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increased stimming and refusing to do academics

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Posted
Posted

Are you saying Dr.usmans uses that protocal? My son went there and

that protocal just made my son sicker. Thanks,Tammy F.

I have not been to pfeiffer but I know of someone on

another group who has. Her son's doc

was/is (????) Dr. Usman. I think she(Dr. Usman) has a

separate practice now but they still follow Pfeiffer

protocol.

On Thu, Jan 19, 2012 at 1:43 PM,

Tammy

wrote:

Hi ,I really like that article.It

looks like it comes from a scientist at the

Pfeiffer Center in Illinous.Has anyone been to

this center? Thanks,Tammy

--

--------------------------------------------------------------------------------------------

Click to find info about Vitamins and Minerals:

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--------------------------------------------------------------------------------------------

Click to find links to info about the Low Oxalate Diet :

http://www.facebook.com/note.php?note_id=10150543495292565

------

Toni

------

Mind like a steel trap...

Rusty and illegal in 37 states.

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Posted
Posted

I think the Pfeiffer Center is closed now. Dr Usman did work there many years ago buy has had her own practice for approx. 10 yrs or so. Dr Usman has expanded greatly on the Pfeiffer Center protocol. She's really knowledgable. Highly recommend her. RuthSent from my iPhone

I have not been to pfeiffer but I know of someone on another group who has. Her son's docwas/is (????) Dr. Usman. I think she(Dr. Usman) has a separate practice now but they still follow Pfeifferprotocol.

Hi ,I really like that article.It looks like it comes from

a scientist at the Pfeiffer Center in Illinous.Has anyone been to

this center? Thanks,Tammy

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565

------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Posted
Posted

The pfeiffer center changed their name now... I will see if I can find it...

 

Are you saying Dr.usmans uses that protocal? My son went there and

that protocal just made my son sicker. Thanks,Tammy F.

 

I have not been to pfeiffer but I know of someone on

another group who has. Her son's doc

was/is (????) Dr. Usman. I think she(Dr. Usman) has a

separate practice now but they still follow Pfeiffer

protocol.

On Thu, Jan 19, 2012 at 1:43 PM,

Tammy

wrote:

 

Hi ,I really like that article.It

looks like it comes from a scientist at the

Pfeiffer Center in Illinous.Has anyone been to

this center? Thanks,Tammy

--

--------------------------------------------------------------------------------------------

Click to find info about Vitamins and Minerals:

http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------

Click to find links to info about the Low Oxalate Diet :

http://www.facebook.com/note.php?note_id=10150543495292565

------

Toni

------

Mind like a steel trap...

Rusty and illegal in 37 states.

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565

------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Posted
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Here it is:http://www.hriptc.org/index.phpOn Thu, Jan 19, 2012 at 2:41 PM, Ruth Setlak wrote:

 

I think the Pfeiffer Center is closed now. Dr Usman did work there many years ago buy has had her own practice for approx. 10 yrs or so. Dr Usman has expanded greatly on the Pfeiffer Center protocol. She's really knowledgable. Highly recommend her. 

RuthSent from my iPhone

 

I have not been to pfeiffer but I know of someone on another group who has. Her son's docwas/is (????) Dr. Usman. I think she(Dr. Usman) has a separate practice now but they still follow Pfeifferprotocol.

 

Hi ,I really like that article.It looks like it comes from

a scientist at the Pfeiffer Center in Illinous.Has anyone been to

this center? Thanks,Tammy

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565

------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565

------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Posted
Posted

Oops. Someone told me it closed. Maybe it just moved? Sorry.Ruth Sent from my iPhone

Here it is:http://www.hriptc.org/index.phpOn Thu, Jan 19, 2012 at 2:41 PM, Ruth Setlak wrote:

I think the Pfeiffer Center is closed now. Dr Usman did work there many years ago buy has had her own practice for approx. 10 yrs or so. Dr Usman has expanded greatly on the Pfeiffer Center protocol. She's really knowledgable. Highly recommend her.

RuthSent from my iPhone

I have not been to pfeiffer but I know of someone on another group who has. Her son's docwas/is (????) Dr. Usman. I think she(Dr. Usman) has a separate practice now but they still follow Pfeifferprotocol.

Hi ,I really like that article.It looks like it comes from

a scientist at the Pfeiffer Center in Illinous.Has anyone been to

this center? Thanks,Tammy

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565

------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565

------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Posted
Posted

I think it moved and changed its name. So yeah it's like it " closed. " LOL

 

Oops. Someone told me it closed. Maybe it just moved? Sorry.Ruth Sent from my iPhone

 

Here it is:http://www.hriptc.org/index.phpOn Thu, Jan 19, 2012 at 2:41 PM, Ruth Setlak wrote:

 

I think the Pfeiffer Center is closed now. Dr Usman did work there many years ago buy has had her own practice for approx. 10 yrs or so. Dr Usman has expanded greatly on the Pfeiffer Center protocol. She's really knowledgable. Highly recommend her. 

RuthSent from my iPhone

 

I have not been to pfeiffer but I know of someone on another group who has. Her son's docwas/is (????) Dr. Usman. I think she(Dr. Usman) has a separate practice now but they still follow Pfeifferprotocol.

