Re: Re: Update on JD Ellen food issues

[Guest guest]

Ellen, do you think you got better as you got older, or do you think that any

one thing in particular changed, such as diet??

I'm so glad you're doing better. :-)

wendy

Mom to Kendra, and Camille

Re: Re: Update on JD

i have dumping syndrome to it is common with people as they told you who had

stuff done to there insides but soem r worse than tohers i wwas one of the

bad one now im better

>

> Thank you for the update and I hope everything works out and you

> keep recieving answers.

> Hugs and prayers,

> Crystal mom to (11), (3), and Eva (21 month old CHARGEr)

> wife to Dan in Illinois

>

>

> >

> > We received some news yesterday late concerning JD and his

> problems with his spitting up/vomiting of his feeds. We know his

> Nissen fundoplication is intact and we know that his stomach is

> emptying its food contents at a normal rate. Dr. Andersen, GI head

> physician at Childrens observed JD all day yesterday and got back

> with us late last night. Based upon the symptoms that JD was having

> after feeds (increased heartrate, sweating, coughing, wretching) Dr.

> Andersen believes that JD may have a situation called dumping

> syndrome which is normal in some patients who have had surgeries

> involving the digestive situation. What is believed to be going on

> is due to the fact that JD is receiving Pediasure for his feeds and

> Pediasure has a very high carbohydrate content which would include

> sugars, JD's stomach is dumping this in large amounts into the

> intestines and the body has too much carbohydrates being dumped into

> the intestines at one time. Thus, JD's natural body response is an

> increase in heartrate, an increase in coughing, wretching episodes

> and sweating which could lead to the vomiting/spitting up episodes

> we have seen with him. Dr. Andersen has seen this many times with

> children that have similar issues such as a Nissen, the Mickey

> button, the tube feeds etc. The body cannot handle that much sugar

> to digest. What Dr. Andersen wants to do is try to balance his

> feeds with more protein. Thus, adding some protein to his pediasure

> and this should alleviate the problem. Dr. Andersen informed us he

> would know pretty quick once this was initiated with JD's feeding

> schedule. The changes will be initiated today and we will see how

> he responds. So certainly this seems to be a simple solution to one

> of his minor issues. Dr. Andersen suspects that this should work.

> >

> > We still dont have any MRI results yet and are still awaiting them

> so that we can see what his doctors want to do should a vascular

> ring show up. We suspect that if there is a vascular ring then JD

> would be moved to CVICU under closed observation and await repair by

> his heart surgeons of this condition. But we are not sure. We need

> the results first. JD is still doing okay and having no respiratory

> problems of an unusual nature. He is still under closed observation

> at Childrens and we suspect he will be for some time.

> >

> > Just wanted to pass this along. We are relieved that hopefully

> one of these problems is now possibly worked out so that JD can

> continue to progress. We will update when we know more.

> >

> > May the Grace, Peace, Mercy, and Love of our Lord Jesus Christs be

> with each of you.

> >

> > In His Loving Hands and still holding onto that rope,

> >

> > , , Olivia (16 months) and JD (cHArgEd 16 months)

> >

> __________________________________________________________

> ___

> > Check out the new AOL. Most comprehensive set of free safety and

> security tools, free access to millions of high-quality videos from

> across the web, free AOL Mail and more.

> >

> >

> >

[Guest guest]

well my drs allways said i probly would get better and also once we start

gtube again that really helped coz was bypassing the jstoma track and stuff

i think

>

> Ellen, do you think you got better as you got older, or do you think

> that any one thing in particular changed, such as diet??

>

> I'm so glad you're doing better. :-)

>

> wendy

> Mom to Kendra, and Camille

> Re: Re: Update on JD

>

> i have dumping syndrome to it is common with people as they told you who

> had

> stuff done to there insides but soem r worse than tohers i wwas one of the

> bad one now im better

>

> On 01/02/07, supermama95 <supermama95@... <supermama95%40yahoo.com>>

> wrote:

> >

> > Thank you for the update and I hope everything works out and you

> > keep recieving answers.

> > Hugs and prayers,

> > Crystal mom to (11), (3), and Eva (21 month old CHARGEr)

> > wife to Dan in Illinois

> >

> >

> > >

> > > We received some news yesterday late concerning JD and his

> > problems with his spitting up/vomiting of his feeds. We know his

> > Nissen fundoplication is intact and we know that his stomach is

> > emptying its food contents at a normal rate. Dr. Andersen, GI head

> > physician at Childrens observed JD all day yesterday and got back

> > with us late last night. Based upon the symptoms that JD was having

> > after feeds (increased heartrate, sweating, coughing, wretching) Dr.

> > Andersen believes that JD may have a situation called dumping

> > syndrome which is normal in some patients who have had surgeries

> > involving the digestive situation. What is believed to be going on

> > is due to the fact that JD is receiving Pediasure for his feeds and

> > Pediasure has a very high carbohydrate content which would include

> > sugars, JD's stomach is dumping this in large amounts into the

> > intestines and the body has too much carbohydrates being dumped into

> > the intestines at one time. Thus, JD's natural body response is an

> > increase in heartrate, an increase in coughing, wretching episodes

> > and sweating which could lead to the vomiting/spitting up episodes

> > we have seen with him. Dr. Andersen has seen this many times with

> > children that have similar issues such as a Nissen, the Mickey

> > button, the tube feeds etc. The body cannot handle that much sugar

> > to digest. What Dr. Andersen wants to do is try to balance his

> > feeds with more protein. Thus, adding some protein to his pediasure

> > and this should alleviate the problem. Dr. Andersen informed us he

> > would know pretty quick once this was initiated with JD's feeding

> > schedule. The changes will be initiated today and we will see how

> > he responds. So certainly this seems to be a simple solution to one

> > of his minor issues. Dr. Andersen suspects that this should work.

> > >

> > > We still dont have any MRI results yet and are still awaiting them

> > so that we can see what his doctors want to do should a vascular

> > ring show up. We suspect that if there is a vascular ring then JD

> > would be moved to CVICU under closed observation and await repair by

> > his heart surgeons of this condition. But we are not sure. We need

> > the results first. JD is still doing okay and having no respiratory

> > problems of an unusual nature. He is still under closed observation

> > at Childrens and we suspect he will be for some time.

> > >

> > > Just wanted to pass this along. We are relieved that hopefully

> > one of these problems is now possibly worked out so that JD can

> > continue to progress. We will update when we know more.

> > >

> > > May the Grace, Peace, Mercy, and Love of our Lord Jesus Christs be

> > with each of you.

> > >

> > > In His Loving Hands and still holding onto that rope,

> > >

> > > , , Olivia (16 months) and JD (cHArgEd 16 months)

> > >

> > __________________________________________________________

> > ___

> > > Check out the new AOL. Most comprehensive set of free safety and

> > security tools, free access to millions of high-quality videos from

> > across the web, free AOL Mail and more.

> > >

> > >

> > >