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UT Reflux and surgery

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Hi everyone-

It has been a while since I've written or been on the listserv... but

we are in need of some input.

My son Ben, (17 mo. CHARGEr) has bilateral grade 4 urinary track

reflux. Since he has a trach and will be ungoing airway reconstruction

surgery later this year, ENT wants all surgeries done before they

start (since he has a stable airway and they won't want him intubated

after they start the repair work). I'm curious to hear who has had

reflux corrected... how it was done... what were your thoughts on the

surgery and recovery... and was it successful. We are torn between the

re-routing surgery and the deflux injection. The doc is recommending

the surgery (of cource), but we have some concerns.

Any help would be great!!

Amy Russo

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id say the surgdry coz ive never heard of the injection

>

> Hi everyone-

>

> It has been a while since I've written or been on the listserv... but

> we are in need of some input.

>

> My son Ben, (17 mo. CHARGEr) has bilateral grade 4 urinary track

> reflux. Since he has a trach and will be ungoing airway reconstruction

> surgery later this year, ENT wants all surgeries done before they

> start (since he has a stable airway and they won't want him intubated

> after they start the repair work). I'm curious to hear who has had

> reflux corrected... how it was done... what were your thoughts on the

> surgery and recovery... and was it successful. We are torn between the

> re-routing surgery and the deflux injection. The doc is recommending

> the surgery (of cource), but we have some concerns.

>

> Any help would be great!!

>

> Amy Russo

>

>

>

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Hi Amy!

My son, Aiden, had grade 4 bilateral urinary reflux as well. He went

through the ureter re-implantation surgery to repair this when he was

7 months old. Like you, I was a little hesitant to send our little

guy under the knife again, but the surgery, although complicated, was

very successful. He had three small incisions in his abdomen, and he

was home again in about 5 days. In a follow up exam about 6 months

later, it was determined that the reflux had completely resolved!

In speaking with some of his doctors and doing some research online

prior to this, some info I found out was that the success rate for the

surgery is 90% and the injection generally doesn't work in severe

reflux cases. So we dedided to ahead with it, and I am glad we did.

That is one less thing to worry about in the constellation of other

issues Aiden is dealing with. Good luck with all of Ben's upcoming

surgeries and I hope that was helpful! Beth

>

> Hi everyone-

>

> It has been a while since I've written or been on the listserv... but

> we are in need of some input.

>

> My son Ben, (17 mo. CHARGEr) has bilateral grade 4 urinary track

> reflux. Since he has a trach and will be ungoing airway reconstruction

> surgery later this year, ENT wants all surgeries done before they

> start (since he has a stable airway and they won't want him intubated

> after they start the repair work). I'm curious to hear who has had

> reflux corrected... how it was done... what were your thoughts on the

> surgery and recovery... and was it successful. We are torn between the

> re-routing surgery and the deflux injection. The doc is recommending

> the surgery (of cource), but we have some concerns.

>

> Any help would be great!!

>

> Amy Russo

>

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