 

Hi ,I really like that article.It looks like it comes from

a scientist at the Pfeiffer Center in Illinous.Has anyone been to

this center? Thanks,Tammy

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565

------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565

------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565

------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Posted
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We went to Pfeiffer (Treatment Center) years ago for my son. Saw some nice

gains initially. We left after we didn't see more gains, as they were limited

to within their protocol, which didn't address everything my son needed. They

did eventually close. I haven;t hear the story on the new Pfeiffer Medical

Center, though an awesome nurse/case manager we worked with when we were seen at

Pfeiffer, has opened a new clinic and sees many of the former Pfeiffer patients

including my son. She's at Wyndgate Health (wyndgatehealth.com). Her name is

Mc. She's an RN and has PAs and CNPs working with her. She is well

versed in the article you cited I am certain.

> > > >

> > > > is,

> > > > Ã,Â

> > > > A simple histamine test will tell you if he is and over or under

> > methylator.

> > > > High histamine = under

> > > > Low histamine = over.

> > > > Ã,Â

> > > > hth,

> > > > Tammy

> > > >

> > > >

> > > > ________________________________

> > > > From: alexis_d3378 <alexis_d3378@>

> > > > To: mb12valtrex

> > <mailto:mb12valtrex%40yahoogroups.com>

> > > > Sent: Monday, January 16, 2012 6:21 PM

> > > > Subject: increased stimming and refusing to do academics

> > > >

> > > >

> > > >

> > > > Ã,Â

> > > >

> > > > Hi everyone,

> > > > My son has completed a total of 4 weeks of vancomycin. He is still

> > on anti yeast. For the last two weeks, he has lost interest in any

> > reading, writing or coloring. He would may be cooperate for 10 minutes

> > and after that just wants to sit on my lap and then showers me with

> > kisses. He still is able to work with his private OT on weekends and

> > is doing a good job. Overall is taking interest in watching TV (had

> > lost all his interests in the last 2 years). Very stimmy. Mouthing

> > everything - licking small toys. The huge tantrums have lessened but

> > gets angry easily and anger episodes are very physical as he pull my

> > hair and squeezes anybody who is near him. I started leucovorin at 2.5

> > mg a day about 6 days ago. Some inattentiveness and short attention

> > span was already there but has now worsened. He is getting at least 3

> > culturelles a day and nystatin. Also curcumin is back which has

> > definitely calmed him down. Can leukovorin precipitate yeast flare?

> > People talk

> > > > about over methylators and under methylators. How do you figure

> > out what your child exactly is? Will try adding back candidase but

> > last time I tried, he had huge tantrums. Any suggestions about

> > inattentiveness and short attention span will be appreciated.

> > > > Thanks

> > > > is

> > > >

> > >

> >

> >

>

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Posted
Posted

Thanks .This might be a piece to my sons puzzle.

Tammy F.

We went to Pfeiffer (Treatment Center) years ago for my

son. Saw some nice gains initially. We left after we

didn't see more gains, as they were limited to within

their protocol, which didn't address everything my son

needed. They did eventually close. I haven;t hear the

story on the new Pfeiffer Medical Center, though an

awesome nurse/case manager we worked with when we were

seen at Pfeiffer, has opened a new clinic and sees many of

the former Pfeiffer patients including my son. She's at

Wyndgate Health (wyndgatehealth.com). Her name is

Mc. She's an RN and has PAs and CNPs working with

her. She is well versed in the article you cited I am

certain.

> > > >

> > > > is,

> > > > Ã,Â

> > > > A simple histamine test will tell you

if he is and over or under

> > methylator.

> > > > High histamine = under

> > > > Low histamine = over.

> > > > Ã,Â

> > > > hth,

> > > > Tammy

> > > >

> > > >

> > > > ________________________________

> > > > From: alexis_d3378

<alexis_d3378@>

> > > > To: mb12valtrex

> > <mailto:mb12valtrex%40yahoogroups.com>

> > > > Sent: Monday, January 16, 2012 6:21 PM

> > > > Subject: increased

stimming and refusing to do academics

> > > >

> > > >

> > > >

> > > > Ã,Â

> > > >

> > > > Hi everyone,

> > > > My son has completed a total of 4

weeks of vancomycin. He is still

> > on anti yeast. For the last two weeks, he has

lost interest in any

> > reading, writing or coloring. He would may be

cooperate for 10 minutes

> > and after that just wants to sit on my lap and

then showers me with

> > kisses. He still is able to work with his

private OT on weekends and

> > is doing a good job. Overall is taking interest

in watching TV (had

> > lost all his interests in the last 2 years).

Very stimmy. Mouthing

> > everything - licking small toys. The huge

tantrums have lessened but

> > gets angry easily and anger episodes are very

physical as he pull my

> > hair and squeezes anybody who is near him. I

started leucovorin at 2.5

> > mg a day about 6 days ago. Some inattentiveness

and short attention

> > span was already there but has now worsened. He

is getting at least 3

> > culturelles a day and nystatin. Also curcumin is

back which has

> > definitely calmed him down. Can leukovorin

precipitate yeast flare?

