reflux after g-button placement

[Guest guest]

Has anyone ever experienced a severe worsening in reflux after getting

their g-button? Tate has had his a week and a half and we are now to the

point of having to do continuous feeding. At first we had to just cut back a

bit on his volume of each bolus, then cut back some more, then lengthen the

time for each bolus, then lengthen the time more. Now we are trying to go to

continuous. Something we've never had to do. He's even been throwing up with

that tonite! I spoke to his surgeon a couple of days ago and he said that

this happens w/ the mick-ey because of the balloon of water taking up space

in the stomach. We took a little out(don't want to do too much for fear of

it coming out) and we've tried thickening his milk w/ a bit of cereal. Still

throwing up. It's very scary because he doesn't do well w/ the throwing up.

We know he aspirates( have seen it on a swallow study) so we hate to see

him doing this. He freaks out each time it happens. HIs surgeon felt like it

could hopefully get better over time, otherwise we need to do some more

testing etc. It just seems like if anything it's getting worse!

Just wondered if anyone had any experience w/ this. Peyton did not have a

bit of trouble with his(he got a Bard at first though). You'd think I

wouldn't have to be having " new " problems spring up the second time around

but Tate is not disappointing us. Jeesh!

Corrie

mom to Peyton 10 CHARGE, Cy 7, 4 and Tate 5mos CHARGE

[Guest guest]

Corrie,

I'm so sorry to hear of Tate's reflux.

In our case, Kendra's reflux increased following the dilation of her trachea and

getting a stomach tube. It became worse and worse until she got a

fundoplication at age 6 months. And even following the fundoplication we had to

watch for reflux and aspirations. Finally at one year of age much of it

improved dramatically.

I mentioned in the e-mail I just wrote to Flo about a book called " Why Stomach

Acid is Good For You " . It details in great length that reflux, contrary to

popular wisdom, may well be the result of too little acid as opposed to too

much. The book describes the effect on reflux of many common types of antacids.

The book is not generally in favor of them.

I find it important to read what I can on a subject and this one really is

startling. I don't know if you would tend to agree or not, but at any rate you

may find it of interest to read.

Best wishes,

:-)

reflux after g-button placement

Has anyone ever experienced a severe worsening in reflux after getting

their g-button? Tate has had his a week and a half and we are now to the

point of having to do continuous feeding. At first we had to just cut back a

bit on his volume of each bolus, then cut back some more, then lengthen the

time for each bolus, then lengthen the time more. Now we are trying to go to

continuous. Something we've never had to do. He's even been throwing up with

that tonite! I spoke to his surgeon a couple of days ago and he said that

this happens w/ the mick-ey because of the balloon of water taking up space

in the stomach. We took a little out(don't want to do too much for fear of

it coming out) and we've tried thickening his milk w/ a bit of cereal. Still

throwing up. It's very scary because he doesn't do well w/ the throwing up.

We know he aspirates( have seen it on a swallow study) so we hate to see

him doing this. He freaks out each time it happens. HIs surgeon felt like it

could hopefully get better over time, otherwise we need to do some more

testing etc. It just seems like if anything it's getting worse!

Just wondered if anyone had any experience w/ this. Peyton did not have a

bit of trouble with his(he got a Bard at first though). You'd think I

wouldn't have to be having " new " problems spring up the second time around

but Tate is not disappointing us. Jeesh!

Corrie

mom to Peyton 10 CHARGE, Cy 7, 4 and Tate 5mos CHARGE

[Guest guest]

Corrie,

Does Tate have a Nissen done too, or did they just put the g-tube in the last

time around? The Nissen takes up a lot of stomach space as well.

And he doesn't have any other signs of something like a viral or bacterial

infection brewing (no fever, acting sick)?

On the Feeding List-serve, there are several parents who deal with lots of

vomiting. One thing I have read they do to " prevent " it is that they remove

some of the stomach contents when the kid starts to gag--this alleviates the

need enough to stop it. Then they slowly put the food back in.

I hope that this resolves sooner instead of later.

(mom to Evan, 18 months)

Mike & Corrie Young wrote:

Has anyone ever experienced a severe worsening in reflux after getting

their g-button? Tate has had his a week and a half and we are now to the

point of having to do continuous feeding. At first we had to just cut back a

bit on his volume of each bolus, then cut back some more, then lengthen the

time for each bolus, then lengthen the time more. Now we are trying to go to

continuous. Something we've never had to do. He's even been throwing up with

that tonite! I spoke to his surgeon a couple of days ago and he said that

this happens w/ the mick-ey because of the balloon of water taking up space

in the stomach. We took a little out(don't want to do too much for fear of

it coming out) and we've tried thickening his milk w/ a bit of cereal. Still

throwing up. It's very scary because he doesn't do well w/ the throwing up.

