Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 Hi Welcome. Glad to hear about your experience. Can you say more about the PVI? I am hoping to have one later this year and would be interested to hear anything you would like to share about the process itself. Thanks Sue > > Hi, > > I am new to the group and have just had a PVI, which was thought to be > successful although I will not know for sure for around six months. So far so > good, I was taken off the beta-blockers and diltaziem immediately and just kept > on the warfarin for the time being. I was surprised to hear that some of you > were kept on the medication after the ablation. Maybe they do it > differently here in the UK. > > I know it is a difficult decision to make with the risks attached, but I > suppose you have to weigh up the risks compared to quality of life and in my > case there was no contest as the AF situation was becoming unbearable. Luckily > I was able to find a good EP, who was as keen as I was to sort the problem > out. > > It is so nice to have my life back and not have to worry the whole time that > I am going to have an episode of AF, which nearly always meant I would have > to go to the ER to be monitored, sometimes for days. > > Since I joined the group it is so nice to read other people's experiences > and to know that you are not the only one as I had never heard of AF before I > was diagnosed. Reading your e-mails has given me a lot of knowledge and > helped me a lot to understand the condition. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Hi, Yes of course. The PVI was quite straight forward and took about three and a half hours. Not too bad it can take a lot longer. I was a bit worried as my EP said there was only a 60% chance of it being successful, but I figured that was better than not having it done. He said to be prepared to have it done more than once as it can take a few times to get it right and sometimes they never get it. This was not what I wanted to hear, but decided to go ahead. Thankfully I did, as so far as it has been successful. I was put under general anaesthetic for the procedure [usually it is done under local] as last time I had an EP study they had to cardiovert me four times. When I came round I felt a bit breathless due to the burning, but that soon wore off. The worst bit was having to lie still for several hours to allow the groin to heal. It was worth it though as I have had no problems since. Apparently I may need a touch up some time in the future, but that would not worry me as it went so well. After the procedure I still felt my heart rate was a bit high around 80 rising to a 100. Since then, it was only a few weeks ago, it has come down to around 60 bpm, which is good considering I am only on a low dose beta-blocker. My EP told me not to take anything, but I don't trust it a 100% yet. Also I had a slight heart attack about a year ago, so I feel it is better to veer on the side of caution. Hope that is helpful. Wishing you well. Pat Wish you well. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Hi, No problem. If you get the chance go for it, the PVI has made such a difference to my life, I cannot tell you. Good luck! Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Hi Pat Yes thanks. That is very helpful and makes me feel better about the possibilty of having one myself in the future. Sue > > Hi, > > Yes of course. The PVI was quite straight forward and took about three and > a half hours. > > Not too bad it can take a lot longer. I was a bit worried as my EP said > there was only a 60% chance of it being successful, but I figured that was > better than not having it done. He said to be prepared to have it done more than > once as it can take a few times to get it right and sometimes they never get > it. This was not what I wanted to hear, but decided to go ahead. > Thankfully I did, as so far as it has been successful. I was put under > general anaesthetic for the procedure [usually it is done under local] as last > time I had an EP study they had to cardiovert me four times. > > When I came round I felt a bit breathless due to the burning, but that soon > wore off. The worst bit was having to lie still for several hours to allow > the groin to heal. It was worth it though as I have had no problems since. > > Apparently I may need a touch up some time in the future, but that would not > worry me as it went so well. After the procedure I still felt my heart rate > was a bit high around 80 rising to a 100. Since then, it was only a few > weeks ago, it has come down to around 60 bpm, which is good considering I am > only on a low dose beta-blocker. My EP told me not to take anything, but I > don't trust it a 100% yet. Also I had a slight heart attack about a year ago, so > I feel it is better to veer on the side of caution. > > Hope that is helpful. > > Wishing you well. > > Pat > > > > > > > > > > Wish you well. > > Pat > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 I recently had a PVI ablation. unfortunately this weekend I went into A-fib. I have been put back on bisoprolol and diltaziem while I wait for a cardio-version. Hopefully I will go back into NSR on my own. When I had the ablation the EP took me off all medication. Was this wise? Do most people stay on medicaton for a while after ablation, does anybody know? I have been told that this bout of Af does not mean it has not worked, although at the moment I am feeling quite skeptical. Has anyone else had AF after ablation, but it has still been successful in the long term. I would appreciate any information I receive. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Hi Steph, Thanks for the advise. I had the PVI two weeks ago, so I suppose it is very early days. It is just they seemed all doom and gloom in the hospital. It is interesting that you mention that you had a flutter. I have had a fluttery feeling in my chest ever since the ablation so maybe I have a flutter too. I will mention it to them when I go for follow-up as that may be triggering the a-fib. Is that the same kind of procedure? I have been told to expect to have it done more than once. I cannot help feeling despondent though as I thought this was going to be a miracle cure. Who knows, it might be I will just have to be patient and give it more time. So you are still one medication, I thought it was a bit soon to take me off all of them! Many thanks Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Thanks Joanne, that gives me hope that all is not lost. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Thanks Gordon that's a great help. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Pat, I have not had an ablation, but it is my understanding that it works by scarring over certain misfiring nerve sites. Scarring takes time so, logically, it would take a while for the ablation to completely work. Jo Anne Re: PVI Ablation I recently had a PVI ablation. unfortunately this weekend I went into A-fib. I have been put back on bisoprolol and diltaziem while I wait for a cardio-version. Hopefully I will go back into NSR on my own. When I had the ablation the EP took me off all medication. Was this wise? Do most people stay on medicaton for a while after ablation, does anybody know? I have been told that this bout of Af does not mean it has not worked, although at the moment I am feeling quite skeptical. Has anyone else had AF after ablation, but it has still been successful in the long term. I would appreciate any information I receive. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 How long ago was your PVI? My PVI was 7 weeks ago today, and I am still on all the medication I was on prior to the procedure... I take 150 mg Atenelol, 675 mg Rhythmol, and 7.5 mg Warfarin per day. I will go back to the EP on May 22nd, and it is my understanding that I will be weened off the drugs then.. I'm guessing it will be the Rhythmol and Atenelol, and that I'll stay on Warfarin for probably another 6 weeks after that. I had both afib and aflutter two days after my ablation, and a couple more very short lived events within the past month. I was told specifically to expect afib in the first 3 months of healing, and not to be discouraged if that happened. Some people here have indicated that a more realistic time frame for complete healing is up to 9 months post PVI. Please don't be discouraged... especially if your PVI was very recently... they really annoy your heart during the procedure, and I'm sure it takes a good while to heal properly and completely. best of luck returning to NSR. Stef STahaney@... wrote: I recently had a PVI ablation. unfortunately this weekend I went into A-fib. I have been put back on bisoprolol and diltaziem while I wait for a cardio-version. Hopefully I will go back into NSR on my own. When I had the ablation the EP took me off all medication. Was this wise? Do most people stay on medicaton for a while after ablation, does anybody know? I have been told that this bout of Af does not mean it has not worked, although at the moment I am feeling quite skeptical. Has anyone else had AF after ablation, but it has still been successful in the long term. I would appreciate any information I receive. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Steph thanks for your help, when I next go to the hospital I will ask them about the flutter. They said I might get that for a few days, but it has gone on a bit and I am quite aware of it. My rate has come right down, but I am still in AF with a bit of luck it may convert back. I feel quite optimistic again due to your reassurance that it takes time. I feel it must have worked a bit because last time I went into AF it took days to get the rate down and this has only been a few days. I will get some vitamin C as I am paranoid about getting a cold as that can trigger AF. Also, because of the warfarin I don't eat as many vegetables, so could probably do with some vitamins. Thanks again Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Hi Bob Thanks for the information, it seems most people stay on medication for a while after ablation. I think I must have been taken off too quickly as I felt like my AF was about to start all the time. It's better to be on medication at least you feel safer. Never mind, hopefully things will go better from now on. Good luck to you too. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 > How long ago was your PVI? My PVI was 7 weeks ago today, and I am still on all the medication I was on prior to the procedure... I take 150 mg Atenelol, 675 mg Rhythmol, and 7.5 mg Warfarin per day. > > I will go back to the EP on May 22nd, and it is my understanding that I will be weened off the drugs then.. I'm guessing it will be the Rhythmol and Atenelol, and that I'll stay on Warfarin for probably another 6 weeks after that. > > I had both afib and aflutter two days after my ablation, and a couple more very short lived events within the past month. I was told specifically to expect afib in the first 3 months of healing, and not to be discouraged if that happened. Some people here have indicated that a more realistic time frame for complete healing is up to 9 months post PVI. > > Please don't be discouraged... especially if your PVI was very recently... they really annoy your heart during the procedure, and I'm sure it takes a good while to heal properly and completely. > > best of luck returning to NSR. > > Stef > > STahaney@... wrote: > I recently had a PVI ablation. unfortunately this weekend I went into > A-fib. I have been put back on bisoprolol and diltaziem while I wait for a > cardio-version. Hopefully I will go back into NSR on my own. When I had the > ablation the EP took me off all medication. Was this wise? Do most people stay > on medicaton for a while after ablation, does anybody know? > I have been told that this bout of Af does not mean it has not worked, > although at the moment I am feeling quite skeptical. Has anyone else had AF after > ablation, but it has still been successful in the long term. > > I would appreciate any information I receive. > Pat: Stef's experience