> > People talk

> > > > about over methylators and under

methylators. How do you figure

> > out what your child exactly is? Will try adding

back candidase but

> > last time I tried, he had huge tantrums. Any

suggestions about

> > inattentiveness and short attention span will be

appreciated.

> > > > Thanks

> > > > is

> > > >

> > >

> >

> >

>

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Posted
Posted

That is great inf Toni, thanks I printed the article. I am reading it and taking

notes.

> > >

> > > > **

> >

> > > >

> > > >

> > > > my dau seemed to have an allergic reaction to b6. Broke out in hives.

> > > > Cleared after stoppong a few days.

> > > >

> > > > Re: increased stimming and refusing to do

> > academics

> > > >

> > > >

> > > >

> > > >

> > > > Interesting my son become agresive n completely psychotics on curcumin.

> > > > Also vitamin b6 induce those same behaviour on him.

> > > >

> > > >

> > > >

> > >

> > >

> > >

> > > --

> > > ----------------------------------------------------------

> > > Click to find info about Vitamins and Minerals:

> > > http://www.facebook.com/note.php?note_id=10150543521682565

> > > ----------------------------------------------------------

> > > Click to find links to info about the Low Oxalate Diet :

> > > http://www.facebook.com/note.php?note_id=10150543495292565

> > > ------

> > > Toni

> > >

> > > ------

> > > Mind like a steel trap...

> > > Rusty and illegal in 37 states.

> > >

> >

> >

> >

>

>

>

> --

>

--------------------------------------------------------------------------------\

------------

> Click to find info about Vitamins and Minerals:

> http://www.facebook.com/note.php?note_id=10150543521682565

>

--------------------------------------------------------------------------------\

------------

> Click to find links to info about the Low Oxalate Diet :

> http://www.facebook.com/note.php?note_id=10150543495292565

> ------

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

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Posted
Posted

The B6 problem is a Yasko thing, B6 can turn to ammonia and cause kids with a CBS mutation to go bonkers. On B6 my son gets mad, so one day I took a bunch of it myself and guess what? I wanted to kill my husband and was crying like a lunatic. On the flip side my son only talks on high amounts of methyl B-12. So no B6 for our family. :-)

Subject: Re: increased stimming and refusing to do academicsTo: mb12valtrex Date: Friday, January 20, 2012, 3:10 AM

That is great inf Toni, thanks I printed the article. I am reading it and taking notes.> > >> > > > **> >> > > >> > > >> > > > my dau seemed to have an allergic reaction to b6. Broke out in hives.> > > > Cleared after stoppong a few days.> > > >> > > > Re: increased stimming and refusing to do> > academics> > > >> > > >> > > >> > > >> > > > Interesting my son become agresive n completely psychotics on curcumin.> > > > Also vitamin b6 induce those same behaviour on him.>

> > >> > > >> > > >> > >> > >> > >> > > --> > > ----------------------------------------------------------> > > Click to find info about Vitamins and Minerals:> > > http://www.facebook.com/note.php?note_id=10150543521682565> > > ----------------------------------------------------------> > > Click to find links to info about the Low Oxalate Diet :> > > http://www.facebook.com/note.php?note_id=10150543495292565> > > ------> > > Toni> > >> > > ------> > > Mind like a steel trap...> > > Rusty and illegal in 37

states.> > >> >> > > >> > > > -- > ----------------------------------------------------------> Click to find info about Vitamins and Minerals:> http://www.facebook.com/note.php?note_id=10150543521682565> ----------------------------------------------------------> Click to find links to info about the Low Oxalate Diet :> http://www.facebook.com/note.php?note_id=10150543495292565> ------> Toni> > ------> Mind like a steel trap...> Rusty and illegal in 37 states.>

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Posted
Posted

B6 causes this (IMO) if you don't have a good balance of other stuff going on. That's why with this as with many other thingsbiomed, low and slow is the way to go. Magnesium helps balance it out.It'd be like not giving b12 because your child gets stimmy. The docs tell us to ride it out or have us make adjustments.

My kids have CBS mutation here and I follow a lot of what Yasko does. However they are both on high dose B6. B6 is vital in making glutathione. Yasko's Ultimate B does have 7.5 mg B6 in it. It's an excellent product otherwise, but we do add more B6.

We use a sustained release 500mg B6. Some of our most amazingly good results in biomed have been from B6 and magnesium so I do like to speak up for them.:-)

 

The B6 problem is a Yasko thing, B6 can turn to ammonia and cause kids with a CBS mutation to go bonkers. On B6 my son gets mad, so one day I took a bunch of it myself and guess what? I wanted to kill my husband and was crying like a lunatic. On the flip side my son only talks on high amounts of methyl B-12. So no B6 for our family. :-)

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:

http://www.facebook.com/note.php?note_id=10150543521682565--------------------------------------------------------------------------------------------

Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565------

Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Thanks for passing that along, Toni.After reading this, it couldn't be anymore clear to me that I need to chelate. I had been resolved in the fact that a clear answer would never come in the form of a frying pan hitting me over the head.Until this article : ) And it couldn't have come at a better time as I've been digging through the files over at RAF being wishy-washy about what to do.Today's a good day to get serious. xoxoxTammy To: mb12valtrex Sent: Wednesday, January 18, 2012 10:58 PM Subject: Re: Re: increased stimming and refusing to do academics

I just googled molybdenum and PST and this is the first thing that came up:http://www.newtreatments.org/ga.php?linkid=252It's long but looks like it might help... I didn't read it all so going to do that now...

