Prayers for a Baby CHARGEr

January 30, 2007

Caleb, a six month old little boy with CHARGE, is having a very difficult time.

I learned of him through a mutual friend in our hometown, but I have yet to talk

with the parents.

Below is the update. Please keep them in your prayers...

Unfortunately, I have some bad news. We've learned that 's baby has no

immune system. He's six months old and has been sick continually for the past

couple months. They only now realized this problem because he has grown out of

whatever immunity he had from . Doctors at Duke believe they can do a

thymus gland transplant, so the challenge will be helping Caleb survive until

that can occur -- and obviously we have no idea when it can happen. They have to

keep him in a bubble, so the family is having a really rough time. Anyway, I

know your prayer list is already long, but please this little guy to your list

of CHARGErs to pray for.

Amy McKinley

Mom to MIGHTY MAX -- cHARGE, 19 months old (17 months corrected)

maxupdate.blogspot.com

---------------------------------

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January 30, 2007

done amy if you r to speak to this mum soon or the other people that know

them i have hope i have a friend from hosp different thing but she had her

cels taken out then made to regrow and is now at home after five years of

hosp so miracles do happen:)

>

> Caleb, a six month old little boy with CHARGE, is having a very

> difficult time. I learned of him through a mutual friend in our hometown,

> but I have yet to talk with the parents.

>

> Below is the update. Please keep them in your prayers...

>

> Unfortunately, I have some bad news. We've learned that 's baby has

> no immune system. He's six months old and has been sick continually for the

> past couple months. They only now realized this problem because he has grown

> out of whatever immunity he had from . Doctors at Duke believe they can

> do a thymus gland transplant, so the challenge will be helping Caleb survive

> until that can occur -- and obviously we have no idea when it can happen.

> They have to keep him in a bubble, so the family is having a really rough

> time. Anyway, I know your prayer list is already long, but please this

> little guy to your list of CHARGErs to pray for.

>

> Amy McKinley

> Mom to MIGHTY MAX -- cHARGE, 19 months old (17 months corrected)

> maxupdate.blogspot.com

>

> ---------------------------------

> Don't be flakey. Get Yahoo! Mail for Mobile and

> always stay connected to friends.

>

January 30, 2007

That must be incredibly scary. I'll keep the parents in my thoughts.

www.chargesyndrome.info