We know he aspirates( have seen it on a swallow study) so we hate to see

him doing this. He freaks out each time it happens. HIs surgeon felt like it

could hopefully get better over time, otherwise we need to do some more

testing etc. It just seems like if anything it's getting worse!

Just wondered if anyone had any experience w/ this. Peyton did not have a

bit of trouble with his(he got a Bard at first though). You'd think I

wouldn't have to be having " new " problems spring up the second time around

but Tate is not disappointing us. Jeesh!

Corrie

mom to Peyton 10 CHARGE, Cy 7, 4 and Tate 5mos CHARGE

[Guest guest]

We had to go back and forth for awhile until Kennedy could really handle

things - we had to adjust, go back to continuous when necessary and then get

the boluses worked out over a long time. It was worth it though to keep the

fundo intact and work our way up to the boluses. Hope the throwing up stops

soon - scary when you've had a fundo!

>

> Has anyone ever experienced a severe worsening in reflux after getting

> their g-button? Tate has had his a week and a half and we are now to the

> point of having to do continuous feeding. At first we had to just cut back

> a

> bit on his volume of each bolus, then cut back some more, then lengthen

> the

> time for each bolus, then lengthen the time more. Now we are trying to go

> to

> continuous. Something we've never had to do. He's even been throwing up

> with

> that tonite! I spoke to his surgeon a couple of days ago and he said that

> this happens w/ the mick-ey because of the balloon of water taking up

> space

> in the stomach. We took a little out(don't want to do too much for fear of

> it coming out) and we've tried thickening his milk w/ a bit of cereal.

> Still

> throwing up. It's very scary because he doesn't do well w/ the throwing

> up.

> We know he aspirates( have seen it on a swallow study) so we hate to see

> him doing this. He freaks out each time it happens. HIs surgeon felt like

> it

> could hopefully get better over time, otherwise we need to do some more

> testing etc. It just seems like if anything it's getting worse!

> Just wondered if anyone had any experience w/ this. Peyton did not have a

> bit of trouble with his(he got a Bard at first though). You'd think I

> wouldn't have to be having " new " problems spring up the second time around

> but Tate is not disappointing us. Jeesh!

>

> Corrie

> mom to Peyton 10 CHARGE, Cy 7, 4 and Tate 5mos CHARGE

>

>

[Guest guest]

,

We actually do not have a fundo. Didn't think we needed one! He had a little

reflux before the g-button, but nothing we couldn't control w/ modifications

like doing his bolus over longer periods of time, remaining upright for a

while after a feed, etc. Now, we have gone to continuous on the lowest

rate/amount possible and we're still spitting up!

, the theory of low stomach acid makes sense to me. If you're throwing

up a lot wouldn't the acid be low due to losing it w/ each throw up? And low

acid would make for slower digestion would it not? Just me guessing. I've

just always had a theory w/ all my kids that once you have a reflux episode

they seem to snowball from there. Conversely, the longer you can go w/ out

one(possibly giving more time for the acid to build back up) the better you

can come out of a reflux cycle(which is what I think my kids have-cycles,

sometimes it's not even present and others, especially right now, majorly

present) I'm going to have to look that book up.

It's just so frustrating to be developing " new " problems!!

Corrie

>

> We had to go back and forth for awhile until Kennedy could really handle

> things - we had to adjust, go back to continuous when necessary and then

> get

> the boluses worked out over a long time. It was worth it though to keep

> the

> fundo intact and work our way up to the boluses. Hope the throwing up

> stops

> soon - scary when you've had a fundo!

>

>

> On 1/28/07, Mike & Corrie Young <mcyoung6@... <mcyoung6%40gmail.com>>

> wrote:

> >

> > Has anyone ever experienced a severe worsening in reflux after getting

> > their g-button? Tate has had his a week and a half and we are now to the

> > point of having to do continuous feeding. At first we had to just cut

> back

> > a

> > bit on his volume of each bolus, then cut back some more, then lengthen

> > the

> > time for each bolus, then lengthen the time more. Now we are trying to

> go

> > to

> > continuous. Something we've never had to do. He's even been throwing up

> > with

> > that tonite! I spoke to his surgeon a couple of days ago and he said

> that

> > this happens w/ the mick-ey because of the balloon of water taking up

> > space

> > in the stomach. We took a little out(don't want to do too much for fear

> of

> > it coming out) and we've tried thickening his milk w/ a bit of cereal.

