Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 Hi there everyone! My name is Sarabeth and my daughter is Hope. Hope is 6 months old and has just been diagnosed with CHARGE (through the blood test). THANK GOD that she does not have too many of the severe symptoms. She is on a g-tube for swallowing difficutly - we will do another Bairum Swallow tomorrow. Hope had the Nissen - Fundo done about 2 weeks ago for her reflux problem that adds to breathing troubles. She is on oxygen at night for sleep apnea too. Hope does have hearing aids in both ears for her severe to profround hearing loss. Her ear is the " typical charge ear " which makes it difficult to keep the right hearing aid in. I look forward to learning more from you all and would be glad to hear what everyone else is going through. Have a GREAT day! Sarabeth Mom to Faith 2, and Hope 6 months (CAHRGE) Quote Link to comment Share on other sites More sharing options...
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