No Sleep

[Guest guest]

Hi.. So many of you are having trouble sleeping and yet I can't seem to keep

my eyes open lately. I am falling asleep early and not wanting to get out of

bed in the morning. It takes me a long time to " wake up " and then I feel

like I need a nap in the afternoon. I am getting plenty of sleep but I have

also been feeling the emotional misery that so many of you are. Also going

through a divorce and all those diffucult and frightening transitions. I

have never had to be responsible for myself and my kids before and I am

having a lot of anxiety over this. I work part time but there are times I

almost wish I could have the luxury of being able to just be a housewife and

mom again. I love my job but it makes me tired and then I get so overwhelmed

with still having to take care of everything in the house and the kids once I

get home...not to mention living with Lyme/Babesia/Ehrlichia. Thanks for

letting me vent. I am praying for all of you and understand so much of what

you are going through. Oh, I finished my course of Mepron and the doc is

retesting to see if my Babesia titers went down. Wouldn't that be nice?? I

will let you all know how it turns out. Should know in about 10 days.

Blessings & Prayers,

Lorraine

[Guest guest]

Hummm we all must be telepathic....its been 3 weeks for me... Sleep what is

that....lol

No more antidepressants for me.... Im not crazy ...right !!!!!!

[Guest guest]

hmmmmm. Me too. For the past couple of weeks I've been dealing with INTENSE

anxiety, depression, tachycardia and trouble sleeping. Screwing around w/

antidepressants and anti-anxiety drugs and not able to get the balance yet.

I've been quiet on the list because I've been feeling so rotten emotionally.

In some kind of netherworld, having to find work, afraid that I am or will

backslide. Can't tell how much is abx related, herx or the disease or just

me struggling with to make something of my life as single mom in the big

city. I feel utterly unfocused, not really fogged but lacking motivation to

do anything and lonely. For the past year I've been in a relationship with

someone who I love but I don't want to marry. Because of my illness we kept

putting off the inevitable - breakup. He really wants marriage and I can't

keep him waiting around until my feelings change. So this has sent him

spiralling down and I feel bad about that on top of everything else. Then

sometimes I think I should settle w/ him because I'm sick and I shouldn't be

alone.

The intense nerve and muscle pain that I was experiencing a few weeks ago

dissipated fortunately, must have been a herx and really my only major

symptoms now are emotional.

Seems like a lot of us are in a particularly bad state. I haven't been able

to focus on activism while hunting for work. I've been feeling rotten about

that. On a positive note I will probably working on a lucrative book project

mostly at home IF I can get focussed which is a big IF.

Anyway I thought I'd chime in to all the misery. All things do pass, I know.

Prayers for all our healing on every level,

beth

[Guest guest]

In a message dated 00-01-23 23:13:06 EST, you write:

<< Hummm we all must be telepathic....its been 3 weeks for me... Sleep what

is

that....lol >>

Hmmm..... Must be " something in the air " - no sleep here either in about 3

wks.

[Guest guest]

In a message dated 00-01-23 21:55:48 EST, you write:

<< Thanks for

letting me vent. I am praying for all of you and understand so much of what

you are going through. Oh, I finished my course of Mepron and the doc is

retesting to see if my Babesia titers went down. Wouldn't that be nice?? I

will let you all know how it turns out. Should know in about 10 days.

Blessings & Prayers,

Lorraine >>

Dear Lorraine,

Please know that we're holding you in our thoughts & prayers!

Did you herx with the Mepron? We're going to LLMD within a week or so & are

expecting babesia meds - not sure if it'll be this one or not. I think this

is the " standard " drug, isn't it?

Be strong - you'll get through it all just fine!

Blessings & velcro hugs,

Chris

[Guest guest]

In a message dated 01/25/2000 5:39:02 PM Eastern Standard Time,

DobeLovr1@... writes:

<< Please know that we're holding you in our thoughts & prayers!

Did you herx with the Mepron? We're going to LLMD within a week or so & are

expecting babesia meds - not sure if it'll be this one or not. I think this

is the " standard " drug, isn't it?

>>

Dear

Thank you for your encouragement . Yes, Mepron along with another

antibiotic like zithromax or dynabac are the standard treatments for Babesia.

