Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 Just my luck the hospsital went on total divert just when I was to be admitted but finally got in after two day (missed 5 doses of my Sotalol) and was getting worried. Anyhow went on Tikosyn at 1pm Thursday and into AFIB at 3:30 Friday, boy was I bummed out. Have a great doctor who showed up in less than an hour to reassure me that I hadn't had enough doses, only 3 by that time, to really have had the full effect. He knew I was down about it and told me not to get upset there were other steps he could take, both with drugs or abalation. After reading stories here about some of your doctors, it is nice to know there are doctors out there who are very caring and responsive to us. Told me he was still going to send me home the next day even if I was still in AFIB and do cardioversion on Monday if necessary and made some adjustments to my other meds. Long story short, it ONLY lasted 6 hours (nightime AFIB's usally last 10 to 20 hours for me, so that was a plus) and so far so good. Here's hoping and praying Tikosyn can cut down on the number of my AFIB's, even once a month would be great and I can only dream about better than that. BARB IN PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 Keep your hopes up ~~~~~ think positive! My thoughts and prayers will be with you. Ellen ******************************************************************************** > > (snip) went on Tikosyn at 1pm Thursday and into AFIB at 3:30 Friday, > boy was I bummed out. Have a great doctor who showed up in less than > an hour to reassure me that I hadn't had enough doses, only 3 by that > time, to really have had the full effect.(snip) > ********************************************************************************\ * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Barb - in Feb 2004 I was hospitalized to start Tikosyn. I loaded at 1000mcg per day.. on day 3 was cardioverted out of a 6 week afib event, and sent home on 500 mcg per day. A week later, down in the islands, I went back into afib. Called home, since the doctor on island had never heard of Tikosyn, and my cardio recommended upping me to 750 mcg per day. I converted to NSR after a week at the new dose and stayed in NSR for 15 months SOLID, with nary a false beat! Unfortunately the Tikosyn stopped working last fall, but those 15 months were pretty glorious! best of luck to you, and don't give up hope yet! Stef _____ From: AFIBsupport [mailto:AFIBsupport ] On Behalf Of thereshope2002 Sent: Sunday, March 19, 2006 11:13 AM To: AFIBsupport Subject: Went onto Tikosyn Just my luck the hospsital went on total divert just when I was to be admitted but finally got in after two day (missed 5 doses of my Sotalol) and was getting worried. Anyhow went on Tikosyn at 1pm Thursday and into AFIB at 3:30 Friday, boy was I bummed out. Have a great doctor who showed up in less than an hour to reassure me that I hadn't had enough doses, only 3 by that time, to really have had the full effect. He knew I was down about it and told me not to get upset there were other steps he could take, both with drugs or abalation. After reading stories here about some of your doctors, it is nice to know there are doctors out there who are very caring and responsive to us. Told me he was still going to send me home the next day even if I was still in AFIB and do cardioversion on Monday if necessary and made some adjustments to my other meds. Long story short, it ONLY lasted 6 hours (nightime AFIB's usally last 10 to 20 hours for me, so that was a plus) and so far so good. Here's hoping and praying Tikosyn can cut down on the number of my AFIB's, even once a month would be great and I can only dream about better than that. BARB IN PA Web Page - http://www.afibsupport.com List owner: AFIBsupport-owner For help on how to use the group, including how to drive it via email, send a blank email to AFIBsupport-help Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Can anyone tell me, is Tikosyn available in the UK RE: Went onto Tikosyn Barb - in Feb 2004 I was hospitalized to start Tikosyn. I loaded at 1000mcg per day.. on day 3 was cardioverted out of a 6 week afib event, and sent home on 500 mcg per day. A week later, down in the islands, I went back into afib. Called home, since the doctor on island had never heard of Tikosyn, and my cardio recommended upping me to 750 mcg per day. I converted to NSR after a week at the new dose and stayed in NSR for 15 months SOLID, with nary a false beat! Unfortunately the Tikosyn stopped working last fall, but those 15 months were pretty glorious! best of luck to you, and don't give up hope yet! Stef _____ Web Page - http://www.afibsupport.com List owner: AFIBsupport-owner For help on how to use the group, including how to drive it via email, send a blank email to AFIBsupport-help Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 To my knowledge it is not. But you can readily check by contacting Pfizer. The phone number in the US is 1-800-TIKOSYN. Joe Y RE: Went onto Tikosyn Barb - in Feb 2004 I was hospitalized to start Tikosyn. I loaded at 1000mcg per day.. on day 3 was cardioverted out of a 6 week afib event, and sent home on 500 mcg per day. A week later, down in the islands, I went back into afib. Called home, since the doctor on island had never heard of Tikosyn, and my cardio recommended upping me to 750 mcg per day. I converted to NSR after a week at the new dose and stayed in NSR for 15 months SOLID, with nary a false beat! Unfortunately the Tikosyn stopped working last fall, but those 15 months were pretty glorious! best of luck to you, and don't give up hope yet! Stef _____ Web Page - http://www.afibsupport.com List owner: AFIBsupport-owner For help on how to use the group, including how to drive it via email, send a blank email to AFIBsupport-help Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. Quote Link to comment Share on other sites More sharing options...
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