Re: photos of swallow study

[Guest guest]

If you want to see a swallow study in progress, visit this link in my son's

blog...gives you an idea. The white stuff all over his face is barium. It's

truly a very simple process and if your child has any problems, they will stop

immediately.

http://maxupdate.blogspot.com/2006_09_24_archive.html

supermama95 wrote:

,

Eva has had 3 swallow studies and its nothing to worry about. They

put a dye in his food and formula to see how its going down and

where its going. He gets to sit the whole time and is awake. The

down side is you can't feed him for hours before its done so he's

hungry enough to eat.

I also know how hard it is to get some doctors to listen to you.

It's like pulling teeth sometimes and god forbid the parent be

right!! They are the ones who spent thousands on going to school so

they have to be right. I asked Eva's GI once about her rib and if

the Mic-Key button was pushing up on it because it was sticking out.

She said oh no that cant be why she must have scoliosis. She just

flipped my baby over to check and was not sure but I still think its

the button.

Finally I LOVE Grey's Anatomy, Thursdays are my night for TV and

that is all I ask for. I know what you are saying about knowing more

medical lingo, its funny that before Eva was born I would have to

ask my mom since she is an N.A.

Anyway I hope the swallow study gives you answers and don't worry

its not a horrible thing for him to go through.

Hugs,

Crystal mom to (11), (3), and Eva (21 month old CHARGEr)

wife to Dan in Illinois

> I did not have an easy pregnancy or birth. I had

polyhydramnios, which by the sound of it a lot of you did too. I

actually had back muscles detatching! Then, 5 weeks before my due

date I was in the hospital for a non-stress test and we lost his

heartbeat. They immediately put me to sleep and got him out in 7

minutes. The whole process from the time we lost the heartbeat to

him being born took no longer than 15 minutes!! He was born with no

heartbeat and wasn't breathing but they got him back and took him by

ambulance to Syracuse. (an hour and a half away)

>

> I do remember being so hungry after he was born! Our hospital did

a special " celebration " dinner for the new mom and dad. We had real

steak, potatoes, veggies, and dessert! I cried through the whole

thing because I couldn't see my baby but we propped pictures of Jack

up on the table so he could eat with us!

>

> On a different note, Jack is having a lot of breathing issues. We

took him to the Dr. yesterday and they did an RSV test and when we

took him back today they said it was negative. Now they are thinking

that all of his congestion in his nose and chest are due to reflux.

They want to do a swallow study early next week. I'm not real

familiar with the study but I know that a lot of your children have

had them done. Could someone explain how it is done? He had a

fundoplication and they think it may be too tight and the oral

feeding are just going into his lungs.

>

> I'm just frustrated that I have been asking several different

doctors about his problems for 3 weeks now and they kept telling me

that there is nothing they can do and then, all of a sudden, there

is a solution. I kept suggesting suction and breathing treatments

but no one would give it a second thought. I had to get 4 different

opinions before I found a doctor that would do something. It is so

frustrating when a doctor doesn't know a lot about CHARGE and

dismisses something as a stuffy nose. He has had a bilateral choanal

atresia and it is hard enough for him to breath without a stuffy

nose! Is my son going to have to stop breathing altogether for

something to be done??? Sorry for the venting. I'm just tired of

stupid doctors.

>

> One final comment.... Does anyone watch Grey's Anatomy? I have

watched it since the beginning and since Jack has gone through all

of this I now have a new perspective on the show. I can understand

all of the medical lingo they are throwing around! For example,

There was a baby born with a jejunal atresia and before Jack I would

have had no idea what that was! However, now it adds a more

emotional side of the show because I understand what is happening

more and sometimes it makes me cry for the families. Especially when

it involves a baby.

>

> ~

> Mom to Jack (4 mo. CHARGEr)

>

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