Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Wow, Lester, congratulations and thank you so much for sharing this with us. It is beginning to ease my mind quite a bit listening to all of you who have had ablations. At one time I would have been terrified to consider one; I feel more confident now. Please stay in touch and let us know how it goes...your experience sounds very similar to Stef's except for the projectile vomiting. Lil In a message dated 5/2/2006 3:47:37 P.M. Pacific Standard Time, lrobert@... writes: So that's my story so far. Sorry it's so long-winded, but all of these details are the kinds of things I've been curious about myself. BTW, I've been a P.A. in plastic surgery for 25 years, so am fascinated by all the stuff these guys can do without actually being inside the heart. Waiting 3 months to assess the success of this procedure is like our telling our facelift patients not to look in the mirror for 3 weeks. We can't help ourselves. And thanks for all of your support. It made my decision to go through with this alot easier. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 In a message dated 5/2/06 5:02:14 PM Pacific Daylight Time, lrobert@... writes: > sorry, I guess that was a bit misleading. I meant, from a surgeon's point > of view (actually having one's hands inside the patient and directly > visualizing what you're working on). These guys are removed by several layers of > mechanism and monitors. Like remote control surgery, but still not seeing the > surface (like you can do with endoscopic surgery).I guess they must have been > good at computer games. Thanks for the clarification Lester ... though now I'm picturing Super World in my atria! lol Toni CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Well, I 'm back. As most of you probably suspected, I DID have to spend the night. The same day discharge was only for the simple ablations, not for the kind of thing WE have. First thing they did was to draw some current labs, which showed my potassium a little low. I walked to the EP lab and climbed on the table. It looked like something out of science fiction with computers and screens everywhere. It took a while to get hooked up to all the monitors and deviceIt was cold. They covered me with warm sheets, and I finally stopped shaking. Then they gave me some joy juice. The gave me some IV benadryl, then versed and fentanyl, I'm pretty sure. But I'm not sure of anything after that. I didn't see Dr. Leon until I was half snowed. I was aware of him standing by by right side under a big clear plastic " bubble " that covered my midsection. I could hear him talking to the fellow, I presume, about positions and energy levels. I was totally unaware of any physical sensations. They must have given me more stuff, because the next thing I knew, Dr. Leon was leaning over me telling me they were done. The moment I had been anticipating for a month. I moved to a transport bed and moved into the hall. Dr. Leon and my wife walked along with me. I remember him saying that they would keep me on my toprol and taper it over the next month. That is the last I saw of Dr. Leon. This whole process took about 4 hours. The rest of the day I was pretty groggy, until the evening. By then I was wide awake, and the highlight of my stay was when the nurses removed the 3 sheaths that were still in me from my groin to my heart. The nurse said that they usually premedicate with pain medicine. I didn't think it was going to hurt, so I said go ahead. If anyone else is in this position, don't say " go ahead " . Get the pain medicine. Because it hurt like ______. As well, from the pain and pressure the nurse was applying, I went vagal and dropped my blood pressure and got all flushed--sort of like Bush did with his pretzel. They had atropine ready to give me to bring me out of the drop, but I came back OK. The rest of the night I didn't sleep much. I had slept most of the day, and when I lay back, my chest hurt. Deep breaths would bring a general soreness; a dull ache. No shortness of breath or afib. I did notice quite a few PAC's though. I mentioned the pain to the nurse, and she said I had tylenol, percocet and morphine available on request. I took the tylenol. I didn't really want the narcotic effect again. By about 5 am, the PAC's were bothering me and I started short runs of what I felt was afib. The nurse got an order from whoever was on call for 50mg of lopressor (metoprolol-short acting) and some more potassium supplement. This seemed to settle things. I finally saw the fellow (who's leaving Emory for Harvard this summer) who explained the procedure. He said that they isolated all of the pulmonary veins and then found activity on the other side and bottom of the left