I think molybdenum is supposed to help.

I believe my son reaction to phenol has to do with pst deficiency. I just wish I knew how to fix it.

>

> > **

> >

> >

> > my dau seemed to have an allergic reaction to b6. Broke out in hives.

> > Cleared after stoppong a few days.

> >

> > Re: increased stimming and refusing to do academics

> >

> >

> >

> >

> > Interesting my son become agresive n completely psychotics on curcumin.

> > Also vitamin b6 induce those same behaviour on him.

> >

> >

> >

>

>

>

> --

> ----------------------------------------------------------

> Click to find info about Vitamins and Minerals:

> http://www.facebook.com/note.php?note_id=10150543521682565

> ----------------------------------------------------------

> Click to find links to info about the Low Oxalate Diet :

> http://www.facebook.com/note.php?note_id=10150543495292565

> ------

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:

http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565

------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565

------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Posted
Posted

*Oops, RFA, that is. To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 21, 2012 11:32 AM Subject: Re:

Re: increased stimming and refusing to do academics

Thanks for passing that along, Toni.After reading this, it couldn't be anymore clear to me that I need to chelate. I had been resolved in the fact that a clear answer would never come in the form of a frying pan hitting me over the head.Until this article : ) And it couldn't have come at a better time as I've been digging through the files over at RAF being wishy-washy about what to do.Today's a good day to get serious. xoxoxTammy To: mb12valtrex Sent: Wednesday, January 18, 2012 10:58 PM Subject: Re: Re: increased stimming and refusing to do academics

I just googled molybdenum and PST and this is the first thing that came up:http://www.newtreatments.org/ga.php?linkid=252It's long but looks like it might help... I didn't read it all so going to do that now...

I think molybdenum is supposed to help.

I believe my son reaction to phenol has to do with pst deficiency. I just wish I knew how to fix it.

>

> > **

> >

> >

> > my dau seemed to have an allergic reaction to b6. Broke out in hives.

> > Cleared after stoppong a few days.

> >

> > Re: increased stimming and refusing to do academics

> >

> >

> >

> >

> > Interesting my son become agresive n completely psychotics on curcumin.

> > Also vitamin b6 induce those same behaviour on him.

> >

> >

> >

>

>

>

> --

> ----------------------------------------------------------

> Click to find info about Vitamins and Minerals:

> http://www.facebook.com/note.php?note_id=10150543521682565

> ----------------------------------------------------------

> Click to find links to info about the Low Oxalate Diet :

> http://www.facebook.com/note.php?note_id=10150543495292565

> ------

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:

http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565

------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565

------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Posted
Posted

All the magnesium in the world couldn't stop my CBS++ son from crashing on high

dose B6. And I did go low and slow. Thankfully, we have him back now that we are

following Dr. Yasko. At least I know WHY B6 was not good for him, and why Biotin

was terrible as well. It took months to see the effects, but they did eventually

catch up to us.

I understand my son is the rare case, which is why he does so well on her

protocol, IMHO. I hope I don't sound argumentative, I just cringe when I think

how I forgot the golden rule: what's good for one is not good for all.

>

> > **

> >

> >

> > The B6 problem is a Yasko thing, B6 can turn to ammonia and cause kids

> > with a CBS mutation to go bonkers. On B6 my son gets mad, so one day I took

> > a bunch of it myself and guess what? I wanted to kill my husband and was

> > crying like a lunatic. On the flip side my son only talks on high amounts

> > of methyl B-12. So no B6 for our family. :-)

> >

> >

> --

>

--------------------------------------------------------------------------------\

------------

> Click to find info about Vitamins and Minerals:

> http://www.facebook.com/note.php?note_id=10150543521682565

>

--------------------------------------------------------------------------------\

------------

> Click to find links to info about the Low Oxalate Diet :

> http://www.facebook.com/note.php?note_id=10150543495292565

> ------

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

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Posted

Oh yeah, true. Are you using the Ult B ?I've been able to remove a lot of supps by using Yasko's compound supplements.Mine are CBS +/- but they are also compound hetero for MTHFR and have COMT as well.

I am not sure how that affects the CBS snp. It probably helps because them being slow methylatorsprobably means they don't get backed up in the CBS, but uh. totally not sure.I was not able to give my son mb12 AT ALL without creating a mess in him. Even a supp with 5mcg

of b12, he'd be stimmy mouthing everythingAfter I started using her MTR/MTRR with hydroxo-cobalamin, we started to be able to.Her supps are wonderful. That is something, we rely heavily on biotin too. LOL They had issues when we first started that and then

we just worked up. At 15mg now. Nope... not trying to be argumentative at all. But till we increased the B6 in my son, we were just wasting a lot ofmoney on supps that patched up symptoms and didn't seem to help for more than a few hrs at a time. :-)

Just throwing info out there.