I did herx.. pretty badly at first. I then went off it for a couple of

weeks (I had about 2 months of herxing that never seemed to stop). After the

break I resumed treatment for a couple of more months and it wasn't as

severe. Now I am off and just on Doryx for Ehrlichia and Lyme. Waiting for

my babesia test results... let's keep our fingers crossed!

I am glad you have discovered your co-infection. The treatment for that will

greatly help in your Lyme recovery.

Angel Blessings,

Lor

[Guest guest]

In a message dated 00-01-25 21:52:31 EST, you write:

<< I am glad you have discovered your co-infection. >>

Hi Lor,

Thanks for responding! I was afraid the herxes were pretty terrible & that's

why none of the babesia victims would answer this ? for me. LOL!

Put an " S " on co-infections. Loaded with all 3. Blood pix look like star

wars!

Blessings & velcro hugs,

Chris

[Guest guest]

Hi beth,

I am sorry you are feeling so lousy, missed you on the list. I have a

hunch that is why the list is so slow lately, a lot of us are really just

done in with pain and this disease. I have bouts of not sleeping too, which

I really hate as I am in so much pain lately, I pray for sleep just to get

away from it. Seems all joints are screaming. I guess it is the snow and

cold weather we have here in the east. I finally found that if I take two

Xanax I can sleep for several hours.

Sorry you are so torn about what to do with the boyfriend, I am sure you

will make the right decision. It is best to do it as soon as you can, you

don't want to hurt this guy anymore than necessary if your answer is NO.

As for working, do you really think you can handle that now??? I hate to

see you attempt to do it and fail and get more depressed. The book project

sounds good though, can you work at that when you are having better days???

I hope this letter finds you feeling lots better, remember even when you

don't post, those of us who know and love you are thinking about you and you

are in our prayers.

Love,

Marta

> From: beth <elsbeth@...>

>

> hmmmmm. Me too. For the past couple of weeks I've been dealing with

INTENSE

> anxiety, depression, tachycardia and trouble sleeping. Screwing around w/

> antidepressants and anti-anxiety drugs and not able to get the balance

yet.

> I've been quiet on the list because I've been feeling so rotten

emotionally.

> In some kind of netherworld, having to find work, afraid that I am or will

> backslide. Can't tell how much is abx related, herx or the disease or just

> me struggling with to make something of my life as single mom in the big

> city. I feel utterly unfocused, not really fogged but lacking motivation

to

> do anything and lonely. For the past year I've been in a relationship with

> someone who I love but I don't want to marry. Because of my illness we

kept

> putting off the inevitable - breakup. He really wants marriage and I can't

> keep him waiting around until my feelings change. So this has sent him

> spiralling down and I feel bad about that on top of everything else. Then

> sometimes I think I should settle w/ him because I'm sick and I shouldn't

be

> alone.

>

> The intense nerve and muscle pain that I was experiencing a few weeks ago

> dissipated fortunately, must have been a herx and really my only major

> symptoms now are emotional.

>

> Seems like a lot of us are in a particularly bad state. I haven't been

able

> to focus on activism while hunting for work. I've been feeling rotten

about

> that. On a positive note I will probably working on a lucrative book

project

> mostly at home IF I can get focussed which is a big IF.

>

> Anyway I thought I'd chime in to all the misery. All things do pass, I

know.

>

> Prayers for all our healing on every level,

>

> beth

[Guest guest]

Hi Lorraine,

Sorry to hear you are in such an emotional tizzy, LD, Bab, & Ehrlichia

are enough to deal with. As for sleeping all the time, some of that could

be your depression at this life transition, and an even bigger part of it,

is most likely your body needing the rest. I find when I am herxing that I

can sleep the day and night away, only getting up for meds and small meals.

I think that the body/brain has something built in to help us heal while we

sleep, and if you are sleeping a lot, it is because you need to.

Let us know about the Babesia titers, and always know that we are here

to hear your venting as well as the good times you can share.

Hugs,

Marta

> From: Cheers4U@...

