Help / Advice for a friend

[Guest guest]

Forwarded from a friend requesting help, Does anyone have any ideas? Reply on or

off list dbohn@...

Desperate for some help here. My 16 yr old daughter has been ill since

Oct 1st. She has been in and out of the hospital. She has severe

lower abd pain that even prevents her from walking very far, eating and

drinking cause more pain. She was referred to Texas Children's where

she has been seeing a pediatric gastro dr. She is now on her second

round of mega doses of steroids and entering her step down to find the

pain returning and now her hair falling out. They have scoped her and

the dr said that he found cells in her small intestine that are

indicative of Crohn's but cannot diagnose her as a Crohn's pt due to

the fact that she doesn't have the bleeding or diarrhea. She has been

on multiple medications since this has begun, but the only that has

given her any relief is the 40mg a day of the steriods. He has even

stated that if this doesn't work, he doesn't know what to do.

has been unable to attend school, work, anything since Oct 1st. Anyone

have any suggestions? Dr, test, medication suggestions? Between

everyone, I know with all the knowledge there has to be something that

can help.

Appreciate It,

Drew Bohn, EMT-P, EMS-I

Orange, Texas

[Guest guest]

They should try to get her into a diagnostic center such as &

White in Temple TX. or the Mayo Clinic in Rochester MN. Both are great!

I attended a conference at Mayo in the summer and they seem to be very

thorough in all that they do. & White will be the same. Hope

this info is helpful. Keep us posted! Our thoughts & prayers are with

her...

Shiplet, LP, AASP

EMS Education Coordinator

Collin County Community College

<><

" Tomorrow's Pre-Hospital Health Care Team...Learning Together Today "

[Guest guest]

Not knowing more specifics about the condition or the diagnosis makes it

hard to give a good answer. My sister has Crohns and she has taken the

remicade therapy with good results. I can tell you from HER situation and

nothing more, that its not something that has a cure per se, but meds for

comfort and reducing symptoms.....

Mike

Help / Advice for a friend

Forwarded from a friend requesting help, Does anyone have any ideas? Reply

on or off list dbohn@.... <mailto:dbohn%40gt.rr.com> com

Desperate for some help here. My 16 yr old daughter has been ill since

Oct 1st. She has been in and out of the hospital. She has severe

lower abd pain that even prevents her from walking very far, eating and

drinking cause more pain. She was referred to Texas Children's where

she has been seeing a pediatric gastro dr. She is now on her second

round of mega doses of steroids and entering her step down to find the

pain returning and now her hair falling out. They have scoped her and

the dr said that he found cells in her small intestine that are

indicative of Crohn's but cannot diagnose her as a Crohn's pt due to

the fact that she doesn't have the bleeding or diarrhea. She has been

on multiple medications since this has begun, but the only that has

given her any relief is the 40mg a day of the steriods. He has even

stated that if this doesn't work, he doesn't know what to do.

has been unable to attend school, work, anything since Oct 1st. Anyone

have any suggestions? Dr, test, medication suggestions? Between

everyone, I know with all the knowledge there has to be something that

can help.

Appreciate It,

Drew Bohn, EMT-P, EMS-I

Orange, Texas

[Guest guest]

I worked for a Dr. who used the Remicade therapy as well. The patients all said

they felt much better on the therapy. Consult with her physician to see if this

may be an option.

" A. " wrote: Not knowing more

specifics about the condition or the diagnosis makes it

hard to give a good answer. My sister has Crohns and she has taken the

remicade therapy with good results. I can tell you from HER situation and

nothing more, that its not something that has a cure per se, but meds for

comfort and reducing symptoms.....

Mike

Help / Advice for a friend

Forwarded from a friend requesting help, Does anyone have any ideas? Reply

on or off list dbohn@.... <mailto:dbohn%40gt.rr.com> com

Desperate for some help here. My 16 yr old daughter has been ill since

Oct 1st. She has been in and out of the hospital. She has severe

lower abd pain that even prevents her from walking very far, eating and

drinking cause more pain. She was referred to Texas Children's where

she has been seeing a pediatric gastro dr. She is now on her second

round of mega doses of steroids and entering her step down to find the

pain returning and now her hair falling out. They have scoped her and

the dr said that he found cells in her small intestine that are

indicative of Crohn's but cannot diagnose her as a Crohn's pt due to

the fact that she doesn't have the bleeding or diarrhea. She has been

on multiple medications since this has begun, but the only that has

given her any relief is the 40mg a day of the steriods. He has even

stated that if this doesn't work, he doesn't know what to do.

has been unable to attend school, work, anything since Oct 1st. Anyone

have any suggestions? Dr, test, medication suggestions? Between

everyone, I know with all the knowledge there has to be something that

can help.

Appreciate It,

Drew Bohn, EMT-P, EMS-I

Orange, Texas