Vivonex Pediatric Formula Needed

[Guest guest]

_www.americarx.com_ (http://www.americarx.com)

has 36 packet boxes, and it's supposed to be available for shipment.

;-)

in Ma.

[Guest guest]

never heard of vivonex, what is it? We use a soy formula, Bright

Beginnings, have plenty if interested i could send some

Cathie

[Guest guest]

There appears to be a temporary shortage of Vivonex Pediatric formula.

Unfortunatley, I have not stockpiled it and can't get anymore until the

end of January. Adele has not done well with anything else (retching)

so I do not want to substitute if possible.

I have exhausted my local options and am wondering if any of you have

any that you no longer use. I will gladly pay any expense to get it

here. :-)

Thanks,

--

mom to Adele (2 1/2) and Margo (3 months)

www.brandrup.com

username: baby

password: sugar

[Guest guest]

oh, yes erikaused to be on something like that cannt remember the name of it,

no longer needs it

cathie

[Guest guest]

,

I don't have any access to Vivonex, and I suspect someone on the list will have

some to send to you.

But in the off-chance that you need something absolutely immediately,

Progestimil, which is broken down into amino acids, the building blocks needed

for life, could be a possibility.

This is what our daughter used when even breast milk was not tolerated.

Best of luck,

Mom to Kendra, and Camille

Vivonex Pediatric Formula Needed

There appears to be a temporary shortage of Vivonex Pediatric formula.

Unfortunatley, I have not stockpiled it and can't get anymore until the

end of January. Adele has not done well with anything else (retching)

so I do not want to substitute if possible.

I have exhausted my local options and am wondering if any of you have

any that you no longer use. I will gladly pay any expense to get it

here. :-)

Thanks,

--

mom to Adele (2 1/2) and Margo (3 months)

www.brandrup.com

username: baby

password: sugar

[Guest guest]

Did you try Walgreen's.com? They also ship nutrition products for free! Just a

thought! Good luck.

Judy

julie3572 wrote:

There appears to be a temporary shortage of Vivonex Pediatric formula.

Unfortunatley, I have not stockpiled it and can't get anymore until the

end of January. Adele has not done well with anything else (retching)

so I do not want to substitute if possible.

I have exhausted my local options and am wondering if any of you have

any that you no longer use. I will gladly pay any expense to get it

here. :-)

Thanks,

--

mom to Adele (2 1/2) and Margo (3 months)

www.brandrup.com

username: baby

password: sugar

[Guest guest]

Oh , we just threw some out (she hadn't been on it in a few years). We

had about 5-6 cases in the garage but Graeme noticed that it had expired a

while ago, so he just threw it out. I'm sorry! Kennedy did EXTREMELY well

on Vivonex back in the day. I hope Adele is able to tolerate something more

accessible in the future.

>

>

> There appears to be a temporary shortage of Vivonex Pediatric formula.

> Unfortunatley, I have not stockpiled it and can't get anymore until the

> end of January. Adele has not done well with anything else (retching)

> so I do not want to substitute if possible.

>

> I have exhausted my local options and am wondering if any of you have

> any that you no longer use. I will gladly pay any expense to get it

> here. :-)

>

> Thanks,

> --

> mom to Adele (2 1/2) and Margo (3 months)

> www.brandrup.com

> username: baby

> password: sugar

>

>

>

--

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

[Guest guest]

Vivonex is a very expensive, broken down formula (kind of like it's already

partially digested) . Kennedy experienced great success with it for a while

a few years back when nothing else was tolerable.

>

> never heard of vivonex, what is it? We use a soy formula, Bright

> Beginnings, have plenty if interested i could send some

> Cathie

>

>

[Guest guest]

THank you for the web site ideas to order Vivonex. I ordered some. The

cost is out-of-pocket and expensive (maybe I can get reimbursed from

insurance?), but I think that is better than trying to switch her.

Plus, the shortage is supposed to be temporary.

After my experiences in the last few days trying to get it, I won't be

surprized if the online supplier emails me that it's backordered . . .

but I'll try to think positive tonight. :-) I will let y'all know what

happens.

No matter what, I have learned a lesson to keep a hidden stash for the

future. Vivonex has been the only formula she has not retched with -

and I had taken it for granted.

I am also going to ask the GI doc about Progestimil (sp).

Thank you again.

--

mom to Adele (2 1/2) and Margo (3 months)

www.brandrup.com

username: baby

password: sugar

>

> >

>

[Guest guest]

, yes, that was an amazing find that was able to locate. I hope for

you that it does not end up being back-ordered. Your positive attitude is

great.