>

> Hi.. So many of you are having trouble sleeping and yet I can't seem to

keep

> my eyes open lately. I am falling asleep early and not wanting to get out

of

> bed in the morning. It takes me a long time to " wake up " and then I feel

> like I need a nap in the afternoon. I am getting plenty of sleep but I

have

> also been feeling the emotional misery that so many of you are. Also

going

> through a divorce and all those diffucult and frightening transitions. I

> have never had to be responsible for myself and my kids before and I am

> having a lot of anxiety over this. I work part time but there are times I

> almost wish I could have the luxury of being able to just be a housewife

and

> mom again. I love my job but it makes me tired and then I get so

overwhelmed

> with still having to take care of everything in the house and the kids

once I

> get home...not to mention living with Lyme/Babesia/Ehrlichia. Thanks for

> letting me vent. I am praying for all of you and understand so much of

what

> you are going through. Oh, I finished my course of Mepron and the doc is

> retesting to see if my Babesia titers went down. Wouldn't that be nice??

I

> will let you all know how it turns out. Should know in about 10 days.

>

> Blessings & Prayers,

> Lorraine

[Guest guest]

Thanks Marta for your message. As far as working goes, I really don't have a

choice. I have no resources and I'm a single mom and just have to try or

else everthing will come apart. I 'm just going to have to work at pacing

myself and managing stress.

I'm feeling better today. I took Adderall yesterday and oddly it worked

miraculously on this horrible anxious depression I've been in. FYI, Adderall

is a stimulant that's similar to Ritalin. I had taken both Ritalin and

Adderall a while ago for acquired ADD, depression and fatigue and it really

helped. I quit because I wasn't sure if it would exacerbate other Lyme

symptoms. I remembered yesterday that even though it's a stimulant, in some

people it can have a paradoxical effect on anxiety, i.e. reduce anxiety. And

bingo, it worked. I'm not sure I'll stay on it because I think it's just

treating a symptom and as you've read I have the feeling that my thyroid's

out of wack. But I am relieved to be functional again. I was able to do some

challenging intellectual work yesterday!

Love,

beth

[Guest guest]

My son (global delays, no speech) is three and we started him on pro-

efa three weeks ago. We have heard new sounds which is very exciting.

However, we have also noticed he has a great deal more energy. During

the day it is fine, but now he is not sleeping at night. He goes to bed

fine, but wakes up throughout the night wide awake. He kicks the wall

and wakes up his little sister. Any suggestions or anyone else

experience this with the pro-efa?

[Guest guest]

I just think this is so interesting...since we saw the same thing in my

boys. In fact my 2 year old globally apraxic, mildly hypotonic son was

truly gleeful when his coordination improved significantly only about 4 or 5

days after starting. He was literally running around the house and in

circles with a big smile on his face. Just a week before he couldn't run a

few steps without falling or running into a wall, chair, person - whatever

was visibly in front of him. It was clear that he noticed the difference and

was enjoying his new abilities.

And for my hyper ADHD-like 4 year old, we are still enjoying the loss of his

" evil twin " . He is calm and reasonable, no longer aggressive towards his

sibling - and now very unlikely to dart into a busy street (my biggest

concern before pro-EFA). The changes have been dramatic and sustained in

both boys...but again completely different effects. True too about walking

into a room and forgetting why you are there ... thats usually my reminder

that I forgot to take my fish oil! -

[ ] Re: No Sleep

what time a day do you supplement your son and what dosage?

If not already supplement in the AM, and for a few days you can try

a 1/2 dosage of whatever you are using currently. See -this is an

example of a time where twice as expensive or not the ProEFA Jr. may

be worth it! Actually I haven't heard this much here. Not the

energy part -that we've heard about -but the not sleeping part. In

fact the ProEFA it's been posted has helped children sleep through

the night.

Who knows -perhaps he's just excited about what he's able to do now -

the kids do notice the difference as reported by the parents of the

children who are able to talk to tell us. Or take them yourself -

you'll notice the difference, promise! No more walking into rooms

and forgetting why you are there ever.

My son Tanner also got way more energy with the EFA supplements

which was wonderful for him, while my ADHD son Dakota was calmed

down by them and able to focus more -which was wonderful for him.

What's viewed as negative by one parent is viewed as positive for

another parent. I had one of each and neither extreme is good. I

never considered myself " lucky " that Tanner was so calm and quiet

and didn't get into trouble like most other boys his age pre EFAs as

others told me.

