Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Thank you Lori for sharing this *very* compelling story about a TIA especially at your age. Many need to be reminded of this in their desperate desire to avoid coumadin. A stroke is a hundred times, a thousand times more devastating than taking Coumadin. I am surprised that your physician was going to do a cardioversion without your having been in therapeutic INR, since you were two weeks past initial diagnosis and were in persistent afib. My understanding is that you have to be in therapeutic INR range for at least two or three weeks (my EP insisted on 4) if 48 hours has passed since you went into afib or have a mandatory TEE. Lil In a message dated 4/16/2006 6:32:06 PM Pacific Standard Time, youngfibber36@... writes: Two weeks after the initial diagnosis, I went into persistent AF and my EP scheduled me for a cardioversion. As they were injecting " knock out " medication into my IV, I told my EP that I experienced severe vision problems the night before. He took me off the table and conducted a TEE. During the TEE they found a blood clot in my left atrium. I was literally moments from being cardioverted, which would have surely caused a stroke. The night prior, I had experienced a TIA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 You said it, sister! Maybe I am in the minority but I consider Coumadin a blessing, given my condition, and I certainly do not consider it poison. Lil In a message dated 4/16/2006 7:30:03 PM Pacific Standard Time, youngfibber36@... writes: Also, I think that most medications would be " poison " if taken in high enough doses. Calling Coumadin rat poison because it was once used that way seems a bit dramatic to me. :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Jim, not to be argumentative (well maybe just a little) but a case could be made for just about *any* substance being poisonous or toxic if used incorrectly, in the wrong dosage, etc. I read about a young man who died from drinking too much water while he was jogging (trying to hydrate). I am just curious as to why knocking blood thinners that *save people's lives* is so important to you. You've spent a lot of time today doing that. Lil In a message dated 4/16/2006 8:13:36 P.M. Pacific Standard Time, jshowker@... writes: Still used that way. Jim Showker Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 I have to chime in with my non-scientific, experience-based opinion here. A year and a half ago when I was first diagnosed with AF my doctor recommended Coumadin. I was (and am) a vegetarian and on a primarily whole foods diet (~80%). I was also taking 400 i.u. of high quality Vitamin E (Thorne) . As a " health nut " , I avoid things that are not natural when possible so I increased my vitamin E and declined the Coumadin. Two weeks after the initial diagnosis, I went into persistent AF and my EP scheduled me for a cardioversion. As they were injecting " knock out " medication into my IV, I told my EP that I experienced severe vision problems the night before. He took me off the table and conducted a TEE. During the TEE they found a blood clot in my left atrium. I was literally moments from being cardioverted, which would have surely caused a stroke. The night prior, I had experienced a TIA. I am 36 years old and cannot imagine how devastating a stroke would be to my lifestyle. I work hard, play hard, take good care of myself, and take my Coumadin every day. I do not like it, but the alternative is just too distressing to consider. Take care, Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 " I am surprised that your physician was going to do a cardioversion without your having been in therapeutic INR, since you were two weeks past initial diagnosis and were in persistent afib. " I was condensing a lot of information into a short space. At the time, I had only recently been diagnosed with AF. I was in it for two weeks, then I came out of it for about two weeks, then I went back into it. The second time I went back into it, my doctor scheduled the cardioversion within ~48 hours of the onset. I was not on Coumadin at all. Knowing what I know now, I am a bit surprised that he did not do a TEE since my INR was obviously not therapeutic. Now I take Coumadin and I would still likely request a TEE before cardioversion. I agree with you - it is just not worth risking a stroke. (Also, I think that most medications would be " poison " if taken in high enough doses. Calling Coumadin rat poison because it was once used that way seems a bit dramatic to me. :-) Take care Lil. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Still used that way. Jim Showker > You said it, sister! Maybe I am in the minority but I consider Coumadin > a blessing, given my condition, and I certainly do not consider it poison. > Lil > > In a message dated 4/16/2006 7:30:03 PM Pacific Standard Time, > youngfibber36@... writes: > > Also, I think that most medications would be " poison " if taken in > high enough doses. Calling Coumadin rat poison because it was once > used that way seems a bit dramatic to me. :-) > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 there is a threshold called LD 50, which stands for the amount of solid or liquid material (in one dose) it takes to kill 50% of test subjects. Every substance has an LD50 rating, independent of what the substance is. I don't know what the LD50 for water in humans is, but I'm thinking it's probably alot. I've definitely heard of over hydrating, though... cnetwork@... wrote: Jim, not to be argumentative (well maybe just a little) but a case could be made for just about *any* substance being poisonous or toxic if used incorrectly, in the wrong dosage, etc. I read about a young man who died from drinking too much water while he was jogging (trying to hydrate). I am just curious as to why knocking blood thinners that *save people's lives* is so important to you. You've spent a lot of time today doing that. Lil In a message dated 4/16/2006 8:13:36 P.M. Pacific Standard Time, jshowker@... writes: Still used that way. Jim Showker Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 Jim, I am not questioning this at all...it *is* a worrisome drug, and I wish I didn't have to take it. I am in NSR since my cardiovert last August and am only on beta blockers but there is no telling when I might " pop in, " and because of my mitral valve my EP says...I have to stay on it. It bothers me, and I wish there were an alternative. But it still beats a stroke. Lil In a message dated 4/17/2006 9:31:31 A.M. Pacific Standard Time, jshowker@... writes: I don't think I am so much lashing out at coumadin as lashing out at the whole medico/pharma/hospital complex. In the same way that I am fed up with the military industrial complex. Coumadin is a very dangerous drug. So dangerous that when prescribed it must be monitored with weekly blood tests to guard against overdose. It is so deadly that a 2X overdose for a few days might kill someone. In the PDR there are two whole pages of side effects to be guarded against plus many problems with combining with other drugs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 Lil, I don't think I am so much lashing out at coumadin as lashing out at the whole medico/pharma/hospital complex. In the same way that I am fed up with the military industrial complex. Coumadin is a very dangerous drug. So dangerous that when prescribed it must be monitored with weekly blood tests to guard against overdose. It is so deadly that a 2X overdose for a few days might kill someone. In the PDR there are two whole pages of side effects to be guarded against plus many problems with combining with other drugs. There are many natural blood thinners that nature has given us, E being but one of them. With very little effort, I am sure that a safe and equally effective blood thinner could be made from a combination of natural agents. It would just require the will to do so. It would probly still be safe at a 5-10X overdose, and might require much less monitoring, maybe only once a month, with hardly any side effects or combining problems. Of course, The underlying rule with competing therapies (such as chelation vs open heart surgery) is that the one that makes the most money ALWAYS is the one the American medical profession goes with. And they ostracize those doctors who go against the flow. There you have it. Of course coumadin saves lives. there are many other possibilities. Best, Jim Re: Re: Natural Blood thinner - My Experience > > > Jim, not to be argumentative (well maybe just a little) but a case could be > made for just about *any* substance being poisonous or toxic if used > incorrectly, in the wrong dosage, etc. I read about a young man who died from > drinking too much water while he was jogging (trying to hydrate). I am just curious > as to why knocking blood thinners that *save people's lives* is so important > to you. You've spent a lot of time today doing that. > Lil > > In a message dated 4/16/2006 8:13:36 P.M. Pacific Standard Time, > jshowker@... writes: > > Still used that way. > > Jim Showker > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 Jim, I've never uderstood the " natural " is better than " non-natural " philosopy. Many medicines, in fact, come from natural substances. There are some ongoing trials with newer coumadin-like medications that have potentially less side effects and less moitoring. Are they " natural " ? Personally, I don't care - as long as they are effective. There may be many natural blood thinners but I'm not aware of studies showing their efficacy vs coumadin therapy which, as you say and we know, saves lives. Also, if someone is taking a " natural " anti-coagulation therapy approach, do they still have their INR & PT tested? How would they know they're achieving optimum, protective levels? As for the money aspect to competing therapies: aspirin, a very cheap, easily available drug, is " prescribed " by most doctors for primary and secondary prevention. I don't discount that there's a medico/pharma/hospital complex, but IMO it's not an appropriate discussion in this forum. nsr 26 months / Flecainide > > Lil, > I don't think I am so much lashing out at coumadin as lashing out at the > whole medico/pharma/hospital complex. In the same way that I am fed up with > the military industrial complex. Coumadin is a very dangerous drug. So > dangerous that when prescribed it must be monitored with weekly blood tests > to guard against overdose. It is so deadly that a 2X overdose for a few > days might kill someone. In the PDR there are two whole pages of side > effects to be guarded against plus many problems with combining with other > drugs. > > There are many natural blood thinners that nature has given us, E being > but one of them. With very little effort, I am sure that a safe and equally > effective blood thinner could be made from a combination of natural agents. > It would just require the will to do so. It would probly still be safe at a > 5-10X overdose, and might require much less monitoring, maybe only once a > month, with hardly any side effects or combining problems. > > Of course, The underlying rule with competing therapies (such as > chelation vs open heart surgery) is that the one that makes the most money > ALWAYS is the one the American medical profession goes with. And they > ostracize those doctors who go against the flow. > > There you have it. Of course coumadin saves lives. there are many > other possibilities. > > Best, > Jim > > > Re: Re: Natural Blood thinner - My Experience > > > > > > > > Jim, not to be argumentative (well maybe just a little) but a case could > be > > made for just about *any* substance being poisonous or toxic if used > > incorrectly, in the wrong dosage, etc. I read about a young man who died > from > > drinking too much water while he was jogging (trying to hydrate). I am > just curious > > as to why knocking blood thinners that *save people's lives* is so > important > > to you. You've spent a lot of time today doing that. > > Lil > > > > In a message dated 4/16/2006 8:13:36 P.M. Pacific Standard Time, > > jshowker@... writes: > > > > Still used that way. > > > > Jim Showker > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 There is an implantable atrial defibrillator device that has been tested in the United States, but only approved in other countries. That sounds like just the ticket for my husband, but instead he is limited to drugs and lesser procedures. The medicines can have ghastly side effects (such as Sotalol, dofetilide, and deflecainide causing ventricular damage). When the drugs cause ventricular damage, then he can have such things as the far more expensive implantable cardioverter defibrillator (ICD). I think it is the drug companies that are 'wagging the dog'. Jo Anne Re: Re: Natural Blood thinner - My Experience Lil, Of course, The underlying rule with competing therapies (such as chelation vs open heart surgery) is that the one that makes the most money ALWAYS is the one the American medical profession goes with. And they ostracize those doctors who go against the flow. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 Hi Jo Anne What I did not add in my previous posting was the only thing they could come up with after I was taken off the sotalol and they were puzzled as to what to do was to implant a pacemaker. ine > > > Date: 2006/04/17 Mon PM 07:40:05 BST > To: AFIBsupport > > Subject: Re: Re: Natural Blood thinner - My Experience > > There is an implantable atrial defibrillator device that has been tested in the United States, but only approved in other countries. That sounds like just the ticket for my husband, but instead he is limited to drugs and lesser procedures. The medicines can have ghastly side effects (such as Sotalol, dofetilide, and deflecainide causing ventricular damage). > > When the drugs cause ventricular damage, then he can have such things as the far more expensive implantable cardioverter defibrillator (ICD). I think it is the drug companies that are 'wagging the dog'. > > Jo Anne > > > Re: Re: Natural Blood thinner - My Experience > > > Lil, > > Of course, The underlying rule with competing therapies (such as > chelation vs open heart surgery) is that the one that makes the most money > ALWAYS is the one the American medical profession goes with. And they > ostracize those doctors who go against the flow. > > > > Quote Link to comment Share on other sites More sharing options...
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