is consistent with what Dr. Natale's directions to me were. Some EP's take you off medication right after but it makes sense that the heart is somewhat traumatized and having some stability medication while it heals is a good idea. Personally, I was completely clean of anything but NSR for maybe 6 weeks after my ablation in November then developed a bunch of ectopics which I was told are benign and will settle down as time goes on, maybe up to a year. The ectopics are certainly preferable to the afib so even if I have them forever I'm better off than having the afib. My cardiologist says my heart is in better shape now than it was for some time before my ablation. Gordon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Hi Pat, I had a PVI ablation a little over six month's ago. I went into AFIB about 7 days after for about 10 minutes then converted. About 2 month's later I went into AFIB again for about 3 hours, then self converted. I have not had any events since. It is not unusual to have a few events for first three month's after an ablation. My EP is VERY conservative and I was left on Flecanide and diltaziem for 6 month's. A couple weeks ago my EP took me off the Flecanide but asked I continue the diltaziem for 2 more month's. Six more weeks and no more meds.. Still feeling great and keeping my fingers crossed. Good luck to you... Bob > > I recently had a PVI ablation. unfortunately this weekend I went into > A-fib. I have been put back on bisoprolol and diltaziem while I wait for a > cardio-version. Hopefully I will go back into NSR on my own. When I had the > ablation the EP took me off all medication. Was this wise? Do most people stay > on medicaton for a while after ablation, does anybody know? > I have been told that this bout of Af does not mean it has not worked, > although at the moment I am feeling quite skeptical. Has anyone else had AF after > ablation, but it has still been successful in the long term. > > I would appreciate any information I receive. > > Pat > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 it may be the miracle yet... don't give up or get discouraged.. two weeks is far too soon to be worried about it. And don't listen to the doom and gloom from anyone.. you are still healing and that takes time. I'm 7 weeks out and my catheter site still hurts if I stand too long... I assume that despite the fact that it looks ok from the outside, it must still be healing.. and because it's still healing, I can only assume my heart is as well! As for flutter .. in my case flutter was a very very very fast, but quite regular rhythm.. it's still an arrhythmia, but just not as irregular as afib (for me). The speeds can get quite scary (for me).. much moreso than afib ever did, so if I thought I were in flutter, I would go see someone about it.. it's easily detectable on an EKG. If you're just having a " light " fluttering, it could just be your heart being fragile from the surgery. I had a dull ache in my chest for a solid month after the surgery, despite them saying it was only going to last a few days. I will add that my EP told me to take Vitamin C for good healing. I take 2000 mg per day. Don't know if it helps, but it's a known healer, and it has certainly kept me healthy otherwise! I also take magnesium, folic acid, vit b6, b12 and coenzyme 10. I don't know if any of them do anything, but they are all heart friendly, so I take em! My EP approved them all, but specifically told me to take the Vit C. Ask yours perhaps? Stef STahaney@... wrote: Hi Steph, Thanks for the advise. I had the PVI two weeks ago, so I suppose it is very early days. It is just they seemed all doom and gloom in the hospital. It is interesting that you mention that you had a flutter. I have had a fluttery feeling in my chest ever since the ablation so maybe I have a flutter too. I will mention it to them when I go for follow-up as that may be triggering the a-fib. Is that the same kind of procedure? I have been told to expect to have it done more than once. I cannot help feeling despondent though as I thought this was going to be a miracle cure. Who knows, it might be I will just have to be patient and give it more time. So you are still one medication, I thought it was a bit soon to take me off all of them! Many thanks Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 > > Hi > Where in the UK did you have your ablation done, I am waiting for me > referral to come through for Harefield Hospital, I am on warfarin and > having daily episodes of Afib, none of the meds have worked so far. I > have had Afib for 4 years and had a PM in January 2003. > > ine > ine I had my PVI done by DR Clague at the Brompton, which is attached to the Harefield I believe Put yourself in his hands and you'll be fine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 Hi, Could you tell me if Clague performs this procedure on NHS or private. I have already had one PVI, which I am not sure is successful yet. If I need to have it done again my insurance company might not pay out. You seem to have a lot of faith in him. Any idea what his success rate is. Thanks in advance. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Re: PVI ablation > > Hi > Where in the UK did you have your ablation done, I am waiting for me > referral to come through for Harefield Hospital, I am on warfarin and > having daily episodes of Afib, none of the meds have worked so far. I > have had Afib for 4 years and had a PM in January 2003. > > ine > ine I had my PVI done by DR Clague at the Brompton, which is attached to the Harefield I believe Put yourself in his hands and you'll be fine I am still waiting for the referral to come through to see the EP, Dr Markidies. Web Page - http://www.afibsupport.com List owner: AFIBsupport-owner For help on how to use the group, including how to drive it via email, send a blank email to AFIBsupport-help Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. Quote Link to comment Share on other sites More sharing options...
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