Re: Myngers Update

[Guest guest]

Interesting, Lori that you are working with allergy/immunologists. There was a

little girl with CHARGE many years ago who turned out to have immune problems

that were then treated. It took her mom so much time to get someone to actually

look into the issues. Even though the little girl had often been sick and often

had fevers.

Anyway, it does seem that somehow the immune system is affected since has

had these sinus issues for such a long time and has even had extreme surgery to

try to correct.

Very best wishes, prayers and hope coming your way.

Re: Myers Update

Dear Lori-

I wish I could get there and give you a hug. I'm sure you'd rather have

respite.

I just don't understand why nobody can get a grip on the fever. do they

feel this

is her norm? That some people have a slightly elevated temp all the time?

Has she ever had a spinal tap?

Have you tried a different medical facility? A different hospital?

---

I just don't understand how they can keep turning you back out with no

answers. I'm disgusted and heartbroken and furious all at the same time.

---

I, too, hope so much the respiradol (sp) gives relief.

Much love to you and your family,

in Ma. (, 21 yrs)

[Guest guest]

- saw an immunologist a couple of years ago - and tested negative

for allergies and immune problems. I want someone that can check what is in her

nose because antibiotics are just not effective and from all the articles I've

read about fungi in the nose sounds a lot like what is going through. If

anyone is interested in more sinus/fungi articles I can forward the links. I'm

also investigating nutrition but I'm not as far on that - I haven't found the

rights physician yet.

Thank you for all of your help - I'm learning about all this through what you

guys have suggested!

Lori Myers

Re: Myers Update

Dear Lori-

I wish I could get there and give you a hug. I'm sure you'd rather have

respite.

I just don't understand why nobody can get a grip on the fever. do they

feel this

is her norm? That some people have a slightly elevated temp all the time?

Has she ever had a spinal tap?

Have you tried a different medical facility? A different hospital?

---

I just don't understand how they can keep turning you back out with no

answers. I'm disgusted and heartbroken and furious all at the same time.

---

I, too, hope so much the respiradol (sp) gives relief.

Much love to you and your family,

in Ma. (, 21 yrs)