re caitlyns breathing

[Guest guest]

Rita,

Are you all doing chest pt on a regular basis? Done before feeds-on the

emptiest stomach possible.

Do you have a suction machine?

Does Caitlyn have a strong-productive-cough?

Is there room in her feeding schedule to make sure she has enough water to

keep the mucus

loose so she can get it up and out?

If the heat is on in the house, do you have a humidifier running?

She may not be aspirating formula-it could still just be the mucus

accumlating.

in Ma. (, 21 yrs)

[Guest guest]

can any give advice to me caitlyn is still very chesty evan after loads

of anti biotics i think food is still going to her lungs she has the

fundiplication done wich has stopped the sickness but her caugh and

snotty nose has stayed the same she has inhalers but they dont seem to

be working she caughs all night reaching to could she have unilateral

artesia to we are going to see her ent dr next week i will be asking

then

[Guest guest]

sounds like bnit of aspiration to me

>

> Rita,

> Are you all doing chest pt on a regular basis? Done before feeds-on the

> emptiest stomach possible.

> Do you have a suction machine?

> Does Caitlyn have a strong-productive-cough?

> Is there room in her feeding schedule to make sure she has enough water to

>

> keep the mucus

> loose so she can get it up and out?

> If the heat is on in the house, do you have a humidifier running?

> She may not be aspirating formula-it could still just be the mucus

> accumlating.

>

> in Ma. (, 21 yrs)

>

>

[Guest guest]

Rita,

I don't recall how old your Caitlyn is, our son is turning 3 in April.

I'm sorry to hear your daughter is struggling with pnemonias. Is she

being fed by mouth or by tube? Has your GI or pediatrician run any

tests to confim aspiration pnemonia? Does your pulmonologist have her

on nebulizer treatments or an inhaler chamber?

Last year was tough for our son with pnemonias and respitory issues

almost back to back specifically heavy secretions seemed a problem

with a lot of congestion, gagging and retching. So far this year he

has been great. (knock on wood) with major improvement.

Things I believe have helped him are:

1)Ruling out it was not related to the food he was being given by mouth

or tube. Making sure the amount and timing of his G-tube feedings are

right so to bring down the chance of reflux being a contributing

factor. We also at one point had considered if he had a

and food allergy and ruled this out as well. For all attempts

to feed by mouth seemed to halt last year with

any sign of illness he just didn't feel well and could not handle it

well so we backed off and used the tube.

2)Giving an antibiotic that was effective (in our son's case Levequin

seemed to be the only thing to work.)

3)I think other key factors for him were...using nebulizer treatments

instead of the chamber. (It was an ongoing disagreement between

pediatrician and pulmonologist. We would go to pulmonogogist and be

given a chamber and inhalers, he would get pnemonia and back we went to

the pediatrician and he would put him on nebulizer treatments

specifically Xopenex and Pulmocourt. Ultimately we have stuck with the

nebulizer treatments pulmocourt 2 times a day and xopenex up to 4 times

a day. It was trial and error and this seemed to really work for

him.

4) Chest PT after neb treatments.

5) Cool mist humidifier.

6) And Time. Time to grow. Time to get stronger.

Best wishes Rita. I hope she is able to find some relief soon.

(Mom to CHARGE, 6 years, wife to Pat)

>

> can any give advice to me caitlyn is still very chesty evan after

loads

> of anti biotics i think food is still going to her lungs she has the

> fundiplication done wich has stopped the sickness but her caugh and

> snotty nose has stayed the same she has inhalers but they dont seem

to

> be working she caughs all night reaching to could she have unilateral

> artesia to we are going to see her ent dr next week i will be asking

> then

>