 

All the magnesium in the world couldn't stop my CBS++ son from crashing on high dose B6. And I did go low and slow. Thankfully, we have him back now that we are following Dr. Yasko. At least I know WHY B6 was not good for him, and why Biotin was terrible as well. It took months to see the effects, but they did eventually catch up to us.

I understand my son is the rare case, which is why he does so well on her protocol, IMHO. I hope I don't sound argumentative, I just cringe when I think how I forgot the golden rule: what's good for one is not good for all.

>

> > **

> >

> >

> > The B6 problem is a Yasko thing, B6 can turn to ammonia and cause kids

> > with a CBS mutation to go bonkers. On B6 my son gets mad, so one day I took

> > a bunch of it myself and guess what? I wanted to kill my husband and was

> > crying like a lunatic. On the flip side my son only talks on high amounts

> > of methyl B-12. So no B6 for our family. :-)

> >

> >

> --

> ----------------------------------------------------------

> Click to find info about Vitamins and Minerals:

> http://www.facebook.com/note.php?note_id=10150543521682565

> ----------------------------------------------------------

> Click to find links to info about the Low Oxalate Diet :

> http://www.facebook.com/note.php?note_id=10150543495292565

> ------

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565

------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Posted
Posted

So funny you say that, it wasn't until WE started the MTR/MTRR supp that we

could do the Ultimate B! This is him: CBS++, MTHFR A1298 AND C6997, NOS+, COMT,

MTR, MTRR (many)...good lord, can you say AMMONIA??? I love love love her

compounded stuff. I guess it's how all of them are the right amounts and

combinations or whatever, but they're excellent for us. We can't do the B6, but

Benfotiamine,Riboflavin and NADH are awesome around here too. Lots and lots of

it actually. Oh, and lots of HB12 too. Golden! :-)

> > >

> > > > **

> >

> > > >

> > > >

> > > > The B6 problem is a Yasko thing, B6 can turn to ammonia and cause kids

> > > > with a CBS mutation to go bonkers. On B6 my son gets mad, so one day I

> > took

> > > > a bunch of it myself and guess what? I wanted to kill my husband and

> > was

> > > > crying like a lunatic. On the flip side my son only talks on high

> > amounts

> > > > of methyl B-12. So no B6 for our family. :-)

> > > >

> > > >

> > > --

> > > ----------------------------------------------------------

> > > Click to find info about Vitamins and Minerals:

> > > http://www.facebook.com/note.php?note_id=10150543521682565

> > > ----------------------------------------------------------

> > > Click to find links to info about the Low Oxalate Diet :

> > > http://www.facebook.com/note.php?note_id=10150543495292565

> > > ------

> > > Toni

> > >

> > > ------

> > > Mind like a steel trap...

> > > Rusty and illegal in 37 states.

> > >

> >

> >

> >

>

>

>

> --

>

--------------------------------------------------------------------------------\

------------

> Click to find info about Vitamins and Minerals:

> http://www.facebook.com/note.php?note_id=10150543521682565

>

--------------------------------------------------------------------------------\

------------

> Click to find links to info about the Low Oxalate Diet :

> http://www.facebook.com/note.php?note_id=10150543495292565

> ------

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

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Posted
Posted

What dose of magnesium do you use/what kind? Is there anything else that

balances out B6?

Thanks,

Bethany

>

> > **

> >

> >

> > The B6 problem is a Yasko thing, B6 can turn to ammonia and cause kids

> > with a CBS mutation to go bonkers. On B6 my son gets mad, so one day I took

> > a bunch of it myself and guess what? I wanted to kill my husband and was

> > crying like a lunatic. On the flip side my son only talks on high amounts

> > of methyl B-12. So no B6 for our family. :-)

> >

> >

> --

>

--------------------------------------------------------------------------------\

------------

> Click to find info about Vitamins and Minerals:

> http://www.facebook.com/note.php?note_id=10150543521682565

>

--------------------------------------------------------------------------------\

------------

> Click to find links to info about the Low Oxalate Diet :

> http://www.facebook.com/note.php?note_id=10150543495292565

> ------

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

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Posted
Posted

You should make sure you are also giving other Bs with it, too.This is a theory, I think it makes sense but since we are increasing methylation and spinning those " gears " faster by adding in something, it can deplete the co-factors and other participants

in the metabolism. Now I wouldn't max out everything at once, that would not be cool. You could trythe Bs on yourself as an experiment so you can see how they make you feel. Some people who take B6on the other list I am on (trying low oxalates) will have what we call " oxalate dumping. " Oxalate dumping

looks like " yeasty symptoms " " regression " etc.We use mag citrate and I use them in 200mg tabs. But if your child is prone to diarrhea,you probably want to be on alert! Mine were more likely to be constipated and they

use the potty independently so runny poo isn't a major concern for us, thank goodness.

 

What dose of magnesium do you use/what kind? Is there anything else that balances out B6?