> > Still

> > throwing up. It's very scary because he doesn't do well w/ the throwing

> > up.

> > We know he aspirates( have seen it on a swallow study) so we hate to see

> > him doing this. He freaks out each time it happens. HIs surgeon felt

> like

> > it

> > could hopefully get better over time, otherwise we need to do some more

> > testing etc. It just seems like if anything it's getting worse!

> > Just wondered if anyone had any experience w/ this. Peyton did not have

> a

> > bit of trouble with his(he got a Bard at first though). You'd think I

> > wouldn't have to be having " new " problems spring up the second time

> around

> > but Tate is not disappointing us. Jeesh!

> >

> > Corrie

> > mom to Peyton 10 CHARGE, Cy 7, 4 and Tate 5mos CHARGE

> >

> >

[Guest guest]

My son has had THE worst reflux ever. He is almost 10 now. When he

was born he wasn't able to eat so they put in a g-tube without the fundo

first. I think, looking back, he had really bad reflux initially, but you

wouldn't know it because he wasn't throwing up, but he was also on a

ventilator. Anyway, when they put the tube in the nurses would bolus him

and everything would come up. His respitory status would get worse after a

feeding. So we went to continuous with no luck. After 3 weeks of this, he

ended up with double pneumonia and in the ICU for 2 months without getting

any food. They couldn't feed him because when he got fed it would be

aspirated right into the lungs. He nearly died from this. After 4 weeks of

letting him recover and breathing was a bit better, but still no where

great, they operated and did the fundo. It was no picnic after that either.

My son has never been able to take a large amount of food at once, he tops

off at around 6 ounces, even today. He needs small frequent meals. Of

course he has an unusable 2/3 of his stomach from the fundo.

My suggestion would be to contact the GI and the surgeon and let them know

what is going on and try heavy anti-reflux meds first. If he is already on

something, he may need a lot more.

Good luck, keep us posted. I feel for you as this is probably my son's

worst problem. He is just starting to eat by mouth but it is very hard and

progressing very slowly. He has made baby steps with feeding over the last

9 years, but is working on it and is getting there.

Debbie Matasker

Re: reflux after g-button placement

,

We actually do not have a fundo. Didn't think we needed one! He had a little

reflux before the g-button, but nothing we couldn't control w/ modifications

like doing his bolus over longer periods of time, remaining upright for a

while after a feed, etc. Now, we have gone to continuous on the lowest

rate/amount possible and we're still spitting up!

, the theory of low stomach acid makes sense to me. If you're throwing

up a lot wouldn't the acid be low due to losing it w/ each throw up? And low

acid would make for slower digestion would it not? Just me guessing. I've

just always had a theory w/ all my kids that once you have a reflux episode

they seem to snowball from there. Conversely, the longer you can go w/ out

one(possibly giving more time for the acid to build back up) the better you

can come out of a reflux cycle(which is what I think my kids have-cycles,

sometimes it's not even present and others, especially right now, majorly

present) I'm going to have to look that book up.

It's just so frustrating to be developing " new " problems!!

Corrie

On 1/28/07, Weir <kawfolks (AT) gmail (DOT) <mailto:kawfolks%40gmail.com> com>

wrote:

>

> We had to go back and forth for awhile until Kennedy could really handle

> things - we had to adjust, go back to continuous when necessary and then

> get

> the boluses worked out over a long time. It was worth it though to keep

> the

> fundo intact and work our way up to the boluses. Hope the throwing up

> stops

> soon - scary when you've had a fundo!

>

>

> On 1/28/07, Mike & Corrie Young <mcyoung6 (AT) gmail (DOT)

<mailto:mcyoung6%40gmail.com> com <mcyoung6%40gmail.com>>

> wrote:

> >

> > Has anyone ever experienced a severe worsening in reflux after getting

> > their g-button? Tate has had his a week and a half and we are now to the

> > point of having to do continuous feeding. At first we had to just cut

> back

> > a

> > bit on his volume of each bolus, then cut back some more, then lengthen

> > the

> > time for each bolus, then lengthen the time more. Now we are trying to

> go

> > to

> > continuous. Something we've never had to do. He's even been throwing up

> > with

> > that tonite! I spoke to his surgeon a couple of days ago and he said

> that

> > this happens w/ the mick-ey because of the balloon of water taking up

> > space

> > in the stomach. We took a little out(don't want to do too much for fear

> of

> > it coming out) and we've tried thickening his milk w/ a bit of cereal.

