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I wanted to give an update on .

He is still in the ICU where he has been since after Thanksgiving. As

you know he had the open heart surgery in October to correct the

Tetralogy of Fallot. Last Thursday he had another heart surgery

(catherization) to close the other holes in the heart that were still

causing problems. (Initially they had thought that these would close

on their own with time, and the surgeon thought it would be to risky

to go into that part on the heart surgically.)The catherization

(closed)procedure required FDA approval as it is still very new in

the US. They were successful in closing the holes. They had hoped

that would fix his heart problems ( & breathing problems) but he did

not rally, and could not be taken off the ventilator. Today they took

him back to the cath lab, and did another angiogram, and have found

that he has another heart defect with the pulmonary artery!, and he

needs to go in for another open heart surgery tomorrow. The

cardiologist said his defect is very rare, and was not seen before in

this combination of defects, but it needs to be fixed if he is to

survive infancy.

is now 6 1/2 months and he has been fighting for his life almost

the entire time. It has been very difficult to see him intubated and

struggling to breathe, but he is such a fighter, and I have been

lucky to have seen him in the brief times when he has been off tubes

and sedation long enough to smile and be a cute little baby. We hope

this surgery finally fixes his heart and he can leave the hospital

soon. I am sure he will have other issues to deal with in the future,

but all we can do is take one day at a time. Tomorrow will be another

big day in his life.

I know your thoughts and prayers are with .

Liz

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