As for the Pregestimil, I think I misspelled it in my first post. It is

Pregestimil. I used to buy it on the grocery shelf but I don't know if it is

still stocked there. Perhaps a pharmacy would have it. It also is expensive.

Re: Vivonex Pediatric Formula Needed

THank you for the web site ideas to order Vivonex. I ordered some. The

cost is out-of-pocket and expensive (maybe I can get reimbursed from

insurance?), but I think that is better than trying to switch her.

Plus, the shortage is supposed to be temporary.

After my experiences in the last few days trying to get it, I won't be

surprized if the online supplier emails me that it's backordered . . .

but I'll try to think positive tonight. :-) I will let y'all know what

happens.

No matter what, I have learned a lesson to keep a hidden stash for the

future. Vivonex has been the only formula she has not retched with -

and I had taken it for granted.

I am also going to ask the GI doc about Progestimil (sp).

Thank you again.

--

mom to Adele (2 1/2) and Margo (3 months)

www.brandrup.com

username: baby

password: sugar

>

> >

>

[Guest guest]

I might have this confused (it has been fifteen years), but I recall was

on Vivonex for a very limited time. It is quite a medical food. It is

powdered, and when mixed with water, is a very pretty bright yellow clear watery

liquid which provides complete nutrition - it almost resembles TPN for IV

administration in appearance. It affected 's osmolarity - brought most of

his available bodywater to his gut. Since he was so runny, drooly and wet in

the sinuses and chest you'd think that would be a good thing - but it dried him

up too much and made the mucous really dry and difficult to pass trough his

tracheotomy tube - and actually put him into distress..... I only mention it

because it is quite different than some of the predigested formulas that are

available in the markets - which seem like milk formula but bitter or spoilt.

Also the osmolarity thing - I never would have known a thing about it except

that we were adversely affected by it!

yuka

Re: Vivonex Pediatric Formula Needed

Vivonex is a very expensive, broken down formula (kind of like it's already

partially digested) . Kennedy experienced great success with it for a while

a few years back when nothing else was tolerable.

>

> never heard of vivonex, what is it? We use a soy formula, Bright

> Beginnings, have plenty if interested i could send some

> Cathie

>

>

[Guest guest]

i am on the adult version of vivonex its called vivonext ten and its the

only thing i can tolarate so have you thought bout the adult version to dotn

no difference xx

>

> , yes, that was an amazing find that was able to locate. I

> hope for you that it does not end up being back-ordered. Your positive

> attitude is great.

>

> As for the Pregestimil, I think I misspelled it in my first post. It is

> Pregestimil. I used to buy it on the grocery shelf but I don't know if it is

> still stocked there. Perhaps a pharmacy would have it. It also is expensive.

>

>

>

> Re: Vivonex Pediatric Formula Needed

>

> THank you for the web site ideas to order Vivonex. I ordered some. The

> cost is out-of-pocket and expensive (maybe I can get reimbursed from

> insurance?), but I think that is better than trying to switch her.

> Plus, the shortage is supposed to be temporary.

>

> After my experiences in the last few days trying to get it, I won't be

> surprized if the online supplier emails me that it's backordered . . .

> but I'll try to think positive tonight. :-) I will let y'all know what

> happens.

>

> No matter what, I have learned a lesson to keep a hidden stash for the

> future. Vivonex has been the only formula she has not retched with -

> and I had taken it for granted.

>

> I am also going to ask the GI doc about Progestimil (sp).

>

> Thank you again.

> --

>

> mom to Adele (2 1/2) and Margo (3 months)

> www.brandrup.com

> username: baby

> password: sugar

>

>

> >

> > >

> >

[Guest guest]

-

I posted your situation on the G-tube listserve, and I received this

reply! I hope this works out for both of you!

Yuka

Vivonex -- I've got some I've been trying to find a home for!

>

> Hi Yuka,

>

> I didn't get the email address of the mother looking for Vivonex --

I've

> got a couple of cases I've been trying to find a good home for, and

was

> afraid I would have to throw it out! If you can get me her email

> address, or pass mine along to her (or to the CHARGE list, which I

> cannot post to since I'm not a member) I would be just delighted to

get

> mine in the mail tomorrow!

>

> Thanks!!

>

> Ande

>

>

> There appears to be a temporary shortage of Vivonex Pediatric

formula.

> Unfortunatley, I have not stockpiled it and can't get anymore until

the

> end of January. Adele has not done well with anything else

(retching)

> so I do not want to substitute if possible.

>

> I have exhausted my local options and am wondering if any of you

have

> any that you no longer use. I will gladly pay any expense to get it

> here. :-)

>

>

>

> Thanks,

> --

> mom to Adele (2 1/2) and Margo (3 months)

> www.brandrup.com

> username: baby

> password: sugar

>