Guest guest Posted January 27, 2007 Report Share Posted January 27, 2007 Happy Birthday, Miss Kennedy! And Krista - I know you'll do fabulous! What an honor it is knowing you!! and : Sorry to hear JD was having problems again. Hopefully the sleep study will show something. also has had apnea, but no longer uses CPAP. When do they think JD can have the atresia repair? 's was also membrane and she had one transpalatal surgery and (knock on wood) none since. The ENT took out tonsils and adenoids before he'd take out the trach for good, also. After that she was on a nose-mask for the CPAP for central apnea. She started complaining about wearing it this past Fall and doesn't wear it now. We think the settings need re-done or she doesn't need it now. We need to have a new sleep study done to see whether she should or should not be using it. We've always gone by her " indicators " before, and she usually knows her body and what she needs. So good luck with things, there. Friends in CHARGE, Marilyn Ogan Mom of (14 yrs, CHARGE+ JRA) Mom of Ken (17 yrs, Asperger's) Wife of Rick oganm@... Quote Link to comment Share on other sites More sharing options...
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