It's strange the way it has just the affect needed for each of my

boys. Tanner needed to have more energy because with his low tone

and motor planning issues even though both weren't severe or

anything - he was lethargic, moved slow, didn't run around much like

other kids his age and when he did he would tire quickly. I was

thrilled to have Tanner act a bit hyper at times, which is normal -

yay! At least once on EFAs the two boys were on the same level.

=====

[Guest guest]

Can anyone advise my son will not go to bed. He stays up all night till morning.

We have not been able to send him to school for about a week because of this new

habit. We put him into bed and he goes and then jumps up and get out never to

return.

Thanks

tired mom

[ ] Re: panic attack-like behaviors developed after

neurofeedback

My neurofeedback therapist said this does happen to some people and

that the quickest way to get past it is to continue NFB. The brain

is " resetting " (not the technical term) and it has to work thru some

of the old gunk to get better. It's basically like a cleansing we

see with some supplements; where you have to endure the negative for

a little bit while the body clears out some stuff.

I would speak to your NFB therapist and see what they say. My son

went to NFB for extreme anxiety and he lost that quickly, but then

switched to ADHD type behaviors. We have continued to do NFB thru

the unpleasant symptoms and they always level out quickly.

I'm sorry your experience was bad. I think supplementing to help is

good, but am concerned that stopping b/c of an unpleasant symptoms

will keep you from getting the full benefit of NFB.

Wyndie

>

> Hi,

> I remember reading someone posted about developing panic attack

after

> starting neurofeedback.

> On the next day of his second neurofeedback session, my 22-year-

old ASD

> son started to have panic attack-like behaviors.

> Small ones but intense. We discontinued neurofeedback for now

until he

> is better and giving him lots of calming supplements like inositol

by

> the spoonfuls, GABA, taurine, etc. but not quite out of it yet.

> It seems that everytime he is hungry, his tolerance falls so short

and

> can't stand any oppositions and blows up. He never had such

behaviour

> before and I'm very concerned.

> I was wondering if anyone else had such experience and how you got

out

> of it.

> I will really appreciate any feedback.

> Best,

> Tazu

>

________________________________________________________________________

More new features than ever. Check out the new AOL Mail ! -

http://webmail.aol.com

[Guest guest]

Have you tried melatonin? We have never really had sleep issues, so

I am sure there are others better positioned to help you, but that

is something to consider.

Anne

> >

> > Hi,

> > I remember reading someone posted about developing panic attack

> after

> > starting neurofeedback.

> > On the next day of his second neurofeedback session, my 22-year-

> old ASD

> > son started to have panic attack-like behaviors.

> > Small ones but intense. We discontinued neurofeedback for now

> until he

> > is better and giving him lots of calming supplements like

inositol

> by

> > the spoonfuls, GABA, taurine, etc. but not quite out of it yet.

> > It seems that everytime he is hungry, his tolerance falls so

short

> and

> > can't stand any oppositions and blows up. He never had such

> behaviour

> > before and I'm very concerned.

> > I was wondering if anyone else had such experience and how you

got

> out

> > of it.

> > I will really appreciate any feedback.

> > Best,

> > Tazu

> >

>

>

>

>

>

>

_____________________________________________________________________

___

> More new features than ever. Check out the new AOL Mail ! -

http://webmail.aol.com

>

>

>

[Guest guest]

I used to have terrible insomnia and could not sleep until 7am most

nights. I ultimately threw out my mattress, which had become

contaminated with mildew. I have suggested to several people that if

they or their child simply isn't sleeping well for weeks and weeks, it

may be that the bed, bedding, and/or bedroom have some problem that

needs to be cleaned up. One woman removed the paperback books from

her headboard and that helped enormously. She had to do a few other

things to fully resolve it. She was willing to persist because that

one change had made such a big difference. Another person threw out

the crib mattress and did some serious general cleaning of their

toddler's bedroom. Within a week, he was sleeping almost normally. In

both cases, they were able to resolve the problem using this approach.

I have some more thoughts on sleep issues here:

http://www.healthgazelle.org/sleepissues.shtml

http://www.healthgazelle.org/bed.shtml

>

>

> Can anyone advise my son will not go to bed. He stays up all night

till morning. We have not been able to send him to school for about a

week because of this new habit. We put him into bed and he goes and

then jumps up and get out never to return.