atrium. After that they were no longer able to induce afib. The rest of my stay was involved with anticoagulation. I was on a heparin drip from the time of the procedure until I left, over 24 hours later. I was started on Coumadin the afternoon of the procedure, and on Lovenox before leaving. I'll have to give myself the lovenox for the next 3 days, and then stay on Coumadin for 4-6 weeks. I'll go back in 3 days for an INR, then to see Dr. Leon in a month. He also order some IV decadron (steroid) that he said would improve the chest soreness. He said it was like pericarditis, and everyone got it. I got that about 8 hours ago, and the soreness is significantly better. The fellow and Dr. Leon said to expect runs of afib for awhile. They said that I should make no judgements on the success of the procedure for 3 months. I also have another MRI then. So, now I wait. I am having little bursts of afib or sinus tachycardia (as seen in the hospital), but they seem very benign, and seem to go away fairly quickly. I'm having a few PAC's along as well. I think I'm going to take some potassium supplements along with my vitamins to keep my level up. I'll check with the Nurse Practitioner that I see in 3 days at the coumadin clinic on that. Forgot to ask the doc about that, and he didn't bring it up. So that's my story so far. Sorry it's so long-winded, but all of these details are the kinds of things I've been curious about myself. BTW, I've been a P.A. in plastic surgery for 25 years, so am fascinated by all the stuff these guys can do without actually being inside the heart. Waiting 3 months to assess the success of this procedure is like our telling our facelift patients not to look in the mirror for 3 weeks. We can't help ourselves. And thanks for all of your support. It made my decision to go through with this alot easier. Lester Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Lil, Thanks for your response. I must admit I was thinking about Stef's experience. Guess I was lucky. Lester > >Wow, Lester, congratulations and thank you so much for sharing this with us. >It is beginning to ease my mind quite a bit listening to all of you who have >had ablations. At one time I would have been terrified to consider one; I >feel more confident now. Please stay in touch and let us know how it goes...your > experience sounds very similar to Stef's except for the projectile >vomiting. >Lil > > > >Web Page - http://www.afibsupport.com >List owner: AFIBsupport-owner >For help on how to use the group, including how to drive it via email, >send a blank email to AFIBsupport-help > >Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 so am fascinated by all the stuff these guys can do without actually being inside the heart. ------------------------- Lester ... I thought your blow-by-blow was fascinating and interesting. But how did they do an ablation without going inside the heart? And if they didn't go inside the heart, why did you have catheters in the groin? I'm confused. Toni CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Toni, sorry, I guess that was a bit misleading. I meant, from a surgeon's point of view (actually having one's hands inside the patient and directly visualizing what you're working on). These guys are removed by several layers of mechanism and monitors. Like remote control surgery, but still not seeing the surface (like you can do with endoscopic surgery).I guess they must have been good at computer games. Lester Re: Ablation in the morning--done! > > so am fascinated by all the stuff these guys can >do without actually being inside the heart. >------------------------- >Lester ... I thought your blow-by-blow was fascinating and interesting. But how did they do an ablation without going inside the heart?  And if they didn't go inside the heart, why did you have catheters in the groin? I'm confused. > >Toni >CA > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Lester, So glad it went well for you. I'm living in Columbia SC. I'm a PA in Cardiology (how's that for a kick in the pants!!). I'm scheduled for ablation on 8/2/06 with Dr Wharton at MUSC but I'm going for another opinion at Cleveland Heart with Dr Natale first. If I like his success rate and hear that he has fewer complications, I'll go there. I'm considering enrolling in the cryoablation study instead of having the radioablation. Anyway, I hadn't heard of the program at Crawford Long. Sounds as though you received excellent care and treatment. I'm interested to know how they rank against those institutions that have bigger numbers of ablations...how did you get with them? .... lrobert@... wrote: Well, I 'm back. As most of you probably suspected, I DID have to spend the night. The same day discharge