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We received some news yesterday late concerning JD and his problems with his

spitting up/vomiting of his feeds. We know his Nissen fundoplication is intact

and we know that his stomach is emptying its food contents at a normal rate.

Dr. Andersen, GI head physician at Childrens observed JD all day yesterday and

got back with us late last night. Based upon the symptoms that JD was having

after feeds (increased heartrate, sweating, coughing, wretching) Dr. Andersen

believes that JD may have a situation called dumping syndrome which is normal in

some patients who have had surgeries involving the digestive situation. What is

believed to be going on is due to the fact that JD is receiving Pediasure for

his feeds and Pediasure has a very high carbohydrate content which would include

sugars, JD's stomach is dumping this in large amounts into the intestines and

the body has too much carbohydrates being dumped into the intestines at one

time. Thus, JD's natural body response is an increase in heartrate, an increase

in coughing, wretching episodes and sweating which could lead to the

vomiting/spitting up episodes we have seen with him. Dr. Andersen has seen this

many times with children that have similar issues such as a Nissen, the Mickey

button, the tube feeds etc. The body cannot handle that much sugar to digest.

What Dr. Andersen wants to do is try to balance his feeds with more protein.

Thus, adding some protein to his pediasure and this should alleviate the

problem. Dr. Andersen informed us he would know pretty quick once this was

initiated with JD's feeding schedule. The changes will be initiated today and

we will see how he responds. So certainly this seems to be a simple solution to

one of his minor issues. Dr. Andersen suspects that this should work.

We still dont have any MRI results yet and are still awaiting them so that we

can see what his doctors want to do should a vascular ring show up. We suspect

that if there is a vascular ring then JD would be moved to CVICU under closed

observation and await repair by his heart surgeons of this condition. But we

are not sure. We need the results first. JD is still doing okay and having no

respiratory problems of an unusual nature. He is still under closed observation

at Childrens and we suspect he will be for some time.

Just wanted to pass this along. We are relieved that hopefully one of these

problems is now possibly worked out so that JD can continue to progress. We

will update when we know more.

May the Grace, Peace, Mercy, and Love of our Lord Jesus Christs be with each of

you.

In His Loving Hands and still holding onto that rope,

, , Olivia (16 months) and JD (cHArgEd 16 months)

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Thank you for the update and I hope everything works out and you

keep recieving answers.

Hugs and prayers,

Crystal mom to (11), (3), and Eva (21 month old CHARGEr)

wife to Dan in Illinois

>

> We received some news yesterday late concerning JD and his

problems with his spitting up/vomiting of his feeds. We know his

Nissen fundoplication is intact and we know that his stomach is

emptying its food contents at a normal rate. Dr. Andersen, GI head

physician at Childrens observed JD all day yesterday and got back

with us late last night. Based upon the symptoms that JD was having

after feeds (increased heartrate, sweating, coughing, wretching) Dr.

Andersen believes that JD may have a situation called dumping

syndrome which is normal in some patients who have had surgeries

involving the digestive situation. What is believed to be going on

is due to the fact that JD is receiving Pediasure for his feeds and

Pediasure has a very high carbohydrate content which would include

sugars, JD's stomach is dumping this in large amounts into the

intestines and the body has too much carbohydrates being dumped into

the intestines at one time. Thus, JD's natural body response is an

increase in heartrate, an increase in coughing, wretching episodes

and sweating which could lead to the vomiting/spitting up episodes

we have seen with him. Dr. Andersen has seen this many times with

children that have similar issues such as a Nissen, the Mickey

button, the tube feeds etc. The body cannot handle that much sugar

to digest. What Dr. Andersen wants to do is try to balance his

feeds with more protein. Thus, adding some protein to his pediasure

and this should alleviate the problem. Dr. Andersen informed us he

would know pretty quick once this was initiated with JD's feeding

schedule. The changes will be initiated today and we will see how

he responds. So certainly this seems to be a simple solution to one

of his minor issues. Dr. Andersen suspects that this should work.

>

> We still dont have any MRI results yet and are still awaiting them

so that we can see what his doctors want to do should a vascular

ring show up. We suspect that if there is a vascular ring then JD

would be moved to CVICU under closed observation and await repair by

his heart surgeons of this condition. But we are not sure. We need

the results first. JD is still doing okay and having no respiratory

problems of an unusual nature. He is still under closed observation

at Childrens and we suspect he will be for some time.

