Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 Colleen, You're so right. But just between us-just to each other-we can still vent off some of that frustration, yes? When, between us, we can turn it to laughter-it's so darned therapeutic! I need it. ;-) in Ma. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 I have been one to reply sarcastically to those who make rude comments to or regarding my daughter. However I had recently been part of a disabilities awareness meeting at my church. There where different forms of disabilities represented and I sat and listened to their bitterness. Yes, I was amazed at the bitterness. They were talking about how their issues affected them and I realized that although I have a daughter with special needs, I am still so ignorant of other needs out there. I continue to make stupid comments on occasion. I listened as one man in a wheelchair described how a person parked too close to him and he could not access his wheelchair ramp on his car. He had to wait for that person to come out to his/her car. He then went on to describe how he kindly explained how their parking too close to a handicap parking spot might affect others. His response was if he show kindness in his explanation, they might remember and think twice when parking so close. He felt that if he was rude or unkind, that they would not have been so receprive to hearing him out. He was one of the few in the meeting that did not show bitterness. We strive to educate others regarding CHARGE Syndrome, what it means for families and how others may help. Do we want to isolate others who are, yes ignorant, to our situations because we are frustrated that they don't understand? Before my daughter was born, I was not exposed to many people with disabilities. I did not have family members or friends with these types of things. I was one who made those dumb comments. I am so thankful I was able to hear this man's kind story. It has changed my approach to responding to rudeness. Not always...I have bad days! Yes, some people are just rude. But most are like I was. They just have never had that experieince and truly do not understand. Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 Colleen- From the experience of getting Rasha around and simply envisioning the possiblility of a wheelchair ramp I had the same experience in a parking lot as the man in your story. It made me realize how much I never noticed before and how much I still don't notice even though I'm actually trying now. I did put a few of those one liners in my back pocket though. Almost anything rude said with the right tone can still leave people smiling! :-) Janay > > I have been one to reply sarcastically to those who make rude > comments to or regarding my daughter. However I had recently been > part of a disabilities awareness meeting at my church. There where > different forms of disabilities represented and I sat and listened to > their bitterness. Yes, I was amazed at the bitterness. They were > talking about how their issues affected them and I realized that > although I have a daughter with special needs, I am still so ignorant > of other needs out there. I continue to make stupid comments on > occasion. I listened as one man in a wheelchair described how a > person parked too close to him and he could not access his wheelchair > ramp on his car. He had to wait for that person to come out to > his/her car. He then went on to describe how he kindly explained how > their parking too close to a handicap parking spot might affect > others. His response was if he show kindness in his explanation, > they might remember and think twice when parking so close. He felt > that if he was rude or unkind, that they would not have been so > receprive to hearing him out. He was one of the few in the meeting > that did not show bitterness. > > We strive to educate others regarding CHARGE Syndrome, what it means > for families and how others may help. Do we want to isolate others > who are, yes ignorant, to our situations because we are frustrated > that they don't understand? Before my daughter was born, I was not > exposed to many people with disabilities. I did not have family > members or friends with these types of things. I was one who made > those dumb comments. I am so thankful I was able to hear this man's > kind story. It has changed my approach to responding to rudeness. > Not always...I have bad days! Yes, some people are just rude. > But most are like I was. They just have never had that experieince > and truly do not understand. > > Colleen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 and Janay, I never said I didn't think those thoughts!! Or that I didn't say them when not in ear shot!! Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Colleen- You are so right. If we want people to understand and to value our families and our kids, we need to act worthy. We need to respond kindly and graciously and teach them. Most of us were ignorant once. Thanks for sharing your experience so openly. Oh- another thought - don't you want to avoid becoming bitter and cynical?? I sure do! When I catch myself leaning that way, I quickly do an about-face and center myself back in kindness and faith in the goodness of others. Michele W Aubrie's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 Casey, of course there is your classic story of the dr. who came into your room shortly after 's birth and discussed name options. Oh boy! That got a reaction from your mom for sure!!! Mom to Kendra, and Camille Re: Rude Comments , Some of the 'old' folks here know this story but it hopefully will give you an idea how some CHARGE kids handle the comments. was about 9yo when he went to a crainial-facial clinic appt, when it came to the ENT guys one resident said he HAD to have his ear fixed " NOW " ( he has one 'normal' and one CHARGE ear) I told him that the plastics guy had said to wait til he was fully grown for the effect to be the best. The guy just kept going on and on about it.. So finally he talks straight to and says " Don't you want to look like the other kids? " looks the guy up and down and says " It doesn't bother me why does it bother you? " The others in the room that had known since birth cracked up.. the guy looked soooooo embarassed. is so OK with his looks and most everything that goes one with CHARGE that sometimes I just forget he has it. It will be OK and believe me Jake and your family will learn to handle it, from the intrigued and wanting to learn type and the really obnoxious and rude types. Casey Mom to Dawn 28 HH, ADD, Bi-polar, Ken 17 ADD, Dysgraphic and 15 in three weeks CHARGE __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 OH man - is almost FIFTEEN!!!! He was like, 8 yesterday! Yikes... > > Casey, of course there is your classic story of the dr. who came into > your room shortly after 's birth and discussed name options. Oh boy! > That got a reaction from your mom for sure!!! > > > Mom to Kendra, and Camille > Re: Rude Comments > > , > > Some of the 'old' folks here know this story but it hopefully will give > you an idea how some CHARGE kids handle the comments. was about 9yo > when he went to a crainial-facial clinic appt, when it came to the ENT guys > one resident said he HAD to have his ear fixed " NOW " ( he has one 'normal' > and one CHARGE ear) I told him that the plastics guy had said to wait til he > was fully grown for the effect to be the best. The guy just kept going on > and on about it.. So finally he talks straight to and says " Don't you > want to look like the other kids? " looks the guy up and down and says > " It doesn't bother me why does it bother you? " The others in the room that > had known since birth cracked up.. the guy looked soooooo embarassed. > is so OK with his looks and most everything that goes one with CHARGE > that sometimes I just forget he has it. > > It will be OK and believe me Jake and your family will learn to handle it, > from the intrigued and wanting to learn type and the really obnoxious and > rude types. > > Casey > Mom to Dawn 28 HH, ADD, Bi-polar, Ken 17 ADD, Dysgraphic and 15 in > three weeks CHARGE > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 , Would be kindsa fun sometimme to put it all in a book of some kind huh? Casey ________________________________________________________________________________\ ____ Sucker-punch spam with award-winning protection. Try the free Yahoo! Mail Beta. http://advision.webevents.yahoo.com/mailbeta/features_spam.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 You got it, girl!!! Re: Rude Comments , Would be kindsa fun sometimme to put it all in a book of some kind huh? Casey __________________________________________________________ Sucker-punch spam with award-winning protection. Try the free Yahoo! Mail Beta. http://advision.webevents.yahoo.com/mailbeta/features_spam.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 , Not only 15 but he is 5' 4 " and weighs 115 now. I need to get e new pix of him up Casey ________________________________________________________________________________\ ____ Never miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. http://tools.search.yahoo.com/toolbar/features/mail/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 Ohhhh i forget this story, i remember it being mentioned but i forget the story. Chantelle > > Casey, of course there is your classic story of the dr. who came into your room shortly after 's birth and discussed name options. Oh boy! That got a reaction from your mom for sure!!! > > > Mom to Kendra, and Camille > Quote Link to comment Share on other sites More sharing options...
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