was only for the simple ablations, not for the kind of thing WE have. First thing they did was to draw some current labs, which showed my potassium a little low. I walked to the EP lab and climbed on the table. It looked like something out of science fiction with computers and screens everywhere. It took a while to get hooked up to all the monitors and deviceIt was cold. They covered me with warm sheets, and I finally stopped shaking. Then they gave me some joy juice. The gave me some IV benadryl, then versed and fentanyl, I'm pretty sure. But I'm not sure of anything after that. I didn't see Dr. Leon until I was half snowed. I was aware of him standing by by right side under a big clear plastic " bubble " that covered my midsection. I could hear him talking to the fellow, I presume, about positions and energy levels. I was totally unaware of any physical sensations. They must have given me more stuff, because the next thing I knew, Dr. Leon was leaning over me telling me they were done. The moment I had been anticipating for a month. I moved to a transport bed and moved into the hall. Dr. Leon and my wife walked along with me. I remember him saying that they would keep me on my toprol and taper it over the next month. That is the last I saw of Dr. Leon. This whole process took about 4 hours. The rest of the day I was pretty groggy, until the evening. By then I was wide awake, and the highlight of my stay was when the nurses removed the 3 sheaths that were still in me from my groin to my heart. The nurse said that they usually premedicate with pain medicine. I didn't think it was going to hurt, so I said go ahead. If anyone else is in this position, don't say " go ahead " . Get the pain medicine. Because it hurt like ______. As well, from the pain and pressure the nurse was applying, I went vagal and dropped my blood pressure and got all flushed--sort of like Bush did with his pretzel. They had atropine ready to give me to bring me out of the drop, but I came back OK. The rest of the night I didn't sleep much. I had slept most of the day, and when I lay back, my chest hurt. Deep breaths would bring a general soreness; a dull ache. No shortness of breath or afib. I did notice quite a few PAC's though. I mentioned the pain to the nurse, and she said I had tylenol, percocet and morphine available on request. I took the tylenol. I didn't really want the narcotic effect again. By about 5 am, the PAC's were bothering me and I started short runs of what I felt was afib. The nurse got an order from whoever was on call for 50mg of lopressor (metoprolol-short acting) and some more potassium supplement. This seemed to settle things. I finally saw the fellow (who's leaving Emory for Harvard this summer) who explained the procedure. He said that they isolated all of the pulmonary veins and then found activity on the other side and bottom of the left atrium. After that they were no longer able to induce afib. The rest of my stay was involved with anticoagulation. I was on a heparin drip from the time of the procedure until I left, over 24 hours later. I was started on Coumadin the afternoon of the procedure, and on Lovenox before leaving. I'll have to give myself the lovenox for the next 3 days, and then stay on Coumadin for 4-6 weeks. I'll go back in 3 days for an INR, then to see Dr. Leon in a month. He also order some IV decadron (steroid) that he said would improve the chest soreness. He said it was like pericarditis, and everyone got it. I got that about 8 hours ago, and the soreness is significantly better. The fellow and Dr. Leon said to expect runs of afib for awhile. They said that I should make no judgements on the success of the procedure for 3 months. I also have another MRI then. So, now I wait. I am having little bursts of afib or sinus tachycardia (as seen in the hospital), but they seem very benign, and seem to go away fairly quickly. I'm having a few PAC's along as well. I think I'm going to take some potassium supplements along with my vitamins to keep my level up. I'll check with the Nurse Practitioner that I see in 3 days at the coumadin clinic on that. Forgot to ask the doc about that, and he didn't bring it up. So that's my story so far. Sorry it's so long-winded, but all of these details are the kinds of things I've been curious about myself. BTW, I've been a P.A. in plastic surgery for 25 years, so am fascinated by all the stuff these guys can do without actually being inside the heart. Waiting 3 months to assess the success of this procedure is like our telling our facelift patients not to look in the mirror for 3 weeks. We can't help ourselves. And thanks for all of your support. It made my decision to go through with this alot easier. Lester Web Page - http://www.afibsupport.com List owner: AFIBsupport-owner For help on how to use the group, including how to drive it via email, send a blank email to AFIBsupport-help Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Yea.. I'm reading the blow by blow and thinking to myself, " where's the part where he pukes from the narcotics?? " ... I guess I just must be special that way! Stef cnetwork@... wrote: Wow, Lester, congratulations and thank you so much for sharing this with us. It is beginning to ease my mind quite a bit listening to all of you who have had ablations. At one time I would have been terrified to consider one; I feel more confident now. Please stay in touch and let us know how it goes...your experience sounds very similar to Stef's except for the projectile vomiting. Lil \ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 This is most excellent Lester, and congratulations! I'm jealous by your post operative well being too! May you be in NSR from here on out! Stef lrobert@... wrote: Well, I 'm back. As most of you probably suspected, I DID have to spend the night. The same day discharge was only for the simple ablations, not for the kind of thing WE have. First thing they did was to draw some current labs, which showed my potassium a little low. I walked to the EP lab and climbed on the table. It looked like something out of science fiction with computers and screens everywhere. It took a while to get hooked up to all the monitors and deviceIt was cold. They covered me with warm sheets, and I finally stopped shaking. Then they gave me some joy juice. The gave me some IV benadryl, then versed and fentanyl, I'm pretty sure. But I'm not sure of anything after that. I didn't see Dr. Leon until I was half snowed. I was aware of him standing by by right side under a big clear plastic " bubble " that covered my midsection. I could hear him talking to the fellow, I presume, about positions and energy levels. I was totally unaware of any physical sensations. They must have given me more stuff, because the next thing I knew, Dr. Leon was leaning over me telling me they were done. The moment I had been anticipating for a month. I moved to a transport bed and moved into the hall. Dr. Leon and my wife walked along with me. I remember him saying that they would keep me on my toprol and taper it over the next month. That is the last I saw of Dr. Leon. This whole process took about 4 hours. The rest of the day I was pretty groggy, until the evening. By then I was wide awake, and the highlight of my stay was when the nurses removed the 3 sheaths that were still in me from my groin to my heart. The nurse said that they usually premedicate with pain medicine. I didn't think it was going to hurt, so I said go ahead. If anyone else is in this position, don't say " go ahead " . Get the pain medicine. Because it hurt like ______. As well, from the pain and pressure the nurse was applying, I went vagal and dropped my blood pressure and got all flushed--sort of like Bush did with his pretzel. They had atropine ready to give me to bring me out of the drop, but I came back OK. The rest of the night I didn't sleep much. I had slept most of the day, and when I lay back, my chest hurt. Deep breaths would bring a general soreness; a dull ache. No shortness of breath or afib. I did notice quite a few PAC's though. I mentioned the pain to the nurse, and she said I had tylenol, percocet and morphine available on request. I took the tylenol. I didn't really want the narcotic effect again. By about 5 am, the PAC's were bothering me and I started short runs of what I felt was afib. The nurse got an order from whoever was on call for 50mg of lopressor (metoprolol-short acting) and some more potassium supplement. This seemed to settle things. I finally saw the fellow (who's leaving Emory for Harvard this summer) who explained the procedure. He said that they isolated all of the pulmonary veins and then found activity on the other side and bottom of the left atrium. After that they were no longer able to induce afib. The rest of my stay was involved with anticoagulation. I was on a heparin drip from the time of the procedure until I left, over 24 hours later. I was started on Coumadin the afternoon of the procedure, and on Lovenox before leaving. I'll have to give myself the lovenox for the next 3 days, and then stay on Coumadin for 4-6 weeks. I'll go back in 3 days for an INR, then to see Dr. Leon in a month. He also order some IV decadron (steroid) that he said would improve the chest soreness. He said it was like pericarditis, and everyone got it. I got that about 8 hours ago, and the soreness is significantly better. The fellow and Dr. Leon said to expect runs of afib for awhile. They said that I