Thanks,

Bethany

>

> B6 causes this (IMO) if you don't have a good balance of other stuff going

> on. That's why with this as with many other things

> biomed, low and slow is the way to go. Magnesium helps balance it out.

>

> It'd be like not giving b12 because your child gets stimmy. The docs tell

> us to ride it out or have us make adjustments.

>

> My kids have CBS mutation here and I follow a lot of what Yasko does.

> However they are both on high dose B6.

> B6 is vital in making glutathione.

>

> Yasko's Ultimate B does have 7.5 mg B6 in it. It's an excellent product

> otherwise, but we do add more B6.

> We use a sustained release 500mg B6.

>

> Some of our most amazingly good results in biomed have been from B6 and

> magnesium so I do like to speak up for them.

> :-)

>-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:

http://www.facebook.com/note.php?note_id=10150543521682565--------------------------------------------------------------------------------------------

Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565------

Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Posted
Posted

Thanks so much for that info! We have all our B's in place, and molybdenum.

Plus TMG, MB12, methylfolate. Right now on the 86 mg of magnesium found in

EmergenC.

My question is, every time we try to add more magnesium, we get an increase in

seizure activity. We must have excess aluminum to detox. So I think I need to

add the magnesium, but we get " jerks " even when we give a very low dose.

This has happened with other supplements, we've just pushed through the seizures

and eventually they stop. I just hate doing it.

Anyway, just thinking out loud. If you have any thoughts I'd love to hear...

Bethany

> > >

> > > B6 causes this (IMO) if you don't have a good balance of other stuff

> > going

> > > on. That's why with this as with many other things

> > > biomed, low and slow is the way to go. Magnesium helps balance it out.

> > >

> > > It'd be like not giving b12 because your child gets stimmy. The docs tell

> > > us to ride it out or have us make adjustments.

> > >

> > > My kids have CBS mutation here and I follow a lot of what Yasko does.

> > > However they are both on high dose B6.

> > > B6 is vital in making glutathione.

> > >

> > > Yasko's Ultimate B does have 7.5 mg B6 in it. It's an excellent product

> > > otherwise, but we do add more B6.

> > > We use a sustained release 500mg B6.

> > >

> > > Some of our most amazingly good results in biomed have been from B6 and

> > > magnesium so I do like to speak up for them.

> > > :-)

> > >

> >

>

>

> --

>

--------------------------------------------------------------------------------\

------------

> Click to find info about Vitamins and Minerals:

> http://www.facebook.com/note.php?note_id=10150543521682565

>

--------------------------------------------------------------------------------\

------------

> Click to find links to info about the Low Oxalate Diet :

> http://www.facebook.com/note.php?note_id=10150543495292565

> ------

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

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Posted
Posted

Hi,

I wish to preface this with letting you know I am new to all this and I don't

know much about it so take this information with a grain of salt. Use or ignore

it but I just wanted to share what I learned if it can help you with your child.

EmergenC has Alpha Lipoic acid which chelates mercury and other metals. If you

follow/believe the A/C ( Cutler) protocol, it is causing redistribution of

mercury/metals once a day in your child. Could it be that the ALA may be the

increasing the seizure activity?

> > > >

> > > > B6 causes this (IMO) if you don't have a good balance of other stuff

> > > going

> > > > on. That's why with this as with many other things

> > > > biomed, low and slow is the way to go. Magnesium helps balance it out.

> > > >

> > > > It'd be like not giving b12 because your child gets stimmy. The docs

tell

> > > > us to ride it out or have us make adjustments.

> > > >

> > > > My kids have CBS mutation here and I follow a lot of what Yasko does.

> > > > However they are both on high dose B6.

> > > > B6 is vital in making glutathione.

> > > >

> > > > Yasko's Ultimate B does have 7.5 mg B6 in it. It's an excellent product

> > > > otherwise, but we do add more B6.

> > > > We use a sustained release 500mg B6.

> > > >

> > > > Some of our most amazingly good results in biomed have been from B6 and

> > > > magnesium so I do like to speak up for them.

> > > > :-)

> > > >

> > >

> >

> >

> > --

> >

--------------------------------------------------------------------------------\

------------

> > Click to find info about Vitamins and Minerals:

> > http://www.facebook.com/note.php?note_id=10150543521682565

> >

--------------------------------------------------------------------------------\

------------

> > Click to find links to info about the Low Oxalate Diet :

> > http://www.facebook.com/note.php?note_id=10150543495292565

> > ------

> > Toni

> >

> > ------

> > Mind like a steel trap...

> > Rusty and illegal in 37 states.

> >

>

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Thanks for your input, I appreciate it. When we first started ALA (per Cutler

protocol), we got no reactions. Then we tried it transdermally (homemade), and

it caused a big increase in seizure activity, as well as a HUGE increase in

language and interactivity. Then after a DMSA challenge (I know, that's so

bad), ALA started stopping his seizures.

So our seizures are definitely related to metals. Magnesium used to cause no

reaction in my son - no matter how much he took. After we started Valtrex,

magnesium started causing seizures. But Valtrex itself stopped seizures. It's

enough to make one crazy several times over!

