-) My > husband is still a chemistry professor. >> > >> > Amazing about your surgery. Had the Scarlet Fever been when you > were a child? It sounds like great things were done in the surgery > and that if there is a need for a re-repair all should go smoothly. > Thank you for the update!!! I think I will put my thoughts and > positive energy and prayers to the idea that no further surgery is > necessary. >> > >> > Also thanks for all the posts about . His story and your > family's commitment is just priceless. While I remember many > details, I am really enjoying reading the entire experience again. >> > >> > Best to you!!!! >> > >> > >> > ----- Original Message ----- > > > -- Pamela J. , M.A., CAGS Licensed Educational Psychologist Deafblind Program Perkins School for the Blind 175 N. Beacon St. Watertown, MA 02472 Quote Link to comment Share on other sites More sharing options...
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