should make no judgements on the success of the procedure for 3 months. I also have another MRI then. So, now I wait. I am having little bursts of afib or sinus tachycardia (as seen in the hospital), but they seem very benign, and seem to go away fairly quickly. I'm having a few PAC's along as well. I think I'm going to take some potassium supplements along with my vitamins to keep my level up. I'll check with the Nurse Practitioner that I see in 3 days at the coumadin clinic on that. Forgot to ask the doc about that, and he didn't bring it up. So that's my story so far. Sorry it's so long-winded, but all of these details are the kinds of things I've been curious about myself. BTW, I've been a P.A. in plastic surgery for 25 years, so am fascinated by all the stuff these guys can do without actually being inside the heart. Waiting 3 months to assess the success of this procedure is like our telling our facelift patients not to look in the mirror for 3 weeks. We can't help ourselves. And thanks for all of your support. It made my decision to go through with this alot easier. Lester Web Page - http://www.afibsupport.com List owner: AFIBsupport-owner For help on how to use the group, including how to drive it via email, send a blank email to AFIBsupport-help Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Thanks Stef. I can't wait to stop by Starbucks to try the caffeine challenge. I'll let you know. Lester Re: Ablation in the morning--done! > >This is most excellent Lester, and congratulations! I'm jealous by your post operative well being too! May you be in NSR from here on out! >  > Stef > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 , Are you considering the CryoCath [balloon Acrtic Front] trial at Mayo / Mass General or CryoCor trial? Anyone have any experience with either of these procedures / trials? -Jim _____ From: AFIBsupport [mailto:AFIBsupport ] On Behalf Of Carroll Sent: Tuesday, May 02, 2006 9:09 PM To: AFIBsupport Subject: Re: Ablation in the morning--done! Lester, So glad it went well for you. I'm living in Columbia SC. I'm a PA in Cardiology (how's that for a kick in the pants!!). I'm scheduled for ablation on 8/2/06 with Dr Wharton at MUSC but I'm going for another opinion at Cleveland Heart with Dr Natale first. If I like his success rate and hear that he has fewer complications, I'll go there. I'm considering enrolling in the cryoablation study instead of having the radioablation. Anyway, I hadn't heard of the program at Crawford Long. Sounds as though you received excellent care and treatment. I'm interested to know how they rank against those institutions that have bigger numbers of ablations...how did you get with them? .... lrobert@... wrote: Well, I 'm back. As most of you probably suspected, I DID have to spend the night. The same day discharge was only for the simple ablations, not for the kind of thing WE have. First thing they did was to draw some current labs, which showed my potassium a little low. I walked to the EP lab and climbed on the table. It looked like something out of science fiction with computers and screens everywhere. It took a while to get hooked up to all the monitors and deviceIt was cold. They covered me with warm sheets, and I finally stopped shaking. Then they gave me some joy juice. The gave me some IV benadryl, then versed and fentanyl, I'm pretty sure. But I'm not sure of anything after that. I didn't see Dr. Leon until I was half snowed. I was aware of him standing by by right side under a big clear plastic " bubble " that covered my midsection. I could hear him talking to the fellow, I presume, about positions and energy levels. I was totally unaware of any physical sensations. They must have given me more stuff, because the next thing I knew, Dr. Leon was leaning over me telling me they were done. The moment I had been anticipating for a month. I moved to a transport bed and moved into the hall. Dr. Leon and my wife walked along with me. I remember him saying that they would keep me on my toprol and taper it over the next month. That is the last I saw of Dr. Leon. This whole process took about 4 hours. The rest of the day I was pretty groggy, until the evening. By then I was wide awake, and the highlight of my stay was when the nurses removed the 3 sheaths that were still in me from my groin to my heart. The nurse said that they usually premedicate with pain medicine. I didn't think it was going to hurt, so I said go ahead. If anyone else is in this position, don't say " go ahead " . Get the pain medicine. Because it hurt like ______. As well, from the pain and pressure the nurse was applying, I went vagal and dropped my blood pressure and got all flushed--sort of like Bush did with his pretzel. They had atropine