A lot of people may think this is terrible, but we do a small daily dose of TD

ALA and it goes a long way in keeping the seizures away.

Thanks,

Bethany

> > > > >

> > > > > B6 causes this (IMO) if you don't have a good balance of other stuff

> > > > going

> > > > > on. That's why with this as with many other things

> > > > > biomed, low and slow is the way to go. Magnesium helps balance it out.

> > > > >

> > > > > It'd be like not giving b12 because your child gets stimmy. The docs

tell

> > > > > us to ride it out or have us make adjustments.

> > > > >

> > > > > My kids have CBS mutation here and I follow a lot of what Yasko does.

> > > > > However they are both on high dose B6.

> > > > > B6 is vital in making glutathione.

> > > > >

> > > > > Yasko's Ultimate B does have 7.5 mg B6 in it. It's an excellent

product

> > > > > otherwise, but we do add more B6.

> > > > > We use a sustained release 500mg B6.

> > > > >

> > > > > Some of our most amazingly good results in biomed have been from B6

and

> > > > > magnesium so I do like to speak up for them.

> > > > > :-)

> > > > >

> > > >

> > >

> > >

> > > --

> > >

--------------------------------------------------------------------------------\

------------

> > > Click to find info about Vitamins and Minerals:

> > > http://www.facebook.com/note.php?note_id=10150543521682565

> > >

--------------------------------------------------------------------------------\

------------

> > > Click to find links to info about the Low Oxalate Diet :

> > > http://www.facebook.com/note.php?note_id=10150543495292565

> > > ------

> > > Toni

> > >

> > > ------

> > > Mind like a steel trap...

> > > Rusty and illegal in 37 states.

> > >

> >

>

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Posted
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OMG Bethany my heart goes out to you. It is so hard to tell yourself that seizures are a " good thing. " :-(The B6 seizure group I am part of is advised to give more B6 during illness. Apparently illness lowers the seizure

thresh hold. I'm not sure if that help you. :-) But when my son has a fever, I give more B6 and not the sustained release kind like he usually gets.

 

Thanks for your input, I appreciate it. When we first started ALA (per Cutler protocol), we got no reactions. Then we tried it transdermally (homemade), and it caused a big increase in seizure activity, as well as a HUGE increase in language and interactivity. Then after a DMSA challenge (I know, that's so bad), ALA started stopping his seizures.

So our seizures are definitely related to metals. Magnesium used to cause no reaction in my son - no matter how much he took. After we started Valtrex, magnesium started causing seizures. But Valtrex itself stopped seizures. It's enough to make one crazy several times over!

A lot of people may think this is terrible, but we do a small daily dose of TD ALA and it goes a long way in keeping the seizures away.

Thanks,

Bethany

> > > > >

> > > > > B6 causes this (IMO) if you don't have a good balance of other stuff

> > > > going

> > > > > on. That's why with this as with many other things

> > > > > biomed, low and slow is the way to go. Magnesium helps balance it out.

> > > > >

> > > > > It'd be like not giving b12 because your child gets stimmy. The docs tell

> > > > > us to ride it out or have us make adjustments.

> > > > >

> > > > > My kids have CBS mutation here and I follow a lot of what Yasko does.

> > > > > However they are both on high dose B6.

> > > > > B6 is vital in making glutathione.

> > > > >

> > > > > Yasko's Ultimate B does have 7.5 mg B6 in it. It's an excellent product

> > > > > otherwise, but we do add more B6.

> > > > > We use a sustained release 500mg B6.

> > > > >

> > > > > Some of our most amazingly good results in biomed have been from B6 and

> > > > > magnesium so I do like to speak up for them.

> > > > > :-)

> > > > >

> > > >

> > >

> > >

> > > --

> > > ----------------------------------------------------------

> > > Click to find info about Vitamins and Minerals:

> > > http://www.facebook.com/note.php?note_id=10150543521682565

> > > ----------------------------------------------------------

> > > Click to find links to info about the Low Oxalate Diet :

> > > http://www.facebook.com/note.php?note_id=10150543495292565

> > > ------

> > > Toni

> > >

> > > ------

> > > Mind like a steel trap...

> > > Rusty and illegal in 37 states.

> > >

> >

>

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565

------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Posted
Posted

I'm beginning to think my son isn't absorbing the B6...I think I will try

transdermal! Maybe the P5P. I will look into it! Thanks for the ideas.

> > > > > > >

> > > > > > > B6 causes this (IMO) if you don't have a good balance of other

> > stuff

> > > > > > going

> > > > > > > on. That's why with this as with many other things

> > > > > > > biomed, low and slow is the way to go. Magnesium helps balance

> > it out.

> > > > > > >

> > > > > > > It'd be like not giving b12 because your child gets stimmy. The

> > docs tell

> > > > > > > us to ride it out or have us make adjustments.

> > > > > > >

> > > > > > > My kids have CBS mutation here and I follow a lot of what Yasko

> > does.

> > > > > > > However they are both on high dose B6.

> > > > > > > B6 is vital in making glutathione.

