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I was wondering if anyone could help me....

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As you all know we are having a fundraiser in April for Eva and I will

have her photo album out and some CHARGE foundation flyer.

I want to also make an album about other families we know who are

dealing with CHARGE kids or about some CHARGE adults. I was hoping you

all can help and email me your story and a photo so I can make the

album. If you do not want to send a photo I understand 100%.

Thank you all,

Crystal mom to (11), (3), and Eva (21 month old CHARGEr)

wife to Dan in Illinois

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Crystal-

Are you looking for the story to be like a paragraph?? Focused on the " now "

or " where we've been " or what?

Michele W

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

supermama95

Sent: Sunday, January 28, 2007 8:50 PM

To: CHARGE

Subject: I was wondering if anyone could help me....

As you all know we are having a fundraiser in April for Eva and I will

have her photo album out and some CHARGE foundation flyer.

I want to also make an album about other families we know who are

dealing with CHARGE kids or about some CHARGE adults. I was hoping you

all can help and email me your story and a photo so I can make the

album. If you do not want to send a photo I understand 100%.

Thank you all,

Crystal mom to (11), (3), and Eva (21 month old CHARGEr)

wife to Dan in Illinois

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Like a page or so, like what your child is or has gone through.

Crystal

>

> Crystal-

>

> Are you looking for the story to be like a paragraph?? Focused on

the " now "

> or " where we've been " or what?

>

>

>

> Michele W

>

>

>

> _____

>

> From: CHARGE [mailto:CHARGE ] On

Behalf Of

> supermama95

> Sent: Sunday, January 28, 2007 8:50 PM

> To: CHARGE

> Subject: I was wondering if anyone could help me....

>

>

>

> As you all know we are having a fundraiser in April for Eva and I

will

> have her photo album out and some CHARGE foundation flyer.

> I want to also make an album about other families we know who are

> dealing with CHARGE kids or about some CHARGE adults. I was hoping

you

> all can help and email me your story and a photo so I can make the

> album. If you do not want to send a photo I understand 100%.

>

> Thank you all,

> Crystal mom to (11), (3), and Eva (21 month old

CHARGEr)

> wife to Dan in Illinois

>

>

>

>

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For a fundraiser, I would suggest having posters of a child, first name, and

their story. That is what I have seen at some of the hospital events and it is

most effective. Not everyone will take the opportunity to look through an album

but if you have posters around about the children, it's very powerful.

Just thought I'd offer my two cents! Good luck Crystal! Have you contacted

the newspaper and local radio stations? If not, do so as soon as possible...you

definitely want a story in the paper.

Love, Amy

supermama95 wrote:

As you all know we are having a fundraiser in April for Eva and I will

have her photo album out and some CHARGE foundation flyer.

I want to also make an album about other families we know who are

dealing with CHARGE kids or about some CHARGE adults. I was hoping you

all can help and email me your story and a photo so I can make the

album. If you do not want to send a photo I understand 100%.

Thank you all,

Crystal mom to (11), (3), and Eva (21 month old CHARGEr)

wife to Dan in Illinois

Amy McKinley

Mom to MIGHTY MAX -- cHARGE, 19 months old (17 months corrected)

maxupdate.blogspot.com

---------------------------------

Bored stiff? Loosen up...

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Okey-doke. I'll see if I can get something together. Do you have a

deadline?

Michele

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

supermama95

Sent: Sunday, January 28, 2007 9:07 PM

To: CHARGE

Subject: Re: I was wondering if anyone could help me....

Like a page or so, like what your child is or has gone through.

Crystal

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Hi Crystal!

I'll try to send some pictures and the Rasha story.

Janay

>

> As you all know we are having a fundraiser in April for Eva and I

will

> have her photo album out and some CHARGE foundation flyer.

> I want to also make an album about other families we know who are

> dealing with CHARGE kids or about some CHARGE adults. I was hoping

you

> all can help and email me your story and a photo so I can make the

> album. If you do not want to send a photo I understand 100%.

>

> Thank you all,

> Crystal mom to (11), (3), and Eva (21 month old CHARGEr)

> wife to Dan in Illinois

>

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,

Thank you!! Since SOME MANY people don't know about CHARGE and there

are going to be doctors there too I want to teach others about it

while raising money. I figured Eva's story is just one part of what

a child with CHARGE can go through. I also like Amy's idea about the

poster and I will have to get busy putting them together.

Thanks again,

Crystal and Eva

>

> Crystal,

>

> I'd be glad to write up something on and send you a pic of

her. I'll make a note to get it to you by March 1.

>

> Great idea to share lots of families stories!

>

>

> , mom to (5)

> http://kauffmanlak.blogspot.com/

>

> ---------------------------------

> Sucker-punch spam with award-winning protection.

> Try the free Yahoo! Mail Beta.

>

>

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