>

> Just wanted to pass this along. We are relieved that hopefully

one of these problems is now possibly worked out so that JD can

continue to progress. We will update when we know more.

>

> May the Grace, Peace, Mercy, and Love of our Lord Jesus Christs be

with each of you.

>

> In His Loving Hands and still holding onto that rope,

>

> , , Olivia (16 months) and JD (cHArgEd 16 months)

>

_____________________________________________________________________

___

> Check out the new AOL. Most comprehensive set of free safety and

security tools, free access to millions of high-quality videos from

across the web, free AOL Mail and more.

>

>

>

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i have dumping syndrome to it is common with people as they told you who had

stuff done to there insides but soem r worse than tohers i wwas one of the

bad one now im better

>

> Thank you for the update and I hope everything works out and you

> keep recieving answers.

> Hugs and prayers,

> Crystal mom to (11), (3), and Eva (21 month old CHARGEr)

> wife to Dan in Illinois

>

>

> >

> > We received some news yesterday late concerning JD and his

> problems with his spitting up/vomiting of his feeds. We know his

> Nissen fundoplication is intact and we know that his stomach is

> emptying its food contents at a normal rate. Dr. Andersen, GI head

> physician at Childrens observed JD all day yesterday and got back

> with us late last night. Based upon the symptoms that JD was having

> after feeds (increased heartrate, sweating, coughing, wretching) Dr.

> Andersen believes that JD may have a situation called dumping

> syndrome which is normal in some patients who have had surgeries

> involving the digestive situation. What is believed to be going on

> is due to the fact that JD is receiving Pediasure for his feeds and

> Pediasure has a very high carbohydrate content which would include

> sugars, JD's stomach is dumping this in large amounts into the

> intestines and the body has too much carbohydrates being dumped into

> the intestines at one time. Thus, JD's natural body response is an

> increase in heartrate, an increase in coughing, wretching episodes

> and sweating which could lead to the vomiting/spitting up episodes

> we have seen with him. Dr. Andersen has seen this many times with

> children that have similar issues such as a Nissen, the Mickey

> button, the tube feeds etc. The body cannot handle that much sugar

> to digest. What Dr. Andersen wants to do is try to balance his

> feeds with more protein. Thus, adding some protein to his pediasure

> and this should alleviate the problem. Dr. Andersen informed us he

> would know pretty quick once this was initiated with JD's feeding

> schedule. The changes will be initiated today and we will see how

> he responds. So certainly this seems to be a simple solution to one

> of his minor issues. Dr. Andersen suspects that this should work.

> >

> > We still dont have any MRI results yet and are still awaiting them

> so that we can see what his doctors want to do should a vascular

> ring show up. We suspect that if there is a vascular ring then JD

> would be moved to CVICU under closed observation and await repair by

> his heart surgeons of this condition. But we are not sure. We need

> the results first. JD is still doing okay and having no respiratory

> problems of an unusual nature. He is still under closed observation

> at Childrens and we suspect he will be for some time.

> >

> > Just wanted to pass this along. We are relieved that hopefully

> one of these problems is now possibly worked out so that JD can

> continue to progress. We will update when we know more.

> >

> > May the Grace, Peace, Mercy, and Love of our Lord Jesus Christs be

> with each of you.

> >

> > In His Loving Hands and still holding onto that rope,

> >

> > , , Olivia (16 months) and JD (cHArgEd 16 months)

> >

> __________________________________________________________

> ___

> > Check out the new AOL. Most comprehensive set of free safety and

> security tools, free access to millions of high-quality videos from

> across the web, free AOL Mail and more.

> >

> >

> >

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I hae heard of " dumping " but never really knew what it

was. Thanks so much for the explanation. That sounds

exactly like what Vinny is experiencing. I'll try to

increase his protein... did they mention how much was

too much protein?

