Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Hi Karyn Like you I question everything. My last cardiologist decided that he could not do anything more for me and that was that. I have since learnt that according to NICE guidelines in the UK he should have referred me further if the meds were not working and certainly should have explained the meds so that I could make an informed decision about my treatment. I am seeing a new cardiologist on Thursday fingers crossed that things will go better. I think that what to him was an interesting case turned out to be a problem one. One of the questions I will ask is what experience they have with lone atrial fibrillation in younger people, because what is acceptable to a 75 yr old is not acceptable to someone 30 - 40 years younger. ine THanks . I would actually not be happy with simply 'rate control'. I know this is how it is for his father, who is 67. He was a part of a drug study and was in NSR for 8 years on this particular med. It was the only one that worked for him but then it never made it to the market and was discontinued. So now he does rate control and aspirin. Luckily for us I am very proactive with our health issues. Doctors cringe when they see me coming! I question everything. I did get some great links here and am learning as quickly as I can. Thank you again! Karyn > > > > He doesn't feel well after. He gets very tired and feels 'off'. > I'm > > not comfortable with him running before he even has been to see > the > > specialist. He's in a constant state of af. > > snip > > > > > K > > > >Your husband is in a patient-doctor relationship with a doctor .If > he were here I would advise him to be highly active in those > relationships in this particular illness .To discover one has AF and > to the same moment settle for staying persistant at this early age > does not comply with the protocal for treating AF. > > unfortunately a study called AFFIRM (by some readings) said > that " rate control " is an acceptable outcome ...almost equal > satisfactory to " rhytmn control " . in my view this is because rhythm > control does not have stellar results . > > start being active by becoming conversant with the key issues in AF > and preferably get an AF education.There are some good links here . > > many significant athelets have Af,and weekend warriors have a even > higher risk. > > I was in persistant AF for 9 months and this made it more dificult to > recover .I was 5 years into the illness and had some bad luck. > I have now been normal sinus rhythm for over 3 years. > I changed my lifestyle the week i went persistent AF. > > The priority in my view is to know if there are and prediposing > reasons for your husband to have AF. > i would check for enlarged atria ,heart valve problems (mitral valve > prolapse),hyperthyroid,sleep apnea ,use of any drugs perscription or > OTC stimulents known to potentiate AF.diet pop? etc . > > if no cause then why accept AF until one understands the result of > the illness and other alternatives . certainly do not accept ablate > and pace " solutions " (not to be confused with PVI ablation .) > > NSR 3 years -whole food lifestyle > > please observe that is not medical advice > Web Page - http://www.afibsupport.com List owner: AFIBsupport-owner For help on how to use the group, including how to drive it via email, send a blank email to AFIBsupport-help Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. Quote Link to comment Share on other sites More sharing options...
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