Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 I wanted to give an update on . He is still in the ICU where he has been since after Thanksgiving. As you know he had the open heart surgery in October to correct the Tetralogy of Fallot. Last Thursday he had another heart surgery (catherization) to close the other holes in the heart that were still causing problems. (Initially they had thought that these would close on their own with time, and the surgeon thought it would be to risky to go into that part on the heart surgically.)The catherization (closed)procedure required FDA approval as it is still very new in the US. They were successful in closing the holes. They had hoped that would fix his heart problems ( & breathing problems) but he did not rally, and could not be taken off the ventilator. Today they took him back to the cath lab, and did another angiogram, and have found that he has another heart defect with the pulmonary artery!, and he needs to go in for another open heart surgery tomorrow. The cardiologist said his defect is very rare, and was not seen before in this combination of defects, but it needs to be fixed if he is to survive infancy. is now 6 1/2 months and he has been fighting for his life almost the entire time. It has been very difficult to see him intubated and struggling to breathe, but he is such a fighter, and I have been lucky to have seen him in the brief times when he has been off tubes and sedation long enough to smile and be a cute little baby. We hope this surgery finally fixes his heart and he can leave the hospital soon. I am sure he will have other issues to deal with in the future, but all we can do is take one day at a time. Tomorrow will be another big day in his life. I know your thoughts and prayers are with . Liz Quote Link to comment Share on other sites More sharing options...
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