We'll keep JD in our prayers and hope he is home with

you all soon.

ina, mom to Luca (3.5) & Vinny (1.5 w/ cHARgE)

--- erin32573@... wrote:

> We received some news yesterday late concerning JD

> and his problems with his spitting up/vomiting of

> his feeds. We know his Nissen fundoplication is

> intact and we know that his stomach is emptying its

> food contents at a normal rate. Dr. Andersen, GI

> head physician at Childrens observed JD all day

> yesterday and got back with us late last night.

> Based upon the symptoms that JD was having after

> feeds (increased heartrate, sweating, coughing,

> wretching) Dr. Andersen believes that JD may have a

> situation called dumping syndrome which is normal in

> some patients who have had surgeries involving the

> digestive situation. What is believed to be going

> on is due to the fact that JD is receiving Pediasure

> for his feeds and Pediasure has a very high

> carbohydrate content which would include sugars,

> JD's stomach is dumping this in large amounts into

> the intestines and the body has too much

> carbohydrates being dumped into the intestines at

> one time. Thus, JD's natural body response is an

> increase in heartrate, an increase in coughing,

> wretching episodes and sweating which could lead to

> the vomiting/spitting up episodes we have seen with

> him. Dr. Andersen has seen this many times with

> children that have similar issues such as a Nissen,

> the Mickey button, the tube feeds etc. The body

> cannot handle that much sugar to digest. What Dr.

> Andersen wants to do is try to balance his feeds

> with more protein. Thus, adding some protein to his

> pediasure and this should alleviate the problem.

> Dr. Andersen informed us he would know pretty quick

> once this was initiated with JD's feeding schedule.

> The changes will be initiated today and we will see

> how he responds. So certainly this seems to be a

> simple solution to one of his minor issues. Dr.

> Andersen suspects that this should work.

>

> We still dont have any MRI results yet and are still

> awaiting them so that we can see what his doctors

> want to do should a vascular ring show up. We

> suspect that if there is a vascular ring then JD

> would be moved to CVICU under closed observation and

> await repair by his heart surgeons of this

> condition. But we are not sure. We need the

> results first. JD is still doing okay and having no

> respiratory problems of an unusual nature. He is

> still under closed observation at Childrens and we

> suspect he will be for some time.

>

> Just wanted to pass this along. We are relieved

> that hopefully one of these problems is now possibly

> worked out so that JD can continue to progress. We

> will update when we know more.

>

> May the Grace, Peace, Mercy, and Love of our Lord

> Jesus Christs be with each of you.

>

> In His Loving Hands and still holding onto that

> rope,

>

> , , Olivia (16 months) and JD (cHArgEd 16

> months)

>

________________________________________________________________________

> Check out the new AOL. Most comprehensive set of

> free safety and security tools, free access to

> millions of high-quality videos from across the web,

> free AOL Mail and more.

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

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Ellen-

What helped you improve?

Janay

> > >

> > > We received some news yesterday late concerning JD and his

> > problems with his spitting up/vomiting of his feeds. We know his

> > Nissen fundoplication is intact and we know that his stomach is

> > emptying its food contents at a normal rate. Dr. Andersen, GI

head

> > physician at Childrens observed JD all day yesterday and got back

> > with us late last night. Based upon the symptoms that JD was

having

> > after feeds (increased heartrate, sweating, coughing, wretching)

Dr.

> > Andersen believes that JD may have a situation called dumping

> > syndrome which is normal in some patients who have had surgeries

> > involving the digestive situation. What is believed to be going

on

> > is due to the fact that JD is receiving Pediasure for his feeds

and

> > Pediasure has a very high carbohydrate content which would

include

> > sugars, JD's stomach is dumping this in large amounts into the

> > intestines and the body has too much carbohydrates being dumped

into

> > the intestines at one time. Thus, JD's natural body response is

an

> > increase in heartrate, an increase in coughing, wretching

episodes

> > and sweating which could lead to the vomiting/spitting up

episodes

> > we have seen with him. Dr. Andersen has seen this many times with

> > children that have similar issues such as a Nissen, the Mickey

> > button, the tube feeds etc. The body cannot handle that much

sugar

> > to digest. What Dr. Andersen wants to do is try to balance his

> > feeds with more protein. Thus, adding some protein to his

pediasure

> > and this should alleviate the problem. Dr. Andersen informed us

he

> > would know pretty quick once this was initiated with JD's feeding

> > schedule. The changes will be initiated today and we will see how

> > he responds. So certainly this seems to be a simple solution to

one

> > of his minor issues. Dr. Andersen suspects that this should work.