>

> Thanks

> tired mom

--

Michele

talithamichele@...

http://www.atraceofme.com

Railing on

http://www.solanorail.com

[Guest guest]

Having such wonky sleep patterns can also be a sign of adrenal

issues.

Anne

> >

> >

> > Can anyone advise my son will not go to bed. He stays up all

night

> till morning. We have not been able to send him to school for

about a

> week because of this new habit. We put him into bed and he goes

and

> then jumps up and get out never to return.

> >

> > Thanks

> > tired mom

>

> --

> Michele

>

> talithamichele@...

> http://www.atraceofme.com

>

> Railing on

> http://www.solanorail.com

>

[Guest guest]

> >

> > >

> > >

> > > Can anyone advise my son will not go to bed. He stays up all

> night

> > till morning. We have not been able to send him to school for

> about a

> > week because of this new habit. We put him into bed and he goes

> and

> > then jumps up and get out never to return.

> > >

> > > Thanks

> > > tired mom

> >

Adrenal fatigue can cause this among many other things that others

have mentioned here. If this just started within the last week I'd

be looking at things that have happened over the last week (new

supplements, foods, exposure) and try analyzing that. Sometimes

yeast will cause difficulty going to sleep for my kid.

Sheresa

> > --

> > Michele

> >

> > talithamichele@

> > http://www.atraceofme.com

> >

> > Railing on

> > http://www.solanorail.com

> >

>

[Guest guest]

I just wanted to second re the bedding and sleep problems. My 5 year

old was sleeping on a futon w/o problems, then began to get up often

in the night, crying, upset, etc. After sleeping thru the night, he

was waking several times. At a friend's suggestion, I got a new bed

(not a futon) for him and voila--he's sleeping soundly again.

Nita

> >

> >

> > Can anyone advise my son will not go to bed. He stays up all night

> till morning.

>

>

[Guest guest]

Oh my Lord - try having 2 of them. We started with 1mg melatonin

years ago and it works well, however sometimes the sleep they get

is " good " sleep so they still get up but aren't as " everywhere " .

Most Dr.s only recommend up to 3mg. I also will give them Theanine

and 5 HTP. I'm lucky that the cheaper brands work with them (muscle

testing is a blessing) but I only use the good brands of Theanine

(Thorne).

Good Luck

Coffin

mcoffin@...

> > >

> > > Hi,

> > > I remember reading someone posted about developing panic attack

> > after

> > > starting neurofeedback.

> > > On the next day of his second neurofeedback session, my 22-year-

> > old ASD

> > > son started to have panic attack-like behaviors.

> > > Small ones but intense. We discontinued neurofeedback for now

> > until he

> > > is better and giving him lots of calming supplements like

> inositol

> > by

> > > the spoonfuls, GABA, taurine, etc. but not quite out of it yet.

> > > It seems that everytime he is hungry, his tolerance falls so

> short

> > and

> > > can't stand any oppositions and blows up. He never had such

> > behaviour

> > > before and I'm very concerned.

> > > I was wondering if anyone else had such experience and how you

> got

> > out

> > > of it.

> > > I will really appreciate any feedback.

> > > Best,

> > > Tazu

> > >

> >

> >

> >

> >

> >

> >

>

_____________________________________________________________________

> ___

> > More new features than ever. Check out the new AOL Mail ! -

> http://webmail.aol.com

> >

> >

> >

[Guest guest]

Have you tried Melatonin?

Pamela

" Courage is doing what you're afraid to do. There can be no courage unless

you're scared. "

Eddie Rickenbacker, top US fighter ace, WWI

[Guest guest]

> Can anyone advise my son will not go to bed. He stays up all night

till morning. We have not been able to send him to school for about a

week because of this new habit. We put him into bed and he goes and

then jumps up and get out never to return.

This can be related to phenol issues, or yeast overgrowth

http://www.danasview.net/phenol.htm

http://www.danasview.net/yeast.htm

Are you giving any supplements? Those can cause problems also.

Why can't he go to school? Is he awake all day also? If he sleeps

during the day and is awake at night, consider phenols first, and/or

the timing of certain supplements, then yeast.

Dana