ready to give me to bring me out of the drop, but I came back OK. The rest of the night I didn't sleep much. I had slept most of the day, and when I lay back, my chest hurt. Deep breaths would bring a general soreness; a dull ache. No shortness of breath or afib. I did notice quite a few PAC's though. I mentioned the pain to the nurse, and she said I had tylenol, percocet and morphine available on request. I took the tylenol. I didn't really want the narcotic effect again. By about 5 am, the PAC's were bothering me and I started short runs of what I felt was afib. The nurse got an order from whoever was on call for 50mg of lopressor (metoprolol-short acting) and some more potassium supplement. This seemed to settle things. I finally saw the fellow (who's leaving Emory for Harvard this summer) who explained the procedure. He said that they isolated all of the pulmonary veins and then found activity on the other side and bottom of the left atrium. After that they were no longer able to induce afib. The rest of my stay was involved with anticoagulation. I was on a heparin drip from the time of the procedure until I left, over 24 hours later. I was started on Coumadin the afternoon of the procedure, and on Lovenox before leaving. I'll have to give myself the lovenox for the next 3 days, and then stay on Coumadin for 4-6 weeks. I'll go back in 3 days for an INR, then to see Dr. Leon in a month. He also order some IV decadron (steroid) that he said would improve the chest soreness. He said it was like pericarditis, and everyone got it. I got that about 8 hours ago, and the soreness is significantly better. The fellow and Dr. Leon said to expect runs of afib for awhile. They said that I should make no judgements on the success of the procedure for 3 months. I also have another MRI then. So, now I wait. I am having little bursts of afib or sinus tachycardia (as seen in the hospital), but they seem very benign, and seem to go away fairly quickly. I'm having a few PAC's along as well. I think I'm going to take some potassium supplements along with my vitamins to keep my level up. I'll check with the Nurse Practitioner that I see in 3 days at the coumadin clinic on that. Forgot to ask the doc about that, and he didn't bring it up. So that's my story so far. Sorry it's so long-winded, but all of these details are the kinds of things I've been curious about myself. BTW, I've been a P.A. in plastic surgery for 25 years, so am fascinated by all the stuff these guys can do without actually being inside the heart. Waiting 3 months to assess the success of this procedure is like our telling our facelift patients not to look in the mirror for 3 weeks. We can't help ourselves. And thanks for all of your support. It made my decision to go through with this alot easier. Lester Web Page - http://www.afibsupport.com List owner: AFIBsupport-owner For help on how to use the group, including how to drive it via email, send a blank email to AFIBsupport-help Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Welcome home Lester. Your on your way. You'll do great. Rich O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Hey Rich, Glad you're there. You were my inspiration to ask for this. It's day 3 and I'm starting to feel optimistic. Don't want to get ahead of myself, but just spent 2 hours helping my daughter with a school project (building an egg launcher) and feel great. I couldn't have done it last week without going into afib. So far so good. Thanks again. Lester Re: Ablation in the morning--done! > >Welcome home Lester. Your on your way. You'll do great. >Rich O > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 > > , > > > > Are you considering the CryoCath [balloon Acrtic Front] trial at Mayo / Mass > General or CryoCor trial? > > > > Anyone have any experience with either of these procedures / trials? > > > > -Jim > > > Hi Jim, I had a CryoCor ablation last October..so far things are great.. I've had 2 short AFIB episodes since the ablation, one about a week after that lasted about 10-15 minutes and a 3 hour run at about 7 weeks out. Nothing since. I'm off the flecanide, but continuing the diltiazem for about 4 more weeks...then I'm off everything... Keeping the fingers crossed. Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 I don't know anything about Mass....I was going for cryoablation at Cleveland Heart... ... w6jcw w6jcw@...