> > >

> > > We still dont have any MRI results yet and are still awaiting

them

> > so that we can see what his doctors want to do should a vascular

> > ring show up. We suspect that if there is a vascular ring then JD

> > would be moved to CVICU under closed observation and await

repair by

> > his heart surgeons of this condition. But we are not sure. We

need

> > the results first. JD is still doing okay and having no

respiratory

> > problems of an unusual nature. He is still under closed

observation

> > at Childrens and we suspect he will be for some time.

> > >

> > > Just wanted to pass this along. We are relieved that hopefully

> > one of these problems is now possibly worked out so that JD can

> > continue to progress. We will update when we know more.

> > >

> > > May the Grace, Peace, Mercy, and Love of our Lord Jesus

Christs be

> > with each of you.

> > >

> > > In His Loving Hands and still holding onto that rope,

> > >

> > > , , Olivia (16 months) and JD (cHArgEd 16 months)

> > >

> > __________________________________________________________

> > ___

> > > Check out the new AOL. Most comprehensive set of free safety

and

> > security tools, free access to millions of high-quality videos

from

> > across the web, free AOL Mail and more.

> > >

> > >

> > >

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Our thoughts and prayers are with you all.

Thank you for sharing and giving such a clear explanation. Rasha

has been having vomiting and retching problems that have increased

since we started adding DuoCal to her feeds. This could be a

possible explanation as I think the DuoCal is fat and carbs. Our

problem is that I have to limit her protein because of impaired

kidney function.

I look forward to your next update.

Janay

Rasha's Mom

>

> We received some news yesterday late concerning JD and his

problems with his spitting up/vomiting of his feeds. We know his

Nissen fundoplication is intact and we know that his stomach is

emptying its food contents at a normal rate. Dr. Andersen, GI head

physician at Childrens observed JD all day yesterday and got back

with us late last night. Based upon the symptoms that JD was having

after feeds (increased heartrate, sweating, coughing, wretching) Dr.

Andersen believes that JD may have a situation called dumping

syndrome which is normal in some patients who have had surgeries

involving the digestive situation. What is believed to be going on

is due to the fact that JD is receiving Pediasure for his feeds and

Pediasure has a very high carbohydrate content which would include

sugars, JD's stomach is dumping this in large amounts into the

intestines and the body has too much carbohydrates being dumped into

the intestines at one time. Thus, JD's natural body response is an

increase in heartrate, an increase in coughing, wretching episodes

and sweating which could lead to the vomiting/spitting up episodes

we have seen with him. Dr. Andersen has seen this many times with

children that have similar issues such as a Nissen, the Mickey

button, the tube feeds etc. The body cannot handle that much sugar

to digest. What Dr. Andersen wants to do is try to balance his

feeds with more protein. Thus, adding some protein to his pediasure

and this should alleviate the problem. Dr. Andersen informed us he

would know pretty quick once this was initiated with JD's feeding

schedule. The changes will be initiated today and we will see how

he responds. So certainly this seems to be a simple solution to one

of his minor issues. Dr. Andersen suspects that this should work.

>

> We still dont have any MRI results yet and are still awaiting them

so that we can see what his doctors want to do should a vascular

ring show up. We suspect that if there is a vascular ring then JD

would be moved to CVICU under closed observation and await repair by

his heart surgeons of this condition. But we are not sure. We need

the results first. JD is still doing okay and having no respiratory

problems of an unusual nature. He is still under closed observation

at Childrens and we suspect he will be for some time.

>

> Just wanted to pass this along. We are relieved that hopefully

one of these problems is now possibly worked out so that JD can

continue to progress. We will update when we know more.

>

> May the Grace, Peace, Mercy, and Love of our Lord Jesus Christs be

with each of you.

>

> In His Loving Hands and still holding onto that rope,

>

> , , Olivia (16 months) and JD (cHArgEd 16 months)

>

_____________________________________________________________________

___

> Check out the new AOL. Most comprehensive set of free safety and

security tools, free access to millions of high-quality videos from

across the web, free AOL Mail and more.

>

>

>

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