> > > > > > >

> > > > > > > Yasko's Ultimate B does have 7.5 mg B6 in it. It's an excellent

> > product

> > > > > > > otherwise, but we do add more B6.

> > > > > > > We use a sustained release 500mg B6.

> > > > > > >

> > > > > > > Some of our most amazingly good results in biomed have been from

> > B6 and

> > > > > > > magnesium so I do like to speak up for them.

> > > > > > > :-)

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > > > --

> > > > > ----------------------------------------------------------

> > > > > Click to find info about Vitamins and Minerals:

> > > > > http://www.facebook.com/note.php?note_id=10150543521682565

> > > > > ----------------------------------------------------------

> > > > > Click to find links to info about the Low Oxalate Diet :

> > > > > http://www.facebook.com/note.php?note_id=10150543495292565

> > > > > ------

> > > > > Toni

> > > > >

> > > > > ------

> > > > > Mind like a steel trap...

> > > > > Rusty and illegal in 37 states.

> > > > >

> > > >

> > >

> >

> >

> >

>

>

>

> --

>

--------------------------------------------------------------------------------\

------------

> Click to find info about Vitamins and Minerals:

> http://www.facebook.com/note.php?note_id=10150543521682565

>

--------------------------------------------------------------------------------\

------------

> Click to find links to info about the Low Oxalate Diet :

> http://www.facebook.com/note.php?note_id=10150543495292565

> ------

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

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Posted
Posted

Good thinking. If you troll around pubmed and look up pyridoxine and seizures, you will find some interesting info.

 

I'm beginning to think my son isn't absorbing the B6...I think I will try transdermal! Maybe the P5P. I will look into it! Thanks for the ideas.

> > > > > > >

> > > > > > > B6 causes this (IMO) if you don't have a good balance of other

> > stuff

> > > > > > going

> > > > > > > on. That's why with this as with many other things

> > > > > > > biomed, low and slow is the way to go. Magnesium helps balance

> > it out.

> > > > > > >

> > > > > > > It'd be like not giving b12 because your child gets stimmy. The

> > docs tell

> > > > > > > us to ride it out or have us make adjustments.

> > > > > > >

> > > > > > > My kids have CBS mutation here and I follow a lot of what Yasko

> > does.

> > > > > > > However they are both on high dose B6.

> > > > > > > B6 is vital in making glutathione.

> > > > > > >

> > > > > > > Yasko's Ultimate B does have 7.5 mg B6 in it. It's an excellent

> > product

> > > > > > > otherwise, but we do add more B6.

> > > > > > > We use a sustained release 500mg B6.

> > > > > > >

> > > > > > > Some of our most amazingly good results in biomed have been from

> > B6 and

> > > > > > > magnesium so I do like to speak up for them.

> > > > > > > :-)

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > > > --

> > > > > ----------------------------------------------------------

> > > > > Click to find info about Vitamins and Minerals:

> > > > > http://www.facebook.com/note.php?note_id=10150543521682565

> > > > > ----------------------------------------------------------

> > > > > Click to find links to info about the Low Oxalate Diet :

> > > > > http://www.facebook.com/note.php?note_id=10150543495292565

> > > > > ------

> > > > > Toni

> > > > >

> > > > > ------

> > > > > Mind like a steel trap...

> > > > > Rusty and illegal in 37 states.

> > > > >

> > > >

> > >

> >

> >

> >

>

>

>

> --

> ----------------------------------------------------------

> Click to find info about Vitamins and Minerals:

> http://www.facebook.com/note.php?note_id=10150543521682565

> ----------------------------------------------------------

> Click to find links to info about the Low Oxalate Diet :

> http://www.facebook.com/note.php?note_id=10150543495292565

> ------

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565

------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Amy,Would you mind sharing why biotin was terrible for your child? My son is CBS +- and has gut problems. I started giving him some biotin in attempt to harden his stools a bit. He is acting little weird lately and you made me wonder if it is biotin. Can you please explain a bit. Thanks

Ayse

 

All the magnesium in the world couldn't stop my CBS++ son from crashing on high dose B6. And I did go low and slow. Thankfully, we have him back now that we are following Dr. Yasko. At least I know WHY B6 was not good for him, and why Biotin was terrible as well. It took months to see the effects, but they did eventually catch up to us.

I understand my son is the rare case, which is why he does so well on her protocol, IMHO. I hope I don't sound argumentative, I just cringe when I think how I forgot the golden rule: what's good for one is not good for all.

>

> > **

> >

> >

> > The B6 problem is a Yasko thing, B6 can turn to ammonia and cause kids

> > with a CBS mutation to go bonkers. On B6 my son gets mad, so one day I took

> > a bunch of it myself and guess what? I wanted to kill my husband and was

> > crying like a lunatic. On the flip side my son only talks on high amounts

> > of methyl B-12. So no B6 for our family. :-)

> >

> >

> --

> ----------------------------------------------------------

> Click to find info about Vitamins and Minerals:

> http://www.facebook.com/note.php?note_id=10150543521682565

> ----------------------------------------------------------

> Click to find links to info about the Low Oxalate Diet :

> http://www.facebook.com/note.php?note_id=10150543495292565

> ------

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

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