> > Still

> > throwing up. It's very scary because he doesn't do well w/ the throwing

> > up.

> > We know he aspirates( have seen it on a swallow study) so we hate to see

> > him doing this. He freaks out each time it happens. HIs surgeon felt

> like

> > it

> > could hopefully get better over time, otherwise we need to do some more

> > testing etc. It just seems like if anything it's getting worse!

> > Just wondered if anyone had any experience w/ this. Peyton did not have

> a

> > bit of trouble with his(he got a Bard at first though). You'd think I

> > wouldn't have to be having " new " problems spring up the second time

> around

> > but Tate is not disappointing us. Jeesh!

> >

> > Corrie

> > mom to Peyton 10 CHARGE, Cy 7, 4 and Tate 5mos CHARGE

> >

> >

[Guest guest]

Corrie,

Yes, I think the low acid could definitely slow down the process a lot. Food

needs a certain amount of acid to digest properly. I think the lack of

digesting the food could lead to the vomiting also.

There is controversy over this topic. But the theories and information makes a

lot of sense to me as well.

Hoping you find good solutions very soon,

:-)

Re: reflux after g-button placement

,

We actually do not have a fundo. Didn't think we needed one! He had a little

reflux before the g-button, but nothing we couldn't control w/ modifications

like doing his bolus over longer periods of time, remaining upright for a

while after a feed, etc. Now, we have gone to continuous on the lowest

rate/amount possible and we're still spitting up!

, the theory of low stomach acid makes sense to me. If you're throwing

up a lot wouldn't the acid be low due to losing it w/ each throw up? And low

acid would make for slower digestion would it not? Just me guessing. I've

just always had a theory w/ all my kids that once you have a reflux episode

they seem to snowball from there. Conversely, the longer you can go w/ out

one(possibly giving more time for the acid to build back up) the better you

can come out of a reflux cycle(which is what I think my kids have-cycles,

sometimes it's not even present and others, especially right now, majorly

present) I'm going to have to look that book up.

It's just so frustrating to be developing " new " problems!!

Corrie

>

> We had to go back and forth for awhile until Kennedy could really handle

> things - we had to adjust, go back to continuous when necessary and then

> get

> the boluses worked out over a long time. It was worth it though to keep

> the

> fundo intact and work our way up to the boluses. Hope the throwing up

> stops

> soon - scary when you've had a fundo!

>

>

> On 1/28/07, Mike & Corrie Young <mcyoung6@... <mcyoung6%40gmail.com>>

> wrote:

> >

> > Has anyone ever experienced a severe worsening in reflux after getting

> > their g-button? Tate has had his a week and a half and we are now to the

> > point of having to do continuous feeding. At first we had to just cut

> back

> > a

> > bit on his volume of each bolus, then cut back some more, then lengthen

> > the

> > time for each bolus, then lengthen the time more. Now we are trying to

> go

> > to

> > continuous. Something we've never had to do. He's even been throwing up

> > with

> > that tonite! I spoke to his surgeon a couple of days ago and he said

> that

> > this happens w/ the mick-ey because of the balloon of water taking up

> > space

> > in the stomach. We took a little out(don't want to do too much for fear

> of

> > it coming out) and we've tried thickening his milk w/ a bit of cereal.

> > Still

> > throwing up. It's very scary because he doesn't do well w/ the throwing

> > up.

> > We know he aspirates( have seen it on a swallow study) so we hate to see

> > him doing this. He freaks out each time it happens. HIs surgeon felt

> like

> > it

> > could hopefully get better over time, otherwise we need to do some more

> > testing etc. It just seems like if anything it's getting worse!

> > Just wondered if anyone had any experience w/ this. Peyton did not have

> a

> > bit of trouble with his(he got a Bard at first though). You'd think I

> > wouldn't have to be having " new " problems spring up the second time

> around

> > but Tate is not disappointing us. Jeesh!

> >

> > Corrie

> > mom to Peyton 10 CHARGE, Cy 7, 4 and Tate 5mos CHARGE

> >

> >