> wrote: > > , > > > > Are you considering the CryoCath [balloon Acrtic Front] trial at Mayo / Mass > General or CryoCor trial? > > > > Anyone have any experience with either of these procedures / trials? > > > > -Jim > > > Hi Jim, I had a CryoCor ablation last October..so far things are great.. I've had 2 short AFIB episodes since the ablation, one about a week after that lasted about 10-15 minutes and a 3 hour run at about 7 weeks out. Nothing since. I'm off the flecanide, but continuing the diltiazem for about 4 more weeks...then I'm off everything... Keeping the fingers crossed. Bob Web Page - http://www.afibsupport.com List owner: AFIBsupport-owner For help on how to use the group, including how to drive it via email, send a blank email to AFIBsupport-help Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Jim - I was in the CryoCor trial at s Hopkins. I unfortunately drew the " medicine " card so my trial was going to be three months of medication, and AFTER that three month period I would have had to have 3 more documented cases of afib and then I could cross over to the ablation side of the trial. I wanted to wait it out, but after starting the trial, my medication failed miserably and I was in and out of the ER every few days, so switched to having a regular RF ablation. I did not like the fact that despite being on medication (and documented) for some 5 years didn't count toward the trial.. as a scientist I understand why, but as a patient I had little sympathy. I also didn't like the fact that after the three months I had to have three MORE events.. that didn't seem very healthy for my heart - especially when you never know if your next event is the one from which you can't convert... You also have to be a pretty perfect candidate... you have to have failed 2 but not 3 medications, and you have to still be paroxsysmal (I barely squeezed in on that one), and your atrium cannot be larger than X, and your refraction rate has to be higher than Z. You can not have any other major health problems, and can not have had any heart surgery, or heart attacks. For a normal healthy (other than afib) person, it wasn't too difficult to qualify, but you do have to qualify and then you have to promise that you will follow whatever way you are randomly choosen for.. whether medication or procedure. I was also told that the cure rate was substantially lower than the RF, and that the surgery time was longer. My RF PVI was over 6 hours.. not sure how much longer a Cryo could have been! Stef > General or CryoCor trial? > > > > Anyone have any experience with either of these procedures / trials? > > > > -Jim > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 I was told the same thing - that the CryoCor catheter is not as effective as the RF energy source with the same ablation techniques [it's been available in Europe for several years now, and they are not " big " fans of it] Sounds like you made the right choice under the circumstance. -Jim _____ From: AFIBsupport [mailto:AFIBsupport ] On Behalf Of Quarter Acre Orchids Sent: Monday, May 08, 2006 4:35 PM To: AFIBsupport Subject: Re: Re: Ablation in the morning--done! Jim - I was in the CryoCor trial at s Hopkins. I unfortunately drew the " medicine " card so my trial was going to be three months of medication, and AFTER that three month period I would have had to have 3 more documented cases of afib and then I could cross over to the ablation side of the trial. I wanted to wait it out, but after starting the trial, my medication failed miserably and I was in and out of the ER every few days, so switched to having a regular RF ablation. I did not like the fact that despite being on medication (and documented) for some 5 years didn't count toward the trial.. as a scientist I understand why, but as a patient I had little sympathy. I also didn't like the fact that after the three months I had to have three MORE events.. that didn't seem very healthy for my heart - especially when you never know if your next event is the one from which you can't convert... You also have to be a pretty perfect candidate... you have to have failed 2 but not 3 medications, and you have to still be paroxsysmal (I barely squeezed in on that one), and your atrium cannot be larger than X, and your refraction rate has to be higher than Z. You can not have any other major health problems, and can not have had any heart surgery, or heart attacks. For a normal healthy (other than afib) person, it wasn't too difficult to qualify, but you do have to qualify and then you have to promise that you will follow whatever way you are randomly choosen for.. whether medication or procedure. I was also told that the cure rate was substantially lower than the RF, and that the surgery time was longer. My RF PVI was over 6 hours.. not sure how much longer a Cryo could have been! Stef > General or CryoCor trial? > > > > Anyone have any experience with either of these procedures / trials? > > > > -Jim > Quote Link to comment Share on other sites More sharing options...
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