Re: Marilyn----re: Meg Hefner please

[Guest guest]

Hi Marilyn,

Let me say right away, that the probability of me, a layperson, finding

something truly medically significant

in the absence of an already existing correlation identified through

research is less than slim.

So that whatever I thought I found would already be known by your docs if it

applies to 's

JRA.

And also, you will be the first to realize if there are significant internal

changes, as they will show

themselves.

>

It's bothersome that her injection was not correctly administered. I would

use endocrine's findings

to further make my case with the school that they MUST do it correctly. But

again, my guess is,

they are doing it right most always. Why can't she come to the nurse's ofc.

for her shot.

If a sub. nurse did not know to mix the formula, then protocols are not

sufficiently

available to all. She should have been working from 's chart or

nursing log-and the instructions

posted clearly for anyone to see at first glance. What the hell did she

think she was putting in

the trash can? Geesh....

>

I have no experience with HGH. Perhaps it mimics regular growth periods of

spurts and rests.

The rheum. eval. may shed more light.

>

HRT I do have experience with. We started 16 1/2 yrs. I think. No sooner.

And for the same

reasons-boobies. Then she learned what we all know-periods and PMS stink,

and boobies

only seem cool till you get them, then they're rapidly no big deal. She

might be happy to wait

a bit in exchange for more height. I believe managed another inch of

height after HRT.

>

One interesting thing about JRA is it can often go into remission when a

woman is pregnant.

(can come back later). You'd think that would tell somebody something

about the nature of

it.

>

And you, Mom, are doing terrifically. You have lots to juggle, lots to keep

track of.

When we had our Perkins eval. I took in her medical reports, one recent

neuropsych eval,

current IEP's, and my opinions. I think that was it. I got the feeling

they didn't really need

much. They already knew. It was just a matter of where to put Di on that

sliding scale we

call Charge. We could probably make graph representations of our kids.

That might be easier

than plowing through the history all the time.

I could tell you what I gave the school system-I've mentioned that the sped.

director took a

permanent leave of absence shortly after was placed. Poor guy. He had

parent of kids

with nothing but SI issues (because they were inside in front of a tv all

day) who were threatening

legal action to obtain outside placement. However, when I threatened-they

finally moved on it.

Bye for now.

in Ma. (, 21 yrs)