Guest guest Posted March 5, 2005 Report Share Posted March 5, 2005 Hi everyone, I have been a member of this group for over two years. I use to post alot, but in the last year, I haven't posted but rather read and absorbed. When we considered seeing a DAN doctor over two years ago, no one on this list was doing that for their children and there was a definate disconnect between our " apraxic " kids and those who were considered to be in the " autistic spectrum " that line has blurred in the past year, as people have come to realize that the damage to all of our children is neurological and that damage presents itself differently in every child. I came here when my daughter was not yet three, and now at five she is still very delayed in her speech and we have pushed ST and OT from the time she was 2.5. We too looked into biomedical interventions early on, but I couldn't make the jump, I didn't see other moms of apraxic kids embracing that path and I just wanted so much to believe she would get it, and everything would bloom for her. I am writing because the reality of speech delays is that some children will indeed BLOOM, and do so in the blink of an eye, but there is no way to know who those children are...no test that says this one will still be struggling in two years and this one will be at level with peers. So the reality is, to ensure that all of our children have the ability to succeed and reach their true potential, we have to look at the situation from the scenario that our child will be the one still struggling two or three years down the road, and if that attitude is taken, then everything you do, you do to acheive the goal of normalcy. If on that path your child gets everything to click, then hallalulah!!!! but does it matter how they get there to any of you? Don't you really just want them to get to the point where they are just a normal kid that you can't pick out of the crowd of their peers? Of course you do, we want that desperately! We started seeing a DAN doctor over 6 months ago. Why? Because a dear friend, whose son was considered to be " autistic " had gone to one for over two years and very slowly we saw changes in him, and in the six months previous to starting our own journey with a DAN doctor, we saw amazing things with him, so much so, that anyone who would meet him today would think was just a typical six year old, truly miraculous! So I thought, our Maddy isn't this little boy, and her issues are different than his, BUT she is damaged nuerologically, something is wrong in her brain...that is the commonality. (She had MRI and CT scans, both were normal). We now have our daughter on chelation therapy, b-12 injections, several supplements etc, she is continuing to make slow and steady gains as she always has, nothing " breakthrough " as of yet, but I know when I lay my head down, that I can truly say I am doing everything I know to do, and continuing to look into areas that I need to learn more about, to help her, to encourage her, to support her. Our children are a precious gift entrusted to us! We owe it to them to recognize that they need us, and if we don't do everything we can to help them, who will? So, please have your child tested, our daughter's mercury was off the charts, 56 ppm, the FDA recommendation is 3-5 ppm. I cried. Because she was always " behind " , slow to develop fine and gross motor, or soft signs, and there wasn't this " Ah-Ha " moment in her development where a link to a vaccine could be identified, I truly thought her mercury was going to be normal. I was so shocked. I had a Rhogam at 6 months pregnant with her and also have 4 amalgam fillings. We just don't know when or how, but we can know IF they are poisoned by heavy metals and then there is a protocol to detoxify them, so why would we not take this step? Tricia, best wishes to you with your son, I think you are doing the absolute best thing! Quote Link to comment Share on other sites More sharing options...
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